Community

Pembroke man born in prison after mum’s wrongful conviction battles aggressive cancer

Published

3 months ago

November 4, 2024

BETHAN CARTER-HEWINS has spoken to The Pembrokeshire Herald about the her husband’s Josh’s desperate fight to conquer a very rare and aggressive cancer.

She said: “Josh is my life. He’s my absolute everything and it’s awful to watch him suffer. He doesn’t deserve anything bad in this world as he has so much to live for.”

***Josh and Bethan Carter-Hewins in hospital (Pic: Supplied)***

Two weeks ago Josh, was told that the intense chemotherapy treatment he’d been receiving to treat his rare and aggressive Burkitt Lymphoma, had failed.

The 27-year-old, who was born in a prison in 1996 after his mother was wrongly convicted of arson, was told that his cancer had spread. As a result of its aggression, he was told that he isn’t eligible for further treatment.

“So essentially, Josh was sent home from hospital to die,” his wife, Beth, told The Pembrokeshire Herald.

“But Josh is the strongest person I know – his mind is so powerful and even when he’s physically down, he’s determined not to stop. Our fight is far from over.”

Josh has learnt to battle emotional hardship throughout his life after his mother, Annette Hewins, was jailed following her wrongful conviction for causing the death of a mother and two children in 1995. She was just three months pregnant with Joshua at the time of her arrest, and she gave birth to him while she was in custody.

Josh and his siblings were subsequently put into foster care and spent their childhood in the Crymych area and Carmarthenshire.

He moved to Pembroke after meeting Beth in secondary school, and in May, 2023, the couple were married in Pembroke Castle.

***Happier times: Josh and Bethan Carter-Hewins on their wedding day (Pic: Supplied)***

But Josh began feeling unwell two years earlier when he was diagnosed with ulcerative colitis, which is a chronic inflammatory bowel disease. He later developed chronic liver disease and in 2023, he underwent a liver transplant.

“Everything seemed to be going well but when we were on holiday in Greece earlier this summer, he began feeling unwell again,” continues Beth.

“His symptoms were very similar to that of his ulcerative colitis with stomach pain, bloating and a general fatigue so initially, this is what we believed it was.”

But further analyses showed that Josh, who is employed as a CAD technician and account manager for the traffic light company, CORE highways, was suffering from the extremely rare post transplant lymphoma – Burkitt Lymphoma.

“Josh’s initial reaction was ‘Let’s get this done’, and he’s shown the most incredible strength right from the beginning.”

His intensive chemotherapy treatment began in June of this year.

“He was initially on EPOCH, which is a slow infusion that goes in over 24 hours five times a week, but quite early on it became apparent that it wasn’t working,” explains Beth. “So he had the choice of either sticking with it or moving onto another extremely intense chemo, called R-IVAC and R-CODOX-M.

“He chose the extreme chemo as he knew he’d be strong enough to cope, and he was.”

Josh was treated at the University Hospital of Wales, Cardiff.

***Josh is raising funds for lifesaving treatment (Image: Supplied)***

“It was a horrific chemo and very toxic on the gut and the liver, which are both very sensitive areas for Josh as a result of his liver transplant and the ulcerative colitis. But he coped incredibly well and his gut and liver functioned near perfectly all the way through.”

But two weeks ago Josh was given a scan that showed his intensive chemotherapy had failed and his cancer was showing up in more places than before.

He was also told that the only option available to treat the cancer is CAR-T cell therapy.

“But unfortunately Josh isn’t eligible because his lymphoma is driven by being immunosuppressed,” said Beth. “He isn’t eligible for bone marrow transplants nor stem cell transplants because his disease isn’t under control and it’s too aggressive.

“But when we received this news, we knew that our fight was far from over.

“Josh wasn’t going to accept this, so he did his own extensive research and found a drug – Glofitamab – which has been used to treat a very small number of Burkitt’s lymphoma cases across Canada, Copenhagen, Sweden and the USA. And all those cases have gone into remission.”

Sold under the brand name Columvi, this bispecific monoclonal antibody is used for the treatment of large B-cell lymphoma.

“But it isn’t licensed for use on Burkitt’s lymphoma, which means that to treat Josh, it has to be given unlicensed. His consultant has reached out to the drug company to try and obtain physical data confirming its treatment of Burkitt’s and to try and build a case for the NHS to fund it. But the company didn’t have the data because all the cases had used the drug unlicensed, through private hospitals.

“We’re currently desperately trying to reach out to the NHS and the drug company, Roche, to ask them to grant the use of the drug on compassionate grounds. This has been done before, although it’s very rare.

“We’re also talking with private hospitals across the UK and abroad to try and get Josh the very best option. Obviously this isn’t cheap, but how can we put a price on Josh’s life?”

The treatment is expected to cost in excess of £50,000, with the result that Beth has set up a gofundme link- ‘Joshua’s fight for life; Burkitt’s Lymphoma.

“We’ve had some incredibly difficult conversations over the last few weeks – conversations that no young couple should have to have, but that just comes with those waves of emotion that we’re dealing with,” continued Beth.

“In all honesty, I don’t know how I’m feeling at the moment. One day I;m full of hope, and then the next day it’s complete and utter sadness and this feeling of =dread creeping up behind me, that I’m not ready to face.

“But we’re both so overwhelmed and touched by all the love and support we’re getting. And this is really helping us through.

“Despite what has happened, we’re both totally determined, and we’re not stopping until we’re heard.

“Josh is totally ready to face whatever is coming next.”

To support Josh click here.

Community

Drop in sessions to help reshape Mid and West Wales Fire and Rescue Service

Published

5 days ago

January 24, 2025

Tom Sinclair

MID and West Wales Fire and Rescue Service (MAWWFRS) is pleased to announce the launch of a series of community drop-in sessions designed to gather feedback from residents and stakeholders. This initiative aims to identify issues and challenges that may impact the delivery of the Community Risk Management Plan 2040 (CRMP 2040).

The CRMP 2040 outlines the Service’s commitment to addressing risks, threats, and challenges faced by communities. These drop-in sessions provide an opportunity for residents to help shape the future of fire and rescue services in Mid and West Wales, ensuring safety and well-being remain a priority.

Shaping the future together

Deputy Chief Fire Officer Iwan Cray said: “We believe the best way to serve our communities is by involving them in the planning process. These drop-in sessions are an opportunity for us to listen, learn, and collaborate with the people we serve.”

The drop-in sessions, details of which are available on the MAWWFRS website, offer a platform for open dialogue. Residents can share their insights, concerns, and suggestions, contributing to the development of a modern Fire and Rescue Service tailored to their needs.

A data-driven approach

The CRMP 2040 adopts a data-driven approach, focusing on prevention, protection, and response to reduce emergencies’ impact and enhance public safety. By tailoring services to community needs, MAWWFRS is committed to building safer and more resilient communities.

Get involved

Community members are encouraged to attend these sessions and provide their feedback. To thank participants, MAWWFRS is offering a chance to win a £100 Amazon voucher. To enter, simply attend a session and complete the survey.

For more information about the plan or the upcoming drop-in sessions, visit the MAWWFRS website or contact the team at [email protected].

About MAWWFRS

Mid and West Wales Fire and Rescue Service is dedicated to protecting and serving the communities of Mid and West Wales. Through prevention, protection, and response, the Service works tirelessly to ensure the safety and well-being of all residents and visitors.

Community

Landfill odour sparks calls for inquiry and legal action

Published

6 days ago

January 23, 2025

Tom Sinclair

RESIDENTS near Withyhedge landfill in Haverfordwest are demanding a public inquiry and considering legal action after foul odours returned just weeks after the site reopened on 6 January.

The landfill, closed last May to address odour issues, was declared fit to reopen by operator RML, which claimed its improvements would protect nearby communities. However, Colin Barnett, of campaign group Stop the Stink, said: “People in Crundale, Haverfordwest, and Spittal are being subjected to horrendous smells again.”

Describing the site as a “stink bomb on steroids,” Barnett supported Conservative MS Paul Davies’ calls for a public inquiry. “We’ve been flanneled by NRW, public health, and Pembrokeshire council. It’s disgraceful,” he said, adding that delays in resolving the issue had left litigation as the only option.

RML, part of Dauson Environmental Group, is owned by businessman David Neal, who has previous convictions for environmental crimes in 2013 and 2017. Last year, another of Neal’s companies pleaded guilty to environmental offences.

Natural Resources Wales (NRW) reported receiving 34 complaints since 6 January, with a rise in recent days coinciding with the end of a slurry-spreading ban. However, NRW stated no odours attributable to the landfill were detected and plans to inspect the site with Pembrokeshire council on 29 January.

First Minister Eluned Morgan said: “I’ll keep a very close eye on this, and if concerns persist, we’ll discuss further steps with NRW.”

RML and the Welsh Government declined to comment.

Community

Public transport users urged to ‘check before travelling’ due to storm

Published

6 days ago

January 23, 2025

Tom Sinclair

TRANSPORT FOR WALES and Network Rail are urging all customers to check before they travel on Friday morning and into the weekend with weather warnings in place across the country.

With Storm Eowyn set to hit Wales and winds reaching 90mph on Friday morning, customers should expect disruptions and are strongly urged to check before they travel.

There will be alterations to rail services, replacement road transport on certain routes and blanket speed restrictions at some locations, meaning journeys could take longer than usual.

Stand by buses are being planned at key locations around the network in preparation for travel disruption.

Across Wales and the Borders, Network Rail have positioned response teams to address any storm related problems to keep disruption to a minimum.

TfW Operations Director Sarah Higgins said: “It’s so important for our customers to plan ahead when looking to travel this Friday.

“While we’ve made a number of changes to our services based on detailed forecasts, storms can still be unpredictable.

“We’ve seen the impact storms can have, with damage to trains and infrastructure sometimes taking weeks or months to repair, so our cross-industry approach will hopefully limit that and keep our colleagues and customers safe. We apologise to customers for any disruption to their journeys as a result.”

Network Rail Wales & Borders Operations Director Rachel Heath added: “Our priority is always keeping safe everyone who travels and works on the railway.

“Unfortunately, there will be some delays and cancellations on Friday, as trains will not run on some lines and there will speed restrictions on other parts of the route.

“We are working closely with our train operator colleagues to ensure we can safely reopen affected lines as quickly as possible and urge passengers to check before they travel.”

Rail service changes:

No services to run on the Conwy Valley Line all day, with replacement road transport in place.
No services to run on the Heart of Wales line all day, with replacement road transport in place.
Speed restrictions at various locations around the network, meaning some journeys will take longer than usual. These include:

  50mph speed restrictions imposed from 0200 to 1500 Friday on the North Wales Coast – Bodorgan to Llandudno Junction.
  50mph restrictions from 0200 to 1200 between Carmarthen to Kidwelly.
  50mph restrictions from 0200 to 1200 between Neath and Swansea.
  50mph restrictions from 0100 – 0800 between Newport and Llanwern.

Customers who have connecting tickets for the following operators who have suspended services due to the adverse weather conditions, we’ll honour tickets dated 24 January on either Thursday 23 January or up to and including Tuesday 28 January.