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Welsh patient voices help shape new UK-wide online kidney forum  

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KIDNEY RESEARCH UK has launched a new dedicated online forum specially created to give people living with kidney disease and the families and carers who support them a safe and supportive space to talk, learn from each other and share experiences. 

Shaped with help from Welsh patients, the forum offers a dedicated community space for the more than 377,000 people in Wales thought to be living with kidney disease. 

Free to use, the new forum, called Kidney Community, creates a single, safe space where people can connect with others who understand their experiences, ask questions, share practical advice and find support, no matter what stage of the kidney disease journey they are at. 

Kidney Community is open to kidney patients at all stages of the disease, people with a higher risk of developing it, and anyone affected by a diagnosis in their family or friendship groups. 

The forum will be continually supported by Kidney Research UK’s team, helping to ensure discussions are informed, respectful and grounded in trusted information. It has been co-developed with kidney patients and carers to ensure it reflects real needs, concerns and priorities. 

Darren Daniel from Ammanford in southwest Wales helped with the forum’s development. Diagnosed with kidney disease in 2017, Darren has used social media, including TikTok, to raise awareness of kidney health and the realities of living with long-term illness. His experience of connecting with others helped inform the development of the forum. 

Darren said: “When I started sharing my kidney journey online, I saw just how many people were desperate for somewhere to talk honestly about what they were going through. Helping shape this forum felt like a natural next step – making sure it’s real, accessible and driven by the questions people actually ask, not medical jargon.” 

“This forum takes that sense of community and gives it a safe home, backed by Kidney Research UK. It means people don’t have to scroll endlessly or rely on misinformation. Whether you’re newly diagnosed or years into treatment, there’s power in knowing others understand your day-to-day reality, and that support is only a conversation away.” 

Sandra Currie, chief executive of Kidney Research UK, said: “Many people affected by kidney disease tell us they feel unsure where to turn for support. This forum brings patients and carers together in one place, so they can feel heard as part of a community, with access to information and shared experience at every stage of kidney disease. We are providing a safe, welcoming space where every question and every story matters.” 

The launch builds on Kidney Research UK’s long-standing commitment to ensuring the voices of patients and families help shape research, services and support. Existing supporters, volunteers and members of the charity’s Kidney Voices for Research network were among the first invited to join. 

The forum is now live and free to access at kidneycommunity.kidneyresearchuk.org  

 

Charity

Community braves icy dip to raise thousands for hospice care

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SWIMMERS plunged into the freezing waters at West Angle Bay on New Year’s Day to raise thousands of pounds for local hospice care, as the annual Angle Dip returned with one of its most successful events yet.

The 2026 dip raised £2,694.36 for the Paul Sartori Foundation, helping fund free hospice-at-home services for families across the county.

Crowds gathered along the sands at West Angle Bay to cheer on participants, with a mix of seasoned dippers and first-timers taking to the sea in fancy dress and wetsuits for the traditional New Year challenge. Despite the icy conditions, spirits remained high, with supporters lining the beach to clap, shout encouragement and donate.

Organisers said the event once again highlighted the strong community support behind the charity and its work.

A number of local businesses and groups helped make the day possible, including Wavecrest Café, The Hibernia Inn, KJ Prints, Cwtch Laser Designs, Communic8, Axon, Pembrokeshire Paddlers, and a team of volunteers from the foundation.

Every penny raised will go towards providing practical and emotional support for people living with life-limiting illness. The charity offers hands-on nursing care, equipment hire, complementary therapies, advance care planning and bereavement support, enabling patients to remain at home with loved ones at the end of life.

Joanne Lutwyche, Event and Fundraising Officer for the Paul Sartori Foundation and founder of the Angle New Year’s Day Dip, said: “This year’s dip was absolutely brilliant. The energy on the beach, the support from the community and the bravery of every single dipper made this one of our best years yet.

“I am so grateful to everyone who turns up, volunteers, donates and shouts encouragement from the sidelines. Events like this have a direct impact on our clinical team, allowing them to continue providing essential care to people with life-limiting illness in their own homes. I could not be prouder of what our community achieved together.”

For details of upcoming events or to volunteer, visit the Paul Sartori Foundation website or email [email protected].

 

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Charity

West Wales boy’s long road back to school after rare illness

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Family thank Cardiff children’s hospital charity as figures show thousands of visits each year from Pembrokeshire, Ceredigion and Carmarthenshire

A SEVEN-YEAR-OLD boy from Aberaeron who spent months unable to walk after a rare neurological illness has returned home and back to school following specialist treatment at Noah’s Ark Children’s Hospital for Wales.

Lewis was diagnosed last year with Guillain-Barré syndrome, a rare condition in which the body’s immune system attacks the nerves, leaving him temporarily paralysed and unable to walk.

He spent seven months as an inpatient at the children’s hospital in Cardiff, missing Christmas at home while undergoing intensive treatment and daily physiotherapy.

Today, one year on from his diagnosis, Lewis is back in school and rebuilding his strength.

But the return to normal life has brought mixed emotions.

His mum Lizzie said: “We knew this day would eventually come. Lewis woke up feeling sad, but also happy. Happy he’s come so far, happy he’s beating Guillain-Barré syndrome and really happy to be back in school with friends. But on the flip side, he was really sad.

“He misses the hospital. He misses Bechan, the ward counsellor he played with often and had the best chats with. He misses Polly, the play specialist who took Lewis on adventures around the hospital every day. He misses Emily and Morgan from the charity, who used to make us laugh so much. I knew he would miss Noah’s Ark when we got home, because although it was hard, it wasn’t all bad thanks to all these people.”

Lewis during his recovery journey at Noah’s Ark Children’s Hospital for Wales (Pic: Supplied)

Thousands travel from West Wales

Figures supplied by the charity show just how many families from West Wales depend on the Cardiff hospital for specialist care not available locally.

During 2025 alone there were:

• 648 patient visits from Pembrokeshire
• 227 from Ceredigion
• 901 from Carmarthenshire
• 848 from Neath
• 1,380 from Swansea

That amounts to more than 4,000 visits from the wider region in a single year.

Across Wales, around 90,000 children receive treatment at the hospital annually.

The charity helps fund new and innovative medical equipment and facilities, supports families with emotional wellbeing services, and provides play specialists who help make long hospital stays less frightening for young patients.

It also offers practical support such as meals and comfort items for parents sleeping at their child’s bedside.

Giving something back

Inspired by the care Lewis received, his swimming teacher Martienus decided to give something back by walking from Aberaeron to Cardiff, raising £5,670.78 for the charity.

The money helped provide hot meals for parents spending Christmas Day in hospital — something Lewis’ family say can make a huge difference during the toughest moments.

Lizzie added: “Lewis’ journey shows not only his strength but also the difference a little kindness and support can make for families facing tough times.”

For more information or to support the charity, visit noahsarkcharity.org

 

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Charity

Elvis has left the building! Six rescued seals take to the open waters after rehab

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After rescued from Welsh beach – Elvis has been released into the wild

It was a little less conversation and a little more action please, for one seal this week!

Elvis – who was rescued back in September from the rocks at Porthcawl seafront – has finally left the building after spending the last few months at RSPCA West Hatch Wildlife Centre.

On Monday (February 2) Elvis (who is in fact a she) was released back into the wild alongside five other seals – named as singers and bands – Sleep Token, Wurzel, Arctic Monkey, Benson Boone, Fleetwood Mac – who have all completed a stint of rehabilitation with the RSPCA.

Affectionately named Elvis after the popular Elvis festival held in Porthcawl every September – the seal pup had been rescued by British Divers Marine Life Rescue with support from the local RNLI team. She was injured and malnourished and had also been separated from her mother.

She was taken into the care of the RSPCA and taken to RSPCA West Hatch where the charity’s wildlife rehabilitation team help the seals build up the strength they need to be fit enough to be released.

The seals are initially brought to the centre’s intensive care pens before they are moved into a pool when they gain weight and begin self-feeding.

Each seal pup rehabilitated by the RSPCA West Hatch can remain in care for a number of months and during this time the centre will be spending on average £1,400 a week on fish and veterinary care during seal season – which typically runs from September to March.

Before release, the seals are given identification tags in their hind flippers for ID purposes. The RSPCA often receives good feedback from sightings – and scientific results have revealed that seals that go on from rehabilitation to survive and thrive in the wild.

This group of seals were released from Devon which for a seal is just a short journey from where Elvis was rescued from.

Wildlife Supervisor Ryan Walker said: “It was such a wonderful moment to witness Elvis along with the other seals confidently swim out into the sea.

“Elvis progressed through rehabilitation very well. Upon her admission on 16 September, she weighed 13.6kg and completed a five-day course of antibiotics to treat wounds on her fore flippers and chin, which have since healed.

“She has spent a lot of time in one of our deeper outside pools with another seal named Dido and once she gained enough weight she was fit for release. Unfortunately we had a few storms and bad weather we had to wait to pass – but we’re delighted she is now where she belongs – along with the other seals too!

“As always their success story is down to a real team effort from the initial rescuers to all the vets, staff and volunteers at West Hatch and to the public.”

The other seals who were released alongside Elvis were:

  • Benson Boone – who was rescued from Pembrokeshire. He came into RSPCA care very lethargic and skinny.
  • Sleep Token – who came into RSPCA care after being rescued from Cornwall. He was underweight and had various wounds.
  • Arctic Monkey – was one of the first seals of the season and was rescued from Devon.
  • Wurzel – was rescued from Cornwall, and came in underweight and covered in wounds.
  • Fleetwood Mac – was rescued from Devon, was also underweight and had wounds.

Their progress and release was captured by RSPCA photographer Emma Jacobs.

She said: “I have been following Elvis’s progress and rehabilitation, so it was absolutely wonderful to witness her release into the wild.

“Our precious wildlife desperately needs our help and support. It’s been amazing to follow this group of seals as they gained strength ready for release.

“So many species of native wildlife are sadly threatened, and many have seen reductions in numbers, so it’s important for all of us to do everything we can to support wildlife to make sure every kind thrives in its natural environment.”

The RSPCA works in partnership with a number of other organisations to come to the aid of seals.

RSPCA Animal Rescue Officer Ellie West added: “We’d like to thank the RNLI and the British Divers Marine Life Rescue for bringing Elvis to safety. Partnership working is so important in helping us to reach seals and we work closely with many organisations.”

The animal welfare charity advises that if members of the public spot a seal on a beach that they observe them from a distance and do not approach them. Seals are wild animals and have a nasty bite if they feel threatened. It is also advised people keep dogs on leads on beaches that have seal colonies too.

“It’s not unusual to see a seal pup by itself, as their mothers will leave the pups alone very early on in life, feeding in the sea then returning to feed them.” said Ellie. “If you find a seal pup that looks fit and healthy and shows no signs of distress, monitor it first from a safe distance for 24 hours. 

“However, if the mother doesn’t return after 24 hours or the pup appears distressed, injured or unwell, or is on a busy public beach, our emergency line can be reached on 0300 1234 999. Please always stay at a safe distance and keep dogs well away – seals can have a very nasty bite if threatened.”

 

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