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Hustings to focus on learning disability support ahead of Senedd election

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A SPECIAL election hustings focusing on the future of support for people with learning disabilities will take place in north Pembrokeshire next month.

Clynfyw Care Farm in Abercych will host the event on Wednesday (Apr 22), bringing together Senedd election candidates from several political parties to answer questions from people directly involved in health and social care.

Candidates from the Green Party, Conservatives, Plaid Cymru, Liberal Democrats and Labour have already confirmed they will attend, while responses are still awaited from other candidates standing in the election scheduled for May 7. hustings press release 9.3.26

The event aims to give people with learning disabilities, their families, carers and support workers the opportunity to ask candidates what they plan to do to improve services and support over the next Senedd term.

Jim Bowen, Registered Manager at Clynfyw Care Farm, said the event comes at a time when many people working in social care feel under increasing pressure.

“With social care cuts forever on the agenda, we welcome the opportunity to learn whether our next Senedd representatives will have our best interests at heart,” he said. “Are we even on their agenda?”

Stephen Galloway, a participant representative at the care farm, said people with learning disabilities want to know how politicians plan to protect opportunities for independence.

“It’s important we have a chance to learn independent living skills, but the cuts are taking away our freedom,” he said. “We want to know how they are planning to change this.”

Organisers say the hustings will also give social workers and unpaid carers the chance to share their experiences and explain what support they need in order to continue providing services in rural communities.

Jim Bowen added that the role of the care sector had been widely recognised during the pandemic but many workers now feel undervalued.

“During the pandemic we were termed ‘essential workers’. Now we struggle to survive on minimum wage and ever-increasing costs,” he said. “We were essential then, but now we are not. What has changed?”

Pembrokeshire County Council’s Cabinet Member for Social Care, Tessa Hodgson, will introduce the event, which organisers say is likely to feature challenging questions based on real-life experiences.

The hustings will run from 1:00pm to 3:00pm, with limited places available. Advance booking is required and the event will be recorded, with fact-checked audio clips later shared on the Clynfyw Care Farm Facebook page.

 

Farming

Reform calls for urgent review of farming scheme

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LOW UPTAKE HAS RAISED FRESH QUESTIONS OVER THE FUTURE OF SUPPORT FOR WELSH FARMERS

REFORM WALES has called for an urgent review of the Sustainable Farming Scheme after figures showed only around half of eligible farmers have signed up.

The party said the lower-than-expected uptake showed that serious concerns remained within the farming community over the complexity of the scheme, compliance rules and uncertainty about how it will operate in the long term.

Laura Anne Jones MS, Reform Wales’ Shadow Cabinet Minister for Food, Farming and Rural Affairs, raised the issue during questions to the Welsh Government.

She said: “The figures released by the Welsh Government today confirm what many farmers have been saying for some time: the Sustainable Farming Scheme is too complex, too restrictive and too bureaucratic.

“Farmers need certainty and security, not endless paperwork and rigid requirements that fail to reflect the realities of farming in Wales.

“Reform Wales believes the scheme should be reviewed as a matter of urgency, with a greater focus on flexibility, common sense and practical outcomes.

“Welsh farmers deserve a scheme that works with them, not against them.”

The Sustainable Farming Scheme is due to replace previous systems of agricultural support in Wales and has been one of the most contentious issues facing the rural sector.

Farming unions and campaigners have repeatedly warned that any new system must be practical for family farms and must not add unnecessary red tape at a time when many businesses are already under pressure from rising costs, bovine TB and market uncertainty.

Reform Wales said the Welsh Government must now explain how it intends to respond to the level of take-up and whether changes will be made before the scheme is fully rolled out.

 

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Health

Wales has highest stillbirth rate in UK for third year running, charity says

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Sands calls for urgent targets to reduce baby deaths and improve mental health support for bereaved parents

WALES has recorded the highest stillbirth rate in the UK for the third year in a row, according to baby loss charity Sands.

The charity has called for urgent action from the Welsh Government following the publication of the latest MBRRACE-UK perinatal mortality surveillance report, which tracks stillbirths and neonatal deaths across the UK.

Sands says there has been a lack of political focus on maternity safety and saving babies’ lives in Wales, despite repeated reviews.

The charity is calling for clear national targets to reduce stillbirths and neonatal deaths, as well as action to eliminate inequalities linked to ethnicity and deprivation.

Aidan Smith, Wales campaign lead for Sands, said: “There has been a lack of political focus and attention on maternity safety and saving babies’ lives in Wales in recent years.

“There has been review after review, but little change. At Sands, we are supporting bereaved parents across Wales to campaign for targets to reduce stillbirths and neonatal deaths and eliminate inequalities by ethnicity and deprivation.

“Bereaved parents are calling for accountability. Targets to reduce stillbirths and neonatal deaths will help ensure that saving babies’ lives becomes the political priority it should be.”

Sands says England introduced targets to reduce baby deaths in 2015, helping focus political decision-making and transparency.

Mr Smith said analysis by the Sands and Tommy’s Joint Policy Unit suggested that more than 1,000 babies in Wales may have survived if stillbirth and neonatal mortality rates had matched the best performing countries in Europe between 2019 and 2023.

The charity wants the Welsh Government to introduce new targets running to 2035, including reducing the stillbirth rate to 2.0 stillbirths per 1,000 total births, and reducing neonatal mortality to 0.5 deaths per 1,000 live births for babies born at 24 weeks’ gestation and over.

It is also calling for inequalities in baby loss linked to ethnicity and deprivation to be eliminated.

Mr Smith said Wales also needed better monitoring of maternity outcomes, including a national data dashboard to track changes over time and identify differences between health boards and population groups.

He said more complete data was needed on ethnicity and social risk factors to understand which families were most at risk of pregnancy and baby loss.

Sands has also raised concern about a lack of specialist psychological support for bereaved parents in Wales.

Mr Smith said there was currently only one specialist NHS service providing mental health support to bereaved parents, the Onnen service in Cardiff and Vale.

He said: “The Welsh Government must evaluate the Onnen service in Cardiff and Vale and expand this to all health boards across Wales.

“All bereaved parents in Wales should have access to specialist psychological support regardless of where they live, the type of pregnancy or baby loss they experienced, or how long ago it was.”

The Welsh Government said support was available to families affected by pregnancy loss and pointed to work taking place across health boards.

A Welsh Government spokesperson said: “The loss of a baby at any stage of pregnancy is devastating. Families who experience pregnancy loss at maternity units in Wales are supported by bereavement midwives, in conjunction with Sands, and offered memory boxes, which include a certificate of birth.

“Since 2016, stillbirth rates in Wales have shown a downward trend. The latest Perinatal Mortality Surveillance report acknowledges that in Scotland, Wales, and Northern Ireland, year-to-year variation in rates is often more pronounced because of lower birth numbers.

“All health boards are committed to improving quality and safety in perinatal care – through enhanced clinical reviews, early warning surveillance, safer preterm birth care, and structured learning from incidents.”

Hywel Dda University Health Board said it recognised “how devastating the loss of a baby is for parents and their families” and said its maternity and neonatal teams worked to provide safe, compassionate and supportive care.

Dana Scott, Director of Midwifery and Professional Governance for Women and Children at Hywel Dda, said the health board had “robust safety measures and clear clinical processes” in place across its maternity services.

She said Hywel Dda’s review processes were aligned with MBRRACE-UK and the Perinatal Mortality Review Tool, ensuring the health board listened, learned and reflected on each baby loss.

Ms Scott added that every family affected by stillbirth or neonatal death had access to dedicated bereavement midwives and nurses, as well as psychological support, follow-up care and opportunities for memory-making.

She said the health board also worked closely with its local Sands group and remained committed to learning from national reports to improve maternity safety locally.

Sands said the new Welsh Government now had an opportunity to act.

Mr Smith added: “Bereaved parents across Wales are campaigning for accountability and change. The new Welsh Government has a chance to reset the narrative by implementing targets to save babies’ lives, eliminating inequalities in loss by ethnicity and deprivation, and rolling out specialist mental health support for bereaved parents across Wales.”

Sands provides support to anyone affected by pregnancy loss or the death of a baby, including a confidential helpline, email support, online groups and local peer-support networks.

 

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Community

Bellringers praised at St Davids Cathedral service

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A SERVICE was held today at St Davids Cathedral for the annual meeting of the Diocesan Guild of Bellringers.

Fr Jim, the guild’s chaplain, led the service, during which the Bishop of St Davids preached and thanked members for their dedication to churches across the diocese.

He spoke about the important role bells play in marking moments of worship, celebration and remembrance, and said he had been personally moved when bells marked significant points in his own ministry.

The guild is keen to encourage new people to take up bellringing and says it is a friendly and approachable group for anyone interested in getting involved in church life.

 

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