Community
Pembroke man born in prison after mum’s wrongful conviction battles aggressive cancer
BETHAN CARTER-HEWINS has spoken to The Pembrokeshire Herald about the her husband’s Josh’s desperate fight to conquer a very rare and aggressive cancer.
She said: “Josh is my life. He’s my absolute everything and it’s awful to watch him suffer. He doesn’t deserve anything bad in this world as he has so much to live for.”

Two weeks ago Josh, was told that the intense chemotherapy treatment he’d been receiving to treat his rare and aggressive Burkitt Lymphoma, had failed.
The 27-year-old, who was born in a prison in 1996 after his mother was wrongly convicted of arson, was told that his cancer had spread. As a result of its aggression, he was told that he isn’t eligible for further treatment.
“So essentially, Josh was sent home from hospital to die,” his wife, Beth, told The Pembrokeshire Herald.
“But Josh is the strongest person I know – his mind is so powerful and even when he’s physically down, he’s determined not to stop. Our fight is far from over.”
Josh has learnt to battle emotional hardship throughout his life after his mother, Annette Hewins, was jailed following her wrongful conviction for causing the death of a mother and two children in 1995. She was just three months pregnant with Joshua at the time of her arrest, and she gave birth to him while she was in custody.
Josh and his siblings were subsequently put into foster care and spent their childhood in the Crymych area and Carmarthenshire.
He moved to Pembroke after meeting Beth in secondary school, and in May, 2023, the couple were married in Pembroke Castle.

But Josh began feeling unwell two years earlier when he was diagnosed with ulcerative colitis, which is a chronic inflammatory bowel disease. He later developed chronic liver disease and in 2023, he underwent a liver transplant.
“Everything seemed to be going well but when we were on holiday in Greece earlier this summer, he began feeling unwell again,” continues Beth.
“His symptoms were very similar to that of his ulcerative colitis with stomach pain, bloating and a general fatigue so initially, this is what we believed it was.”
But further analyses showed that Josh, who is employed as a CAD technician and account manager for the traffic light company, CORE highways, was suffering from the extremely rare post transplant lymphoma – Burkitt Lymphoma.
“Josh’s initial reaction was ‘Let’s get this done’, and he’s shown the most incredible strength right from the beginning.”
His intensive chemotherapy treatment began in June of this year.
“He was initially on EPOCH, which is a slow infusion that goes in over 24 hours five times a week, but quite early on it became apparent that it wasn’t working,” explains Beth. “So he had the choice of either sticking with it or moving onto another extremely intense chemo, called R-IVAC and R-CODOX-M.
“He chose the extreme chemo as he knew he’d be strong enough to cope, and he was.”
Josh was treated at the University Hospital of Wales, Cardiff.

“It was a horrific chemo and very toxic on the gut and the liver, which are both very sensitive areas for Josh as a result of his liver transplant and the ulcerative colitis. But he coped incredibly well and his gut and liver functioned near perfectly all the way through.”
But two weeks ago Josh was given a scan that showed his intensive chemotherapy had failed and his cancer was showing up in more places than before.
He was also told that the only option available to treat the cancer is CAR-T cell therapy.
“But unfortunately Josh isn’t eligible because his lymphoma is driven by being immunosuppressed,” said Beth. “He isn’t eligible for bone marrow transplants nor stem cell transplants because his disease isn’t under control and it’s too aggressive.
“But when we received this news, we knew that our fight was far from over.
“Josh wasn’t going to accept this, so he did his own extensive research and found a drug – Glofitamab – which has been used to treat a very small number of Burkitt’s lymphoma cases across Canada, Copenhagen, Sweden and the USA. And all those cases have gone into remission.”
Sold under the brand name Columvi, this bispecific monoclonal antibody is used for the treatment of large B-cell lymphoma.
“But it isn’t licensed for use on Burkitt’s lymphoma, which means that to treat Josh, it has to be given unlicensed. His consultant has reached out to the drug company to try and obtain physical data confirming its treatment of Burkitt’s and to try and build a case for the NHS to fund it. But the company didn’t have the data because all the cases had used the drug unlicensed, through private hospitals.
“We’re currently desperately trying to reach out to the NHS and the drug company, Roche, to ask them to grant the use of the drug on compassionate grounds. This has been done before, although it’s very rare.
“We’re also talking with private hospitals across the UK and abroad to try and get Josh the very best option. Obviously this isn’t cheap, but how can we put a price on Josh’s life?”
The treatment is expected to cost in excess of £50,000, with the result that Beth has set up a gofundme link- ‘Joshua’s fight for life; Burkitt’s Lymphoma.
“We’ve had some incredibly difficult conversations over the last few weeks – conversations that no young couple should have to have, but that just comes with those waves of emotion that we’re dealing with,” continued Beth.
“In all honesty, I don’t know how I’m feeling at the moment. One day I;m full of hope, and then the next day it’s complete and utter sadness and this feeling of =dread creeping up behind me, that I’m not ready to face.
“But we’re both so overwhelmed and touched by all the love and support we’re getting. And this is really helping us through.
“Despite what has happened, we’re both totally determined, and we’re not stopping until we’re heard.
“Josh is totally ready to face whatever is coming next.”
To support Josh click here.
Community
Senedd unanimously backs sign language bill
PLANS to make Wales the best place in the UK for British Sign Language (BSL) users moved a significant step closer to becoming law with the Senedd’s unanimous support.
If ultimately passed, the BSL bill – introduced by the Conservatives’ Mark Isherwood – would end Wales’ status as the only UK nation without specific sign language protections.
Leading a debate on Wednesday December 17, Mr Isherwood said the Senedd supporting the bill’s general principles was a “huge step ahead” for the “vital” legislation.
Mr Isherwood, a disability rights campaigner for decades, explained his backbench bill would introduce legal requirements to promote and facilitate the use of BSL in Wales.
He said the bill, if passed, would be the most progressive piece of BSL legislation anywhere in the UK, recognising BSL is a language in its own right, not a communication support need.

He highlighted that the bill would establish a BSL adviser role, the first statutory post of its kind in the UK, describing its importance as something that “cannot be overstated”.
Mr Isherwood, who chairs cross-party groups on disability and deaf issues, told the Senedd: “This isn’t just my bill. This is the bill of the BSL community. Let’s make this happen together and be proud of it together on behalf of deaf people across Wales.”
Jenny Rathbone, the Labour chair of the Senedd’s equality committee, was convinced of the “overdue” need for legislation to give more standing to British Sign Language.

Ms Rathbone said the committee heard the biggest barrier “by some margin” was the availability of interpreters and the sustainability of the workforce.
She quoted a signer who told the committee: “The bill would make us feel respected and valued. But without proper funding, planning and deaf-led leadership, it won’t go far enough.”
Sioned Williams, Plaid Cymru’s shadow social justice secretary, told Senedd members: “Language is a part of our identity, our culture and our personal dignity.
“When someone cannot use their language, they are excluded from education, health care, employment and public life – and that is not acceptable in today’s Wales.”

Ms Williams warned that if the legislation fails to deliver real change, the deaf community would be left “angry, disappointed and very, very disheartened”.
She expressed concern that the bill does not legally require the BSL adviser to be a deaf person, arguing it is “not appropriate, possible or efficient” for non-signers to lead the way.
Mr Isherwood defended the decision not to require that the adviser must be deaf, warning a successful legal challenge to a single such provision could cause the entire bill to fail.
Welsh Liberal Democrat leader Jane Dodds warned of an immediate workforce crisis, with only 54 registered sign language interpreters in Wales as of July.
With many now approaching the end of their working lives, she said: “We cannot – we must not – allow this bill to fail because we didn’t have the foresight to address this crisis now.”
Support for the bill stretched across the political spectrum, with Reform UK’s Laura Anne Jones similarly welcoming the “long-overdue” and “vital” legislation.
Jane Hutt, Wales’ social justice secretary, confirmed the Welsh Government’s financial backing, committing £214,300 for the bill’s first year of implementation in 2026/27.
If it clears the final hurdles, Mr Isherwood’s proposal will be the first backbench bill to enter the statute book in about a decade following the Nurse Staffing Levels (Wales) Act 2016.
Community
‘Nowhere I can play’: Disabled children excluded from Welsh parks
NEARLY four in ten disabled children in Wales “never or hardly ever” play outside due to a “heartbreaking” lack of accessible parks, politicians have warned.
Rhys ab Owen, an independent, described the situation as “disgraceful” as he cited a Play Wales report showing 37% of disabled children are effectively shut out of playgrounds.
Leading a debate in the Senedd on Wednesday December 17, he read the testimony of a ten-year-old boy from Blaenau Gwent who said: “Nowhere disabled friendly – parks haven’t got disabled friendly equipment, so I can’t play.”
Mr ab Owen warned: “There shouldn’t be any discrimination… disabled children do face much greater problems in terms of park maintenance, and with accessibility and inclusion.”
He shared the experience of a 13-year-old girl from Newport who told researchers: “There’s nowhere I can play or hang out safely by myself as I use a frame to help me walk.”
The former barrister warned budget cuts were leading to a managed decline in standards, quoting a 13-year-old from Caerphilly who said: “Due to anti-social behaviour our equipment gets broken, burnt and vandalised and is then not replaced.”
The Conservatives’ Natasha Asghar was stunned by the scale of the crisis and revealed that only 11% of playgrounds in Wales are rated “green”, meaning they are fully accessible. By contrast, almost half are rated “red” for poor accessibility.

Listing the barriers families face, Ms Asghar highlighted that 30% of sites lack accessible paths and nearly one in five have gates too narrow for wheelchairs. “Those are just two of the barriers preventing disabled children from accessing play,” she said.
Jane Dodds, the leader of the Liberal Democrats in Wales, argued the shocking statistics should be a wake-up call for Senedd politicians.
“To hear that 37% of disabled children in Wales say they never or hardly ever play outside should be a figure to stop us all in our tracks,” she said.

Meanwhile, Mike Hedges pointed out that Wales became the first country in the world to put a duty on councils to secure “sufficient play opportunities” for children in 2010.
And Julie Morgan, a fellow Labour backbencher, celebrated Cardiff becoming the UK’s first Unicef-accredited child-friendly city in 2023.
Dawn Bowden, the minister for children, pointed to £5m to improve playgrounds this year but she too was “disappointed” by play satisfaction figures falling from 84% to 71% since 2019.

She said the Welsh Government has provided a “toolkit” to Wales’ 22 councils, “ensuring a holistic outcome-focused approach” to inclusive and accessible play.
The cross-party motion, which called for play to be protected from cuts – as well as improved access for disabled children – was agreed unanimously but does not bind ministers.
Climate
Pembroke tidal flood defence work to continue to January
SIGNIFICANT issues with a part of Pembroke’s tidal barrage are not expected to be fully fixed before late January, councillors heard.
Pembroke councillors Aaron Carey and Jonathan Grimes submitted an urgent question heard at the December meeting of Pembrokeshire County Council, which said: “In light of the repeated flooding events across the county – including the recent overflow at Castle Pond and the acknowledgement by your own Coastal, Rivers & Drainage Team that the barrage tipping gate remains inoperable until mid-January can you explain what assessment has been made of the adequacy of our tidal outfall infrastructure in the face of current and projected future storm surges and sea-level rise?
“If no such assessment has yet been undertaken, will you commit now to commissioning an immediate structural and risk-capacity audit, with a report to full council within three months, and with proposals for funding any remedial works required — to avoid recurring damage and disruption to residents, highways, and public amenities?”
Responding to the urgent question, Cabinet Member for Residents Services Cllr Rhys Sinnett said a significant assessment of the Pembroke Tidal Barrage had already been undertaken over the past two years, with regular inspections.
He said “a comprehensive package of works” began in September which were due to be completed before Christmas but said there had been “significant issues” with the tipping gate hydraulic ram, with a significant overhaul now taking place, with reinstatement expected by late January.
He told members additional mitigation measures were now in place and, once works are completed, enhanced works will provide improved resilience and “long-term reliability,” with further reports due to come to Cabinet.
Cllr Carey and Cllr Grimes had also submitted a notice of motion saying: “That this council notes with concern the repeated and increasingly severe flooding experienced in our coastal, estuarial and river-fringe communities over recent weeks — in particular the flooding events affecting the Commons/Castle Pond area.
“That the council further notes that, according to correspondence from the Coastal, Rivers & Drainage Team Manager, the tipping gate at the barrage remains out of operation until mid-January due to mechanical issues; meanwhile high tide, heavy rain, wind-driven tidal surges and overspill at the sluice have combined to overwhelm the drainage/outfall infrastructure.
“That we recognise the current maintenance schedule (delayed ‘til after the summer season) and the justification given — but further that such planning failed to foresee the likelihood of severe winter storm and surge events, which climate change makes more frequent and more intense.
“That this council therefore calls on the Cabinet to commission an urgent review of:
- The adequacy of the current drainage/outfall and tidal-sluice infrastructure (barrage tipping gate, sluice/sluice-valve, flap valve, outfall capacity) for current and projected climate/tide conditions.
- The maintenance scheduling policy for coastal and estuarial flood-risk assets, with a view to ensuring critical maintenance is completed before winter high-tide / storm-surge season, rather than — as at present — being delayed until after summer for ‘recreational / biodiversity’ reasons.
“That, pending the outcome of the review, the council should allocate appropriate emergency capital funding to remediate the barrages / sluices / outfalls at risk of failure or blockage — to safeguard residents, properties, highways and public amenities from further flooding.
“That, further, this council resolves to publish a public flood-resilience plan for the county, identifying all coastal and river-fringe ‘hotspots,’ maintenance schedules, responsible teams, and a transparent timeline for upgrades or remedial works — so residents have clarity and confidence in flood prevention measures.”
The notice of motion itself will be considered by the council’s Cabinet at a later date.
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