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Parents of autistic children get answers

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County Hall

County Hall

A LOCAL parent has expressed her concerns and frustration over the provision for education from Pembrokeshire County Council (PCC) for those on the Autistic spectrum. Speaking with The Herald, Lisa O’Sullivan recounted her personal experience with PCC over her son James: “He is clever, but autistic, and cannot mix with peers or indeed people he doesn’t know. He was capable of GCSE’s but he has anxiety issues associated with autism. He went to Bush in September 2011, initially to have 60% in mainstream and 40% in the autism centre, and was fine, but he started attending the autism unit more as he started absconding.

“By October he couldn’t cope and I was attending constant meetings with the school and PCC in order to find a solution. They didn’t understand him, the transition wasn’t done properly, and they weren’t aware James was a ‘runner’ before he went from primary to secondary school. He lasted there until April 2012 and then was pulled out of the school (the school with a dedicated autism centre!) at this point he was at home, with no support and no academic work at all, with no offer of another school (but then why would he when he was already at the autism centre?). He had no books or anything.” After calling every week, Lisa O’Sullivan said she finally had a tutor appointed for her son at the end of the school year in 2012.

She explained that initially he had 7 hours of tuition a week which was recently changed this year to 5, as he now attends a half day at the school. She continued: “He is too stressed to go on his own so I have to go with him. He has come on well with the tutor but he has missed so much school he is now miles behind. Isn’t the specialised unit supposed to know how to deal with pupils like James? I question the idea that he is only entitled to five hours of tutoring a week. What is James supposed to do know he has missed so much schooling?” The Herald spoke exclusively with PCC’s Head of Inclusion, Nichola Jones, who opened her response by defending the autism unit at Bush, and provision generally, as well as the rigorous training available to Pembrokeshire’s education providers for children with ASD: “The needs of youngsters with ASD vary widely, with some youngsters able to lead relatively independent lives whilst others needing a much more intense package of support. Each child’s needs are met individually.

The local authority work with families, schools and young people to put in place the best possible package of provision. The local authority have recently appointed a speech and language therapist to take forward ASD provision together with three outreach support workers. “The team will be fully up and running in January 2014 and will work closely with the specialist communication outreach team consisting of a teacher, three teaching assistants and three speech and language therapists. There are 24 specialist places currently available for children at key stage one and two, and a further 30 places for children and young people at key stage three and four. “The secondary specialist provision will also be providing outreach support to neighbouring secondary schools. The special school provides specialist outreach support and provision for more complex youngsters.

An annual programme of training and development takes place throughout the year to help schools and parents support children and young people with ASD. “The introduction of the ASD friendly school training is being rolled out to all schools providing training in relation to the impact on young people as well as strategies for reducing environmental triggers. The roll out in November of this year of the early screening pack for nursery aged children provides schools with the tools for identifying children whose communication skills are delayed or unusual as well as interventions and where appropriate an onward referral to specialist services. An ASD training and resource pack has also been developed for schools and is being launched in the New Year providing schools with a range of advice, guidance and intervention approaches throughout the key stages.”

She was also keen to point out how PCC were effective in inclusion, stating: “Schools and the Inclusion Service within Education in Pembrokeshire work very hard to ensure that agencies work together to meet the holistic needs of the child wherever possible. Frequently this involves staff speaking to social care, youth workers, sports clubs and the voluntary sector to try and co-ordinate support for young people (with parental and child’s consent where appropriate).” The Herald was also keen to know what the procedure of diagnosis was, given the complaints of many parents that it took simply too long to obtain. Nichola Jones said: “In the past the waiting time for an assessment has been up to five years. This has been reduced considerably in the last year and is currently around 26 months. Early screening tools and a building capacity programme for schools is providing school staff with the right approaches for supporting children and young people who have ASD traits without a formalised assessment.”

She also commented on Lisa O’Sullivan’s concerns about how her son’s transition was handled: “Transition ordinarily takes place through the school ALNCO and for more complex youngsters a key worker is currently employed by the local authority to work with schools, families and the young person to ensure the best possible transition between key stages.” Finally she commented upon the provision of education, once the child has been excluded from mainstream, and though she did not address the meagre 5 hours James O’Sullivan receives, she did say: “The Local Authority has a duty to provide an ‘efficient’ education which meets the age, aptitude and ability of the child in agreement with the parent.” Of concern to parents, may be, the the statistic from the most recent Inclusion Services Annual Report that stated that over 16% of Pembrokeshire families wait for over half a year for a statement. This means that children who go to school in September do not receive a statement until the following March or April.

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Withyhedge Landfill faces political allegations and regulatory enforcement

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STEPHEN CRABB MP has vociferously criticised the Welsh Labour Government for its management of the Withyhedge Landfill in Pembrokeshire, claiming it has turned the area into a “dumping ground” for waste from across Wales. Mr. Crabb, supported by Paul Davies MS, alleges that substantial lorries deliver waste daily to the site, causing significant distress to local residents. The MP has repeatedly written to the First Minister, demanding immediate intervention, yet claims to have received no response.

Compounding the controversy, Mr. Crabb highlighted a substantial £200,000 donation to Vaughan Gething’s recent election campaign from the landfill’s owner, questioning the impartiality of regulatory practices. Despite ongoing political efforts, Mr. Crabb asserts that resolution lies solely with the Welsh Government, which has the ultimate authority to address these grievances.

Meanwhile, Natural Resources Wales (NRW) has escalated its enforcement actions against the site’s operators, Resources Management UK Ltd (RML), amid persistent community complaints about odour and gas emissions. A recent Regulation 36 Enforcement Notice demands a series of remedial actions by RML, with deadlines stretching into May 2024. These measures focus on improving the site’s gas management infrastructure and capping exposed areas to mitigate odour issues.

Huwel Manley, Head of South West Operations at NRW, expressed understanding of the community’s frustration, emphasizing the urgency of the required actions. “We are committed to ensuring RML Ltd. deliver these actions rapidly and effectively. Continued non-compliance will lead to further measures, potentially including a suspension of the environmental permit,” stated Mr. Manley.

Pembrokeshire County Council, represented by Chief Executive Will Bramble, also voiced disappointment over the ongoing issues, affirming full support for NRW’s stringent enforcement steps. The Council and NRW are working closely to monitor the situation and have encouraged the public to report any odour incidents promptly to aid in effective resolution.

As the deadline approaches, all parties involved are under increasing pressure to demonstrate tangible improvements and ensure the health and well-being of Pembrokeshire residents are prioritised.

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Police issue update on the search for Luke, missing from Pembroke Dock

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POLICE have made the difficult decision to end the search for Luke, following a joint decision by all the agencies involved.

The police said: “After careful consideration of all the information and expert advice that has been made available to us, a joint decision has been made by all agencies involved that the search for Luke will now conclude and will consist of intelligence led enquiries in the coming days.

“Whilst this is an extremely difficult decision to make, we are satisfied that we have done absolutely everything we possibly can to try and locate Luke. His family have been informed of this decision and our thoughts remain with them at this difficult time.

“I would also like to reassure the public that in addition to the searches that have taken place at the estuary, a team of Police Officers have been conducting extensive enquiries in Pembroke Dock since Luke was reported missing.”

Meanwhile the family has made a heartfelt plea for any information that might help trace his last known movements.

Emma Dewhurst has issued an urgent appeal for information that could help track her nephew Luke’s whereabouts, last seen in the early hours of Saturday morning. Describing Luke as “jovial, kind, soft, and timid,” she reflects on his vibrant personality and gentle nature, noting his resilience and determination to push forward in life. “He is strong. He didn’t give up easily and kept going in his life,” she affirmed.

The family is reeling from the shock of Luke’s sudden disappearance. “We are all so shocked and upset,” Emma stated. “It’s profoundly distressing.”

In an effort to find Luke, his father has made the long journey from the north of England to Pembrokeshire. The emotional toll is evident, as Emma revealed, “His dad is devastated, and my mum [his grandmother] is in pieces.”

Luke was last recorded by CCTV at 6am, four hours after he left his accommodation. Emma is desperately calling on residents to review their CCTV or doorbell footage, hoping for any clue that might explain his movements during those critical missing hours. “Where has he been in that four hours?” Emma implored. “We need to fill these gaps to piece together the facts.”

She recalls Luke’s last day before he vanished, spent with his mother, ending with future plans unfulfilled. “It isn’t in his nature to just disappear,” she said. “We can’t give up. We all love him, miss him, and want him back safely.”

Emma also expressed a poignant message for Luke, should he be out there, feeling unable to come home: “If you don’t want to come home, at least reach out to someone. Let us know you are okay. That’s what my brother would want.”

If you have any information on Luke’s last known whereabouts, please contact Dyfed-Powys Police at 101, email [email protected], or reach out online at https://orlo.uk/RlB5o. For those wishing to remain anonymous, you can contact the charity Missing People at www.missingpeople.org.uk.

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Labour promises ‘most significant investment in Britain’s ports in a generation’

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LABOUR has said this week that it will “Build it in Britain” with the most significant investment in Britain’s ports in a generation, as part of Green Prosperity Plan to support the creation of 650,000 good jobs across the country.

A Labour Government will “Build it in Britain” Keir Starmer said on Thursday, as he visited the North East of England to highlight Labour’s plans to deliver the most significant upgrade of Britain’s ports in a generation. 

Visiting a port in the North East, Labour Leader Keir Starmer, Shadow Chancellor Rachel Reeves, and Shadow Energy Secretary Ed Miliband will set out how Labour’s £1.8 billion investment in Britain’s port infrastructure will help crowd billions more of private sector investment into the UK’s energy industry.

Labour’s announcement comes after Jo Stevens, Shadow Secretary of State for Wales, visited the Port of Milford Haven in Pembrokeshire last month alongside with Henry Tufnell, Labour’s parliamentary candidate for Mid and South Pembrokeshire, to learn more about the port’s operations and challenges.

After the visit, Shadow Welsh Secretary Jo Stevens said: “Upgrading our ports, like this one here in Milford Haven, can help us seize the golden opportunity we have to become a world leader renewable energy, delivering cheaper bills and the jobs of the future.
 
“But the Conservative government is holding Wales back, with narrow-minded, poorly run investment schemes that leave us lagging behind international competitors.
 
“A UK Labour government will switch on GB Energy to invest in projects that can secure our lead in floating offshore wind, unlocking the jobs and investment that the Tories have left to languish.”

Henry Tufnell, Labour’s candidate in this year’s General Election, added: “Pembrokeshire’s first Labour MP, Desmond Donnelly, was instrumental in the creation of the Port of Milford Haven, transforming Pembrokeshire’s economic fortunes. Today, as in the 1950s, we face a crossroads. We must put our county at the forefront of a new Labour Government’s industrial strategy to build it in Britain.

Labour’s Green Prosperity Plan will secure our energy supply, develop industry, and create good well paid jobs right here in our county. We don’t want the young people of Pembrokeshire to feel they must leave their home county to get on in life. We want to provide opportunity here, and we want to provide it now.”

Labour’s plan for ports will help reverse fourteen years of industrial decline under the Conservatives and support domestic manufacturing across the country. The pledge is funded through Labour’s Green Prosperity Plan, which includes a proper windfall tax on the oil and gas giants making record profits, to fund investment in British industries.Keir Starmer’s announcement comes as Labour confirms that its Green Prosperity Plan will help support the creation of up to 650,000 good jobs in Britain’s industrial heartlands, including here in Pembrokeshire, by crowding billions of private investment into industries such as Britain’s nuclear, steel, automotive, and construction industries. 

The last Labour government led the way on upgrading Britain’s ports, providing funding for the development of port sites to support offshore wind turbine manufacturing. This industrial advantage has been squandered after fourteen years of the Conservatives, with recent research showing the UK could have created almost 100,000 more jobs in the wind industry if it had followed Denmark’s example in recent years and built up domestic supply chains in clean energy.

Speaking ahead of the visit, Labour Leader Keir Starmer outlined the choice facing millions of voters: continued industrial decline after 14 years of Conservative rule, or national economic renewal with Labour, saying:“The legacy of fourteen years of Conservative rule is Britain’s industrial strength reduced to the rubble and rust of closed-down factories. They have let good jobs go overseas and done nothing about it, and every community has paid the price. 

“A Labour government will reindustrialise Britain – from the biggest investment in our ports in a generation, to a British Jobs Bonus to crowd billions of investment into our industrial heartlands and coastal communities.“

The wealth of Britain was once built on a bedrock of industrial jobs that offered security and a good wage. By investing in Britain’s homegrown energy sector, we can rebuild this dream for the twenty-first century- good jobs, higher wages, and the pride that comes from good work for all.”Through policies such as Great British Energy, the National Wealth Fund, and the mission for Clean Power by 2030, a Labour government will invest in technologies like floating offshore wind, hydrogen, nuclear, and carbon capture and storage, which will help secure Britain’s energy independence.

This will create a new generation of skilled jobs in growing industries, which will offer people good wages, give confidence in their job security, and provide them with opportunities to progress. This policy is part of Labour’s Green Prosperity Plan, to cut energy bills for families, make Britain energy independent, and rebuild the strength of British industry.

This historic investment in working people and their communities is the only way out of the high energy bills, energy insecurity, and the doom loop of low growth, high taxes and crumbling public services under Rishi Sunak’s Conservatives.Commenting on Labour’s landmark plan to invest in Britain’s port infrastructure, Shadow Energy Secretary Ed Miliband MP said: “Making Britain a clean energy superpower requires flourishing national ports. Whilst the Conservatives are letting other countries plunder jobs that could be ours here in Britain, Labour has a plan to help win the race for the industries of the future.“

This is what Labour’s Green Prosperity Plan will do for every community in Britain – slash energy bills, create good jobs, boost our national energy independence, and help to tackle the climate crisis.”

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