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Seizure death inspires awareness campaign

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Epilepsy Action UK receives £159,300 from the Big Lottery Fund: Llinos Williams raises awareness for the condition which killed her brother at the age of 18

Epilepsy Action UK receives £159,300 from the Big Lottery Fund: Llinos Williams raises awareness for the condition which killed her brother at the age of 18

THE TRAGIC death of a teenager from an epileptic seizure sparked his sister to support an awareness-raising campaign for his condition.

Llinos Williams spent years trying to come to terms with the tragedy of her brother’s untimely death before she too was diagnosed with the same condition as him.

She reports that her diagnosis made her even more determined to support Epilepsy Action Cymru, who recently welcomed the news that they were chosen to receive £159,300 from the Big Lottery Fund.

The grant money will be used to improve access to information about epilepsy at different stages of care.

30-year-old Llinos Williams from Pwllheli was diagnosed with epilepsy following her having a seizure in her workplace.

The realisation that she’d been diagnosed with such a dangerous condition, especially one which had devastated her family the way it had, shocked her due to the fact that she had absolutely no idea that she was suffering from it.

Llinos said: “One of my brothers, Dylan, passed away after having a seizure when he was just 18-yearsold in 2007. It was such a huge shock to the family as even though we knew he’d had epilepsy for about ten years, we didn’t know that people could die from it.

“I was diagnosed with epilepsy in 2012 after I’d had a seizure in my work place. After visiting my GP I later found out that it had been triggered by an infection.

“I was really scared because I was just thinking about what had happened to my brother, and to add to everything else as well I was scared for my other brother, Carwyn, who had been diagnosed in 2010 too.

“I had no idea that I had epilepsy for a long time, I had no problems at all when I was a teenager but that first seizure turned everything around.”

However, with the support of Epilepsy Action Cymru, Llinos and her family have managed to overcome many of the challenges that they face and are now championing awareness of the condition and helping others to learn more about it.

“Thankfully I’m really healthy now. I was lucky enough to find out about Epilepsy Action Cymru shortly after I was diagnosed and they have been so helpful with getting not just me, but my family to come to terms with my condition.

“Through them I’ve become a volunteer to raise awareness of the condition and give people advice on how to manage it, and have even spoken at conferences about my experience.

“It’s fantastic that the Big Lottery Fund has awarded this money to Epilepsy Action Cymru. The work that they do to help people like me is brilliant, and it’s important to be able to provide that support to as many people as possible.”

Ann Sivapathan, Wales Manager at Epilepsy Action Cymru, said: “We are delighted to receive this grant from the Big Lottery Fund.

“The money will allow us to provide a vital service to the 8,000 people living with epilepsy in Wales in the language they feel most comfortable with.

“We will be able to give accessible support and information, provide a voice for people with epilepsy on important healthcare issues and limit the social isolation felt by some people with epilepsy in this area.

“We believe this role will be a real lifeline for many people living with epilepsy in Wales.”

There are 13 other projects across Wales which have been granted a share of the £3,881,083 ‘People and Places’ funding from the Big Lottery Fund.

Leonard Charity Disability will be using £498,960 to expand their ‘Can Do’ programme from Cardiff, Newport, Swansea and Wrexham into more of Wales.

It is hoped that this expansion will offer 1,200 more young disabled people volunteering opportunities on community projects that will enhance their life skills and levels of independence, and ultimately break down social barriers that they face in day-to-day life.

Michelle Impanni, Senior Programme Coordinator for Can Do in Wales, said “We are delighted we can now develop the programme to reach even more young people across Wales to benefit from this volunteering programme.

“Can Do aims to support and equip our participants with the skills and confidence they need to live their lives fully and participate in society.”

Time to Change Wales, which is a partnership between Mind Cymru, Gofal and Hafal, have managed to secure funding from the Big Lottery Fund to deliver a brand new antistigma campaign for children and young people.

Antony Metcalfe, Programme Manager of Time to Change Wales, stated: “We are delighted to have secured funding from the Big Lottery Fund to deliver a brand new antistigma campaign for children and young people.

“We are really pleased to have the support of schools and teaching professionals across Wales and look forward to working with them to improve the lives of young people.

“It is crucial that action to improve mental health and reduce discrimination starts at a young age and we believe that this campaign will play an important part in this agenda.”

The People and Places programme seeks to award grants of between £5,001 and £1 million for a broad range of different community projects.

Highlighting the importance of this, Rona Aldrich, Wales Committee Member for the Big Lottery Fund, said: “Programmes like People and Places are making a difference to the lives of so many people in communities across Wales.

“It delivers on our promise to use National Lottery funding to regenerate and revitalise communities, tackle disadvantage head on and leave a lasting legacy.”

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Community

Be wary of gulls as breeding season approaches

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AS families across Wales head to the seaside for the bank holiday weekend, a national trade body is urging people to be wary of gulls as their egg-laying season gets underway.

During the breeding season, gulls have been known to launch attacks on people, says British Pest Control Association (BPCA).

After mating and nest-building in February and March, many gulls will be protecting nests and eggs towards the end of April and into May.

However, BPCA is also reminding people that avoiding gulls wherever possible is always the best course of action as interfering with wild birds, their eggs or nests could lead to prosecution.

The Wildlife and Countryside Act 1981 states that all wild birds and their eggs are protected, but people with the appropriate knowledge on licences, such as BPCA members, can take steps if the birds are causing a public health and safety concern.

Natalie Bungay, Technical Manager at BPCA, said: “We love British birds. All wild birds and their eggs are rightfully protected by law in the UK, so it is absolutely vital that holidaymakers, householders or business owners don’t interfere with them.

“However, gulls can pose a serious safety concern. They have been known to attack people unexpectedly, which can be a frightening experience, especially if they draw blood, which can occasionally happen.

“We often think of gulls as a coastal problem – which they can be in seaside towns where people have fed them regularly. But for some time now they have also been an increasing problem in towns and cities away from the coast too.”

Gulls can live for 25 to 30 years and many weigh around 1kg, with wingspans of around one metre.

Seaside visitors can try to avoid attracting gulls by ensuring picnic foods or chippy take-aways are kept covered or eaten out of sight of gulls where possible.

Nesting gulls can cause problems for homes and businesses both on the coast and inland, as well as at supermarkets and hospitals, as these buildings can offer ideal nesting sites which are difficult to access and proof.

Nests can clog gutters or chimneys, which may cause water overflows, or potential issues with carbon monoxide, as well as bringing a risk of secondary infestation from bird mites, ticks, fleas and beetles.

Properties are also at risk from bird droppings, which can carry some harmful bacteria and diseases, as well as even cause slips, trips and falls where they build up.

Natalie added: “Gulls are also protected by the law, so it really is important to seek professional help.

“BPCA members are trained in bird control and will be able to offer a management plan that will alleviate the issue.

“There are a variety of bird-proofing measures available, all of which will deter birds without causing them harm, and as gulls are large and heavy, any proofing measures need to be suitable for the job, very heavy duty and correctly installed by a professional.

“Bird prevention, proofing and control is a highly specialised area requiring specific equipment and techniques. Pest professionals are required to try all reasonably practicable non-lethal bird control methods before they consider lethal control.

“Always consult a BPCA member before considering any form of bird management. You could be prosecuted if you illegally interfere with a bird, its nest or eggs.”

BPCA members are trained, experienced professionals with access to a range of specialist products not available to the public, as well as being regularly assessed to the British Standard in Pest Management BS EN 16636.

BPCA members are also endorsed by the Government via the TrustMark quality scheme.

To find a professional pest controller visit bpca.org.uk/find

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Community

Social housing plans for Cleddau Bridge Hotel site backed

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A SCHEME to build 38 affordable and social housing units on the site of a fire-ravaged former Pembrokeshire hotel has been backed by senior Pembrokeshire councillors.

Pembrokeshire County Council’s Cabinet, meeting on April 22, supported a contract with developer Castell Group Ltd for the mix of affordable homes and social housing units at the Cleddau Bridge Hotel site, Pembroke Dock.

Members, in a report presented by Cabinet Member for Planning & Housing Delivery Cllr Jon Harvey, heard Castell had approached the council’s housing service to determine whether there is an interest in working with them to bring forward the development as a social/affordable housing site.

Castell Construction Ltd specialises in the construction of affordable / social housing, typically for registered social landlords across south Wales, and hopes to build 12 one-bedroom flats, 15 two-bed houses, five three-bed, two four-bed, and four two-bed bungalows.

The development package would be part-funded from the housing revenue account, the remainder from the Social Housing Grant and/or second homes premium for affordable housing if it becomes available for the Housing Service to use in this manner.

Cllr Harvey – who moved approval – said the scheme was expected to provide £230,000 a year in rentals income, describing it as “an excellent opportunity to work with a proven developer for extra social housing in an area of proven need.”

Deputy Leader Cllr Paul Miller said he was supportive of the scheme, as was local member Cllr Joshua Beynon, saying: “It’s a bit of an eyesore at the moment, if we can bring this site back into meaningful use, and in an area where there is a need, I’m all in support of this.”

Members backed senior officers be delegated powers to enter into the works contract, and to have powers to proceed with the land acquisition.

If a subsequent planning permission is secured for the site, the homes could be built by autumn 2026.

In a prime location at one of the entrances to Pembroke Dock, the former Cleddau Bridge Hotel has been derelict since a fire in March 2019, which brought emergency services from as far afield as Ammanford, Aberystwyth and Swansea.

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Community

County Hall to offer space for community banking

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A CALL for Pembrokeshire County Council to potentially change its banking arrangement with Barclays, after it closed its Haverfordwest branch has been turned down, but County Hall is to offer space for community banking.

Barclays Bank, on the town’s High Street, is to close on May 10.

The council has had a banking services contract with Barclays since 2013.

Councillor Huw Murphy, in a notice of motion heard by Pembrokeshire County Council’s Cabinet meeting of April 22, asked the council to review its banking arrangements with Barclays following the announced closure.

e said the loss of a branch “not only impacts upon town centres and businesses but also disproportionately impacts the elderly who are less likely to embrace on-line banking options”.

A report for Cabinet members said, in terms of the impact on Pembrokeshire residents, Barclays has said that it is “not leaving Haverfordwest and [will] continue to provide face-to-face support for those who need it” via community locations.

Two options were presented to Cabinet: to retender the banking services contract, and, the favoured, to work with Barclays to ensure a community location is set up in Haverfordwest.

Members heard the costs associated with moving to a new banking service provider could be in excess of £50,000.

For the second, favoured option, members heard Barclays was in discussions with the council about a location for potential community banking.

Cabinet Member for Corporate Finance Cllr Alec Cormack, after outlining the risks in the report for members, and moving the notice be not adopted, said he had “considerable sympathy” with Cllr Murphy’s notice.

He told councillors there was a glimmer of light for banking arrangements in the county, with an agreement now signed for two ground floor rooms at County Hall, Haverfordwest, to be used for community banking.

From April 25, the rooms will be available on Wednesdays, Thursdays, and Fridays, members heard.

Cabinet Member for Planning & Housing Delivery Cllr Jon Harvey also said he had “a lot of sympathy” for the motion, adding: “It’s excellent news a deal has been struck to occupy the ground floor rooms three days a week; hopefully this will mitigate, to a certain amount, the closure.

“If we can work with the respective banks to get a community-type approach let’s move forward.”

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