Community
Pembroke man born in prison after mum’s wrongful conviction battles aggressive cancer
BETHAN CARTER-HEWINS has spoken to The Pembrokeshire Herald about the her husband’s Josh’s desperate fight to conquer a very rare and aggressive cancer.
She said: “Josh is my life. He’s my absolute everything and it’s awful to watch him suffer. He doesn’t deserve anything bad in this world as he has so much to live for.”
Two weeks ago Josh, was told that the intense chemotherapy treatment he’d been receiving to treat his rare and aggressive Burkitt Lymphoma, had failed.
The 27-year-old, who was born in a prison in 1996 after his mother was wrongly convicted of arson, was told that his cancer had spread. As a result of its aggression, he was told that he isn’t eligible for further treatment.
“So essentially, Josh was sent home from hospital to die,” his wife, Beth, told The Pembrokeshire Herald.
“But Josh is the strongest person I know – his mind is so powerful and even when he’s physically down, he’s determined not to stop. Our fight is far from over.”
Josh has learnt to battle emotional hardship throughout his life after his mother, Annette Hewins, was jailed following her wrongful conviction for causing the death of a mother and two children in 1995. She was just three months pregnant with Joshua at the time of her arrest, and she gave birth to him while she was in custody.
Josh and his siblings were subsequently put into foster care and spent their childhood in the Crymych area and Carmarthenshire.
He moved to Pembroke after meeting Beth in secondary school, and in May, 2023, the couple were married in Pembroke Castle.
But Josh began feeling unwell two years earlier when he was diagnosed with ulcerative colitis, which is a chronic inflammatory bowel disease. He later developed chronic liver disease and in 2023, he underwent a liver transplant.
“Everything seemed to be going well but when we were on holiday in Greece earlier this summer, he began feeling unwell again,” continues Beth.
“His symptoms were very similar to that of his ulcerative colitis with stomach pain, bloating and a general fatigue so initially, this is what we believed it was.”
But further analyses showed that Josh, who is employed as a CAD technician and account manager for the traffic light company, CORE highways, was suffering from the extremely rare post transplant lymphoma – Burkitt Lymphoma.
“Josh’s initial reaction was ‘Let’s get this done’, and he’s shown the most incredible strength right from the beginning.”
His intensive chemotherapy treatment began in June of this year.
“He was initially on EPOCH, which is a slow infusion that goes in over 24 hours five times a week, but quite early on it became apparent that it wasn’t working,” explains Beth. “So he had the choice of either sticking with it or moving onto another extremely intense chemo, called R-IVAC and R-CODOX-M.
“He chose the extreme chemo as he knew he’d be strong enough to cope, and he was.”
Josh was treated at the University Hospital of Wales, Cardiff.
“It was a horrific chemo and very toxic on the gut and the liver, which are both very sensitive areas for Josh as a result of his liver transplant and the ulcerative colitis. But he coped incredibly well and his gut and liver functioned near perfectly all the way through.”
But two weeks ago Josh was given a scan that showed his intensive chemotherapy had failed and his cancer was showing up in more places than before.
He was also told that the only option available to treat the cancer is CAR-T cell therapy.
“But unfortunately Josh isn’t eligible because his lymphoma is driven by being immunosuppressed,” said Beth. “He isn’t eligible for bone marrow transplants nor stem cell transplants because his disease isn’t under control and it’s too aggressive.
“But when we received this news, we knew that our fight was far from over.
“Josh wasn’t going to accept this, so he did his own extensive research and found a drug – Glofitamab – which has been used to treat a very small number of Burkitt’s lymphoma cases across Canada, Copenhagen, Sweden and the USA. And all those cases have gone into remission.”
Sold under the brand name Columvi, this bispecific monoclonal antibody is used for the treatment of large B-cell lymphoma.
“But it isn’t licensed for use on Burkitt’s lymphoma, which means that to treat Josh, it has to be given unlicensed. His consultant has reached out to the drug company to try and obtain physical data confirming its treatment of Burkitt’s and to try and build a case for the NHS to fund it. But the company didn’t have the data because all the cases had used the drug unlicensed, through private hospitals.
“We’re currently desperately trying to reach out to the NHS and the drug company, Roche, to ask them to grant the use of the drug on compassionate grounds. This has been done before, although it’s very rare.
“We’re also talking with private hospitals across the UK and abroad to try and get Josh the very best option. Obviously this isn’t cheap, but how can we put a price on Josh’s life?”
The treatment is expected to cost in excess of £50,000, with the result that Beth has set up a gofundme link- ‘Joshua’s fight for life; Burkitt’s Lymphoma.
“We’ve had some incredibly difficult conversations over the last few weeks – conversations that no young couple should have to have, but that just comes with those waves of emotion that we’re dealing with,” continued Beth.
“In all honesty, I don’t know how I’m feeling at the moment. One day I;m full of hope, and then the next day it’s complete and utter sadness and this feeling of =dread creeping up behind me, that I’m not ready to face.
“But we’re both so overwhelmed and touched by all the love and support we’re getting. And this is really helping us through.
“Despite what has happened, we’re both totally determined, and we’re not stopping until we’re heard.
“Josh is totally ready to face whatever is coming next.”
To support Josh click here.
NEW figures reveal that private rental costs in Pembrokeshire have climbed by 7% in the past year, with the average monthly rent reaching £625 in October. This is a significant increase from £582 a year earlier and represents a 22% rise over the past five years, where the average rent was estimated at £511.
The data, collected by Rent Officers Wales as part of the Housing and Regeneration Division, highlights growing pressure on tenants amidst rising costs. The collection aims to cover approximately 15% of the rental market by gathering data from landlords and letting agents.
Across Wales, the average monthly rent has risen 8% year-on-year to £766. Cardiff recorded the highest rental cost in the country at £1,062 per month, while Powys had the lowest at £556.
Sarah Coles, head of personal finance at Hargreaves Lansdown, commented on the challenges faced by renters in a press statement sent to The Pembrokeshire Herald. She said: “Getting good news about your rent is about as common as discovering your housemates have washed up for you, or your landlord suggesting you get a dog. For many, the only way out of the endless cycle of rising costs is to buy, but that’s far easier said than done when rents absorb so much of your income.”
The situation is compounded by a lack of available rental properties. Nathan Emerson, chief executive at Propertymark, explained: “As we continue to see further increases in rental prices across the UK, our members emphasize the lack of rental stock versus an ever-growing number of tenants. Selling up or turning to the short-term letting market has become a more attractive option for landlords due to challenging legislative changes and increased financial liabilities.”
Breakdown of Rental Costs in Pembrokeshire
The figures show a range of costs depending on property type and size in Pembrokeshire:
– A one-bedroom property: £462 per month
– A two-bedroom property: £576 per month
– A three-bedroom property: £732 per month
– Homes with four or more bedrooms: £934 per month
By property type:
– Detached houses: £768 per month
– Semi-detached houses: £653 per month
– Terraced houses: £629 per month
– Flats or maisonettes: £521 per month
In October, the average rent for private properties across Great Britain stood at £1,307 per month—up 9% compared to the same period last year. This equates to an increase of £105 per month.
As landlords adapt to changing regulations and financial pressures, the shortage of rental properties continues to push prices higher, creating further challenges for tenants across Pembrokeshire and beyond.
A NORTH Pembrokeshire group which has raised more than £76,000 from its community wind turbine for local projects is hoping to expand with a bigger turbine.
In an application to Pembrokeshire County Council, Abergwaun Community Turbine Ltd, through agent Machynlleth-based Dulas Ltd is hoping to get permission for a larger turbine to replace the existing Abergwaun Community Turbine.
The proposed turbine, in a pasture field at Trebover Farm, to the south of Fishguard, would be 67m tall, the existing 2015 one being 45 metres.
In supporting statements, parent company Transition Bro Gwaun said: “The Community Climate Fund (CCF) is the mechanism by which Transition Bro Gwaun (TBG) is fulfilling our ambition of funding projects in Fishguard, Goodwick and across North Pembrokeshire, using income from the community wind turbine.
“The core themes for grants are climate change mitigation and adaptation, enhancement of biodiversity and improvements to community resilience through promotion of community engagement and resource sharing.”
In 2015, TBG raised its 50 per cent share of capital funding for the project by means of loans from 28 local individuals and four community groups, contributing a total of £286,500, the other 50 per cent contributed by landowners Parc-y-Morfa Farms Ltd.
The statement added: “Profit generated by sale of electricity from the turbine is split 50:50 between TBG and Parcy-Morfa Farms Ltd through the jointly owned trading arm, Abergwaun Community Turbine. By the end of 2022, all loans had been repaid, allowing the launch of TBG’s Community Climate Fund. This year we have awarded our third round of grants bringing the total amount granted to £76,036.”
In 2022, £15,274 was awarded to seven projects, including Fishguard Sports AFC to install solar panels on their clubhouse as part of their Tregroes Park development, Ysgol Bro Gwaun for their Increasing Biodiversity and Bees project, and Nevern Valley Veg / Llysiau Cwm Nyfer to install a solar powered vegetable irrigation scheme.
In 2023, £39,85 was made available for seven projects, including Sea Trust Wales to part fund the installation of solar panels on the Ocean Lab roof and to produce a display on solar technology, Letterston Memorial Hall to part fund the installation of an air source heat pump heating system, and Fishguard and Goodwick Rugby Club to install solar panels on their clubhouse.
2024 awards of £20,917 were made to six projects, including Theatr Gwaun to insulate their loft to reduce heating loss, Parc Cerrig Growers for developing a rainwater harvesting system with a pond to irrigate their allotments, Caerhys Organic Community Agriculture for an electric cargo bike for delivering organic vegetables in the Fishguard and St Davids areas, and Nevern Valley Veg to develop wildlife ponds and rainwater harvesting for food production.
The supporting documentation concludes: “The repowering of the existing turbine at Trebover would require a limited increase in turbine size which would result in a very limited change in landscape and visual effects in comparison to the existing Trebover turbine.”
The application will be considered by planners at a later date.
ROAD users in Pembrokeshire are being urged to exercise caution tonight as temperatures are forecast to dip below freezing.
Pembrokeshire County Council has announced that road surface temperatures could reach as low as -2°C, with the possibility of sleet or snow on higher ground. In response, precautionary salting of the county’s primary routes will be carried out this evening and overnight.
A spokesperson for the council said: “Road users are advised to take care if travelling on untreated roads.”
Motorists are reminded to plan ahead and drive carefully, particularly in areas that may not have been treated.
Stay tuned to The Herald for updates on road conditions and weather warnings.
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