Health
18,000 families ‘struggling in silence’ due to lack of dementia diagnosis
AROUND 18,000 people living with dementia in Wales do not have a diagnosis, leaving families struggling to cope without support and treatment, Senedd Members warned.
Mabon ap Gwynfor said Wales has the lowest rate of diagnosis in the UK at 56%, warning that dementia is one of the biggest causes of death in the country.
Plaid Cymru’s shadow health secretary paid tribute to Terry Griffiths, the former snooker world champion from Llanelli, who died on Monday following a long battle with dementia.
Mr ap Gwynfor raised an estimate from Alzheimer’s Society Cymru of a 37% increase in the number of people living with dementia by 2040 due to an ageing population.
He told the Senedd that dementia costs the Welsh economy £2.3bn a year, which is expected to double to £4.6bn by 2050 if services do not improve.
Leading a debate on a Plaid Cymru motion calling for diagnosis targets, Mr ap Gwynfor said: “Around 18,000 people are left to cope without the support and treatment they need.
“That’s 18,000 individuals and 18,000 families struggling in silence, without knowing what to do or where to turn. The situation is even worse in rural areas, such as Powys.”
Gareth Davies warned dementia is Britain’s biggest killer, yet spending on diagnosis makes up less than 1.4% of UK health care expenditure, “which seems a staggering oversight”.
He said families are shouldering 63% of dementia-related costs, according to Alzheimer’s Society, with the average bill standing at £29,000 a year rising to £80,000 or more.
His Conservative colleague Altaf Hussain, a former surgeon, focused on alcohol-related dementia and brain damage, warning it is difficult for GPs to identify.
Delyth Jewell said her grandma Doreen, who lived to be 100, had dementia.
She told the Senedd: “The cruellest thing about dementia is how bewildering it is for the person going through it. My parents would visit my grandma. They’d call her multiple times each day. But she’d forget that they’d been.
“She’d think that they’d forgotten her. I remember her calling my parents’ house one day, and I’d answered the phone, and she’d asked me, ‘Why is it that I can’t do all the things I used to do?’ and she wished that she could walk and walk.
“She’d get frustrated, she’d be lonely and she couldn’t understand why it was happening.”
Ms Jewell, who represents South Wales East, said diagnosis rates are stubbornly low at 60% in the Aneurin Bevan health board and “there’s still no dementia plan for Gwent”.
Heledd Fychan, a fellow Plaid Cymru Senedd Member, called for greater support for Welsh speakers living with dementia, warning their needs are too often disregarded.
Mike Hedges, who represents Swansea East, said: “Increasing diagnosis rates across Wales is vital to enable people … to take control of their condition and live independently for longer.
“This supports people to stay out of hospital and in their own homes, relieving pressure on our health and care system.”
Responding to the debate on December 4, Sarah Murphy told the Senedd an independent evaluation of the Welsh Government’s dementia action plan will be published in early 2025.
The mental health minister, whose responsibilities include dementia, said the final report will inform a refreshed plan that will include new targets for diagnosis.
She said: “Ensuring people’s lived experience is at the heart of the development of services is very important to me, and I am committed to the development of robust diagnosis data.”
While the Plaid Cymru motion was defeated, 27-25, a version amended by the Conservatives and the Welsh Government was agreed unanimously.
Charity
Women take on Three Peaks Challenge to support mental health services
TEN inspirational women are set to tackle the iconic National Three Peaks Challenge on June 7, 2025, to raise vital funds for PATH – Pembrokeshire Action for the Homeless.
Motivated by the support they received through free counselling provided by Pathway Counselling, these women are embarking on this ambitious challenge to help fund mental health services offered by the charity.
The gruelling challenge, organised by Lucy Brazier with the support of Aspire Fitness and Charlotte Neill, will see the group climb the three highest peaks in the UK – Ben Nevis in Scotland (1,345m), Scafell Pike in England (978m), and Snowdon in Wales (1,085m) – all within a 24-hour timeframe. In total, the event involves 23 miles of walking and 450 miles of driving between the mountains.
Lucy Brazier, the organiser, expressed the group’s determination to succeed in this challenge, stating: “We are doing this to give back to the services that helped us through difficult times. Mental health support is crucial, and we hope our efforts will make a difference to others who need help.”
The challenge is not just a test of physical endurance but also a significant fundraising effort. Donations can be made through the group’s JustGiving page at www.justgiving.com/page/nationalthreepeaks.
PATH has been instrumental in supporting individuals struggling with homelessness and mental health issues across Pembrokeshire. The funds raised will ensure the continuation of essential services that positively impact lives.
The team is calling on the community to rally behind them and support their mission. Every donation, no matter how small, will help them reach their goal and make a difference.
For more updates on the challenge and to show your support, visit the JustGiving page and follow PATH’s social media channels.
Health
Welsh Government ‘utterly failing’ on waiting lists
PLAID CYMRU has called for action to tackle the NHS backlog, accusing Labour of “utterly failing” and leaving more than 620,000 people languishing on long waiting lists.
Mabon ap Gwynfor, the party’s shadow health secretary, warned waiting lists have hit record highs in every month since March, including each month of the First Minister’s time in office.
He said: “And what’s been the response of this [Welsh] Government? Firstly, to blame everybody else: blame the patients, blame health managers, blame royal colleges, blame everybody and deny responsibility.
“After 25 years of governing, they decided to go on a listening exercise and hear people telling them what they should have known years ago.
“Then, each month leading up to Christmas, a new strategy was put in place, and each month, the numbers on waiting lists were increasing.”
Leading a Plaid Cymru debate, Mr ap Gwynfor pointed to his party’s five-point plan to tackle NHS waiting lists which was unveiled this week.
His colleague Sioned Williams raised the “alarming” rise of the use of private health care, warning deep-rooted inequalities are becoming increasingly stark.
Accusing Labour of eroding Aneurin Bevan’s vision for the NHS, she said statistics show a 77% rise in admissions to private hospitals in Wales over five years.
Ms Williams added: “58% of Welsh people have either accessed private health care or know friends or family who have done so, which is higher than the UK average.”
Llŷr Gruffydd, a fellow Plaid Cymru Senedd Member, said: “Now, the situation in north Wales, in my region, is frightening, if I’m honest…. There is a whole generation of children and young people with conditions such as ADHD and autism being let down.”
James Evans, the Conservatives’ shadow health secretary, warned the NHS is in crisis, with more than 23,000 people waiting at least two years for treatment.
“This isn’t just inefficiency,” he said. “It’s a symptom of a deeper problem and the chronic underfunding and neglect of our social care system.”
Mr Evans called for an independent review of NHS Wales to “fix a system that has been broken by years of Labour mismanagement”.
Russell George, who chairs the Senedd’s health committee, raised concerns about Powys health board’s “ridiculous” proposals to balance its books.
The Tory said: “In Shrewsbury or Telford hospital, a Welsh patient could be sitting talking to a consultant and the consultant tells them, ‘We’ve got capacity to see you. We would see you if you were an English patient but we’re not able to because Powys is not able to pay.’”
Labour’s Buffy Williams said years of chronic underfunding from successive Conservative UK Governments has been catastrophic for the Welsh NHS.
Jeremy Miles, who was appointed health secretary in September, pointed to signs of progress on the Welsh Government’s priority of reducing the longest waiting times.
He told the Senedd the number of people waiting more than two years has reduced by two thirds since 2022, with 3% waiting at least two years compared with 10% at the peak.
Mr Miles said: “The health service is making progress despite the increasing demands upon it but there is much more to be done in order to ensure that people are treated sooner.”
Following the debate on January 15, Senedd Members voted 39-11 against the Plaid Cymru motion before the Welsh Government’s amended version was agreed, 26-24.
Health
Senedd Members criticise ‘appalling’ cancer delays
SENEDD Members quizzed Wales’ health secretary after a damning report revealed “alarming” shortcomings in cancer services, including a lack of leadership.
James Evans, the Conservatives’ shadow health secretary, said this week’s Audit Wales report laid bare chronic mismanagement of cancer services.
Questioning his opposite number Jeremy Miles, Mr Evans told the Senedd: “This failure has caused widespread confusion and inefficiencies in patient care.
“Despite a staggering 54% real-terms increase in spending on cancer services over the past 13 years, the NHS in Wales continues to miss the target for starting cancer treatment.
“Leadership failures have resulted in shocking delays for patients, with some waiting over 100 days to begin treatment. These delays exacerbate anxiety and lead to poorer survival rates, which are already worse in Wales than any other nation across the UK.”
He urged the Welsh Government to fix a leadership vacuum, dismantle bureaucratic silos and ensure patients no longer face appalling delays that cost lives.
Mr Miles welcomed the report, recognising the picture painted by the auditor general that too many people are waiting too long for treatments they should be getting faster.
The health secretary said: “It is true to say for a number of cancers in a number of parts of Wales those targets are being met and sometimes being exceeded quite significantly.
“But the overall picture, I accept, is that targets are not being met.”
Mr Evans, who represents Brecon and Radnorshire, warned of workforce planning failures, severe staff shortages, over-reliance on agencies, and recruitment and retention problems.
He said: “These staff shortages are directly delaying cancer diagnosis and treatment, worsening outcomes for patients.
“Despite repeated warnings from organisations like the Wales Cancer Alliance, the Welsh Government has failed to deliver a comprehensive workforce strategy.”
Mr Miles pointed to a 27% increase in workforce numbers, adding that Wales is not the only country to have difficulty recruiting to certain disciplines such as radiology.
The health secretary agreed about the “unsustainable” reliance on agency staff.
Mr Evans added: “There is becoming an outrage in the public about the ballooning number of managers across the NHS compared to frontline health care providers.”
He suggested overall increases in the workforce – from 72,000 to 91,000 between 2014 and 2023 – have not addressed frontline clinical shortages.
“Shockingly, administrative and estate staff have increased by 51% in that time,” he said.
Mr Evans asked: “After 26 years, how can the Labour Welsh Government justify the bloated expansion of administrative roles while patients face unacceptable delays for treatment due to a lack of frontline staff?”
Mr Miles replied: “The member makes an easy point, and a populist point, but the truth is a complex healthcare system requires people who are competent….
“There has been an increase in recruitment to the NHS across all disciplines and all important roles which enable the NHS to be effectively run.”
He added: “A world view which suggests that managers and those running the NHS simply should be taken out of the system, I think, is a very naive perspective.”
Mabon ap Gwynfor, Plaid Cymru’s shadow health secretary, also led on the scathing Audit Wales report during health questions on January 15.
He urged the minister to back his party’s proposed reforms of NHS governance.
Mr Miles said November’s report “echoed” a statement he gave in the Senedd and a speech he made two weeks earlier.
He told the chamber: “I was very pleased to see the kind of fresh thinking I was seeking to bring to the challenges which we face was agreed to by Plaid Cymru.
“And I see the same thing in the plan that was published … yesterday in relation to tackling waiting lists.”
Mr ap Gwynfor hit back: “That’s a disappointing response because you seem to be in complete denial about the problems in the health service.”
The Dwyfor Meirionnydd Senedd Member called for a guarantee that a target for 80% of all cancer patients to receive treatment within 62 days by March 2026 will be met.
He warned that the quality and accessibility of health data is “not up to scratch”, with Public Health Wales “fundamentally hamstrung” in its ability to project future demand for services.
He said: “The Wales cancer registry is meant to provide timely data on cancer incidence … but it hasn’t published validated cancer data since 2021, shamefully this means Wales can’t fully take part in essential national cancer audits … nor global studies.”
Mr Miles replied: “We have actually improved the publicly available data and we publish on a monthly basis about 18 pages of cancer treatment statistics, so that they can be scrutinised.
“We do want to improve transparency further.”
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