Connect with us
Advertisement
Advertisement

Health

Locked up for Autism: Thousands detained under mental health law

Published

on

“He didn’t break the law. He just needed help. Now he’s locked in a hospital hundreds of miles away.” — Alun, father of a detained 19-year-old

IN SECURE hospitals across England and Wales, more than 2,000 people with autism or learning disabilities remain locked away under mental health laws — despite never committing a crime.

Many are detained under the Mental Health Act 1983, often after being taken by police during a mental health crisis. The vast majority have no mental illness diagnosis. Some are teenagers. A few have been there for decades.

“It’s a human rights scandal,” said Dan Scorer of Mencap. “They’re being institutionalised because society hasn’t built the support they need.”

Autism is not a mental illness. It is widely recognised that for most autistic people, care in an inpatient unit is rarely helpful – in fact, it can be deeply damaging. 

The average length of stay is around 4.6 years.

The overwhelming majority (92%) of autistic people and people with a learning disability who are detained in hospitals are put there using the Mental Health Act of 1983.

A NEED FOR URGENT REFORM

For years, the National Autistic Society and tens of thousands of campaigners have called for changes to mental health law.

Reform has been promised, and a bill is making its way through Parliament. However, the government will not commit to funding the reforms the legislation will enact. Even then, campaigners say the law change will not end the scandal of detention.

In April, Denise Cavanagh from Hook, a founder of the Stolen Lives campaign, told BBC Wales that she believed people would still be detained via other laws, including the Mental Capacity Act.

She added: “People with learning disabilities often end up in hospitals because there’s a breakdown in housing and community care, and it’s the only place they can go.

“So, if that community care isn’t there, there is nowhere for them to go and they’ll still be detained.”

And even though health is devolved to Wales, the Welsh Government is relying on a Westminster bill to improve how people with learning disabilities and autism are supported during a crisis.

“THEY CAME WITH HANDCUFFS”

Michelle, from Wiltshire, recounts the day her autistic daughter was detained after a meltdown in a supermarket.

“She was 23. She was overwhelmed. She panicked. That’s all. But the police came and took her away. That was three years ago. She hasn’t been home since.”

Michelle’s story is one of many. Some families describe wards where patients are sedated, isolated, and cut off from loved ones.

Bethany – whose surname cannot be published – was locked in a hospital room in Northampton as a teenager. Her only access to the outside world was through a tiny hatch in the door.

Her father, Jeremy, said he could only see his daughter through a plastic screen or through the six-inch hatch.

“It was cruel. It was torture for my daughter,” he said.

“It broke her human rights, her right to family life, her right to freedom from degrading treatment.”

Even now, several years on from Jeremy’s interview on Radio Four regarding Bethany’s treatment, little has changed. In fact, the data shows a worrying trend towards increased detention of those with mental illness or specific learning difficulties.

NO WAY OUT

Official NHS data reveals the extent of the crisis:

Over 52,000 people were detained under the Mental Health Act in April 2024 — the highest figure in five years.

Over 2,000 of those are autistic or have a learning disability.

As of May 2025, 2,025 autistic people and people with a learning disability are in mental health hospitals in England. Of these, 1,455 (72%) are autistic.
There are 240 under-18s in inpatient units who are autistic or have a learning disability. Of these, 230 (96%) are autistic.
The number of autistic people without a learning disability detained in mental health hospitals has increased by 141% since 2015.
This is the most up-to-date record of how many autistic people and people with a learning disability are currently in mental health hospitals in England.
Despite some progress moving people with a learning disability out of hospitals and into the community, the number of autistic people detained has increased. In 2015, autistic people made up 38% of the total number in hospitals, now it is 72%.

Around 60% of learning disability or autism inpatients have no mental illness diagnosis.

Detained patients are often placed in “out-of-area” units, sometimes hundreds of miles from home.

Toni Dymond, an autistic woman, was detained for over 20 years in psychiatric care without a criminal charge.

“She was isolated, broken,” said her brother in a statement. “It wasn’t treatment. It was abandonment.”

34,685 people were detained by police under Section 136 of the Mental Health Act in 2022–23.

Over 60% were transported in police vehicles, not ambulances.

Autistic woman and author of the memoir Unbroken, Alexis Quinn, spent three years “locked inside” various mental health hospitals, including Assessment and Treatment Units (ATU).

She says: “I  was detained under the Mental Health Act and remained so for most of my stay. The Mental Health Act is a piece of legislation which provides a legal framework to detain people when they are mentally ill and require treatment to get better. The interesting thing about a treatment order for an autistic person is that autism is not a mental health condition.

“Whilst mental illnesses, such as depression and anxiety, can be treated, for autistic people, this has to be done in a way that reflects their needs and understands autism.

“When I was detained under the Mental Health Act, I felt like this was because of behaviour relating to my autism, not because I was mentally ill; the whole process lacked any understanding of the difference between autism and mental illness.”

CHANGE PROMISED, BUT NO MONEY ON THE TABLE

The Mental Health Bill, which is currently going through Parliament, will stop people with a learning disability and autistic people from being detained for treatment. However, the government have said that this change to the law will not be enforced until there is sufficient community support. That means the law will not come into effect until there are enough resources to support its operation. There is no commitment to provide that funding.

The Challenging Behaviour Foundation, a national charity, wants a clear plan, co-produced with people with lived experience, families, and those working within the different parts of the system, setting out what steps will be taken to develop this support and accompanied by the resources to make it happen.

The National Autistic Society says: “We are calling on the government to urgently publish a comprehensive and fully-costed plan for how it intends to build this support.” 

So far, that call has been met with silence.

 

Charity

Free London Marathon spaces offered by NHS charity

Published

on

Hywel Dda Health Charities is delighted to announce that it has secured three free charity places for supporters wishing to take part in the TCS London Marathon MyWay 2026 – the virtual version of the world‑famous marathon.

Taking place on Sunday, April 26, the TCS London Marathon MyWay gives participants the freedom to complete the iconic 26.2‑mile distance from any location. Whether running, jogging or walking, entrants have 23 hours, 59 minutes and 59 seconds to finish the challenge. The event must be completed outdoors, but participants can choose any route that suits them.

The virtual marathon is the perfect option for anyone who has always dreamed of taking part in the London Marathon but would prefer a more flexible timeframe, the chance to complete the distance at their own pace and the ability to take part without travelling to London.

Participants will receive a finisher’s T-shirt and medal (optional), a free trial with Coopah, the official training app of the TCS London Marathon and access to the official event tracking app.

In return for one of the limited free places, Hywel Dda Health Charities asks supporters to raise a minimum of £300 in aid of a Hywel Dda service of their choice.

Tara Nickerson, Fundraising Manager for Hywel Dda Health Charities, said: “We’re so excited to offer these special MyWay places to our supporters. The virtual marathon is a fantastic opportunity for people of all abilities to take on an iconic challenge in a way that works best for them.

“Every pound raised will make a meaningful difference to patients and staff across our local NHS services. We can’t wait to cheer on our amazing fundraisers as they take on the 26.2 miles their own way.”

Places will be allocated on a first‑come, first‑served basis. To request a place or find out more, please contact the Hywel Dda Health Charities team via email at [email protected] or by phone on 01267 239815.

 

Continue Reading

Charity

Pembrokeshire farmer warms up for Rome Marathon in fund-raising bid for Parkinson’s UK

Published

on

A retired Pembrokeshire farmer is lacing up his trainers for one of the world’s most iconic marathons, inspired by his family and driven by a cause close to his heart.

On March 22, Steve Ford, 68, will take on the Rome Marathon when he will be running alongside his daughter and son-in-law in what has become a remarkable family endeavour.

Since beginning his training in May 2025, Steve has clocked an extraordinary amount of miles for a first-time marathon runner.  He has covered a staggering 726 miles and has logged no fewer than 130 hours of running.  This includes 34,524 feet of elevation which is more than the height of Mount Everest.

Now, with less than three weeks to go, Steve has just completed one of his longest training runs to date.

He is running in aid of Parkinson’s UK, which is a cause close to his family’s heart, having been personally touched by the condition. To date, he has raised over £4,100, and his family are immensely proud of everything he has achieved.

Parkinson’s is a complex, progressive brain condition affecting more than 153,000 people in the UK. With over 40 symptoms, ranging from tremor and pain to anxiety and depression, and no cure, the need for research and support has never been greater. Someone in the UK is diagnosed every 20 minutes, and by 2050, the number of people living with Parkinson’s worldwide is expected to double to 25 million. Parkinson’s UK funds vital research into new treatments and provides life-changing support services for those affected.

To support Steve and donate to Parkinson’s UK, visit: https://events.parkinsons.org.uk/fundraisers/stephenford/overseas-runs-2026

 

Continue Reading

Health

New seaweed extract shows promising anti-inflammatory and gut health benefits

Published

on

A NEW seaweed extract could have a positive impact on mental health and wellbeing, according to scientists testing it as part of efforts to improve the nation’s health. 

Sourced from seaweed sustainably harvested in the UK, it could offer a new natural remedy for gut health ailments. Seaweed is considered to be a “superfood”, due to its high fibre, amino acids, vitamins and minerals. 

Long recognised in Asia for its therapeutic potential, the seaweed extract fucoidan is now attracting growing interest elsewhere in the world as demand rises for natural compounds with proven health benefits. 

The 12-month INNOSea study focused on producing and trialling a purified extract of fucoidan, marketed as Thalivra, which showed promising effects on digestive health and overall wellbeing. 

 Dr Jessica Adams with seaweed capsules

The first 28-day clinical trial suggested improvements in the mental wellbeing of young adults. The results pave the way for larger-scale testing. 

Scientists at Aberystwyth University’s Department of Life Sciences, alongside researchers at the Institute of Biological, Environmental and Rural Sciences (IBERS) and seaweed ingredient technology company BioMara, developed and conducted the work. 

Dr Jessica Adams, a seaweed expert from IBERS at Aberystwyth University, said: “Many people will have heard of the health and dietary benefits of seaweed – these tests add to that evidence. From a processing and bioactivity standpoint, the data from our study is striking. Achieving food-grade fucoidan at scale with such a potent anti-inflammatory profile is a real breakthrough. It opens the door for Thalivra to be positioned not just as a safe ingredient, but as one with genuine functional potential in gut health and immune-support formulations.” 

The human trial was led by Dr Amanda J Lloyd and Dr Alina Warren-Walker from the Department of Life Sciences at Aberystwyth University. Dr Lloyd added: “This was the first time BioMara’s seaweed extract has been tested in humans, and the results are very encouraging. Participants tolerated the supplement extremely well, and we observed early trends in mental wellbeing that deserve further study. Importantly, the strong safety and retention profile gives us confidence to scale up into larger and different groups, and for longer trial periods.” 

The project was funded by Innovate UK and BBSRC as part of a £2.5 million investment in 13 projects to drive the design and development of innovative food and beverage products. 

Jay Dignan, Founder and CEO of BioMara, said:  “Completing INNOSea marks a turning point. We’ve proven that Thalivra can be produced at scale, is safe for daily use, and shows compelling anti-inflammatory and wellbeing trends. This lays the foundation for larger clinical trials and, ultimately, commercial partnerships to bring Thalivra into gut health and immune-support formulations in a fast-growing global market.” 

Thalivra fucoidan is harvested in Scottish waters and processed into a powder using BioMara’s unique method. It is approved for use as a novel food. 

 

Continue Reading

News14 hours ago

Reform energy policy raises questions for Milford Haven and Celtic Freeport ambitions

PLANS outlined in Reform UK’s Welsh manifesto have sparked debate over how the party’s energy policies could affect the future...

Crime16 hours ago

Man who threatened to kill police during Milford Haven standoff avoids jail

Judge tells defendant his ‘erratic and reckless’ behaviour caused serious disruption to emergency services A MILFORD HAVEN man who threatened...

Crime18 hours ago

Police investigating nightclub assault in Saundersfoot

POLICE are appealing for information following a serious assault at a nightclub in Saundersfoot which left two people with significant...

News1 day ago

Greens oppose US space radar plan for St Davids Peninsula

CANDIDATE CRITICISES DARC PROPOSAL THE GREEN PARTY has voiced strong opposition to plans for a major US military radar installation...

Crime2 days ago

Chinese intelligence probe reaches Dyfed-Powys Police area

Counter-terror officers arrest man in Powys as part of national security investigation THREE men have been arrested in Wales and...

Crime2 days ago

Man sentenced after punching convicted paedophile in Haverfordwest pub

A HAVERFORDWEST man has been sentenced after punching a convicted paedophile inside a town centre pub. Haverfordwest Magistrates’ Court heard...

Health2 days ago

Davies and Kurtz attack ‘fantasy hospital’ pledge for west Wales

Senedd Members demand immediate investment in Withybush and Bronglais as election campaign intensifies SENEDD Members Paul Davies and Samuel Kurtz have launched a fresh...

Health3 days ago

Hywel Dda warns of ‘significant pressure’ as A&E departments remain packed

Patients urged to use NHS 111 as Withybush, Glangwili and Bronglais face continued strain HYWEL DDA University Health Board has...

News3 days ago

War stops Qatar gas: Milford Haven LNG supplies disrupted

UK energy security concerns grow after shutdown at major export facilities ENERGY bills in the UK could rise sharply after...

Community4 days ago

Martyn Butler dies aged 71 months after Haverfordwest visit

Co-founder of Terrence Higgins Trust attended local plaque unveiling honouring friend Terry Higgins A LEADING figure in the UK’s response...

Popular This Week