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Milford Haven: Natalie’s brave 5,000 mile cycle along the British coast

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A FIVE THOUSAND mile cycle around the coast of Britain in just 91 short days would be a challenge for even the fittest of individuals. but for 29-year-old Natalie Wilson from Berkshire, it’s an even tougher challenge.

She suffers from Ehlers Danlos Syndrome, or EDS, a group of thirteen individual genetic conditions which affect the body’s connective tissues, causing pain and fatigue.

Having set off from her home town of Wokingham on February 24, Natalie cycled to Brighton, along the south coast, south west and into Wales.

5000 miles of coast, in only 91 days, and completely self supported.

On the 27 day of her extraordinary journey, the brave charity volunteer is in Milford Haven, braving the cold spring weather to bring awareness of her rare condition to our part of Wales, before she heads up north towards Aberystwyth.

Speaking to The Herald in Herbranston on Wednesday (Mar 21), Natalie, who spent the whole of January in hospital, said that the main reason for this extremely tough challenge was to raise awareness for people with EDS and other unseen disabilities, whatever kind.

“I want to tell people that it is still possible to do things, and this coast line is beautiful.”


Explaining that her tissue wasting syndrome has no treatment, she said that her cycle would also ‘help build up muscles’.

“As I cycle around the coast I am inviting people to come and join me, and ride along – even if you are in a wheelchair!

“I chose the name Zebra because I wanted to make people think that not everything is obvious. Something shaped like a horse, and something which sounds like a horse when it gallops is not necessarily a horse.

“When I first became unwell, if doctors had understood that I had EDS then they would have treatment me differently.”

Residents of Herbranston donated supplies to help Natalie on her way, and Mrs Absolon, landlady of the Taberna Inn, donated a free meal to Natalie to ensure she was well fed for the next leg of her journey.

Natalie told The Herald ‘the people here have been amazing’ as she hugged locals who had donated supplies.

Asked about the challenge of riding 5000 miles around Britain’s rugged coast, Natalie said: “This challenge is really tough, my body hurts, my leg muscles burn more than they have ever done before. I have battled all of the elements that have been thrown at me.

“I spend the majority of the time cold unless I am cycling up a steep gradient. I am tired from spending so many hours on my trike outdoors because I am slow and the miles are taking longer than expected. When I finish cycling for the day I spend hours planning, reading comments, writing my blog and trying to raise publicity.

“I haven’t been resting apart from the time I have spent asleep. As painful as all of this is, It is nothing compared to the pain I endured before and at the beginning of the diagnosis of the conditions I have. Nothing compared to the constant 8/10 headache I had for three years, and the frequent joint dislocation.”

She added: “”I am writing a daily blog, and people can follow me on my website – zebraonabike.co.uk”

You can donate to Natalie’s cause here.

About EDS

The Ehlers-Danlos syndromes (EDS) are a group of thirteen individual genetic conditions, all of which affect the body’s connective tissue. Connective tissue lies between other tissues and organs, keeping these separate whilst connecting them, holding everything in place and providing support, like the mortar between bricks. In EDS, a gene mutation causes a certain kind of connective tissue – the kind will depend on the type of EDS but usually a form of collagen – to be fragile and stretchy.

This stretchiness can sometimes be seen in the skin of someone with EDS; individuals with the condition may also be able to extend their joints further than is usual – this is known as being hypermobile, bendy or double-jointed. As collagen is present throughout the body, people with EDS tend to experience a broad range of symptoms, most of them less visible than the skin and joint differences.

These are complex syndromes affecting many systems of the body at once, despite this EDS is often an invisible disability. Symptoms commonly include, but are not limited to, long-term pain, chronic fatigue, dizziness, palpitations and digestive disorders. Such problems and their severity vary considerably from person to person, even in the same type of EDS and within the same family.

 

Entertainment

Families urged to explore historic Wales this half term with low-cost Cadw days out

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FAMILIES across Wales are being encouraged to rediscover history on their doorstep this February half term, with more than 130 historic sites offering affordable days out.

Cadw, the Welsh Government’s historic environment service, says its castles, abbeys and ancient monuments provide low-cost options for families looking to get out of the house without breaking the bank.

From dramatic medieval fortresses to Roman remains and peaceful abbey ruins, many locations are within easy reach of local communities, making them ideal for a short day trip.

Nearby highlights include Caerphilly Castle, Caernarfon Castle, Raglan Castle, and the Caerleon Roman Baths, each offering a mix of history, open space and hands-on activities.

Good value days out

New visitor research carried out by Cadw shows strong satisfaction among guests. More than 85 per cent rated their visit as good, while nearly two in five said their experience was better than expected.

Families are being encouraged to bring picnics, book tickets online in advance and consider membership options to keep costs down, particularly for repeat visits over school holidays.

History brought to life

Several sites now include improved interpretation and interactive elements aimed at younger visitors.

At Caerphilly Castle, recent restoration work has recreated parts of the medieval interior, allowing visitors to step inside spaces such as the Great Hall and gatehouse to see how the fortress would have looked in the thirteenth century.

Meanwhile, children visiting Caerleon can take part in a daily Roman Baths trail where they can touch, smell and explore objects linked to life in Roman Britain.

Quieter winter exploring

Cadw says winter can be one of the best times to visit, with fewer crowds and dramatic seasonal scenery.

Places such as Tintern Abbey, Chepstow Castle, Criccieth Castle, and Valle Crucis Abbey offer peaceful walks alongside striking historic backdrops.

Something close to home

With sites spread across the country, most families will have a Cadw monument within a short drive.

Membership options provide unlimited entry throughout the year, with children admitted free with adult members, alongside shop discounts and reciprocal offers at other UK attractions.

Further details on opening times, events and tickets are available at the Cadw website.

 

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Local Government

Residents invited to step forward for town council roles

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HAVERFORDWEST TOWN COUNCIL is inviting local residents to put themselves forward for two vacant councillor seats, with positions currently available in the Prendergast and Priory wards.

The vacancies will be filled by co-option after no election was called when the casual vacancies were previously advertised.

The Town Council area is divided into five wards – Castle, Garth, Portfield, Prendergast and Priory – and is responsible for managing a range of local facilities and services including recreational play and leisure areas, a sports changing facility and two cemeteries.

Council representatives say they are looking for people who are willing to commit time and energy to serving the community and helping shape decisions that affect the town.

Applicants should be practical, good communicators and able to work as part of a team. No previous council experience is required.

Co-opted councillors take part in meetings, help oversee local projects and represent the interests of residents in their ward.

The closing date for applications is February 27, 2026.

Anyone interested in applying, or wishing to have an informal discussion about the role, can contact the Town Clerk by emailing [email protected].

Further information is available at: www.haverfordwest-tc.gov.uk

 

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Community

Community groups invited to apply for monthly funding boost from Cwm Arian

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£200 donations helping sports clubs, warm spaces, schools and local projects keep Pembrokeshire villages connected and thriving

COMMUNITY groups across north Pembrokeshire are being encouraged to apply for monthly funding as Cwm Arian Renewable Energy continues its programme of small grants aimed at strengthening local life.

The community energy organisation is offering £200 every month to support grassroots projects, with the funding open to clubs, charities, volunteer groups and informal community initiatives. Since the scheme launched in April 2022, the fund has supported a wide range of activities, from youth sport and schools to cultural events and wellbeing projects.

The grants are deliberately flexible, allowing groups to decide what their communities need most rather than fitting strict criteria. Money can be used for hall hire, equipment, refreshments, transport, training costs or materials, helping even the smallest organisations get ideas off the ground.

In Hermon, funding has supported the popular Warm Rooms project, providing hot meals, company and a welcoming space for older residents during the colder months. Organisers say the grant has helped tackle isolation while giving people somewhere safe and social to meet.

In Crymych, football and rugby clubs have used the donations to run training sessions, organise matches and purchase kit, giving young people regular opportunities to stay active, develop skills and build confidence. Elsewhere, cultural groups and local festivals have used the support to stage workshops, performances and events that bring residents together.

A spokesperson for Cwm Arian said the aim is to keep the process simple and accessible.

They said: “These donations are about helping local people do what they already do best. A relatively small amount of money can make a big difference to a village group or volunteer project. We want to support activities that strengthen communities and improve everyday life.”

Best known locally for its renewable energy and sustainability work, Cwm Arian says reinvesting income back into the community is central to its mission.

Groups with an idea that benefits people in Pembrokeshire are invited to apply, with guidance and application details available through the Cwm Arian website.

 

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