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Charity

A family’s courageous fight against MND raises thousands for Paul Sartori

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A BRAVE family dealing with their mother’s diagnosis of Motor Neurone Disease has raised £12,050 for Pembrokeshire-based charity The Paul Sartori Foundation. Ann Evans from Dinas Cross was diagnosed with the life-limiting condition MND in 2021 and her husband Steve and their 5 sons have rallied around Ann through the stages of her illness, showing incredible strength and resilience.

With MND, messages from the motor neurons in the brain and spinal cord gradually stop telling muscles how to move, leading to a series of life-altering and life-limiting complications. The Paul Sartori Foundation was glad to be able to assist the family with equipment that could help Ann with mobility and comfort. Paul Sartori Senior Registered Nurse Gaynor Davies has also been supporting the family for the last few years.

“The Evans family have all shown extreme bravery in the face of Ann’s diagnosis and are an incredible example of a strong family unit. Ann’s husband Steve has ensured that Ann has the best care possible, and her sons and their families have gone above and beyond to help other families who find themselves in the same circumstances”.
Ann’s sons, Aled, Billy, Ceri, Hefin, and Gwyn, set up a fundraiser earlier this year. The brothers wanted to do something to honour their mother’s courage, so set themselves individual challenges to raise money for the Paul Sartori Foundation.

Ceri undertook the Welsh 15 Peaks Challenge with friends Xav, Andy, and Simon, hiking all 15 peaks higher than 3,000 feet in Eryri in less than 24 hours. Billy ran 5k every day for a month, which is akin to running from Fishguard to Cardiff! Gwyn, who lives in New Zealand, undertook a mini-triathlon in Whangarai on North Island, managing a 2k sea swim, 25k cycle, and 8k hike. Aled and his friends Ed and Phil hiked 21k along the challenging ridge of Bannau Brycheiniog National Park.

Aiming to raise £5,000, the boys, whose children also joined them for their challenges, were overwhelmed by the show of financial and moral support for their cause. Having more than doubled their fundraising amount, the donation now goes to help buy equipment to help other families dealing with mobility issues due to life-limiting palliative illnesses such as MND. With the money raised, the hospice at home charity will purchase two beds with specialist mattresses and rails. Ann had also received a high-tech chair from the Motor Neurone Society and with the money raised, The Paul Sartori Foundation will be able to buy the same chair to help other patients in the future.

Clinical Coordinator and Equipment Facilitator Pat Coombs was invited to meet the family and thanked them for the incredible amount donated to the Equipment Hire department at Paul Sartori.

Pat said, “With the help of this brave family we’re able to help and support other families with specialist equipment that will give people the best quality of life and as much dignity as possible in their hour of need”.

Charity

‘Grave concerns’ over national insurance hike

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SENEDD Members expressed grave concerns about the impact of the UK Government’s national insurance tax hike on GPs, universities and charities in Wales.

Plaid Cymru leader Rhun ap Iorwerth warned the rise in employer national insurance contributions from 13.8% to 15% in April will have a disproportionate impact in Wales.

He told the Senedd: “Labour are quick to accuse others of fantasy economics whilst their own plans represent nightmare economics for thousands of employers and employees.”

Raising concerns about the impact on job creation and wages, he said employment levels are at their lowest for almost a decade – lower than anywhere else in the UK.

He accused Labour of breaking a manifesto pledge as he pointed to an Office for Budgetary Responsibility (OBR) assessment that three quarters of the cost will be passed to workers.

Leading a debate on November 20, Mr ap Iorwerth called on the UK Treasury to fully cover the added cost to public sector employers in Wales.

He said: “It’s not the private sector only … bearing the brunt. Charities, GPs, universities – sectors already feeling the squeeze, to say the very least – have been taken to the brink.”

He pointed to “eye-watering” bills of £90,000 for some GPs, with the British Medical Association warning some surgeries could close as a consequence.

Mr ap Iorwerth said mental health charity Plattform faces a £250,000 annual bill and Welsh universities, “already crippled by financial challenges”, will face significant further pressures.

Plaid Cymru’s motion urged Welsh ministers to press the UK Government to apply a wider definition of the public sector workforce to include universities, GPs and charities.

Peter Fox, the Conservatives’ shadow finance secretary, similarly accused Labour of breaking a manifesto commitment not to raise tax on working people.

The former council leader said: “Time and time again – the chancellor went on TV and made the claim, only to u-turn after they got into power.”

Mr Fox, who represents Monmouth, said even a 1% rise in employer national insurance contributions for the public sector would cost Welsh taxpayers an extra £100m.

He told the Senedd: “The UK Government has said that it will provide funding to cover the cost of national insurance contributions for those workers.

“However, this will still come out of the taxpayer’s pocket … ultimately it is the taxpayers who are going to pay for the Chancellor’s tax increase.”

Luke Fletcher, Plaid Cymru’s shadow economy secretary, warned the national insurance rise will be a drag on an “already anaemic” Welsh jobs market.

His colleague Sioned Williams, who also represents South Wales West, described the chancellor’s “back-of-a-fag-packet” plans as senseless.

She raised concerns about six-figure increases in tax bills for charities including Tenovus, Marie Curie, Citizens Advice Cymru and the Wastesavers Charitable Trust.

Cefin Campbell, Plaid’ Cymru’s shadow education secretary, said the national insurance increase will cost Welsh universities an estimated extra £20m a year.

The Mid and West Wales MS warned: “Without a shadow of a doubt, these additional costs could push our higher education institutions over the precipice.”

Labour’s Hefin David said difficult decisions had to be made to fill a £22bn “black hole” left by the Tories but he rejected Plaid Cymru claims of a return to austerity.

Dr David told the Senedd: “Yes, tough decisions have to be made but I think that in the longer term, this is to everyone’s benefit.”

Andrew RT Davies, leader of the Conservative opposition, disputed the “incorrect” £22bn figure, saying the OBR found a £9bn gap.

Replying to the debate, Mark Drakeford stressed that neither he nor the Welsh Government has responsibility for national insurance contributions.

Wales’ finance secretary, who was appointed in September, criticised “fantasy economics” from opposition members on the Plaid Cymru and Conservative benches.

Deriding the “politics of the playground”, he said: “Both of them are willing to spend money on almost anything; neither of them are willing to raise the money necessary from anyone.”

Prof Drakeford said the chancellor returned national insurance broadly to where it had been as a share of gross domestic product for 13 of the 14 Conservative years.

The former First Minister pointed out that the UK Government offset national insurance rises on small employers by more than doubling the employment allowance.

He told the debating chamber or Siambr: “If you want to pay for things, you have to find the money to do so. That is what the chancellor had to do. That is how we will get the money that will come to public services here in Wales.”

Senedd Members voted 25-19 against Plaid Cymru’s motion.

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Charity

Woman shaves head to honour murdered partner and fight knife crime

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A WOMAN whose former partner was murdered in a cowardly town centre attack has shaved her head to raise awareness and funds to combat knife crime, nearly three years after his killer was jailed for life.

John Bell was fatally stabbed in the back after walking away from an argument near a friend’s house. He was found seriously injured in a side street adjacent to the Fusion restaurant in Cardigan, having sustained seven stab wounds inflicted by Ashley Keegan at nearby Golwg y Castell.

Despite efforts to save him, Mr Bell succumbed to his injuries at the scene due to significant blood loss. A post-mortem examination confirmed the brutal extent of his injuries.

Keegan, who had been drinking and became increasingly aggressive on the day of the attack, was sentenced to life imprisonment in December 2021 for what was described as a “brutal and cowardly” act. The court heard how Keegan retrieved a knife from a garden before launching the fatal assault after Mr Bell walked away from their altercation.

Remembering John

Mr Bell, who was a devoted father to a teenage daughter, is remembered fondly by his former partner, Louise Faller.

“John was a good-hearted man,” Louise shared. “As a first-time dad, he was amazing—he took to it naturally. John and I will always have the bond of being first-time parents together. He was a lovely man.”

Louise reflected on the profound impact of his death on their family, particularly on their daughter Cindy.

“There is still sadness, hurt, and anger about it,” she said. “Cindy will turn 18 on December 4, but the impact has changed her view of people and life. Her only comfort is me, her siblings, and her cats, which bring her love and peace.”

A Bold Act for Change

On Saturday, Louise had her hair shaved off in a buzz cut at Cardigan’s Hair Studio to raise money for Lives Not Knives, a youth-led charity focused on preventing youth violence through mentorship and guidance for people aged 9 to 21.

“I chose to shave my hair because it marks nearly three years since [Keegan] was sentenced for what he did,” Louise explained. “I wanted to highlight the dangers of knife crime and how easily a life can be taken. It’s a ripple effect of damage and broken hearts left behind.”

Louise is close to reaching her £500 fundraising target for Lives Not Knives and expressed deep gratitude for the support she has received.

“I couldn’t be more thankful for every single person who has donated and supported me,” she said. “It really has and will help this world in a small but huge way. Thank you from my heart.”

To donate to Louise’s campaign, visit www.justgiving.com/page/louise-faller-1727971243840.

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200 hours at sea in RNLI’s 200th year for Fishguard volunteer

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A FISHGUARD RNLI volunteer has become the first crew member at the station to clock 200 hours at sea in 2024, the RNLI’s bicentenary year.

Jessica Rogers, who joined the crew in September 2021, serves on Fishguard’s Trent-class all-weather lifeboat Blue Peter VII and the D-Class inshore lifeboat Edward Arthur Richardson.

This year has been a milestone for Fishguard RNLI, with over 30 service launches, the addition of a full-time coxswain, and the introduction of a tiered training scheme. Jessica’s achievement highlights the station’s commitment during this historic year, which marks 200 years since Sir William Hillary founded the RNLI.

Jessica has excelled in her training, achieving Tier One and Tier Two crew qualifications for both lifeboats, enabling her to operate as a fully competent crew member on either vessel. She is now advancing her skills as a helm and navigator. Her dedication has resulted in over 200 recorded hours at sea—the highest seen at the station in eight years.

These hours include 35 hours responding to 15 rescue shouts, with the remainder dedicated to training, including supporting other crew members during exercises. Beyond her sea hours, Jessica contributes as the station’s Lifeboat Training Coordinator, ensuring all crew training is up to date.

Professionally, Jessica is a self-employed podiatrist in Fishguard. Her clients are familiar with her RNLI commitment, with lifeboat news often a topic of conversation during appointments. On occasion, her pager has gone off mid-treatment, requiring her professional judgement to prioritize her clients’ safety before responding to a shout.

Jessica’s milestone coincides with the RNLI’s 200th year, showcasing the dedication of volunteers who have supported the lifesaving charity for two centuries. While Jessica is the first to surpass 200 hours at Fishguard in 2024, a handful of other crew members are expected to achieve this milestone by year-end.

Earlier this year, Jessica, her husband Cedwyn Rogers, Florian Caroff, and Jake Thomson were recognized for completing 100 hours at sea, each receiving commemorative glassware crafted by full-time coxswain Gemma Gill. Gemma is now creating a special memento to mark Jessica’s 200-hour achievement.

Gemma Gill, full-time coxswain at Fishguard RNLI, said: “I am incredibly proud of our team, especially Jess for reaching this significant milestone during the RNLI’s bicentenary. Jess’s 200 hours afloat are just part of her contribution—she’s also dedicated countless hours to training, fundraising, and community events. Thank you, Jess, and all our Fishguard crew, for your unwavering commitment.”

Jessica Rogers reflected on her achievement: “I was surprised to learn I’ve spent so much time at sea this year! I love being part of the Fishguard crew, and as they say, time flies when you’re having fun.

This milestone isn’t just my achievement—it’s thanks to the hard work of RNLI staff and volunteers, as well as the generous support of our donors. I look forward to continuing my training and becoming an even more valuable crew member in the years ahead.”

Fishguard RNLI’s year of milestones underscores the dedication of its volunteers and the enduring legacy of the RNLI in saving lives at sea.

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