PAUL SARTORI Hospice at Home, a local charity, supporting end of life and palliative patients, their families and carers have recently been awarded a grant from Elise Pilkington Charitable Trust. The grant of £10,000 has been given to extend its previous support given to patients living at home with dementia in Pembrokeshire.

“This funding has come at a crucial time for us. We had funding for a few trails where we recognised a need for support. We know the difference this care makes to local families supporting a relative with dementia at home. It can be exhausting. Quite often they cannot leave their loved one unattended and they get very little time to themselves, which can have a great impact on the family carer. This project will increase the resilience of the family carer and support the patient in a familiar environment where they feel comfortable and secure,” said Laura Hugman, Clinical Team Manager at Paul Sartori Hospice at Home.

The award will fund up to 232 hours of hands-on home nursing care, allowing day and night-time respite for those families who are struggling. Families can access support during the day – so they can address their own care needs, attend appointments, catch up with friends, enjoy their hobbies or just rest. Families who need respite can also access support during the night. They will have peace of mind knowing that their loved one is looked after by Paul Sartori staff who are experienced and trained in many complex medical conditions.

“We were delighted to hear that the Elise Pilkington Charitable Trust have agreed to support this much-needed provision in Pembrokeshire,” said Judith Williams, Grant Development Officer at Paul Sartori Hospice at Home.

“The Elise Pilkington Trust were delighted to be able to support this important work at Paul Sartori in supporting end of life patients with advanced dementia. This fits very well with our aims of supporting projects dedicated to addressing the needs of older people with advanced dementia (and their carers) in domestic, community and formal care settings,” said Ruth Tarry, Chairman from the Elise Pilkington Charitable Trust.

This follows on from support provided by NFU Mutual’s Agency Giving Fund and the Hywel Dda University Health Board, where both trials proved invaluable for local families. Although Dementia was not recognised until recently as something you can die of. According to the Office for National Statistics, Dementia and Alzheimer’s disease was recorded as one of the leading causes of death in Wales in April 2023. The Paul Sartori Hospice at Home Clinical Staff Team are aware of the difference supporting those living with Dementia and the impact on families and will work with the Admiral and Marie Curie Dementia Nurses to enhance the support locally.

The Paul Sartori Team play an important part in supporting end of life patients and their families, which also enhances the provision of other local services. With the team’s flexible and rapid approach, they support the patient’s wish to be cared for in their own home. They offer a patient-centred approach to care – assessing patients, referring to other internal services, work closely with other healthcare providers and are available as advisors. They provide a wide range of other services, including home nursing care, 24-hour support, standby service, complementary therapy, bereavement and counselling support, physiotherapy, future care planning and training. These services enable people in the later stages of any life limiting illness to be cared for and to die at home with dignity, independence, pain free and surrounded by those they hold most dear if that is their wish. Further information on the charity and its services can be obtained by visiting their website www.paulsartori.org, or by phoning 01437 763223.

A VOLUNTEER crew out on training exercise were diverted to a real casualty within minutes of launching.

Three volunteer crew members from Fishguard RNLI had just launched the charity’s D class inshore lifeboat Edward Arthur Richardson for a planned routine training exercise, and were attempting to notify HM Coastguard of their intentions when they were tasked to a genuine shout.

The request was to attend to a 5m rigid inflatable boat (RIB) with 2 persons onboard which was located approximately 1.5 miles east of Pen Anglas and had lost all means of propulsion.

With rain moving into the area the two casualties onboard were also open to the elements. On rounding Pen Anglas the casualty vessel was spotted in the distance and the lifeboat made best speed into the conditions.

Once on scene an assessment was carried out and due to the worsening weather conditions and with the boat at risk of drifting towards cliffs due to having no means of propulsion, it was determined the safest course of action would be to establish an astern tow and return the casualty vessel to the nearest safe harbour at Goodwick.

Following a slow tow at 3-4 knots the casualty was brought inside the breakwater at Goodwick where a lifeboat crew member was transferred across to assist in taking the vessel from an astern tow to an alongside tow, giving the volunteer helm more control to bring the casualty vessel alongside the slip at Goodwick.

Once alongside the slip the casualty vessel was made fast and casualties transferred safely ashore to recover their vessel. The lifeboat then returned to station where it was washed down, refuelled and made ready again for service.

Fishguard RNLI volunteer inshore lifeboat Helm, Ian Davies, said: ‘We had launched to carry out routine training for crew working towards their upcoming assessments, this included setting up and establishing astern and alongside tows when we were called upon to assist the casualty, as a result we ended up putting that training into practice to safely return the casualty vessel to shore.

‘The owner did the correct thing and contacted the Coastguard using their radio on channel 16 to report their situation. We would like to remind any water users to ensure they always carry a means of calling for help, most commonly a personal VHF radio or mobile phone kept in a waterproof pouch and should be within reach at all times.’

A NEW exhibition at Oriel y Parc, National Park Discovery Centre celebrating 200 years of the RNLI will launch at the end of this month with an exciting opening event.

Courage and Community: RNLI 200 Cymru is inspired by the tales of valour from the six lifeboat stations and 13 RNLI lifeguarded beaches along Pembrokeshire’s beautiful but hazardous coastline. Timed to coincide with the RNLI’s 200th anniversary, the exhibition is a collaboration between Amgueddfa Cymru, the RNLI and Pembrokeshire Coast National Park Authority.

Consisting of stories, pictures and artefacts, Courage and Community will also feature an Arancia-class inshore rescue craft, offering visitors the chance to get on board, try out some RNLI equipment and have a taste of a rescue at sea.

The exhibition will open on Saturday 29 June in true celebratory style, with a packed programme of music, talks and family-friendly activities.

At 2pm and 2.45pm, Dr Julian Whitewright, Senior Investigator (Maritime) at the Royal Commission on the Ancient and Historical Monuments of Wales, will give 15-minute talks on two notable rescue events from the 20th century – the 1900 wreck of the Cashier off the Solva coast, which involved the Little Haven rowing lifeboat; and the role played by the St Davids lifeboat in an incident involving three tug boats lost west of Solva in 1981.

With water safety forming a key theme at the exhibition, a drop-in engagement pod will be open throughout the day to provide water safety demos and advice from the RNLI and Sian Richardson, Founder of The Bluetits Chill Swimmers.

Live music will be performed by the Solva Ukelele Pirates and Mike Chant, St Davids lifeboat mechanic.

As well as some sea-themed games, younger visitors will have an opportunity to become engineers and magicians in a drop-in thaumatrope workshop with local artist, Kate Evans. A thaumatrope is one of the earliest forms of animation and is an optical illusion toy made from a paper disk, with a picture on each side.

Manager of Oriel y Parc Rachel Perkins said: “We are thrilled to present Courage and Community, an engaging and interactive experience that we hope will captivate our visitors. By showcasing the incredible local stories of bravery and dedication from the RNLI, we aim to deepen the public’s appreciation for their vital work and hopefully inspire a new generation of supporters and volunteers who will continue the legacy of lifesaving for years to come.”

The opening event of Courage and Community will take place on Saturday 29 June, between 10am-3pm. Entry to this remarkable exhibition is free and it will remain on display at Oriel y Parc until 1 June 2025.

More information about this and other events and exhibitions at Oriel y Parc can be found at www.orielyparc.co.uk.