Health
18,000 families ‘struggling in silence’ due to lack of dementia diagnosis
AROUND 18,000 people living with dementia in Wales do not have a diagnosis, leaving families struggling to cope without support and treatment, Senedd Members warned.
Mabon ap Gwynfor said Wales has the lowest rate of diagnosis in the UK at 56%, warning that dementia is one of the biggest causes of death in the country.
Plaid Cymru’s shadow health secretary paid tribute to Terry Griffiths, the former snooker world champion from Llanelli, who died on Monday following a long battle with dementia.
Mr ap Gwynfor raised an estimate from Alzheimer’s Society Cymru of a 37% increase in the number of people living with dementia by 2040 due to an ageing population.
He told the Senedd that dementia costs the Welsh economy £2.3bn a year, which is expected to double to £4.6bn by 2050 if services do not improve.

Leading a debate on a Plaid Cymru motion calling for diagnosis targets, Mr ap Gwynfor said: “Around 18,000 people are left to cope without the support and treatment they need.
“That’s 18,000 individuals and 18,000 families struggling in silence, without knowing what to do or where to turn. The situation is even worse in rural areas, such as Powys.”
Gareth Davies warned dementia is Britain’s biggest killer, yet spending on diagnosis makes up less than 1.4% of UK health care expenditure, “which seems a staggering oversight”.
He said families are shouldering 63% of dementia-related costs, according to Alzheimer’s Society, with the average bill standing at £29,000 a year rising to £80,000 or more.
His Conservative colleague Altaf Hussain, a former surgeon, focused on alcohol-related dementia and brain damage, warning it is difficult for GPs to identify.
Delyth Jewell said her grandma Doreen, who lived to be 100, had dementia.
She told the Senedd: “The cruellest thing about dementia is how bewildering it is for the person going through it. My parents would visit my grandma. They’d call her multiple times each day. But she’d forget that they’d been.

“She’d think that they’d forgotten her. I remember her calling my parents’ house one day, and I’d answered the phone, and she’d asked me, ‘Why is it that I can’t do all the things I used to do?’ and she wished that she could walk and walk.
“She’d get frustrated, she’d be lonely and she couldn’t understand why it was happening.”
Ms Jewell, who represents South Wales East, said diagnosis rates are stubbornly low at 60% in the Aneurin Bevan health board and “there’s still no dementia plan for Gwent”.
Heledd Fychan, a fellow Plaid Cymru Senedd Member, called for greater support for Welsh speakers living with dementia, warning their needs are too often disregarded.

Mike Hedges, who represents Swansea East, said: “Increasing diagnosis rates across Wales is vital to enable people … to take control of their condition and live independently for longer.
“This supports people to stay out of hospital and in their own homes, relieving pressure on our health and care system.”
Responding to the debate on December 4, Sarah Murphy told the Senedd an independent evaluation of the Welsh Government’s dementia action plan will be published in early 2025.
The mental health minister, whose responsibilities include dementia, said the final report will inform a refreshed plan that will include new targets for diagnosis.

She said: “Ensuring people’s lived experience is at the heart of the development of services is very important to me, and I am committed to the development of robust diagnosis data.”
While the Plaid Cymru motion was defeated, 27-25, a version amended by the Conservatives and the Welsh Government was agreed unanimously.
Charity
Local St John Ambulance cadets confirmed national first aid champions
ST JOHN AMBULANCE is proud to share that three local St John Ambulance cadets have been crowned National First Aid champions after competing against eight other cadet teams representing counties across Wales.
The team, comprising Emily Williams (Yr 10, Ysgol Bro Gwaun), Ruby Collins (Yr 10, Ysgol Henri Tudor), and Gemma Tilbury (Yr 11, Ysgol Henri Tudor) represented the whole of Dyfed, and demonstrated exceptional skill, teamwork, and composure throughout three demanding rounds.
The competition consisted of a first aid knowledge quiz and exam, followed by a practical skills challenge assessing communication, teamwork, and the ability to perform under pressure—an area in which they excelled. The final round featured a complex, theatrically produced first aid scenario. Here, the team showed remarkable calm and professionalism as they stabilised a casualty with a severe compound bleed involving a large object lodged in the wound. They also managed distressed and aggressive members of the public, and successfully resuscitated an unresponsive, non-breathing casualty using CPR and a defibrillator—all completed in record time.
In Pembrokeshire, cadets train every Monday evening during term time from 5:45–7:15pm, with sessions focussing on practical, hands-on learning of real-life first aid skills, including CPR, defibrillator use, treatment of severe wounds, allergic reactions, choking, strains and sprains, head injuries, heart attacks, hypothermia, and much more. Training is engaging and interactive, often involving active, game-based learning, ensuring there is rarely a dull moment.
Cadets also have the opportunity to support a wide range of events delivered by St John Ambulance Cymru. Working alongside adult volunteers and healthcare professionals, they engage with the public at events of all sizes, applying their skills in real-world, and sometimes life-saving, situations.
Beyond events, cadets are encouraged to share their knowledge within the community, helping to lead first aid demonstrations and inspire others. Previous outreach has included sessions with Scouts, Cubs, Brownies, and Girlguiding groups, as well as senior community organisations such as the Pembroke Lions and specialist charities like Pembrokeshire People First. On a larger scale, cadets played a key role in organising and delivering “Defibruary,” where they helped lead a team of St John first aiders to train over 950 students at Henri Tudor in a single day in February 2026.
If you are interested in volunteering, opportunities are available for cadets aged 11–16 and adults aged 16+. We are always keen to welcome new members and are happy to discuss opportunities for adults to support the cadet programme as youth leaders.
To find out more visit https://www.sjacymru.org.uk/volunteer
Charity
Paul Sartori receives generous support from the James Tudor Foundation
Paul Sartori Hospice at Home is celebrating a major support package from The James Tudor Foundation thanks to an unrestricted grant to help fund the charity’s vital end-of-life care services throughout the county.
The £46,364 grant award ill be paid over three years.
Commenting on the windfall, the new Chief Executive Officer, Laura Hugman, said, “At a time where funding and funding partnerships are challenging, we’re very grateful to The James Tudor Foundation in helping us achieve our aims and passion for supporting and bringing reassurance to the local families who need us.”
Paul Sartori Hospice at Home provides an holistic approach to end-of-life care, which encompasses home nursing, equipment loan, complementary therapies, bereavement and counselling support, physiotherapy, future care planning, and training. The team provides thousands of hours of day and night respite care each year, ensuring that patients can receive the support they need, complementing the statutory provision within the comfort of their own homes.
Judith Williams, Grant Development Officer at Paul Sartori Hospice at Home, expressed the charity’s gratitude: “We’re incredibly thankful to The James Tudor Foundation for their continued generosity. Their support helps us maintain our nursing service, which is a lifeline for many families facing end-of-life care challenges.”
Paul Sartori Hospice at Home offers a comprehensive range of services to individuals with life-limiting illnesses, ensuring they can be cared for at home with dignity, independence, and comfort.
Health
FOI raises fresh questions over plan to close Pontyates GP surgery
Health board accused of misleading claims over recruitment as pressure mounts ahead of final decision
A FREEDOM of Information disclosure has raised serious questions over plans to close Meddygfa’r Sarn in Pontyates, with claims the health board failed to properly attempt to recruit permanent doctors before recommending its shutdown.
The row centres on Hywel Dda University Health Board, which is due to make a final decision on the surgery’s future later this month.
An FOI response reveals that while the board cited a “lack of recruitment interest” in its January report, there is limited evidence of any recent, targeted recruitment campaign specifically aimed at the Pontyates practice.
Instead, the board confirmed that salaried GP roles were advertised in 2020 across its wider portfolio of managed practices — rather than as a focused effort to fill posts at Meddygfa’r Sarn itself. Those vacancies did not result in successful appointments.
‘No real attempt’
Independent Senedd candidate Carl Peters-Bond, who is also a patient at the surgery, has strongly criticised the health board, accusing it of presenting a misleading picture to justify closure.
He said: “They cited a lack of recruitment interest as justification for closing this surgery — but they never actually ran a proper recruitment campaign for it.
“Sending out general adverts years ago is not the same as making a serious, targeted effort to keep a vital community service alive.”
He also raised concerns about the consultation process, claiming it focused on the impact of closure rather than asking whether closure should happen at all.
Fully reliant on locums
The FOI confirms that Meddygfa’r Sarn currently has no salaried GPs and is entirely dependent on locum doctors.
While the health board says this model is unsustainable in the long term, the same disclosure shows several other managed practices across the region also rely heavily on locum staff — some to a significant degree.
Cost data included in the response suggests Meddygfa’r Sarn is not the most expensive practice per patient within the health board’s area.
Alternative options unclear
Another key issue raised by campaigners is the apparent lack of explored alternatives.
The FOI response indicates that the health board does not hold information on alternative local solutions, including potential relocation or different service models within the Pontyates area.
Campaigners argue this suggests closure was considered before all options had been properly examined.
A 52-page independent report submitted as part of the consultation process states that dispersing patients to other surgeries should only be considered as a last resort, after full recruitment efforts and capacity assessments have been carried out.
Health board position
Hywel Dda University Health Board maintains that the surgery, which serves around 4,350 patients, has faced long-standing recruitment difficulties and increasing reliance on temporary staff.
It says a Vacant Practice Panel concluded that dispersing patients to neighbouring surgeries would provide a more sustainable long-term solution.
The board has also acknowledged that transport and access concerns are likely to be a major issue for patients if the closure goes ahead, with a full Equality Impact Assessment expected to be considered before a final decision.
Decision later this month
The future of Meddygfa’r Sarn will be decided at a meeting of Hywel Dda University Health Board on Wednesday (May 28) at Yr Egin in Carmarthen.
With local anger growing and new questions emerging from the FOI disclosure, pressure is mounting on board members to reconsider the proposal.
Campaigners say the case now hinges on a simple question: whether enough was done to save the surgery before moving to close it.
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