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Patients praise neurorehabilitation gardening group in Pembrokeshire

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PEOPLE living with the effects of brain injury and neurological conditions have praised the positive impact of Pembrokeshire’s first therapeutic neurorehabilitation gardening group.

The group is run by Hywel Dda University Health Board’s (UHB) community neuro-rehabilitation service, an inter-disciplinary team always looking at ways of improving a person’s health, recovery, and rehabilitation.

In a partnership between Scolton Manor Park and the community neurorehabilitation service, the group provides adapted gardening and outdoor activities for eligible patients as part of their community neurorehabilitation.

Following a successful six-week pilot in 2021, participants named themselves the Heads-Up Gardening Group – or HUG – with further seasonal groups continuing throughout 2024 with varied gardening activities.

Occupational therapy staff from the community neurorehabilitation service have been pivotal in initiating and developing the therapeutic gardening group, alongside invaluable input and support from Scolton Manor Park staff and the wider multidisciplinary team.

This has included physiotherapy, neuropsychology, speech and language therapy, Neuro nurse specialist and therapy assistant practitioners and the head gardener at Scolton Manor Park.

The pilot project in 2021 was led by Phillippa Lee, Clinical Lead Occupational Therapist at Hywel Dda UHB, who said: “It has been an absolute pleasure and privilege to be able to facilitate a local therapeutic group, bringing people together to develop themselves, learn to self-manage their symptoms and support each other’s rehabilitation journey.

“The team felt people’s needs and rehabilitation goals could be met in a therapeutic group setting, which had proved successful in other counties.

“We work as a team with a shared purpose, modifying therapeutic activities within a nourishing environment, to work on individual needs and goals as part of their community neuro-rehabilitation plan.

“We have seen positive patient outcomes, with people moving on from the HUG group to voluntary roles, returning to work and embarking on other life goals.

“We are now in the process of evaluating the impact on people’s recovery and rehabilitation as HUG approaches its eleventh cohort and is due to restart again in spring 2025.”

The gardening group activity is led by Scolton Manor Park’s head gardener, Simon Richards, alongside occupational therapists and therapy assistant practitioners, with support from the community neurorehabilitation service.

Participants of the group have opportunities to become mentors or move onto the voluntary roles and opportunities at Scolton Manor Park, such as being part of the ‘Green Team’. These opportunities can then lead to paid employment.

Here is some feedback from people who have attended the group, highlighting the positive impact HUG has had on their lives:

“When I first went to the group, I felt a bit nervous and awkward to meet new people and I didn’t know what we were going to do. But it only took a few sessions to feel at ease. The staff were very helpful, and it was great to meet people that understand similar situations.”

“Such a brilliant group to be involved with. It’s so helpful to spend time with people who have similar issues. I’ve learnt a lot about gardening and moved forward a lot as a person.”

“I have enjoyed the group very much; it has helped me with my confidence. Thank you all so much for giving me my life back and all the support everyone has given me. A big thank you to Simon for all the help he has given me on this journey of life.”

“Positive supportive environment to learn more about nature and how to manage fatigue and other symptoms of brain injury. Great way to meet and enjoy time with others affected by Brain Injury and make new friends. Diolch o’r galon to Simon and the neurorehab team for great outdoor experiences.”

Phillipa concluded: “We hope to be able to continue this joint venture with Scolton Manor Park and would like to thank all those involved for making this rehabilitation opportunity possible.

“A special thanks to our partners at Scolton Manor Park, Mark Thomas and Simon Richards, and to all the staff working within the community neurorehabilitation service for their enthusiasm and commitment to continuing with this valuable group.

“We would like to especially thank our patients for inspiring us to develop HUG, for all their hard work, dedication and creativity.”

Health

Over one in four care seekers in Wales unsure who will pay for care as costs soar

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A NEW report has uncovered significant uncertainty surrounding elderly care funding in Wales, with more than a quarter of care seekers unsure who will bear the costs. Data from carehome.co.uk, a leading reviews website, shows that 26% of Welsh care seekers who inquired between November 1, 2023, and October 31, 2024, did not know how their care would be funded—surpassing the UK national average of 21%.

Self-funding: A growing trend

Among those with a clear funding plan, 41% in Wales stated they would self-fund their care. This figure compares with 53% in England, 40% in Northern Ireland, and 37% in Scotland, highlighting regional differences in funding approaches.

Local authority funding and the rise of top-up fees

The research reveals that 13% of Welsh care seekers rely on local authority funding, aligning with the UK average. However, with local councils under financial strain and care home fees climbing, many families face additional “top-up” costs to bridge the gap between council contributions and actual fees.

In Wales, 13% of care seekers anticipate paying top-up fees, a growing challenge as families struggle to meet rising expenses.

NHS continuing healthcare: A complex system

Only 7% of care seekers in Wales expect to benefit from NHS continuing healthcare funding, slightly above the UK average of 5%. This funding, which is not means-tested, covers full care costs for adults with complex health needs. However, critics point to inconsistencies in assessments across regions.

James Urquhart-Burton, a partner at Ridley and Hall Solicitors, described the issue:
“Your chances of getting NHS continuing healthcare funding vary based on your location, which is a problem given that the criteria are standardized nationwide. The reliance on assessors’ judgments to determine need introduces subjectivity into the process.”

Rising costs and public confusion

Sue Learner, editor of carehome.co.uk, expressed concern over widespread confusion about care funding:
“Our data shows an acute lack of understanding among the public in Wales about how the social care system works and how to navigate it. It’s incredibly concerning that a significant proportion of care seekers still don’t know whether the council or they themselves will cover costs.”

Learner highlighted the financial strain on self-funding residents, with care home fees in Wales averaging £1,066 per week. Rising costs—driven by increases in National Insurance, the National Living Wage, energy bills, and food prices—add to the burden.

“Care homes are increasingly prioritizing self-funding residents due to financial pressures,” she added. “This trend may reduce the number of care homes accepting state-funded residents, leaving families to grapple with an already complex system.”

As care costs continue to rise, understanding funding options and planning ahead are becoming critical for families across Wales.

Pictured: Shani Lauren Escott at Pen Coed Care Home, Saundersfoot with resident May Spurr

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Health

18,000 families ‘struggling in silence’ due to lack of dementia diagnosis

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AROUND 18,000 people living with dementia in Wales do not have a diagnosis, leaving families struggling to cope without support and treatment, Senedd Members warned.

Mabon ap Gwynfor said Wales has the lowest rate of diagnosis in the UK at 56%, warning that dementia is one of the biggest causes of death in the country.

Plaid Cymru’s shadow health secretary paid tribute to Terry Griffiths, the former snooker world champion from Llanelli, who died on Monday following a long battle with dementia.

Mr ap Gwynfor raised an estimate from Alzheimer’s Society Cymru of a 37% increase in the number of people living with dementia by 2040 due to an ageing population.

He told the Senedd that dementia costs the Welsh economy £2.3bn a year, which is expected to double to £4.6bn by 2050 if services do not improve.

Plaid Cymru MS Mabon ap Gwynfor
Plaid Cymru MS Mabon ap Gwynfor

Leading a debate on a Plaid Cymru motion calling for diagnosis targets, Mr ap Gwynfor said: “Around 18,000 people are left to cope without the support and treatment they need.

“That’s 18,000 individuals and 18,000 families struggling in silence, without knowing what to do or where to turn. The situation is even worse in rural areas, such as Powys.”

Gareth Davies warned dementia is Britain’s biggest killer, yet spending on diagnosis makes up less than 1.4% of UK health care expenditure, “which seems a staggering oversight”.

He said families are shouldering 63% of dementia-related costs, according to Alzheimer’s Society, with the average bill standing at £29,000 a year rising to £80,000 or more.

His Conservative colleague Altaf Hussain, a former surgeon, focused on alcohol-related dementia and brain damage, warning it is difficult for GPs to identify.

Delyth Jewell said her grandma Doreen, who lived to be 100, had dementia.

She told the Senedd: “The cruellest thing about dementia is how bewildering it is for the person going through it. My parents would visit my grandma. They’d call her multiple times each day. But she’d forget that they’d been.

South Wales East's Plaid Cymru MS Delyth Jewell
South Wales East’s Plaid Cymru MS Delyth Jewell

“She’d think that they’d forgotten her. I remember her calling my parents’ house one day, and I’d answered the phone, and she’d asked me, ‘Why is it that I can’t do all the things I used to do?’ and she wished that she could walk and walk.

“She’d get frustrated, she’d be lonely and she couldn’t understand why it was happening.”

Ms Jewell, who represents South Wales East, said diagnosis rates are stubbornly low at 60% in the Aneurin Bevan health board and “there’s still no dementia plan for Gwent”.

Heledd Fychan, a fellow Plaid Cymru Senedd Member, called for greater support for Welsh speakers living with dementia, warning their needs are too often disregarded.

Labour MS Mike Hedges
Labour MS Mike Hedges

Mike Hedges, who represents Swansea East, said: “Increasing diagnosis rates across Wales is vital to enable people … to take control of their condition and live independently for longer.

“This supports people to stay out of hospital and in their own homes, relieving pressure on our health and care system.”

Responding to the debate on December 4, Sarah Murphy told the Senedd an independent evaluation of the Welsh Government’s dementia action plan will be published in early 2025.

The mental health minister, whose responsibilities include dementia, said the final report will inform a refreshed plan that will include new targets for diagnosis.

Labour MS Sarah Murphy speaking in the Senedd
Sarah Murphy, minister for mental health and wellbeing

She said: “Ensuring people’s lived experience is at the heart of the development of services is very important to me, and I am committed to the development of robust diagnosis data.”

While the Plaid Cymru motion was defeated, 27-25, a version amended by the Conservatives and the Welsh Government was agreed unanimously.

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Health

Health concerns as banned American candy floods UK markets

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PARENTS are being warned this festive season about the dangers of imported American sweets, snacks, and fizzy drinks, which are flooding UK high streets thanks to social media trends. The Chartered Trading Standards Institute (CTSI) has raised alarms over unauthorised additives in these products, many of which fail to meet UK safety standards.

A growing trend, a hidden danger

Social media platforms like TikTok have popularised American confectionery, with influencers showcasing brightly coloured snacks in viral “candy haul” videos. This has made imported sweets a sought-after stocking filler for children and teenagers, driving record sales in convenience stores and high-street retailers.

However, this sugary trend comes with a bitter side. Many of these products, designed for foreign markets, bypass UK safety and legal standards. They often lack proper allergen declarations and contain harmful, unauthorised additives.

Major safety failures highlighted

A pilot project led by Staffordshire County Council’s Trading Standards team, funded by the Food Standards Agency, uncovered alarming issues. Inspectors seized 3,378 items valued at £8,500 from local shops. Tests revealed the presence of dangerous additives, including:

  • Yellow 6 (E110): Found in snacks, linked to hyperactivity in children.
  • Carrageenan: Common in jelly cups, posing a choking hazard.
  • EDTA: Prohibited in drinks, associated with developmental issues in animal studies.

Among the inspected stores, 89% failed to comply with UK regulations. Common violations included:

  • Products with unauthorised additives.
  • Missing English labels or allergen warnings.
  • Expired items being sold.

In total, 3,700 non-compliant products valued at £10,300 were confiscated, including crisps with E110, sweets with mineral oil and bleached flour, and drinks containing EDTA.

A national problem

The issue extends beyond Staffordshire. Operation Tootsie, a broader Trading Standards initiative, revealed that 77% of tested products from national retailers failed compliance checks, rising to 91% among importers.

Dean Cooke, CTSI Lead Officer for Food, said: “Social media has amplified the demand for American sweets. While retailers enjoy seasonal sales, they must ensure products meet UK standards. Parents should check labels to protect children from harmful additives.”

He also reminded consumers to avoid products without a UK/GB address on the label, as these fail to meet import labelling laws.

Councillor Victoria Wilson, Cabinet Member for Trading Standards at Staffordshire County Council, highlighted the seriousness of the issue:
“Our Trading Standards team was alarmed to find thousands of unsafe products on sale, often aimed at children. Poor labelling and unauthorised ingredients pose significant public health risks.”

The Pembrokeshire Herald advises that local consumers scrutinise labels carefully. Products with American weight measurements, such as ounces, are likely imports. These must meet UK safety standards, including accurate allergen declarations.

Anyone concerned about food safety in Wales can contact the Citizens Advice Consumer Helpline at 0808 223 1133.

This Christmas, Trading Standards is ramping up operations to tackle the influx of unsafe goods. Parents are advised to stay vigilant and prioritise safety when filling stockings with festive treats.

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