Community
Team from Neyland Rowing Club to row the Atlantic unsupported
IN JANUARY, Cruising Free, a team of rowers from Neyland Rowing Club, Pembrokeshire, will begin their 3200-mile unsupported row across the Atlantic. Part of the Atlantic Dash 2025, one of the toughest endurance events in the world, the team’s challenge will set off from Lanzarote in the Canary Islands and end in Antigua in the Caribbean.
The team will be attempting to break two world records and raise money for both Cystic Fibrosis Trust and Paul Sartori, Hospice at Home.
Sophie, 31, is the youngest member of the team and is living with cystic fibrosis (CF). She hopes to become the first person with the condition to row the Atlantic, and any ocean. Janine, 69, will be 70 when she undertakes the challenge and hopes to become the oldest woman to row the Atlantic, and any ocean.
Cystic fibrosis is an inherited disease caused by a faulty gene. This gene controls the movement of salt and water in and out of your cells, so the lungs and digestive system become clogged with mucus, making it hard to breathe and digest food. There are over 11,000 people with CF living in the UK. Of those who died from cystic fibrosis in 2022, the median age of death was just 33 years of age.
Sophie said: “Three years ago I was incredibly lucky to gain access to a drug trial for a modulator drug, and to put it simply, it has changed my life. With a new level of health that I never ever thought I’d have, it was time to think about new possibilities, which led me to think about rowing across the Atlantic Ocean. Living with cystic fibrosis has given me times when I’ve not been well enough to live the life I’ve wanted to, and so I absolutely want to make the most of my newfound health. For me, this row isn’t just a crazy personal adventure, it’s also a chance to reimagine the future of cystic fibrosis and bring hope that one day, everyone with CF will be able to cruise free through life.”
Sophie grew up believing her life expectancy would be no longer than 30 years, however, with new medication her life has been revolutionised. Though these medications have helped improve the lives of many, they do not work for everyone, and they are not a cure. Team Cruising Free are raising money for Cystic Fibrosis Trust, who through research and support, are working towards a future where everyone with CF can lead a long and full life.
Polly, 49, will be 50 when she rows the Atlantic. She said her life completely changed as a result of the pandemic, working as a nurse in the NHS. She describes the challenge as a bit of a midlife crisis, and with two teenage boys and a husband waiting at home, she said “when we are mid-Atlantic, I am looking forward to not having to wash muddy rugby kit or do the school-run for 6 weeks!”
Janine, 69 has been sea rowing for over 30 years; the nearest that she has come to ocean rowing is the rowing race across the Irish Sea. She has four children and six grandchildren and is retired from the NHS. She said: “Until recently I have always rejected the idea of rowing the Atlantic – it sounds really uncomfortable and difficult! But this time I realised that if I don’t do it now, then I may never do it. I am so lucky to have such an amazing team to complete this challenge with, and who will be there to help me gain the World Record for the oldest woman to have rowed an ocean.”
Paul Sartori Hospice at Home is a registered charity offering free, specialised supportive care and advice for those in the later stages of any life-limiting illness. During the end-of-life period of both her mother and father, Janine and her family benefited from the invaluable services provided by Paul Sartori Hospice at Home. The support that the family received enabled her parents to be with their loved ones at home in familiar surroundings. As a nurse, Polly has witnessed first-hand the complexities of the provision of end-of-life care and knows the importance of Paul Sartori’s supportive care and advice to those living in Pembrokeshire.
To find out more, and support Cruising Free, go to linktr.ee/cruisingfree
Community
Senedd unanimously backs sign language bill
PLANS to make Wales the best place in the UK for British Sign Language (BSL) users moved a significant step closer to becoming law with the Senedd’s unanimous support.
If ultimately passed, the BSL bill – introduced by the Conservatives’ Mark Isherwood – would end Wales’ status as the only UK nation without specific sign language protections.
Leading a debate on Wednesday December 17, Mr Isherwood said the Senedd supporting the bill’s general principles was a “huge step ahead” for the “vital” legislation.
Mr Isherwood, a disability rights campaigner for decades, explained his backbench bill would introduce legal requirements to promote and facilitate the use of BSL in Wales.
He said the bill, if passed, would be the most progressive piece of BSL legislation anywhere in the UK, recognising BSL is a language in its own right, not a communication support need.

He highlighted that the bill would establish a BSL adviser role, the first statutory post of its kind in the UK, describing its importance as something that “cannot be overstated”.
Mr Isherwood, who chairs cross-party groups on disability and deaf issues, told the Senedd: “This isn’t just my bill. This is the bill of the BSL community. Let’s make this happen together and be proud of it together on behalf of deaf people across Wales.”
Jenny Rathbone, the Labour chair of the Senedd’s equality committee, was convinced of the “overdue” need for legislation to give more standing to British Sign Language.

Ms Rathbone said the committee heard the biggest barrier “by some margin” was the availability of interpreters and the sustainability of the workforce.
She quoted a signer who told the committee: “The bill would make us feel respected and valued. But without proper funding, planning and deaf-led leadership, it won’t go far enough.”
Sioned Williams, Plaid Cymru’s shadow social justice secretary, told Senedd members: “Language is a part of our identity, our culture and our personal dignity.
“When someone cannot use their language, they are excluded from education, health care, employment and public life – and that is not acceptable in today’s Wales.”

Ms Williams warned that if the legislation fails to deliver real change, the deaf community would be left “angry, disappointed and very, very disheartened”.
She expressed concern that the bill does not legally require the BSL adviser to be a deaf person, arguing it is “not appropriate, possible or efficient” for non-signers to lead the way.
Mr Isherwood defended the decision not to require that the adviser must be deaf, warning a successful legal challenge to a single such provision could cause the entire bill to fail.
Welsh Liberal Democrat leader Jane Dodds warned of an immediate workforce crisis, with only 54 registered sign language interpreters in Wales as of July.
With many now approaching the end of their working lives, she said: “We cannot – we must not – allow this bill to fail because we didn’t have the foresight to address this crisis now.”
Support for the bill stretched across the political spectrum, with Reform UK’s Laura Anne Jones similarly welcoming the “long-overdue” and “vital” legislation.
Jane Hutt, Wales’ social justice secretary, confirmed the Welsh Government’s financial backing, committing £214,300 for the bill’s first year of implementation in 2026/27.
If it clears the final hurdles, Mr Isherwood’s proposal will be the first backbench bill to enter the statute book in about a decade following the Nurse Staffing Levels (Wales) Act 2016.
Community
‘Nowhere I can play’: Disabled children excluded from Welsh parks
NEARLY four in ten disabled children in Wales “never or hardly ever” play outside due to a “heartbreaking” lack of accessible parks, politicians have warned.
Rhys ab Owen, an independent, described the situation as “disgraceful” as he cited a Play Wales report showing 37% of disabled children are effectively shut out of playgrounds.
Leading a debate in the Senedd on Wednesday December 17, he read the testimony of a ten-year-old boy from Blaenau Gwent who said: “Nowhere disabled friendly – parks haven’t got disabled friendly equipment, so I can’t play.”
Mr ab Owen warned: “There shouldn’t be any discrimination… disabled children do face much greater problems in terms of park maintenance, and with accessibility and inclusion.”
He shared the experience of a 13-year-old girl from Newport who told researchers: “There’s nowhere I can play or hang out safely by myself as I use a frame to help me walk.”
The former barrister warned budget cuts were leading to a managed decline in standards, quoting a 13-year-old from Caerphilly who said: “Due to anti-social behaviour our equipment gets broken, burnt and vandalised and is then not replaced.”
The Conservatives’ Natasha Asghar was stunned by the scale of the crisis and revealed that only 11% of playgrounds in Wales are rated “green”, meaning they are fully accessible. By contrast, almost half are rated “red” for poor accessibility.

Listing the barriers families face, Ms Asghar highlighted that 30% of sites lack accessible paths and nearly one in five have gates too narrow for wheelchairs. “Those are just two of the barriers preventing disabled children from accessing play,” she said.
Jane Dodds, the leader of the Liberal Democrats in Wales, argued the shocking statistics should be a wake-up call for Senedd politicians.
“To hear that 37% of disabled children in Wales say they never or hardly ever play outside should be a figure to stop us all in our tracks,” she said.

Meanwhile, Mike Hedges pointed out that Wales became the first country in the world to put a duty on councils to secure “sufficient play opportunities” for children in 2010.
And Julie Morgan, a fellow Labour backbencher, celebrated Cardiff becoming the UK’s first Unicef-accredited child-friendly city in 2023.
Dawn Bowden, the minister for children, pointed to £5m to improve playgrounds this year but she too was “disappointed” by play satisfaction figures falling from 84% to 71% since 2019.

She said the Welsh Government has provided a “toolkit” to Wales’ 22 councils, “ensuring a holistic outcome-focused approach” to inclusive and accessible play.
The cross-party motion, which called for play to be protected from cuts – as well as improved access for disabled children – was agreed unanimously but does not bind ministers.
Climate
Pembroke tidal flood defence work to continue to January
SIGNIFICANT issues with a part of Pembroke’s tidal barrage are not expected to be fully fixed before late January, councillors heard.
Pembroke councillors Aaron Carey and Jonathan Grimes submitted an urgent question heard at the December meeting of Pembrokeshire County Council, which said: “In light of the repeated flooding events across the county – including the recent overflow at Castle Pond and the acknowledgement by your own Coastal, Rivers & Drainage Team that the barrage tipping gate remains inoperable until mid-January can you explain what assessment has been made of the adequacy of our tidal outfall infrastructure in the face of current and projected future storm surges and sea-level rise?
“If no such assessment has yet been undertaken, will you commit now to commissioning an immediate structural and risk-capacity audit, with a report to full council within three months, and with proposals for funding any remedial works required — to avoid recurring damage and disruption to residents, highways, and public amenities?”
Responding to the urgent question, Cabinet Member for Residents Services Cllr Rhys Sinnett said a significant assessment of the Pembroke Tidal Barrage had already been undertaken over the past two years, with regular inspections.
He said “a comprehensive package of works” began in September which were due to be completed before Christmas but said there had been “significant issues” with the tipping gate hydraulic ram, with a significant overhaul now taking place, with reinstatement expected by late January.
He told members additional mitigation measures were now in place and, once works are completed, enhanced works will provide improved resilience and “long-term reliability,” with further reports due to come to Cabinet.
Cllr Carey and Cllr Grimes had also submitted a notice of motion saying: “That this council notes with concern the repeated and increasingly severe flooding experienced in our coastal, estuarial and river-fringe communities over recent weeks — in particular the flooding events affecting the Commons/Castle Pond area.
“That the council further notes that, according to correspondence from the Coastal, Rivers & Drainage Team Manager, the tipping gate at the barrage remains out of operation until mid-January due to mechanical issues; meanwhile high tide, heavy rain, wind-driven tidal surges and overspill at the sluice have combined to overwhelm the drainage/outfall infrastructure.
“That we recognise the current maintenance schedule (delayed ‘til after the summer season) and the justification given — but further that such planning failed to foresee the likelihood of severe winter storm and surge events, which climate change makes more frequent and more intense.
“That this council therefore calls on the Cabinet to commission an urgent review of:
- The adequacy of the current drainage/outfall and tidal-sluice infrastructure (barrage tipping gate, sluice/sluice-valve, flap valve, outfall capacity) for current and projected climate/tide conditions.
- The maintenance scheduling policy for coastal and estuarial flood-risk assets, with a view to ensuring critical maintenance is completed before winter high-tide / storm-surge season, rather than — as at present — being delayed until after summer for ‘recreational / biodiversity’ reasons.
“That, pending the outcome of the review, the council should allocate appropriate emergency capital funding to remediate the barrages / sluices / outfalls at risk of failure or blockage — to safeguard residents, properties, highways and public amenities from further flooding.
“That, further, this council resolves to publish a public flood-resilience plan for the county, identifying all coastal and river-fringe ‘hotspots,’ maintenance schedules, responsible teams, and a transparent timeline for upgrades or remedial works — so residents have clarity and confidence in flood prevention measures.”
The notice of motion itself will be considered by the council’s Cabinet at a later date.
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