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Tenby mum urges others to join health research project

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Tracey Evans: Urging others to take part in the health project

A TENBY MOTHER who suffers from psoriatic arthritis has joined a unique health research project in Wales to fight against major diseases and is urging others to do the same.

Tracey Evans, 44, has signed up to HealthWise Wales, a flagship Welsh study aiming to better understand the health and wellbeing of the nation, to help people feel more informed and less isolated when it comes to battling serious health problems.

People aged 16 and over and living in Wales are being asked to take 10 minutes to complete an online survey as part of HealthWise Wales, a project led by Cardiff and Swansea Universities and backed by the Welsh Government.

It is the first scheme in Wales to build a picture of future health needs. It collates detailed health and wellbeing information from people of all ages and backgrounds.

This information will then be used to plan future health services and invite people to take part in further relevant health research on specific conditions and their management and treatment.

Former legal secretary Tracey has suffered from the auto-immune disease psoriasis since she was 14 and arthritis since she was 18. Every month, Tracey has to have biological therapy in the form of an injection.

However, a side effect of the treatment is that it can mask other medical illnesses and, in 2016, Tracey nearly died after her gallbladder became infected and was on the verge of sepsis.

Due to the severity of the condition, Tracey had to have an eight-hour operation to remove her gallbladder and she was told by doctors that she would not have survived the weekend without the operation.

Tracey said: “When my illnesses flare up, which normally happens every six months or so, it’s so severe that I can barely leave the house. The last three years have probably been the worst but luckily my family and friends are hugely supportive – they’ve even helped spoon-feed me my Christmas dinner when I was too ill to feed myself.

“I’m on morphine and steroids every day and I had several toes amputated a few years ago. It affected my walking but I always use a stick anyway, to help with balance and I have a wheelchair at home for when I have a really bad spell.

“When I was first diagnosed as a teenager, I didn’t know anything about my illness. Over the years, I have discovered a lot but it’s been a long process so I want to share my information to hopefully help the next generation. Furthermore, my condition can be hereditary so I keep a close eye on my children, but signing up to the HealthWise Wales survey is just another way I can play a part in their futures.

“I filled in the initial form a few months ago and would be more than happy to help with further research.”

Those who register at www.healthwisewales.gov.wales will be contacted every six months to complete questions about their health and lifestyle and wellbeing, so that researchers can track changes in health and study how to prevent the onset of ill-health, treat and manage a range of health conditions. In addition, participants will also be contacted about new research studies that they can take part in if they wish to do so.

To find out more and to complete the survey, visit www.healthwisewales.gov.wales, or call the HealthWise Wales team on 0800 9 172 172/02920 768 090 between 8.00am and 7.00pm, Monday to Friday.

 

Charity

Toy Story fans fill charity toy box at Haverfordwest cinema

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Donations pour in for SNAP Specialist Play as families embrace Toy Story 5 launch

A TOY STORY-themed charity appeal at a Haverfordwest cinema has got off to a flying start, with families donating toys to support children with additional needs across Pembrokeshire.

The Palace Cinema has teamed up with local charity SNAP Specialist Play to collect new and pre-loved toys during screenings of the newly released Toy Story 5.

The appeal centres around an “Andy’s Toys” donation box, inspired by the beloved Pixar films, which has already been filled by generous filmgoers.

Toy Story magic: The Palace Cinema foyer has been transformed with themed decorations to celebrate the film’s release

Cinema manager Hannah Cramp said the response from the community had exceeded expectations.

Families attending opening screenings have arrived carrying bags of toys, with many children keen to share their own treasured items to help others.

The cinema has transformed its foyer into a colourful Toy Story-themed experience, complete with hand-painted decorations, character silhouettes, bunting and famous film slogans including “Reach for the Sky” and “To Infinity and Beyond”.

Many visitors have also embraced the spirit of the occasion by attending in costume as their favourite Toy Story characters.

Specialist support: SNAP’s sensory facilities help children with additional needs learn and develop through play

The toys are being donated to SNAP Specialist Play, a charity based within the Child Health Department at Withybush Hospital.

SNAP supports pre-school children with additional and complex needs through specialist play sessions designed to encourage communication, physical development and sensory learning.

Its facilities include sensory rooms, therapeutic play spaces and bespoke equipment used by speech and language therapists, occupational therapists and physiotherapists.

Project manager Cindy Jenkins said the charity was delighted by the partnership and grateful for the generosity shown by local families.

She said every toy donated would be put to good use, either during specialist play sessions, at family events, or through seasonal initiatives such as Christmas gift boxes for children and their siblings.

The appeal will continue until mid-July, with organisers hopeful that even more donations will be received over the coming weeks.

Anyone attending Toy Story 5 at the Palace Cinema is invited to bring along a new or good-quality pre-loved toy to support the appeal.

Toy Story magic: The Palace Cinema foyer has been transformed with themed decorations to celebrate the film’s release

Cover photo:

Fancy dress fun: Palace Cinema manager Hannah Cramp helping launch the Toy Story charity appeal.

 

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Health

Medicine shortages now ‘most severe on record’, health leaders warn

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PATIENTS are facing some of the worst medicine shortages ever seen in the UK, with pharmacists warning the situation now poses a serious risk to safety.

The National Pharmacy Association said shortages affecting commonly used medicines are becoming more frequent, lasting longer, and causing increasing disruption for patients, GP surgeries and pharmacies.

The warning comes as Serious Shortage Protocols for Creon, used by people with pancreatic cancer and cystic fibrosis to help digest food, have been in place since May 2024 and have now been extended until July 10, 2026.

HRT treatment Estradot has also been under a Serious Shortage Protocol since December 2024, with the current extension also running until July 10.

Patients travelling between pharmacies

A survey by the National Pharmacy Association found that 98 per cent of pharmacies had encountered patients who had visited several pharmacies in one day to find a prescription.

It also found that 96 per cent of pharmacies believed the current situation posed a serious risk to patient safety, while 89 per cent said they had been unable to dispense a medicine at least once a day because of supply problems.

Some pharmacy teams have also faced anger and abuse from patients unable to obtain medication.

Olivier Picard, Chair of the National Pharmacy Association, said: “Medicine shortages are becoming more frequent, lasting longer and causing increasing disruption for patients.

“These shortages are some of most severe the UK has experienced.

“It is deeply distressing to find patients who have travelled from pharmacy to pharmacy to find the medicines they need without success.”

Calls for urgent taskforce

The NPA is calling on the government to convene an emergency taskforce involving manufacturers, wholesalers, clinicians and pharmacists.

It also wants changes to rules which currently stop pharmacists from making simple substitutions, such as changing a tablet to a capsule or a cream to an ointment, even where a safe alternative is available.

Professor Victoria Tzortziou Brown, President of the Royal College of GPs, said medicine shortages were frustrating for patients, GPs and pharmacists, and added pressure to already stretched services.

She said the College supported pharmacists being able to make limited changes to prescriptions where a medicine is unavailable and a safe alternative exists.

She added: “The most important thing is that patients are able to access the medication they need safely and without delay.”

The Cystic Fibrosis Trust and Pancreatic Cancer UK have also raised concerns about the impact of shortages of pancreatic enzyme replacement therapy, including Creon, on people who rely on the medication to digest food, maintain weight and stay well enough for treatment.

 

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Crime

Spittal man to stand trial accused of ABH

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A SPITTAL man is to stand trial accused of assaulting a man and causing actual bodily harm.

Robert Hedley, 41, of Wesley Way, Spittal, Haverfordwest, is charged with assaulting Liam Morley-Trivett at St Clears on August 30, 2025.

The case was before Haverfordwest Magistrates’ Court on Thursday (Jun 18).

Hedley was granted unconditional bail and is due to stand trial at the same court on Monday, June 29.

The trial is listed for 10:00am and has been given a time estimate of twenty minutes.

 

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