Community

Brave Teddy highlights need for ‘Gift of Life’

Published

9 years ago

May 13, 2015

Adam Hughes: Just after his transplant.

FOR Jess Evans and Mike Houlston from Cardiff, the birth of twin boys Teddy and Noah on April 22 2014 was one of both heartbreak and hope. Teddy was born with a rare yet fatal condition – anencephaly – but his parents were determined his short life would not be in vain. Once the diagnosis was confirmed during pregnancy, the parents discussed and wanted, if possible, for his organs to be donated. The family managed to spend precious time with him before he passed away and Teddy became the youngest organ donor in the UK. In the last ten years, 39 babies younger than two years old have become organ donors helping to save the lives of strangers.

As his twin Noah celebrated his first birthday the family used the anniversary to mark the occasion when his brother Teddy became a hero. His kidneys were transplanted to help save the life of another person.

Jess, 28, said: “Knowing that part of your loved one is living on in someone else is comforting. If it stops any other person going through the same thing then this can only be good. Teddy´s life had a very important role to play. Unless you have been through the same thing or know someone affected it´s hard to understand how important organ donation is.”

Mike, 30, added: “We want Teddy´s story to inspire others and help break any taboos people might still hold regarding organ donation. Organ donation wasn´t prominent in my life growing up and while I was up for it I never got round to doing anything about it. I´m sure there are many more men like me who think the same! I want to spread the word as much as possible about how organ donation saves lives, and that we should all speak to each other about our wishes. Without that discussion it is a very difficult conversation to have when it comes out of the blue. Put simply, you should ask yourself the question “Would you take an organ if you needed it?” Everyone would do so if the truth were told so we hope what Teddy did can educate people and prompt them to get talking.”

April 22 2015, the one year anniversary of Teddy’s heroism, was also a personal milestone for myself, it marked six months to the day since I received my kidney transplant and got to experience first hand the ‘gift of life’. In April 2013 I was admitted to hospital with symptoms of cramps, breathlessness, headaches, nosebleeds and chest pains. A simple blood pressure test at the doctor’s surgery had indicated a blood pressure reading of 230/170, high by anyone’s standards, but stratospheric for a 25 year-old.

This was the start of a three week stay in hospital. I had suffered Chronic Renal Failure, my blood readings were so dangerously unbalanced that I was told I may not have survived a fortnight longer. My blood pressure had been so high for so long that my heart’s muscular walls had doubled in size, I was seriously ill. Although I knew I hadn’t been feeling right for a few months, my decline from being a fit and healthy individual to being registered on the transplant waiting list was swift.

For nearly two years I was in a daily routine of medications, injections and ten hours of dialysis which took place overnight. I was unable to eat almost all of the food I liked and travel, which had been one of my main interests, was made almost impossible through the sheer amount of equipment and supplies I would have to take with me in order to survive.

For me the only option was a transplant and with an average waiting time for a kidney of between three and five years I was incredibly fortunate to have received a match in just under two years. I am one of the lucky ones and the need for donors has never been more urgent. More than 8,000 people in the UK need an organ transplant. Despite the huge advances in medicine and the great success of transplant operations, people are still dying while waiting.

There is a critical shortage of organs and the gap between the number of people waiting for a transplant and the number of organs donated is increasing. One donor can save the life of several people, restore the sight of two others and improve the quality of life of many more. The more people who pledge to donate their organs and tissue after their death, the more people stand to benefit.

In a recent survey 90% of people said they supported organ donation and almost everyone would accept a transplant if they or their loved one needed one. Yet only a third of people in the UK have registered to be an organ donor. Last year, over 40% of families refused to allow organ donation to go ahead, sometimes even when their loved one was a registered donor.

In September 2013 the Welsh Assembly passed what it described as it’s ‘most significant’ legislation to date. From December 1, Wales will be the first UK country to introduce a soft opt-out system for organ and tissue donation. The new law aims to make it easier for people in Wales to become organ donors. From this date, if you have not registered a decision to opt-in or opt-out of organ donation, you will be treated as having no objection to being an organ donor. This is called deemed consent. Thus meaning that if you did not want to donate your organs then you would have to ‘opt-out’.

In 2012/13, 36 people died in Wales whilst waiting for an organ transplant as a donor could not be found. In 2011/12 30,000 people died in Wales. Around 250 of these died in a way that would have allowed them to become a potential organ donor. But only 67 people became organ donors. Through the ‘opt out’ legislation it is hoped that waiting times for people requiring organ transplants and the number of preventable deaths can be reduced significantly.

It is rare for families to be in the awful situation where their loved one could be a potential donor. In 43% of cases where organ donation is possible, families say no to donation because they don’t know whether their loved one wanted to be a donor. When the new system is in place, families will know their loved one could have opted out if they didn’t want to be a donor. Therefore by proceeding with organ donation, they can be reassured that they are carrying out the decision of their loved one.

The law will mean if you support organ donation but simply haven’t got around to signing the Organ Donor Register, you won’t need to. As someone who has experienced first hand the positive impact organ donation can have upon a person’s life, the law change is an extremely positive move. Despite this I would still encourage people to sign up to be an organ donor. My message is a simple one: if you would accept an organ, surely you should be prepared to be a donor. Sign up to the NHS Organ Donor Register and tell your relatives that you want to donate. You can do this online by following the links on http://www.organdonation. nhs.uk or by calling 0300 123 23 23.

Community

Social housing plans for Cleddau Bridge Hotel site backed

Published

4 hours ago

April 23, 2024

Bruce Sinclair Local Democracy Reporter

A SCHEME to build 38 affordable and social housing units on the site of a fire-ravaged former Pembrokeshire hotel has been backed by senior Pembrokeshire councillors.

Pembrokeshire County Council’s Cabinet, meeting on April 22, supported a contract with developer Castell Group Ltd for the mix of affordable homes and social housing units at the Cleddau Bridge Hotel site, Pembroke Dock.

Members, in a report presented by Cabinet Member for Planning & Housing Delivery Cllr Jon Harvey, heard Castell had approached the council’s housing service to determine whether there is an interest in working with them to bring forward the development as a social/affordable housing site.

Castell Construction Ltd specialises in the construction of affordable / social housing, typically for registered social landlords across south Wales, and hopes to build 12 one-bedroom flats, 15 two-bed houses, five three-bed, two four-bed, and four two-bed bungalows.

The development package would be part-funded from the housing revenue account, the remainder from the Social Housing Grant and/or second homes premium for affordable housing if it becomes available for the Housing Service to use in this manner.

Cllr Harvey – who moved approval – said the scheme was expected to provide £230,000 a year in rentals income, describing it as “an excellent opportunity to work with a proven developer for extra social housing in an area of proven need.”

Deputy Leader Cllr Paul Miller said he was supportive of the scheme, as was local member Cllr Joshua Beynon, saying: “It’s a bit of an eyesore at the moment, if we can bring this site back into meaningful use, and in an area where there is a need, I’m all in support of this.”

Members backed senior officers be delegated powers to enter into the works contract, and to have powers to proceed with the land acquisition.

If a subsequent planning permission is secured for the site, the homes could be built by autumn 2026.

In a prime location at one of the entrances to Pembroke Dock, the former Cleddau Bridge Hotel has been derelict since a fire in March 2019, which brought emergency services from as far afield as Ammanford, Aberystwyth and Swansea.

Community

County Hall to offer space for community banking

Published

5 hours ago

April 23, 2024

Bruce Sinclair Local Democracy Reporter

A CALL for Pembrokeshire County Council to potentially change its banking arrangement with Barclays, after it closed its Haverfordwest branch has been turned down, but County Hall is to offer space for community banking.

Barclays Bank, on the town’s High Street, is to close on May 10.

The council has had a banking services contract with Barclays since 2013.

Councillor Huw Murphy, in a notice of motion heard by Pembrokeshire County Council’s Cabinet meeting of April 22, asked the council to review its banking arrangements with Barclays following the announced closure.

e said the loss of a branch “not only impacts upon town centres and businesses but also disproportionately impacts the elderly who are less likely to embrace on-line banking options”.

A report for Cabinet members said, in terms of the impact on Pembrokeshire residents, Barclays has said that it is “not leaving Haverfordwest and [will] continue to provide face-to-face support for those who need it” via community locations.

Two options were presented to Cabinet: to retender the banking services contract, and, the favoured, to work with Barclays to ensure a community location is set up in Haverfordwest.

Members heard the costs associated with moving to a new banking service provider could be in excess of £50,000.

For the second, favoured option, members heard Barclays was in discussions with the council about a location for potential community banking.

Cabinet Member for Corporate Finance Cllr Alec Cormack, after outlining the risks in the report for members, and moving the notice be not adopted, said he had “considerable sympathy” with Cllr Murphy’s notice.

He told councillors there was a glimmer of light for banking arrangements in the county, with an agreement now signed for two ground floor rooms at County Hall, Haverfordwest, to be used for community banking.

From April 25, the rooms will be available on Wednesdays, Thursdays, and Fridays, members heard.

Cabinet Member for Planning & Housing Delivery Cllr Jon Harvey also said he had “a lot of sympathy” for the motion, adding: “It’s excellent news a deal has been struck to occupy the ground floor rooms three days a week; hopefully this will mitigate, to a certain amount, the closure.

“If we can work with the respective banks to get a community-type approach let’s move forward.”

Community

Little and Broad Haven RNLI to feature in Saving Lives at Sea

Published

23 hours ago

April 22, 2024

Design Team

RNLI/Denys Bassett-Jones

As the Royal National Lifeboat Institution (RNLI) marks 200 years of lifesaving, the volunteer lifeboat crew of Little and Broad Haven are set to take to the nation’s television screens on Tuesday 30 April as they feature in the ninth series of Saving Lives at Sea on BBC Two and iPlayer.

The new series comes in the wake of an incredible milestone for the RNLI, as the charity marked two centuries of lifesaving on 4 March 2024.

After a special first episode which took a closer look at RNLI crews’ involvement in the Second World War, nine further episodes in the series focus on the lifesaving work of today’s lifeboat crews and lifeguards, featuring footage captured on helmet and lifeboat cameras including Little and Broad Haven RNLI.

Viewers will be able to watch dramatic rescues as they unfold through the eyes of RNLI lifesavers, as well as meeting the people behind the pagers and hearing from the rescuees and their families who, thanks to the RNLI, are here to tell the tale.

This forthcoming episode, on Tuesday 30 April sees Little and Broad Haven RNLI tasked alongside St. Davids lifeboat to a mayday call for a capsized dinghy with three people in the water near Newgale Beach. The episode will also show rescue stories from fellow lifeboat crew volunteers at other stations and beaches around our coasts.

Andrew Thomas, Helm of the Little and Broad Haven lifeboat crew featured in the forthcoming episode, says: ‘The shout out to Pointz Castle is a great opportunity for the public to witness how our small community lifeboat station in Pembrokeshire operates.

‘It’s unusual to have the opportunity to work alongside so many other rescue services, including a local fishing boat who responded to the mayday call. A successful outcome to any shout is always a positive one. The sea can catch anybody out.’

Michael Bool, one of the volunteer crew on that rescue says: ‘The shout was an opportunity to put many aspects of our training into practice, alongside other RNLI assets. As volunteer crew we put the time and effort into training to be on call to assist others when in difficulty at sea, and this shout was a good example of why we do it.

‘Saving Lives at Sea gives an insight into why the RNLI is such an important service for coastal communities and visitors, both in terms of education and rescue when required. It was great to be invited to show some of what we do in Little and Broad Haven’.

Another volunteer crew member on that day, Gareth Light, says: ‘This was a great example of why the RNLI is such a valuable service and even better that everyone got to go home safely. Filming with Saving Lives at Sea was a great opportunity to give the general public a look at our lives and experiences as volunteer crew for the RNLI.’

Filming took place over the past year, with lifeboat crews and lifeguards carrying special cameras and welcoming film-makers into their day-to-day lives on the coast. Rescues from the RNLI archives are also revisited, and we get a glimpse into the everyday lives of the thousands of men and women who give up their time to save lives at sea.

Saving Lives at Sea is broadcast at 8pm on Tuesdays on BBC Two and iPlayer.

RNLI media contacts
For more information please contact Denys Bassett-Jones, RNLI volunteer Lifeboat Press Officer on Denys[email protected].

Alternatively you can contact Claire Fitzpatrick-Smith, Regional Communications Manager on [email protected] or 07977 728315, or contact the RNLI Press Office on 01202 336789.

Little and Broad Haven RNLI crew with St.Davids Lifeboat

Key facts about the RNLI

The RNLI charity saves lives at sea. Its volunteers provide a 24-hour search and rescue service around the United Kingdom and Republic of Ireland coasts. The RNLI operates 238 lifeboat stations in the UK and Ireland and more than 240 lifeguard units on beaches around the UK and Channel Islands. The RNLI is independent of Coastguard and government and depends on voluntary donations and legacies to maintain its rescue service. Since the RNLI was founded in 1824, its lifeboat crews and lifeguards have saved over 142,700 lives.

Learn more about the RNLI

For more information please visit the RNLI website or Facebook, Twitter and YouTube. News releases, videos and photos are available on the News Centre.

Contacting the RNLI – public enquiries

Members of the public may contact the RNLI on 0300 300 9990 (UK) or 1800 991802 (Ireland) or by email.