Health
NHS Wales accused of failing over 300,000 patients with hearing loss

RNID report claims ‘systemic discrimination’ is putting lives at risk
A NEW report published this week (April 24) has accused NHS Wales of widespread failings in care for deaf people and those with hearing loss—failings that campaigners say are not only unlawful, but also putting lives at risk.
The report, titled Still Ignored: The Fight for Accessible Healthcare, was compiled by RNID, a leading charity supporting people who are deaf, have hearing loss or tinnitus. It highlights what the organisation describes as a “hidden scandal” affecting more than 300,000 adults across Wales.
Despite clear legal duties under the Equality Act 2010 and a decade-old policy framework—the All Wales Standards for Accessible Communication introduced in 2013—the report finds that deaf people are routinely denied the support they need when accessing NHS services.
Missed standards, missed care
Among the most alarming findings is that more than 7 in 10 (73%) deaf patients and those with hearing loss say they have never been asked about their communication needs in a healthcare setting. This is despite it being a basic requirement under equality law.
Almost 1 in 3 (30%) reported being unable to contact their GP in a way that works for them, such as using text or email instead of a phone. More than 2 in 3 (64%) had difficulty knowing when they were being called from a waiting room, and 42% struggled to communicate symptoms or concerns with staff.
In more serious consequences:
- 8% said they had avoided calling an ambulance or attending A&E due to communication barriers.
- 18% said a health condition worsened because of poor communication.
- 11% believe their health was directly put at risk.
Family as interpreters
More than half of deaf patients (56%) said they had to rely on family or friends to relay medical information, often without professional support. 1 in 4 were denied the communication assistance they asked for outright. RNID warns this not only risks miscommunication, but also strips patients of their right to dignity, privacy, and autonomy in healthcare.
The consequences can be devastating. Kate Boddy, a Child of a Deaf Adult (CODA) from Wales, acted as interpreter for her father, Richard Boddy, when he was diagnosed with cancer in 2022.
She told The Herald: “There’s so little out there in BSL. When Dad got his diagnosis, I had to suppress all my emotions just to translate for him. Even though we knew he was going to pass away, I don’t feel like I ever got to say goodbye.”
Mr Boddy died in November 2023, aged 70.
Staff awareness low
The RNID also surveyed NHS Wales staff and found significant gaps in training and understanding:
- Only 57% knew how to record a patient’s communication needs.
- Fewer than half (48%) knew how to flag those needs in online records.
- Just 17% of staff said they always feel able to meet the communication needs of deaf patients.
Dr Natasha Wilcock, a deaf doctor working in palliative care, said: “Deaf insight training should be compulsory. I’ve met patients who didn’t realise their cancer treatment had ended and that they were receiving end-of-life care. That level of misunderstanding is unacceptable.”
Calls for urgent action
Polly Winn, RNID’s External Affairs Manager in Wales, said: “It is not acceptable for people to leave medical appointments without understanding their diagnosis, or to be forced to share intimate health details with family because NHS Wales won’t provide interpreters.
“This is systematic discrimination—an equality failure that is putting lives at risk. The situation demands urgent reform.”
RNID is calling on the Welsh Government to:
- Reaffirm and enforce the All Wales Standards for Accessible Communication;
- Introduce robust oversight systems to monitor compliance;
- Mandate deaf awareness training for all NHS staff;
- Ensure people with lived experience help shape future reforms.
A spokesperson for NHS Wales said the organisation is reviewing the findings and remains committed to improving access for all patients.
The Welsh Government has not yet issued a response to the report.
Health
New ambition for the inclusion and participation of disabled people in Wales

THE WELSH GOVERNMENT has this week (May 15) launched a consultation on its Disabled People’s Rights Plan, setting out a positive ambition for advancing the rights and opportunities of all disabled people across Wales over the next decade.
Based on the Social Model of Disability and guided by the principles of the UN Convention on the Rights of Disabled People, the consultation outlines both immediate actions and long-term outcomes to create lasting change in how society addresses barriers to inclusion.
The plan is based on the work of the Disability Rights Taskforce, which brought together people with lived experience and expertise. It addresses real challenges faced by disabled people in their everyday lives, with thematic working groups focusing on specific areas.
Following the consultation, an External Advisory Board will provide ongoing expertise and oversight as the plan moves into implementation.
The Cabinet Secretary for Social Justice, Jane Hutt, said: “As a government we are committed to ensuring that disabled people can participate in Welsh society on an equitable basis, free from barriers, and to creating an inclusive and accessible environment for all.
“Despite some progress in recent years, disabled people in Wales continue to face significant barriers in everyday life. This 10-year plan represents our commitment to true inclusion and participation.
“The Disability Rights Taskforce’s work has extensively shaped this plan, ensuring it’s grounded in lived experience. Now we need to hear from as many disabled people and organisations as possible to ensure the final plan delivers meaningful change across Wales.”
The 12-week consultation welcomes input from individuals, community groups, businesses and organisations, with particular emphasis on hearing directly from disabled people about their priorities.
The consultation is open until 7 August 2025.
Health
Health chiefs face questions over eye care digital delays

SENEDD Members scrutinised health chiefs about years-long delays to digital transformation of eye care, with some services still relying on paper records and fax machines.
Peter Fox, the newly elected chair of the Senedd’s health committee, pressed witnesses about a lack of digital infrastructure “holding back” improvement in eye care services.
Digital Health and Care Wales (DHCW) was moved to level three on ministers’ intervention framework in March due to concerns about its ability to effectively deliver major programmes.
Helen Thomas, DHCW’s chief executive, said: “We know there are many opportunities that digital and data services can support… in terms of the challenges eye care services face.
“And we believe there is a way to go in terms of ensuring that they have the full digital infrastructure that is needed.”
David Thomas, director of digital at Cardiff and Vale, said an electronic patient record system has been deployed in all ophthalmology sub-specialties in his health board area.
But, asked about progress on digital stalling elsewhere, Ms Thomas told the committee DHCW hopes to complete a full national rollout after a current contract ends in early 2027.
The digital eye care programme began in January 2020, with £8.5m allocated by ministers.
A press release, published in March 2021, said: “The project, being led by Cardiff and Vale university health board, has already commenced rollout across Wales.”
Sam Hall, director of primary digital services at DHCW, said an electronic referral system was part of the original programme “but hasn’t yet been delivered”.
Labour’s Lesley Griffiths, a former health minister, pointed out that the “OpenEyes” digital patient records project had an agreed deadline to be rolled out by March 2023.

“But this didn’t happen,” said the Wrexham Senedd member. “So, I wonder if you could explain why it didn’t happen and what the current status is please.”
Mr Thomas pointed to the impact of the pandemic during the meeting on May 14.
Warning of problems getting people “on the same page”, he said: “In hindsight, in terms of lessons learned, the engagement could have worked a lot better with other health boards.”
He said OpenEyes is live in Cardiff and Vale, and one service at Cwm Taf Morgannwg, with plans to roll out the patient record system to all ophthalmology services within ten months.
Mr Thomas told the committee that Welsh Government funding covered capital spending, leaving health boards to meet the everyday costs such as employing more staff.
He explained additional funding has been requested, given wider financial constraints, to cover local implementation costs of around £50,000 for each health board,
“We do now have the buy-in from health boards to proceed,” he said. “But we need to recognise that there was a period where things didn’t progress as they should.”
Emma Cooke, an executive director at Cardiff and Vale, added: “We weren’t demonstrating its value to the rest of Wales… that’s the big thing I think we should have picked up quicker.”
Michael Stechman – clinical director for ophthalmology at Cardiff and Vale, and a consultant general surgeon – warned of a Wales-wide shortage of ophthalmologists.
He also raised concerns about the centralisation of services creating challenges – with major trauma, neurosurgery and vascular surgery all “competing” for theatre space.
Turning to Betsi Cadwaladr university health board, Mr Fox pointed out that about 40,000 patients in the area were waiting for ophthalmology outpatient appointments.
Carol Shillabeer, chief executive of Betsi Cadwaladr, replied: “It’s probably fair to say the health board has not made as much progress over the past four-five years as other areas.
“It’s something for us to learn from.”
Ms Shillabeer, who was appointed in 2023, outlined a focus on community ophthalmology services to free up capacity for secondary care teams to see the highest-risk patients.
Pressed about underreporting of incidents, the chief executive emphasised the importance of transparency and candour due to potentially “life-changing” levels of patient harm.
Health
Councillor urges men to get tested following stage 4 prostate cancer diagnosis

A MILFORD HAVEN councillor diagnosed with incurable prostate cancer is urging men across Pembrokeshire to take action and get tested.
Councillor Guy Woodham, former Mayor of Milford Haven, is backing a major awareness campaign led by Welsh charity Prostate Cymru, which is offering free PSA blood tests as part of a national screening drive. The next testing event will be held at Narberth RFC on Saturday, 1 June.
Cllr Woodham, now 56, was fit, healthy and had no symptoms when his GP suggested a routine check-up.

“My PSA level was slightly raised, which led to more tests,” he said. “I braced myself to be told I might need surgery, but nothing prepared me for the news that it was already stage four and had spread to my bones. I now have incurable, advanced cancer.”
He added: “There’s currently no screening programme, and some GPs are still reluctant to offer the PSA test. But it’s all we’ve got. I had no symptoms, and yet I was already stage four. My message is simple: get tested. It could save your life.”
Prostate Cymru is aiming to test over 3,000 men across Wales amid ongoing concerns that too many men struggle to access free PSA tests through their GP. So far, more than 1,400 men have been tested at events in Kenfig Hill, Cowbridge, Brecon and Swansea — with 90 red alerts issued to men requiring urgent follow-up.
Men aged 50 or over are eligible for a free test, with that threshold reduced to 45 for those with a family history of the disease or for Black men, who are statistically at higher risk.
The Narberth event is being supported by JCP Solicitors, which has named Prostate Cymru its Charity of the Year. CEO Hayley Davies said: “One in eight men will be diagnosed with prostate cancer. Early detection makes all the difference.”
On the day, attendees will be able to speak with a specialist nurse and consultant about the PSA test and the next steps if results are elevated.
A further testing event will take place at Aberystwyth RFC on Sunday, 8 June, with plans to expand the campaign into North Wales later this year.
To register for a test, email [email protected] or visit www.prostatecymru.com.
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