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Health

Staggering rise in autism and ADHD delays across west Wales

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Thousands of children now waiting for assessments as paediatricians warn of crisis in community care

THE NUMBER of children waiting for Autism and ADHD assessments in west Wales has soared by hundreds of percent, with clinicians warning that delays are placing vulnerable children at risk and stretching public services to the limit.

Figures released by the Royal College of Paediatrics and Child Health (RCPCH) show that since 2018, the number of children in the Hywel Dda University Health Board area waiting for an Autism Spectrum Disorder assessment has increased by 781%. ADHD referrals have also risen dramatically — up by 331% over the same period.

Waiting lists for general community paediatric services in Hywel Dda have also risen, though more modestly, increasing by 4.1% from 1,477 in 2018 to 1,538 in 2025.

The data, published this week in the RCPCH’s report Collaborative Healthcare in Wales: Delivering the Services Children Need in the Community, highlights a worsening picture for families across west Wales. It also shows that the scale of the crisis is not limited to one area.

In neighbouring Cwm Taf Morgannwg Health Board, the number of under-18s waiting for neurodevelopmental services rose from 2,173 in 2023 to 3,391 by January this year — a rise of more than 56% in just two years.

Community paediatricians, who lead services supporting children with complex medical and developmental needs, are sounding the alarm. They warn that a chronic lack of funding, staff shortages, and rising demand have pushed services beyond safe capacity.

Across Wales, thousands of children are now on waiting lists for vital care delivered outside of hospitals — including assessments for autism, ADHD, and speech and language difficulties. These services are typically delivered in clinics, schools and local hubs, aiming to support children earlier and closer to home.

In some parts of Wales, demand has more than doubled in the past five years:

Betsi Cadwaladr Health Board saw a 1016% increase in community paediatric waiting lists, from 805 in 2018 to 8,986 in 2025.

Cardiff and Vale reported a 302% increase in waiting lists alongside an 8% drop in paediatricians.

Swansea Bay’s waiting list rose 112% since 2020, with average wait times now 80 weeks.

Powys reported a 112% rise in neurodevelopmental service referrals since 2022, with just three community paediatricians covering the entire county.

The RCPCH has called on the Welsh Government to urgently prioritise investment in children’s health services. It says the aim of delivering care closer to home is being undermined by long waits, inconsistent access, and a growing gap between policy and practice.

The report also highlights wider systemic problems — including poor transitions from children’s to adult services, an over-reliance on formal assessments, and increasing pressure on families forced to navigate fragmented services without support.

Doctors have warned that without urgent action, the impact on children’s lives — including their mental health, education, and future wellbeing — will be severe. The report notes that children with unmet health needs often face long-term disadvantages, with serious consequences for wider society and public finances.

The RCPCH says the system must move away from reliance on goodwill from overstretched NHS staff and invest in early intervention, better staffing, and coordinated support across services.

Health

Welsh Lib Dems launch major survey on health and social care

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Party seeks 100,000 responses to shape future NHS reform in Wales

THE WELSH LIBERAL DEMOCRATS have launched a nationwide survey to gather public views on the state of the NHS and social care system in Wales.

Aiming for 100,000 responses, the NHS and Social Care Survey is designed to uncover what is working — and what is not — within Welsh healthcare. The results will help the party develop what it describes as a bold, evidence-based plan to reform services ahead of the 2026 Senedd elections.

Launching the initiative, Welsh Lib Dem leader Jane Dodds MS said: “Despite the incredible dedication of our doctors, nurses and care workers, after 25 years of Labour rule the NHS and social care system here in Wales simply isn’t working for too many people.

“Whether it’s unacceptable waits for surgery or the growing crisis in NHS dentistry, people are being let down — and it’s time for change.

“That’s why we’re asking people across Wales to share their experiences and ideas. Your voice will help shape a bold, evidence-led plan to fix our health and social care services and ensure they’re fit for the future.”

The survey is available online and in print, with party volunteers distributing copies in communities across Wales. The party is encouraging anyone living in Wales to take part.

Health and social care reform is expected to be a key pillar of the Welsh Liberal Democrats’ manifesto for 2026.

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Entertainment

Flu-like outbreak forces Eisteddfod cancellation amid public health scare

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Emergency declared as festival-goers fall ill — site cleared to reopen Thursday

THE LLANGOLLEN International Musical Eisteddfod was forced to cancel its headline event on Wednesday evening (July 9) after a sudden outbreak of illness prompted the Welsh Ambulance Service to declare an extraordinary incident.

Multiple attendees fell ill with flu-like symptoms, leading to the cancellation of the evening concert — which was set to feature Sir Karl Jenkins conducting One World, his symphonic celebration of peace.

Festival organisers said the nature and scale of the incident meant it was the first time in the Eisteddfod’s history an event had been cancelled in this way.

A spokesperson confirmed: “Following Public Health Wales advice, the incident related to a flu-like outbreak and affected multiple people at one time. We take the safety of our audience, performers and volunteers extremely seriously.”

Medical teams on site were supported by the Welsh Ambulance Service, who confirmed the declaration of a public health incident due to the number of people affected simultaneously.

The festival had been running as normal throughout the day, with over 4,000 performers from 35 countries taking part in cultural performances, parades, and competitions.

Just hours before the cancellation, organisers had sent out a schedule for what was expected to be the busiest day of the event so far, celebrating the 80th anniversary of the United Nations.

Despite the disruption, organisers have now confirmed that the site has been declared safe to reopen on Thursday (10 July) from 9:00am.

“We are pleased to report our site has been cleared to reopen,” the Eisteddfod said in a further statement issued late Wednesday evening.

No further details have been released about the cause of the illness, but Public Health Wales is continuing to monitor the situation.

The Herald understands that stewards, medical staff and volunteers acted quickly and professionally to contain the incident and support those who were unwell.

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Health

Hundreds speak out as NHS waiting list scandal deepens in west Wales

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Patients say they were removed without warning, left in pain, or forgotten entirely – now they want answers

A WAVE of testimony from Pembrokeshire patients has revealed the true scale of the NHS waiting list crisis, with more than 100 people coming forward in just a few days to share stories of lost letters, cancelled appointments, and being removed from hospital care without ever being told.

Following a public appeal by The Pembrokeshire Herald, readers responded in force — describing what they call a “shambolic” system, in which patients are being quietly dropped from waiting lists, given incorrect or late information, and forced to chase departments that never answer the phone.

Letters never arrived — then the appointment was gone

One mother told the Herald she only discovered her young son had been removed from a waiting list for surgery after chasing a non-existent appointment.

“We never received the original letter. Then we turned up for a new date, only to be told it had been cancelled — but no one told us,” she said. “Later, they told me he’d been removed from the list for missing appointments we never knew about.”

In another case, a mother of a child with a rare genetic condition said her daughter was due annual dermatology reviews — but after a cancellation in 2023, she heard nothing for months. In February this year, she received a letter stating her daughter had missed an appointment and was being removed. She said: “We never got the original appointment, and when we finally got one for April, it was cancelled too. We’ve heard nothing since.”

Voicemail chaos and ‘no way to contact anyone’

A recurring theme in the responses was departments not answering their phones, and voicemail systems that lead nowhere.

One woman, removed from a physio course after a single missed session, said: “I rang three times that day, left a full message explaining I was unwell, but no one ever rang me back. Then a letter came saying I’d been removed from the course. I tried ringing again — just voicemail. After the second time, I gave up.”

In another case, a patient who had been waiting for diabetic retinopathy screening since before Covid told us: “I’ve phoned multiple times over three years. Every time they say they’ll send an appointment. I’ve given up.”

One former patient said he was moved to the back of the list after a missed telephone consultation — even though the doctor rang an hour early, and never called again.

GP failures and missed referrals

Many readers raised concerns about general practice as well as hospitals, claiming referrals were never sent or followed up.

One woman wrote: “If my old GP had referred me straight away, I wouldn’t be in the state I am now. As soon as I changed surgeries, I was seen — but by then the damage was done. My life’s been ruined.”

Another reader commented that her father never got the treatment he needed, and believes that delays in referrals contributed to his death.

Transport cancellations and “cheating the system”

Several readers also raised concerns about non-emergency ambulance transport being cancelled at short notice, leaving vulnerable patients unable to attend appointments.

One woman said: “My dad has had his transport cancelled the night before appointments. We had no backup, and he missed it.”

Another reader wrote: “It’s all about stats. They remove people from the list, say they’ve missed appointments, and it makes the waiting time numbers look better. It’s cheating, plain and simple.”

Health board responds — but no figures yet

Hywel Dda University Health Board has responded to the Herald’s request for comment, stating it follows strict national protocols and that any patient removed in error will be reinstated at their original place on the list.

In a statement, Director of Operational Planning and Performance Keith Jones said: “We make every effort to send appointment letters in a timely manner and it is part of our procedure to phone a patient should we need to see them at short notice or to cancel appointments.

We have received feedback from some patients of incidences where appointment letters have not been received in a timely manner. We are reviewing the factors which may lead to late receipt of appointment letters and will implement any necessary improvements.”

The health board also promotes a digital system, Hywel Dda Post, for accessing appointment details online. However, patients have reported issues with this too — particularly those without smartphones or digital literacy.

The board was unable to provide any figures on how many patients have been removed from waiting lists over the last five years and advised the Herald to submit a Freedom of Information request, which has now been done.

Public anger growing

With more than 100 people coming forward in less than 48 hours, public anger is mounting. Many say they are being pushed toward private treatment, or simply left to suffer for years.

“I’ve been in chronic pain for over a decade waiting for three surgeries,” one woman wrote. “I’ve lost 11 years of my life.”

Another added: “It’s not just the health board. Welsh Labour has failed us for years. They have money for road signs and tree projects abroad — but not for our surgeries.”

What’s next?

The Herald will continue to investigate this issue and publish further updates once the FOI response is received.

We are compiling a formal submission to both the Health Board and the Welsh Government, including anonymised patient testimonies, to call for a public explanation of how waiting lists are managed — and how many patients have been quietly removed.

If you or a family member has experienced anything similar — missed letters, unexplained removals, transport cancellations, or GP referral failures — you can contact us in confidence at:

📧 [email protected]

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