Charity
Family of toddler who died of cancer help fund new research in his name
£30,000 raised by Ieuan Evans Memorial Fund supports study into kinder treatments for neuroblastoma
A PEMBROKESHIRE family’s heartbreak has become a beacon of hope for others, as their fundraising efforts in memory of their young son have helped launch vital new research into the cancer that took his life.
Ieuan Evans, from Burton, was just 21 months old when he died in 2018 — only days after starting chemotherapy for stage four neuroblastoma, a rare and aggressive childhood cancer. His devastated parents, determined to honour his memory and help others, established the Ieuan Evans Memorial Fund, a Special Named Fund at CCLG: The Children & Young People’s Cancer Association.
Since its launch, the fund has raised nearly £30,000, contributing to a new research project led by Dr Jess Morgan at the University of York. The study aims to support families and clinicians by bringing together evidence from early-phase clinical trials to guide decisions when standard treatments no longer work.
Ieuan’s mother, Gemma, described him as a “happy little boy” with a “loving and kind manner” whose smile lit up every room. But in September 2018, she noticed a swollen stomach and changes in his behaviour. The diagnosis was devastating: stage four neuroblastoma.
“Ieuan was only two days into high-dose chemotherapy when he passed away,” Gemma said. “We believe his little body just couldn’t take it. Even if treatment works, it can cause long-term side effects. We desperately need less toxic, more targeted therapies — that’s why we set up the fund in his name.”
The new project, funded in part by donations to Ieuan’s fund and other CCLG special funds, will analyse hundreds of studies into treatments for relapsed or treatment-resistant neuroblastoma. It will assess effectiveness, safety, and side effects — while also highlighting knowledge gaps and potential areas for further research.
Dr Morgan explained: “This work is about more than understanding what’s out there. It’s about helping families who face incredibly difficult choices by giving them access to high-quality evidence and guidance in one place.”
Neuroblastoma is the second most common solid tumour in children after brain tumours, but survival outcomes vary widely. Some children respond well to treatment, while others face relapse or treatment failure — leaving families in urgent need of information and support.
Dr Sarah Evans, Head of Research at CCLG, said: “By funding this project, we’re making sure families have access to research that can directly inform treatment decisions. We’re proud to support a study that could bring real-world impact for children like Ieuan.”
Gemma added: “We’re incredibly proud that Ieuan’s legacy is helping to fund such important work. The support from our community has been amazing — it means the world to know his life is making a difference.”
Charity
Pembrokeshire Coast Charitable Trust thanks Blakemore for beach clean support
NEW EQUIPMENT TO BOOST COASTAL CLEAN-UP EFFORTS
THE PEMBROKESHIRE COAST CHARITABLE TRUST has thanked the Blakemore Foundation for funding new litter-picking equipment to support beach cleaning efforts across the county.
The equipment will be used during regular beach cleans organised by the Trust, helping volunteers and business groups safely remove waste from some of Pembrokeshire’s most popular and environmentally important beaches.
The Trust said the donation would make a real difference to its coastal conservation work, particularly as more local businesses look for practical ways to support the environment.

Abi Marriot, Funding Officer for the Trust, said: “We’re incredibly grateful to the Blakemore Foundation for their support. Their contribution enables us to equip participants properly, making every clean more impactful. It’s a real boost for our coastal conservation efforts.
“Our recent business-led beach cleans have proved popular, offering teams a refreshing break from the office, a chance to work together in a different environment, and a meaningful way to demonstrate their organisation’s commitment to sustainability.
“Many companies tell us that taking part strengthens team bonds while contributing to visible, positive environmental action.”
The new kit will be used at the next Pembrokeshire Business Big Beach Clean, which will take place at Freshwater West on Thursday, June 4, from 10:00am to 12:00pm.
The event will give local businesses the chance to work together, connect with other organisations, and help protect one of Pembrokeshire’s most iconic stretches of coastline.
The Trust is also welcoming suggestions for future autumn clean-up locations as it plans its next focus areas.
Booking for the Freshwater West event is essential. Businesses wishing to take part can reserve a place by contacting Abi at [email protected] or calling 07773 788196.
Charity
RNLI issues tidal safety warning in Wales ahead of bank holiday weekend
PEOPLE VISITING THE COAST ARE BEING URGED TO CHECK TIDE TIMES AS SPRING TIDES ARE EXPECTED OVER THE MAY BANK HOLIDAY WEEKEND
THE RNLI has issued a tidal safety warning ahead of the bank holiday weekend following an increase in people being cut off by the tide.
The charity is urging anyone planning coastal walks or beach visits over the next few days to be cautious, check tide times before setting out, and make sure they have a way of calling for help.
The warning comes after RNLI crews rescued a man at Rhossili, on Gower, Swansea, on Saturday morning after he was cut off by the incoming tide at Worms Head.
Both Horton and Port Eynon RNLI lifeboat stations responded to the incident and the man was safely brought back to Rhossili.

Chris Cousens, RNLI Regional Water Safety Lead, said: “With the May bank holiday a prime opportunity for coastal walks, it’s important to be safe.
“Tide times and heights vary throughout the month, and the incoming tide can easily leave people stranded, requiring assistance.
“There will be spring tides over this coming weekend, meaning a greater difference between low and high tide. At high tide, the water comes in further and can move faster than on smaller tides.
“On bigger tides, places will be cut off by the tide more quickly than normal and places usually unaffected by the tide may also be cut off.
“If you find yourself, or see anyone else in difficulty, call 999 and ask for the Coastguard.”
Tirion Dowsett, Water Safety Delivery Support, said anyone visiting the coast should check tide times before travelling.
She said: “If you are planning on visiting the coast over the next few days, check the tide times before you go.
“If you can’t understand the information on tide tables, ask people who know the area and pay attention to any safety signs.
“Always carry a means of calling for help, like a fully charged mobile phone.
“If you do get into difficulty, call 999 and ask for the Coastguard.”
The RNLI is also reminding people of its Float to Live advice for anyone who gets into difficulty in the water.
Anyone struggling in the water should tilt their head back with their ears submerged, relax, and float on their back with their arms and legs spread out like a starfish.
Once breathing is under control, they should signal for help by shouting and waving.
Charity
Row erupts at Spitfire museum after Reform poster displayed at charity premises
A HAVERFORDWEST museum has become caught up in a political row after Reform UK campaign material was photographed inside the premises.
The Welsh Spitfire Museum, based in Bridge Street, is now facing the threat of a peaceful protest after campaigners objected to what they described as political propaganda being displayed at the heritage attraction.
A photograph sent to ‘The Pembrokeshire Herald’ shows a Reform Wales poster on a wall inside the museum, alongside other aviation-related material. The poster includes the words “Wales needs Reform” and urges people to vote Reform UK.
On Wednesday morning (April 29), museum manager Ray Burgess (pictured), received a message from a woman identifying herself as Emma Flavell, who informed him that campaigners were in the process of organising a peaceful protest outside the museum. In the message, she claimed the protest was aimed at stopping charitable organisations from being able to “openly advertise political agendas”.
She also alleged that Reform was an “extreme right wing party” and accused it of promoting division and racist policies.
Commenting on the escalating row Scott Thorley, the recently elected Reform county councillor and Haverfordwest town councillor, claimed the incident had ‘intimidated and bullied’ Mr Burgess.
“Emma Flavell called him a racist, she began filming him, and the irony is striking,” he said. “The museum window was previously defaced with ‘Vote Plaid’ graffiti, and then 80-year-old Ray Burgess was intimidated and bullied into supporting their views. This kind of behavior has more in common with fascism than with democracy.”
Cllr Thorley went on to say that Mr Burgess and his team at the Spitfire Museum ‘proudly support Reform’.
“They believe it’s the party best placed to save our country,” he said. “We at Reform, Ceredigion and Pembrokeshire stand firmly with him. There is no place in politics for bullying, intimidation and harassment.”
The Pembrokeshire Herald is unable to confirm whether Plaid Cymru was responsible for the alleged window defacement.
Meanwhile the incident has raised questions about whether political campaign material should be displayed in a charity-linked museum, particularly during an election period. According to a government website, the Charity Commission states that a charity must not support, oppose, promote or appear to promote any political party or candidate. This applies even if the charity strongly agrees or disagrees with that party’s policies.
The Commission also says that ‘charities must be, and must be seen to be, independent from party politics’.
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