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NHS Wales accused of failing over 300,000 patients with hearing loss

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RNID report claims ‘systemic discrimination’ is putting lives at risk

A NEW report published this week (April 24) has accused NHS Wales of widespread failings in care for deaf people and those with hearing loss—failings that campaigners say are not only unlawful, but also putting lives at risk.

The report, titled Still Ignored: The Fight for Accessible Healthcare, was compiled by RNID, a leading charity supporting people who are deaf, have hearing loss or tinnitus. It highlights what the organisation describes as a “hidden scandal” affecting more than 300,000 adults across Wales.

Despite clear legal duties under the Equality Act 2010 and a decade-old policy framework—the All Wales Standards for Accessible Communication introduced in 2013—the report finds that deaf people are routinely denied the support they need when accessing NHS services.

Missed standards, missed care

Among the most alarming findings is that more than 7 in 10 (73%) deaf patients and those with hearing loss say they have never been asked about their communication needs in a healthcare setting. This is despite it being a basic requirement under equality law.

Almost 1 in 3 (30%) reported being unable to contact their GP in a way that works for them, such as using text or email instead of a phone. More than 2 in 3 (64%) had difficulty knowing when they were being called from a waiting room, and 42% struggled to communicate symptoms or concerns with staff.

In more serious consequences:

  • 8% said they had avoided calling an ambulance or attending A&E due to communication barriers.
  • 18% said a health condition worsened because of poor communication.
  • 11% believe their health was directly put at risk.

Family as interpreters

More than half of deaf patients (56%) said they had to rely on family or friends to relay medical information, often without professional support. 1 in 4 were denied the communication assistance they asked for outright. RNID warns this not only risks miscommunication, but also strips patients of their right to dignity, privacy, and autonomy in healthcare.

The consequences can be devastating. Kate Boddy, a Child of a Deaf Adult (CODA) from Wales, acted as interpreter for her father, Richard Boddy, when he was diagnosed with cancer in 2022.

She told The Herald: “There’s so little out there in BSL. When Dad got his diagnosis, I had to suppress all my emotions just to translate for him. Even though we knew he was going to pass away, I don’t feel like I ever got to say goodbye.”

Mr Boddy died in November 2023, aged 70.

Staff awareness low

The RNID also surveyed NHS Wales staff and found significant gaps in training and understanding:

  • Only 57% knew how to record a patient’s communication needs.
  • Fewer than half (48%) knew how to flag those needs in online records.
  • Just 17% of staff said they always feel able to meet the communication needs of deaf patients.

Dr Natasha Wilcock, a deaf doctor working in palliative care, said: “Deaf insight training should be compulsory. I’ve met patients who didn’t realise their cancer treatment had ended and that they were receiving end-of-life care. That level of misunderstanding is unacceptable.”

Calls for urgent action

Polly Winn, RNID’s External Affairs Manager in Wales, said: “It is not acceptable for people to leave medical appointments without understanding their diagnosis, or to be forced to share intimate health details with family because NHS Wales won’t provide interpreters.

“This is systematic discrimination—an equality failure that is putting lives at risk. The situation demands urgent reform.”

RNID is calling on the Welsh Government to:

  • Reaffirm and enforce the All Wales Standards for Accessible Communication;
  • Introduce robust oversight systems to monitor compliance;
  • Mandate deaf awareness training for all NHS staff;
  • Ensure people with lived experience help shape future reforms.

A spokesperson for NHS Wales said the organisation is reviewing the findings and remains committed to improving access for all patients.

The Welsh Government has not yet issued a response to the report.

 

Health

RCN Wales appoints Nicola Williams as Executive Director

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NICOLA WILLIAMS will take up the role in April, bringing more than three decades of experience in nursing and senior leadership.

The Royal College of Nursing (RCN) has announced the appointment of Nicola Williams as its new Executive Director for Wales.

She joins the organisation from Velindre University NHS Trust, where she currently serves as Executive Director for Nursing, Allied Health Professionals and Health Care Scientists. With 38 years of experience in nursing and more than six years at executive board level, she is widely recognised across NHS Wales for her work in improving patient outcomes.

A highly experienced strategic leader, Williams has worked across a wide range of clinical and organisational settings. She has led major transformation programmes, strengthened national clinical leadership networks and championed innovation and evidence-based improvements in care. Her work has contributed to changes adopted across Wales and has been recognised with national awards.

Speaking about her appointment, Nicola Williams said: “I feel privileged to be appointed as Executive Director of RCN Wales. I’m a proud nurse, passionate about patient safety and improving care standards.

“Delivering the best care is only possible when nursing staff are supported to work in safe, inclusive environments. I will stand alongside members and their patients.

“Nursing staff are the backbone of health and care. I am determined to support our members across Wales, wherever they work, to meet the challenges ahead and shape the future of our profession.

“I look forward to meeting members across Wales and ensuring our work is informed by their experiences and expertise.”

In her new role, Williams will lead the RCN’s work in Wales and provide strategic leadership across key priority areas spanning the UK.

She succeeds Helen Whyley, who has held the position since February 2019 and will move into a new role as Director of Service Innovation at the RCN.

 

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Health

Decision pending on adult mental health referral pathway

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HYWEL DDA University Health Board will decide next week whether to make changes to the GP referral pathway for routine adult mental health services permanent.

The decision will be taken at a public Board meeting on Thursday (Mar 26).

Board members will consider a proposal to formalise changes already introduced in Ceredigion and, if approved, roll out the revised pathway across Pembrokeshire and Carmarthenshire.

Since March 2025, adults in Ceredigion seeking routine mental health support have been advised by their GP to contact the NHS 111 Wales ‘Press 2’ service, rather than being referred directly to the county’s Community Mental Health Team.

The temporary change was introduced in response to ongoing staffing shortages. Health Board officials say the approach has helped maintain timely access to face-to-face assessments for those who need them, while directing initial contact through a single access point.

The 111 ‘Press 2’ service provides telephone assessments by local wellbeing practitioners, supervised by registered mental health nurses, offering advice, support and onward referrals where required.

At its November 2025 meeting, the Board agreed to extend the temporary pathway until the end of March 2026. A nine-week engagement exercise followed, running from December 8 to February 9, to gather feedback from patients, professionals and stakeholders on the potential long-term impact.

Andrew Carruthers, Chief Operating Officer at Hywel Dda University Health Board, said: “I would like to thank everyone who took the time to share their views and experiences.

“I would also like to thank West Wales Action for Mental Health for supporting engagement with patients, including those with lived experience, alongside GPs, primary care teams, mental health staff and third sector partners.

“Our priority is to ensure mental health services remain accessible, fair and sustainable. The temporary changes in Ceredigion have shown some positive benefits, and the feedback we have received from across the three counties will play an important role in shaping the Board’s decision.”

The Board will review all evidence and feedback before making a final decision on the future of the adult mental health referral pathway.

GPs will continue to refer patients with urgent or complex needs directly to community mental health teams where appropriate, and have access to a dedicated NHS 111 professional line for additional clinical advice.

Further details, including the full Board papers, are available here:
https://biphdd.gig.cymru/amdanom-ni/eich-bwrdd-iechyd/cyfarfodydd-y-bwrdd-2026/agenda-a-phapuraur-bwrdd-26-mawrth-2026/

The meeting will be streamed live from 9:30am on Thursday (Mar 26) via:
www.youtube.com/hywelddahealthboard1

 

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Health

Parents urged to check children’s vaccinations after meningitis cases

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Local pharmacy reports MenB vaccine shortage amid rising concern

PARENTS and carers across west Wales are being urged to check their children’s vaccination status following recent meningitis cases in the UK.

The warning comes as a local pharmacy has confirmed a shortage of the Meningitis B (MenB) vaccine, highlighting growing pressure on supplies.

Mendus Pharmacy said it currently has no availability of the vaccine due to what it described as a nationwide supply issue.

Mendus Pharmacy: No availability of the vaccine

In a statement, the pharmacy said: “We would like to inform our patients that, due to ongoing supply issues, we currently have no availability of the Meningitis B vaccine.

“Unfortunately, this is a nationwide shortage and all stock is currently unavailable.

“We understand this may be particularly concerning given the recent outbreak reported in Kent, and we completely appreciate the importance of timely vaccination.”

The pharmacy confirmed it is operating a waiting list and will contact patients once supplies return.

Health officials say keeping vaccinations up to date remains one of the most effective ways to prevent serious illness and reduce pressure on NHS services.

Dr Ardiana Gjini, Executive Director of Public Health at Hywel Dda University Health Board, urged parents to act.

She said: “Vaccination is one of the most effective ways we can protect children and young people from serious illness.

“Ensuring your child is fully vaccinated not only safeguards their health but also helps prevent the spread of infections within our communities.

“I strongly encourage all parents and carers to check their child’s vaccination status. If you are concerned that your child may have missed routine vaccinations, please speak to your GP.”

Meningococcal disease is a serious and potentially life-threatening infection that can lead to meningitis or septicaemia. While many people recover, some are left with long-term physical, neurological or psychological complications. Around one in ten cases can be fatal.

Although the disease can affect anyone, babies, young children, teenagers and young adults are at greatest risk.

In Wales, vaccines protecting against meningococcal strains A, B, C, W and Y are offered as part of the NHS immunisation programme. Infants receive the MenB vaccine, while teenagers are offered the MenACWY vaccine.

Latest figures from the Health Board show that uptake among 16-year-olds for the MenACWY vaccine stands at 76.4%, meaning a significant number of young people remain unprotected as they approach adulthood.

For younger children, uptake of the MenB vaccine is higher but still below the recommended 95% target. Around 92.8% of infants are vaccinated by their first birthday, rising slightly to 91.8% by their second.

Health officials say these figures reflect strong engagement from families and primary care teams but stress that continued vigilance is needed.

Families are being advised to check their child’s vaccination record with their GP or by contacting the Health Board directly. Parents should also ensure babies receive their scheduled MenB doses and that teenagers receive their MenACWY and 3-in-1 booster vaccines, which are currently being delivered in schools.

Parents are also urged to remain alert to the symptoms of meningitis and septicaemia and to seek urgent medical advice if they have concerns.

Further information on symptoms is available via NHS 111 Wales.

 

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