Charity
Family of toddler who died of cancer help fund new research in his name
£30,000 raised by Ieuan Evans Memorial Fund supports study into kinder treatments for neuroblastoma
A PEMBROKESHIRE family’s heartbreak has become a beacon of hope for others, as their fundraising efforts in memory of their young son have helped launch vital new research into the cancer that took his life.
Ieuan Evans, from Burton, was just 21 months old when he died in 2018 — only days after starting chemotherapy for stage four neuroblastoma, a rare and aggressive childhood cancer. His devastated parents, determined to honour his memory and help others, established the Ieuan Evans Memorial Fund, a Special Named Fund at CCLG: The Children & Young People’s Cancer Association.
Since its launch, the fund has raised nearly £30,000, contributing to a new research project led by Dr Jess Morgan at the University of York. The study aims to support families and clinicians by bringing together evidence from early-phase clinical trials to guide decisions when standard treatments no longer work.
Ieuan’s mother, Gemma, described him as a “happy little boy” with a “loving and kind manner” whose smile lit up every room. But in September 2018, she noticed a swollen stomach and changes in his behaviour. The diagnosis was devastating: stage four neuroblastoma.
“Ieuan was only two days into high-dose chemotherapy when he passed away,” Gemma said. “We believe his little body just couldn’t take it. Even if treatment works, it can cause long-term side effects. We desperately need less toxic, more targeted therapies — that’s why we set up the fund in his name.”
The new project, funded in part by donations to Ieuan’s fund and other CCLG special funds, will analyse hundreds of studies into treatments for relapsed or treatment-resistant neuroblastoma. It will assess effectiveness, safety, and side effects — while also highlighting knowledge gaps and potential areas for further research.
Dr Morgan explained: “This work is about more than understanding what’s out there. It’s about helping families who face incredibly difficult choices by giving them access to high-quality evidence and guidance in one place.”
Neuroblastoma is the second most common solid tumour in children after brain tumours, but survival outcomes vary widely. Some children respond well to treatment, while others face relapse or treatment failure — leaving families in urgent need of information and support.
Dr Sarah Evans, Head of Research at CCLG, said: “By funding this project, we’re making sure families have access to research that can directly inform treatment decisions. We’re proud to support a study that could bring real-world impact for children like Ieuan.”
Gemma added: “We’re incredibly proud that Ieuan’s legacy is helping to fund such important work. The support from our community has been amazing — it means the world to know his life is making a difference.”
Charity
NSPCC Cymru launches Baby Steps scheme to support new parents across Wales
New perinatal service aims to help families cope with the pressures of early parenthood
NSPCC CYMRU has launched a new perinatal support programme aimed at helping expectant and new parents across Wales navigate the challenges of caring for a baby.
The Baby Steps service, a redeveloped early-intervention programme, is designed to give parents the tools, confidence and emotional support needed during pregnancy and in a child’s first months of life.
The service was officially launched this week at an event held at BT headquarters in London, attended by The Duchess of Edinburgh, who is a Patron of NSPCC, alongside childcare professionals and public figures.
Baby Steps will initially be piloted through three NSPCC hubs, including the Wales hub, placing Cymru at the forefront of the charity’s rollout of the service.
Carl Harris, Assistant Director for the NSPCC Wales hub, said the evidence-based programme could make a significant difference to families during a crucial stage of a child’s development.
He said: “The early stages of a baby’s life can feel daunting for parents, as they face new challenges every day while trying to give their child the best possible start.
“It is a critical time for a child’s development, and perinatal services like Baby Steps can offer enormous support to help parents through what is an exciting, but sometimes very difficult, period.
“NSPCC Cymru is proud to be leading the way in rolling out this service and supporting parents and children across Wales.”
Figures released alongside the launch highlight the scale of need. During 2024/25, the NSPCC Helpline referred more than 3,800 children under the age of two to external agencies across the UK, including police and social services. This represented almost one fifth (18%) of all referrals made by the Helpline on behalf of a child during the year.
One father who contacted the service described the pressures faced by new parents, saying: “We just can’t get our baby into a routine. It’s been eight weeks, we’re new to parenting and have different opinions, and then our friends all have different advice. It’s causing major arguments and nothing’s working.”
In addition to Baby Steps, the NSPCC website offers a wide range of guidance for parents and carers, including advice on bonding with babies and raising children safely.
Chris Sherwood, Chief Executive of the NSPCC, said the charity was pleased to mark the launch with a royal visit.
He said: “It’s always a privilege to be part of a Royal visit, and we were delighted that HRH The Duchess of Edinburgh was able to join us to celebrate our Baby Steps service.
“As our Helpline data shows, the first couple of years of a child’s life can be an extremely difficult time for parents. Our Helpline regularly hears from parents struggling with the pressures of a newborn, as well as from concerned members of the community.
“The Baby Steps service provides essential building blocks to help parents navigate the earliest stages of their child’s life and ensure they thrive. Any parent or carer who needs support or advice can always contact the NSPCC Helpline.”
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Charity
Milford Haven Round Table thanks town council for backing major community events
MILFORD HAVEN ROUND TABLE has formally thanked Milford Haven Town Council for its continued support, saying the council’s backing helps make some of the town’s biggest free events possible.
The group said the Town Council is a major supporter of its work in Milford Haven and plays a vital role in enabling community celebrations including the Milford Haven Carnival and the annual Fireworks Extravaganza, which draw thousands of people.
Representatives from the Round Table said it was “great to catch up” with the Mayor, Councillor William Elliott, at the Christmas Lights Switch On in December, where they presented a small token of thanks to mark another year of collaboration.
Milford Haven Round Table said it is proud to support the town through fundraising, volunteering and delivering events which create memories, raise money for local causes and strengthen community spirit.
The group added that none of its work would be possible without strong partnerships across Milford Haven, and thanked the Town Council for its “ongoing support, trust and commitment” to the town and its residents.
Charity
Local car enthusiast donates treasured classic to Paul Sartori Hospice at Home
THE PAUL SARTORI FOUNDATION is celebrating an act of generosity from local classic car enthusiast Roger Handcock, whose donation of a cherished Mazda MX5 has helped raise £5,500 plus Gift Aid for end-of-life care across Pembrokeshire.
Roger made the decision to donate his 1990 MX5 after a period of ill health over the summer meant the car was no longer being driven. He said he wanted it to be enjoyed — and properly cared for — by someone who would appreciate it as much as he had.
A long-standing member of the Pembrokeshire Classic Car Club, Roger said: “I was ill this summer and my 1990 MX5 was not getting any use, so I decided to part with it in the hope that it would bring some enjoyment and be maintained properly. However, I didn’t have the energy to try to sell it for the highest possible price.
“Being a member of Pembrokeshire Classic Car Club, I decided to donate the car to Paul Sartori Hospice at Home which is one of their favoured charities. In the end a great price was secured for the vehicle, and I am pleased to say that it will still be seen on Pembrokeshire’s roads.”
The Foundation said donations like Roger’s provide a vital source of income, helping to fund free hospice at home support for people nearing the end of life. The service enables patients to remain in the comfort of their own homes, supported by specialist equipment and professional care, while also offering help to families at an incredibly difficult time.
A spokesperson for the Paul Sartori Foundation said they were grateful for Roger’s kindness, adding that the impact of his gift would continue long after the MX5 begins its next chapter on Pembrokeshire’s roads.
Brave donation: Roger Handcock with Paul Sartori Events and Fundraising Officer Joanne Lutwyche (Pic: Paul Sartori Foundation).
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