Connect with us
Advertisement
Advertisement

Health

Milford mum first to receive groundbreaking new MS treatment

Published

on

A MILFORD HAVEN mum has become the first NHS patient in the UK to be treated with a new drug to prevent relapses of multiple sclerosis (MS).

The newly approved medication, ublituximab, is given through an intravenous (IV) infusion and used to help treat relapses of MS.

Compared to other treatments, the drug can be given much faster through an IV infusion, allowing more patients to be treated sooner.

MS, a lifelong condition, happens when a person’s immune system attacks their brain and spinal cord.

The immune system creates cells that attack and kill viruses in the body but for those with MS, the cells attack the nerves instead.

This week, Monday 28th April to Sunday 4th May marks MS Awareness Week.

Fiona Creelie, from Milford Haven, was the first patient to be treated with the new drug at the Jill Rowe Neurology Ambulatory Unit at Morriston Hospital in Swansea.

“I started experiencing pins and needles and sharp shooting pains in my face in September,” the 35-year-old said.

“They initially thought it was trigeminal neuralgia, which is sudden, severe facial pain.

“In November, I started to get the same sensations down my right arm, so I went to A&E and had an MRI scan and lots of other tests and then was referred to Morriston Hospital.”
The mum-of-one only officially received her diagnosis of MS and just two weeks later received her first IV treatment of the new drug.

Fiona added: “I was offered a selection of three drugs, but I picked this one because it fitted in with our family life.

“This treatment will be once every six months for just an hour each time, so it was the best fit for me.

“It’s a bit crazy to have been the first person to receive the treatment but it’s also really exciting.”

With the new treatment able to be given much quicker, it will help to reduce the time patients wait for treatment.

Dr Owen Pearson, consultant neurologist at Morriston Hospital, said: “The drug itself is a new version of an already approved drug, but the advantage is that it’s given faster, through an IV infusion.

“It allows us to treat more patients per day and that allows us to shorten the waiting time for treatment.

“It is a highly effective treatment which helps to stop focal inflammation, which is new lesions appearing on an MRI, or having new relapses of MS.

“The unit was starting to operate above capacity so the introduction of this drug will help with that.

“Clinical trials for the drug were done in other centres in the UK, including Cardiff, and it has recently been approved for use on the NHS.

“Being able to offer it so quickly to our patients in Swansea Bay involves a lot of working together with the pharmacy department.

“We have a dedicated clinical pharmacist within our team which allows us to deliver new treatments like this to our patients.”

Charles-Henry Her, the team’s clinical pharmacist, added: “The consultants are really proactive in finding out about these new drugs and then they provide me with all of the information I need.

“I learn about the new drugs and how they work and make sure our systems are ready for us to introduce them.”

Around 2,200 MS patients are supported in Swansea Bay, with the service seeing patients from Machynlleth, in Powys, right across to Cowbridge, in the Vale of Glamorgan.

Dr Gillian Ingram, consultant neurologist, said: “The fact that the treatment is much shorter will allow more MS patients to come through.

“It is also beneficial for patients to have a choice of treatment, so they can choose the option that’s right for them.

“There are always new developments in treatments for MS and it is really nice to keep Wales at the forefront of that.”

Alexandra Strong, Jill Rowe Neurology Ambulatory Unit manager, said: “It is exciting for both patients and our unit to have another treatment available for MS, and it was exciting for us to be the first to give the treatment in the NHS.

“It is another option for patients to help improve their treatment and health.

“It will allow more flexibility for patients as it will make it much easier to fit in with their lifestyle, while it will also allow us to be more flexible with the treatment we can offer too.”

 

Health

Ambulance delays and blocked beds putting Welsh patients at risk, watchdog warns

Published

on

AMBULANCE handover delays, long waits in emergency departments and delays discharging patients from hospital are continuing to put people at risk across Wales, Audit Wales has warned.

The public spending watchdog said urgent and emergency care remains under “constant pressure” despite extra funding and new policies aimed at improving joined-up working between the NHS, ambulance service, councils and social care providers.

In an article published today, Monday (Jun 22), Audit Wales said its work since 2024 had examined how health boards and the Welsh Ambulance Services NHS Trust manage demand for urgent and emergency care, as well as how health boards and local authorities support timely discharge from hospital.

It found that pressures across the system are increasing patient safety risks and driving up costs.

Key problems identified include ambulance handover delays, lengthy waits in emergency departments, underused new services despite extra funding, and delayed hospital discharges which continue to result in hundreds of thousands of lost bed days each year.

Audit Wales also said workforce problems across health and social care remain a major factor in delayed discharges.

The watchdog warned that data is still not being shared effectively across the system, making it harder for public bodies to make informed decisions and manage pressure.

The findings will add to growing concern about the state of urgent and emergency care in Wales, with patients, families and frontline staff repeatedly warning that delays in A&E and problems arranging social care packages are leaving people waiting too long for treatment or stuck in hospital after they are medically fit to leave.

Audit Wales said staff and leaders across the system had made clear that “something must change”.

It has set out six questions for the Welsh Government, NHS Wales and local authorities to consider as they look at how urgent and emergency care can be improved.

The Auditor General for Wales is the independent statutory external auditor of the devolved Welsh public sector and is responsible for auditing most public money spent in Wales.

The Herald has asked the Welsh Government and Hywel Dda University Health Board for comment.

 

Continue Reading

Health

Wales most aware of alcohol addiction, but experts warn summer habits carry danger

Published

on

MORE people in Wales recognise alcohol as addictive than anywhere else in Britain, new research has found, but health experts are warning that awareness alone may not be enough to prevent harmful drinking habits.

The findings come ahead of the busy summer period, when pubs, beer gardens, festivals, barbecues and outdoor events often lead to increased alcohol consumption.

According to YouGov data, 86% of people in Wales describe alcohol as addictive — the highest figure recorded across Britain and above the national average of 78%.

Only 14% of Welsh respondents said alcohol was either “not very addictive” or “not addictive at all”.

By comparison, London recorded the lowest level of awareness, with 69% of respondents recognising alcohol as addictive.

Health professionals say the results show that while many people understand the risks, regular drinking can still become habitual, particularly during periods of increased socialising.

Official figures suggest adults consume an average of 10.7 litres of pure alcohol per person each year, equivalent to around 21 UK units per week. That is around nine pints of beer or seven large glasses of wine, and is significantly above the recommended maximum of 14 units a week.

Nearly one in five adults are also said to drink at hazardous levels or above, with men more than twice as likely as women to fall into that category.

Dr Karen Faulkner, Associate Medical Director at Panthera Clinic, said alcohol occupied a “unique place” in British culture because it was both legal and socially encouraged.

She said: “What’s particularly interesting is that most people understand alcohol can be addictive, yet many still underestimate how easily regular drinking can become habitual. Dependence often develops gradually and doesn’t always fit the stereotypes people associate with addiction.

“During the summer months, drinking can become even more normalised through holidays, beer gardens, barbecues, festivals and sporting events.

“The challenge isn’t necessarily a lack of awareness about alcohol’s risks. It’s recognising when a socially accepted habit has crossed the line into something that’s beginning to have a negative impact on your health, wellbeing or daily life.”

Dr Faulkner said people wanting to cut back should consider planning alcohol-free days, alternating alcoholic drinks with water or soft drinks, setting limits before social events, and keeping track of their weekly intake.

She also urged people to watch for signs that alcohol may be becoming more important than intended, including finding it difficult to relax, socialise or enjoy an event without drinking.

Panthera Clinic has launched a free online Alcohol Health Calculator to help people assess how their drinking habits may be affecting their health and wellbeing.

Dr Faulkner added that low and no-alcohol alternatives had become more widely available, making it easier for people to reduce their intake while still taking part in social occasions.

 

Continue Reading

Health

Welsh Government refuses to halt Withybush and Bronglais service review

Published

on

Health Minister tells Paul Davies MS that decisions remain a matter for Hywel Dda University Health Board

THE WELSH GOVERNMENT has declined to intervene in controversial plans affecting services at Withybush and Bronglais hospitals, prompting fresh criticism from local Senedd Member Paul Davies.

In a letter dated June 19, Health and Care Cabinet Secretary Mabon ap Gwynfor said responsibility for planning and delivering NHS services rests with local health boards and confirmed that Hywel Dda University Health Board should continue its consultation process on proposed service changes.

The response follows concerns raised by Mr Davies on behalf of constituents in Pembrokeshire and Ceredigion over the future configuration of clinical services, including stroke care.

While acknowledging strong public concern about access to healthcare in rural communities, the Minister stopped short of offering any commitment to block or reverse the Health Board’s proposals.

Instead, he stressed that any changes must be supported by robust evidence, maintain patient safety and demonstrate improved outcomes.

The Minister wrote: “Responsibility for planning and delivering health services rests with local health boards, including decisions about how services are organised.”

He added that proposals must improve outcomes for patients, maintain safe and equitable access to care and be supported by thorough impact assessments.

Paul Davies MS described the response as disappointing.

Posting the letter on social media, he said: “This letter tells me that the Welsh Government is not going to stand in the way of the Health Board’s plans.”

He added that he would raise the issue in the Senedd chamber next week and continue pressing ministers to intervene.

The exchange comes as Hywel Dda University Health Board continues a public consultation on proposed changes to stroke services across west Wales.

The consultation, which opened on May 28, is due to run until July 26.

In his response, the Minister stated that anyone suffering a stroke should receive treatment “as quickly as possible in the most appropriate setting” and said the current model of stroke care in Wales must evolve if national standards are to be achieved.

The comments are likely to fuel concern among campaigners opposed to the proposed changes, who fear services could become increasingly centralised and further away from rural communities in Pembrokeshire and Ceredigion.

 

Continue Reading

Community14 minutes ago

Tenby Summer Spectacular cancelled amid council row over harbour access

Organisers say popular charity events cannot safely go ahead without clear powers to control crowds TENBY ROUND TABLE has announced...

News5 hours ago

Motorcyclist dies after four-vehicle crash on A40 in Carmarthenshire

A MOTORCYCLIST has died following a four-vehicle collision on the A40 between St Clears and Whitland. Dyfed-Powys Police said the...

News6 hours ago

Rhun ap Iorwerth urges new deal for Wales after Starmer quits

First Minister says next Prime Minister must focus on greater powers, fair funding and respect for Wales’ democratic mandate FIRST...

News6 hours ago

How Labour’s landslide victory unravelled in just two years

Prime Minister announces resignation after losing support within his own party as Andy Burnham emerges as overwhelming favourite to take...

News19 hours ago

Long Course Weekend set to bring thousands to Pembrokeshire

Three days of swimming, cycling and running will once again transform Tenby into one of the UK’s biggest endurance sporting...

Community1 day ago

The gentle giant behind the tattoos

Pembrokeshire security worker Josh Davies praised for professionalism, kindness and proving first impressions can be wrong JOSH Davies is hard...

Charity2 days ago

Toy Story fans fill charity toy box at Haverfordwest cinema

Donations pour in for SNAP Specialist Play as families embrace Toy Story 5 launch A TOY STORY-themed charity appeal at...

Community2 days ago

Lord Rhys emerges from the mist in St Davids

Giant puppet begins historic journey marking 850 years since the first Eisteddfod MIST swirled around St Davids Cathedral on Friday...

News3 days ago

Tragic tribute paid to Haverfordwest man after A4075 collision

FAMILY REMEMBERS “KIND AND LOVING” CALLUM HANSON THE FAMILY of a 22-year-old man from Haverfordwest who died following a road...

News4 days ago

Motorcyclist, 22, dies in A4075 crash in Pembrokeshire

A 22-year-old woman remains in hospital after two-vehicle collision A MOTORCYCLIST has died following a serious two-vehicle crash on the...

Popular This Week