Community
Pioneering eye surgery offers hope for Lloyd
FUNDRAISING is underway for 22-year-old Saundersfoot local Lloyd Davies, who desperately needs pioneering eye surgery in the United States who lost his eyesight after being diagnosed as suffering from Lebers Hereditary Optical Neuritis (LHON).
Led by Professor John Guy, the gene therapy treatment is the first in the world that could potentially cure LHON and fundraising is now well underway to help Lloyd raise the £10,000 he needs in order to make the trip to the USA and stay out there for the duration of the treatment.
The former Greenhill School pupil had aspirations of joining the Royal Navy to become a Navy Diver, and whilst he was waiting to complete the final parts of the admissions process, he enrolled onto the Marine Biology course at Swansea University.
In November 2013 Lloyd’s world was turned upside down when he began to suffer from a slight blurring of vision in his left eye. After putting up with it for a short period, he decided to go for an appointment at his local ophthalmic optician, who immediately referred him to the Ophthalmic Department at his local hospital who began to run tests to discover the cause of his sight issues.
By Christmas 2013 Lloyd had lost all vision in his left eye within just a month of first noticing any problem at all. By January 2014 he was given the devastating news that the cause of his sudden blindness was that he was suffering from LHON, and that usually the other eye would be affected within a matter of months.
This proved to be correct, as shortly after diagnosis Lloyd started to lose the sight in his right eye. By August 2014, shortly after celebrating his 21st birthday he was declared as being legally blind.
The condition has robbed the fun loving, sports mad individual from doing all the things he enjoys and has prevented him from pursuing the career of his dreams. It is hoped that the treatment will restore Lloyd’s vision and help him to pursue his ambitions in life.
Lloyd told The Herald about how the condition has affected his life and how grateful he is to those who have started the fundraising account and also to his family and friends who have helped him through this difficult period in his life
“When I was 20 years old, I lost my sight to a genetic disease called LHON (Lebers Hereditary Optical Neuritis). It took less than 5 months from having 20/20 vision to being registered as blind. Up until then I had lived the life of any normal lad growing up my age, being able to drive, play rugby, scuba dive and travel like anyone else takes for granted.
“The Summer before I lost my sight it worked at a Summer Camp in New York as a wakeboard instructor – something I now can’t do as I don’t think a blind person would be too safe driving boats!
“After I got back from Summer Camp I was in the process of joining the Royal Navy, something I now can’t accomplish.
“Once I was registered blind, there were life choices taken away from me – one of the biggest ones being my ability to drive – something I took for granted until I had to rely on buses, taxis, trains and lifts from other people.
“Later in September 2014 I joined the RNC (Royal National College for the Blind) in Hereford where I studied as a personal trainer in year one and currently doing massage in my second year, where I am still learning how to live with such limited sight.
“Since this all happened, everyday tasks have become daunting and tricky. Something as simple as finding the coffee to make a drink or trying to find something that has been moved by someone else.
“As trivial as it sounds, little things like having to take a picture of what other people are looking at, just to be able to enlarge and zoom in, just to try to see for myself. One of the things I now hate doing is going out for a meal, because even having to have the menu read out and chasing food around the plate becomes embarrassing.“
Regular everyday activities that people do without a second thought have become a chore for Lloyd and he explains that the surgery in America is his only chance to restore normality in his life, and that it is potentially not only himself that will be affected as there is a 50/50 chance of his younger brother also having the condition:
“As a result of the changes and difficulties that I’ve encountered I have been lucky to have such amazingly supportive family and friends that have helped keep my hopes up for future treatment and this opportunity to go to America for the trial is not one that I can afford to miss.
“The gene therapy treatment that is being trialled in the States is the first in the world to potentially cure my condition. “
“It is not just me has been affected by this as my younger brother has the same gene mutation and has a 50/50 chance of going blind too. Other members of my family also have the chance of being affected.
“As a result of this opportunity coming along, I will have to travel to and stay in America with someone coming with me and live there for 3/4 months whilst the trial is being carried out.
“I need to raise funds as quickly as possible is the trial is expected to start in the next few months.”
You can help Lloyd to get to the States and undergo treatment by donating via the ‘Light for Lloyd’ fundraising GOFUND ME page online, by typing the following link into your browser: https://www.gofundme.com/e8pte9xm
Alternatively you can search online for ‘Light for Lloyd’ and follow the links to donate, or go to social media site Facebook and search ‘Light for Lloyd’.
Community
Festive celebrations at St Davids Cathedral this weekend
ST DAVIDS Cathedral is set to host two special events on Sunday (Dec 22), offering a blend of joyful participation and traditional carol singing to mark the Christmas season.
In the morning, families are invited to the Scratch Nativity at 11:00am. Attendees are encouraged to come dressed as wise men, angels, sheep, or shepherds and take part in an unrehearsed retelling of the Christmas story. Canon Leigh described the event as: “Complete, wonderful chaos for an hour… but with some poignant, thought-provoking moments to centre ourselves on the real meaning of Christmas.”
Later in the evening, the Festival of Nine Lessons and Carols by Candlelight will take place at 7:00pm, featuring the Cathedral Choir. The event, steeped in tradition, will see the cathedral bathed in candlelight as carols and scripture readings fill the historic space.
Doors will open at 5:45pm for those seeking unreserved seating, and a large turnout is expected for this beloved Christmas celebration.
Community
Restoration of a pond hopes to support biodiversity in Pembrokeshire
AN OLD millpond at the heart of the Wallis and Ambleston community, and a site of Special Scientific Interest, has now been improved to benefit water quality and increase biodiversity in an area of South Wales, thanks to funding from Nestlé Waters UK.
Wallis Pond was created in 1836 as part of the tributary of the Wester Cleddau River to supply water to a local mill. Back in 1978, it was restored and later re-opened by HRH King Charles III, the then Prince of Wales.
Over the years, the pond had become completely silted up, restricting the waters passage and the pond’s ability to retain water, resulting in a reduced diversity of habitat in and around the millpond.
Pembrokeshire County Council, Heavyside Landscapes and Nestlé Waters UK have come together to restore the millpond with regulatory guidance from Natural Resources Wales and support from the Ambleston Community Council.
The project saw the pond re-dug and de-silted, and the old sluice gate replaced to re-establish the millpond. With the pond now able to hold more water, it is hoped to help build resilience to the increased frequency and intensity of storm events, alleviating the risk of flooding in the local area.
Retention of flows in the pond for a longer time should help reduce silt build-up and prevent nutrients such as phosphates and nitrates from travelling downstream in the Cleddau catchment, helping to protect water quality, improve aquatic habitats, and encourage eels, otters, damselflies, and other wildlife species.
Restoration of Wallis Pond is one of the projects that Nestlé Waters is working on as part of its efforts to help regenerate local water cycles and create a positive water impact everywhere the company operates.
Matthew Faulkner, Factory Manager at the Nestlé Waters site in Princes Gate, said: “We are proud to be a part of the Wallis Pond restoration work, aimed at delivering long-lasting benefits in Pembrokeshire, where we bottle at source Princes Gate and Nestlé Pure Life waters. This beautiful landscape is not only our home, but also home to some incredible flora and fauna which are vital for keeping the area rich and thriving in biodiversity.
“We’re working hard to protect this land and the water beneath our feet. Water is a shared resource and a shared responsibility, and caring for it takes the whole community. That’s why we’re grateful to be working with partners on this project that will hopefully have a positive impact on the local ecosystem and community.”
Cllr Rhys Sinnett, Cabinet Member for Residents’ Services at the Pembrokeshire County Council, said: “We welcome this funding to enhance the biodiversity in Wallis Pond which can be enjoyed by the residents of Ambleston, the wider communities in Pembrokeshire and the visitors to our fantastic county.
“This is an excellent example of partnership working that has significant benefits for the environment and the wellbeing of generations to come.”
Eirian Forrest, Clerk at the Ambleston Community Council, said: “We are grateful to Nestlé Waters UK for the funding and wish to thank everyone who has been involved in this project, especially the Pembrokeshire County Council team, for pushing the project forwards.
“The Community Council are delighted that the work has finally been done and look forward to the positive impact it will have on biodiversity. We have already received many positive comments from members of the community. The improved pond encourages locals to take a walk around the area, as well as sit down to watch and enjoy the wildlife.”
Community
£1.7m to support families and individuals facing food poverty
FAMILIES and individuals across Wales struggling with the cost of food will receive vital support this winter through £1.7m of additional funding from the Welsh Government. This funding will provide help to those most in need and back community projects working to prevent and tackle food poverty in the longer term.
The funding will:
provide emergency food aid by helping local groups to store and distribute food to people who need it most, while also addressing the underlying causes of food poverty;
support FareShare Cymru by purchasing equipment to store and deliver fresh food during the winter months and running food education activities to help low-income families and individuals manage rising costs; and
strengthen food partnerships in every local authority area in Wales, helping them to address local needs and ensure resources reach those facing the greatest challenges.
The Wales-wide funding will be announced today at Cegin Hedyn community kitchen in Carmarthen. Cegin Hedyn, a Pay What You Can Canteen and Community Kitchen, is part of a network of organisations tackling food poverty, and works with Carmarthenshire Food Partnership, Bwyd Sir Gâr Food.
Bwyd Sir Gâr works closely with groups and initiatives across the region to provide targeted support to those who need it most.
Cegin Hedyn ensures that everyone can have access to fresh, organic, seasonal produce, with produce being grown steps away in their Community Allotment. Bwyd Sir Gâr Food has also been providing vegetables, grown at Bremenda Isaf farm in Llanarthne, to Cegin Hedyn and has been offering mentoring and support to the volunteers at the allotment.
Cegin Hedyn is run by chef Deri Reed. He said: “This funding is a lifeline for communities like ours, ensuring that we can continue to provide fresh, nutritious meals to those who need them most while building a more sustainable and inclusive food system. At Cegin Hedyn, we believe in the power of food to bring people together and create positive change.
“This support will help us expand our reach, grow more organic produce locally, and strengthen the food partnerships that make a real difference in tackling food poverty in Carmarthenshire and beyond.”
Food Sense Wales works closely with Bwyd Sir Gâr and Food Partnerships across Wales to help create sustainable solutions to enable everyone to enjoy healthy and sustainable food.
Katie Palmer from Food Sense Wales said: “By strengthening its support for food partnerships across Wales, the Welsh Government is recognising the importance of building resilience in local food systems – both in terms of diversifying local supply chains, and by building and organising assets and civil society in a way that is unique to the needs of the local community.”
The Cabinet Secretary for Social Justice, Jane Hutt, said: “No one should have to worry about how they’re going to put food on the table. As a government, we are committed to tackling food poverty and ensuring support reaches those who need it most.
“This new £1.7m package of funding will provide both local relief to those struggling with food costs and lay the groundwork for longer-term solutions to prevent food poverty. By supporting emergency aid, food education, and local partnerships, we are addressing this crisis from all angles.
“Local food partnerships are vital in this effort. They work with inspiring projects, like Cegin Hedyn, which not only provides meals for people, but also brings people together and supports the wider community. Their efforts show what can be achieved when local groups and wider networks come together to support those most in need.”
The additional funding builds on the £2.8m the Welsh Government has already allocated to help address food poverty this year, and brings the total to more than £24m invested in this area since 2019.
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