Health

Apologies to victims of ‘the greatest scandal in the history of the NHS’

Published

8 months ago

June 5, 2024

WALES’ health secretary apologised to victims of the contaminated blood scandal, describing it as the greatest treatment scandal in the history of the health service.

Leading a Senedd debate on the infected blood inquiry, Eluned Morgan said the Welsh Government has started work to consider Sir Brian Langstaff’s recommendations.

More than 30,000 people in the UK were infected with HIV or hepatitis C by contaminated blood between 1970 and 1991, with more than 3,000 people dying as a result.

She said: “We must do better than the denials, the false reassurances, the complacency, the cover-ups, the obfuscations and the repeated failures at an individual, institutional and government level that characterised and compounded this awful tragedy.”

Although the scandal predates devolution by decades, Baroness Morgan apologised to all those who were infected with tainted blood or have been affected by the disaster.

Mabon ap Gwynfor told the chamber Sir Brian’s report was an “utterly damning indictment of an entrenched culture of institutional abuse, governmental neglect and political obfuscation”.

Plaid Cymru’s shadow health secretary hoped the report would prove a watershed moment in addressing an imbalance of power at the heart of the criminal justice system.

He said: “From the Hillsborough disaster to the Post Office Horizon scandal, the wheels of justice can often turn far too slowly when it comes to the misdemeanours of the wealthy.”

Sam Rowlands, his Conservative counterpart, described the infected blood scandal as one of the most grotesque miscarriages of justice in British history.

He welcomed the Victims and Prisoners Bill, which will create an arm’s-length body to administer compensation to victims, passing through Parliament pre-general election.

Julie Morgan, who has campaigned on the issue for decades as an MS and an MP for Cardiff North, paid tribute to those who had their lives incomprehensibly turned upside down.

She said: “When haemophilia patients were told about their HIV diagnosis, it was a terrifying ordeal – a death sentence, with life-expectancy estimates of between two and five years.

“The stigma was horrendous and the majority of patients kept their status secret.”

Stressing the importance of implementing the recommendations, Ms Morgan warned many people are worried about false hope because it has taken 40 years to get to this point.

Plaid Cymru leader Rhun ap Iorwerth, who chairs the Senedd’s cross-party group on haemophilia and infected blood, agreed that the fight for justice must continue.

Mark Isherwood, the Conservative MS for North Wales, said the five-year inquiry found infected blood was not an accident and was avoidable.

He said: “Contaminated blood has had and continues to have a devastating impact on the lives of thousands of infected people and their families.”

John Griffiths, a Labour backbencher, who has represented Newport East since 1999, joined other members in paying tribute to campaigner Lynne Kelly, who chairs Haemophilia Wales.

Highlighting the stigma around HIV/AIDS at the time, he said the family home of Colin John Smith, who died aged seven weighing only 13lb, was daubed with abuse and graffiti.

Mr Griffiths told the chamber: “It was a terrible scandal and indictment of the systems at the time – and so many families suffered in the way that these families did.”

Plaid Cymru’s Sioned Williams raised the concerns of two sisters from the Swansea valley, whose father Arwyn Davies died in 1992 due to the “appalling, unforgivable” scandal.

She said: “To date, children who lost parents, like Rhian and Sharon, have never been provided with compensation or recognition of their father’s death. They haven’t even received a letter of apology from their local health board.”

Hefin David, who is vice-chair of the cross-party group, paid tribute to campaigners in his constituency, including Nicholas Moran, Susan Hughes, Janet Morgan, and Kirk Ellis.

Wearing a tie in the campaign’s colours, the Labour MS for Caerphilly raised Mr Ellis’ concerns about the UK Government’s proposed lump-sum compensation scheme.

Dr David said: “He points out that in Scotland the Scottish Government has guaranteed that ongoing current support payments are for life, as well as the lump-sum compensation payments proposed by the UK Government in response to Sir Brian’s report.”

Outside the Senedd, Dr David said: “It has taken us a long time to get to where we are today, and it is a tribute to the hard work of campaigners and all those who have been affected by this scandal, whether directly or indirectly.

“The role of my constituents who have regularly contacted me about this issue over the years cannot be understated.

“I have done a lot of work with Kirk Ellis in particular, who is from Caerphilly. These residents wanted me to tell their story of how the infected blood scandal affected them and their loved ones, but they also want to raise concerns about how the UK Government could implement a proposed compensation scheme going forward”.

Dr David highlighted the need for the UK Government to work with the Welsh Government and implement the report’s recommendations “in full and without delay”.

Plaid Cymru’s Luke Fletcher said Debroah James, a constituent from Bridgend, has fought for 42 years to uncover the truth of the death of her brother, who was a police officer.

He said: “People in positions of authority vilified these families for raising concerns, accused them of lying, accused them of giving life to rumours. Corruption is the long and short of it, isn’t it – a bid to save money. What an indictment of our system.”

Labour backbencher Jenny Rathbone agreed that it is more than a treatment scandal, saying: “This is about a criminal cover-up.”

The Cardiff Central MS backed Sir Brian’s calls for a legal duty of candour for civil servants and ministers to ensure they are not “continuing to be less than candid with the truth”.

Acknowledging concerns about unrecognised cases, Baroness Morgan said part of the issue is problems with NHS records that are required to make compensation claims.

She said the Welsh Government has established a new infected blood inquiry group, chaired by Push Mangat, the new deputy chief medical officer, to consider the next steps.

She explained: “It will work with health boards, the Welsh Blood Service, Public Health Wales and policy officials to ensure we look at the wrongs of the past and work together to ensure this can never happen again.”

Closing the debate on June 4, Baroness Morgan said: “Tonight I think we unite as a chamber and as a parliament, and I’m sure you’ll join with me to pay tribute to those who have suffered as a result of this – the greatest scandal in the history of the NHS.”

MSs unanimously supported the Welsh Government motion and Plaid Cymru amendments.

Health

More than 400,000 visit pharmacies for common health issues

Published

2 days ago

January 21, 2025

Tom Sinclair

THE WELSH public is being encouraged to visit local pharmacies for free advice and treatment for a wide range of illnesses. New figures reveal that over 400,000 people used the Common Ailments Service in the past year alone.

Pharmacies offer convenient access to healthcare professionals, often without the need for an appointment, freeing up GP slots for those with more complex or urgent medical needs.

Common ailments service

Available in 99% of pharmacies across Wales, the service provides free, confidential advice and treatments for 28 common illnesses, such as sore throats and urinary tract infections. Since its launch in 2013, it has supported nearly 1.25 million people.

Around 220 pharmacies now offer the Pharmacist Independent Prescribing Service, allowing pharmacists to treat conditions such as ear, skin, and respiratory infections, sinusitis, and migraines.

A survey found that 95% of patients who used the service would have otherwise sought help from a GP or other healthcare provider.

Prescribing services expanding

Each year, up to 100 community pharmacists in Wales undertake prescribing training. From 2026, all newly qualified pharmacists will be registered prescribers, enhancing the range of services available at local pharmacies.

Primary care reforms

The Cabinet Secretary for Health and Social Care, Jeremy Miles, highlighted ongoing reforms to deliver more care closer to home during a statement to the Senedd.

Key statistics include:

GPs handle around 100,000 calls and 68,000 appointments daily.
Optometrists conduct over 2,000 consultations each month.
More than 420,000 new dental patients have been treated since April 2022.
District nurses see approximately 31,000 patients each month, equating to 1% of Wales’ population.

Comments from key figures

Health Secretary Jeremy Miles said:
“We know there is very high demand for GP services in Wales, with around 1.6 million people contacting their practice each month.

“For most common health concerns, your local pharmacy is the best option, providing free and easy access to treatment.

“We are working with the NHS to provide more care in the community, closer to people’s homes, and to make it easier for people to choose the right service for their health needs.”

Gwawr Davies-Jones, a pharmacist at High Street Pharmacy in Barry, added:
“Since the new pharmacy contract was implemented in 2022, our role has changed considerably. Instead of being in the dispensary, we are now in the consultation room for most of the day, offering clinical services.

“On average, we carry out more than 20 consultations daily, from providing contraception to emergency medicine supplies.

“The demand for advice on common conditions is great, giving pharmacists an opportunity to share advice and treatment, including prescribing antibiotics and other prescription-only medicines without the need to see a GP. This helps free up much-needed appointments for more complex conditions.

“We feel we offer an invaluable service to our community. The services we provide alleviate pressures on the NHS, giving pharmacists great satisfaction knowing they are making a difference.”

Supporting NHS pressures

Pharmacies in Wales offer treatment for 28 common illnesses under the Common Ailments Service. Many also provide emergency contraception, annual flu vaccinations, and regular contraception services.

The Welsh Government has significantly supported this service expansion, increasing its investment by 24% since 2016-17, with an additional £9.9 million allocated this year.

***Cabinet Secretary Jeremy Miles visited High Street Pharmacy in Barry today to meet pharmacist Gwawr Davies-Jones.***

Health

Lymphoedema patients to benefit from online mental health support

Published

2 days ago

January 21, 2025

Tom Sinclair

NHS Wales’ digital wellbeing service has teamed up with a pioneering clinic to help patients manage the mental health impacts of Lymphoedema and Lipalgia Syndrome.

The Lymphoedema Wales Clinical Network (LWCN) established a psychological support service – the only one of its kind in the UK – after patients spoke of the emotional challenges of living with these conditions.

Patients revealed how their physical symptoms were often accompanied by depression, anxiety and worries about appearance.

Support offered by the service’s two psychologists is now being complemented by direct referrals to SilverCloud® Wales, a suite of online, self-help courses based on Cognitive Behavioural Therapy (CBT).

Dr Jayne Williams, National Lymphoedema Consultant Psychologist for LWCN said: “This is an exciting time for us.

“We’re looking at different ways for people to access psychological therapies – SilverCloud being one of them. The aim is to provide timely, preventative support before people get to crisis point.

“As SilverCloud is online, it has the capacity to reach many more people than we could see face-to-face, and its flexibility means that it fits around busy work and family lives.

“Being able to offer something that patients can do in their own way, at their own pace is brilliant.”

NHS Wales online CBT project manager Fionnuala Clayton said the new referral pathway was inspired in part by feedback from a ‘Living Well with Lymphoedema’ event hosted by LWCN, where patients were asked what they would like from its emerging psychology service.

“Patients wanted to feel as though they were not alone and that they still had a healthy and happy life despite their condition,” said Fionnuala. “They wanted easy access to support for building resilience alongside help to help themselves.

“Coming away from the event, we knew a referral pathway would support many patients across Wales.”

Lipalgia Syndrome – also known as Lipoedema – is an abnormal build-up of adipose fatty tissue, usually in the lower half of the body, which more commonly affects women.

Lymphoedema is another incurable, long-term condition which develops due to a damaged or poorly-functioning lymphatic system. Damage can occur as a result of many factors including obesity, surgery, cancer treatment, infection or injury.

People who are sedentary are particularly vulnerable as the lymphatic system relies on movement to remain healthy and move the lymph fluid around the body. Symptoms include swollen and painful heavy limbs and a higher risk of skin infections and wounds.

Said Dr Williams: “These are conditions that people have to learn to live alongside forever, which can be incredibly difficult.

“They have to cope with swelling and pain, they may have to wear compression bandages or garments, carry out daily skin care routines and do lots of movement.

“We see lots of people with very low mood. There’s also a lot of anxiety around body image and intimacy.

“Feeling people are judging you, and perhaps not being able to find clothes or shoes that fit you, means your whole identity and your social confidence can be affected. You can feel more isolated and withdrawn.”

Around 25,000 people across Wales use LWCN services.

Local health board lymphoedema services can refer people to the psychology service within the National Lymphoedema Team, which is hosted by Swansea Bay University Health Board.

Dr Williams said several patients had been referred to SilverCloud’s Space for Positive Body Image programme after attending a body image workshop.

Other courses on offer include support for anxiety, depression and stress.

Anyone in Wales aged 16 or over can self-refer to SilverCloud, without seeing a GP and from the comfort of their own home.

Fionnuala Clayton added: “We’re delighted to onboard the Lymphoedema Wales Clinical Network. This has been a collaborative effort between services, working together to identify how best support patients living with Lipalgia Syndrome and Lymphoedema.”

For further information and support on Lymphoedema and Lipalgia Syndrome, visit https://lwcn.nhs.wales/

To self-refer to SilverCloud Wales, visit https://nhswales.silvercloudhealth.com/signup/

Health

Tufnell talks tough on health care following ‘in-depth survey’

Published

3 days ago

January 20, 2025

Sarah Jane Absalom

TOP Hywel Dda health board officials are turning a blind eye to its escalating health care failings despite pocketing six-figure salaries.

So says Mid and South Pembrokeshire MP Henry Tufnell who is calling for an urgent meeting with Hywel Dda’s chief executive, Phil Kloer.

“The Hywel Dda Health Board needs to recognise that there’s a problem with health care outcomes and care delivery, but what is it going to take for them to recognise that?” Henry Tufnell commented this week.

His comments followed an in-depth survey of 1,000 people living in Pembrokeshire which confirmed that a staggering 62% have to wait more than a week for a GP appointment. 43% have cited a lack of available appointments as their biggest challenge, while no fewer than 87% claim healthcare services have worsened in recent years.

“But it’s the real stories that show the scale of the crisis,” continued Henry Tufnell.

“I know of a cancer diagnosis that has been delayed by over a year, while ambulance waiting times can be more than 13 hours, even for urgent cases. Critical care needs are going unmet and this is forcing patients to seek private treatment.”

Tufnell has now submitted a Freedom of Information (FOI) request to Hywel Dda University Health Board demanding greater transparency on waiting times, service provision and a plan strategy to fix the crisis.

“Despite all the latest evidence, in addition to everything we gathered during the election campaign, there’s still no acceptance by the Board that there’s a problem,” he said.

“But it’s their responsibility to deliver health care within this county, and they’re failing. The management is failing us here in Pembrokeshire and there’s a complete lack of transparency and accountability. All these people sitting in management roles are being paid huge amounts of money, some bringing in six figure salaries. But they’re failing.”

Mr Tufnell has now requested an urgent meeting with Hywel Dda chief executive Phil Kloer which is expected to take place on February 14.