Charity
Call for long-term cancer strategy as 9,000 wait too long for treatment
CANCER charities joined forces to call for a longer-term national strategy to improve services after 9,000 people waited too long for treatment last year.
Mark Isherwood raised an Audit Wales report which found cancer services have consistently failed to hit a 75% target for patients to start treatment within 62 days.
Mr Isherwood, who chairs the Senedd’s public accounts committee, asked witnesses for their reflections on the issues identified by the auditor general for Wales.
Lowri Griffiths, chair of the Wales Cancer Alliance, a coalition of charities established nearly 20 years ago, said she was saddened and disappointed by the findings.
The director of policy at Tenovus told the committee: “We’ve long held the view that some of the governance arrangements around cancer services, especially since the development of the quality statement, have not been fit for purpose.”
Hannah Buckingham, of Macmillan Cancer Support, a vice-chair of the alliance, said performance against the 62-day target shows the system cannot keep up with demand.
“It isn’t working for far too many people across Wales,” she told the committee, describing the impact of delays in diagnosis as devastating for cancer patients and their families. “Not just on their physical health but their mental and emotional health as well.”
Ms Buckingham said: “In 2024, we saw, for example, 9,000 people across Wales wait too long to start treatment on that 62-day pathway which is just not good enough quite frankly.”
She added that it is distressing for staff not being able to deliver timely care for patients, calling for a strategic approach to tackling workforce shortages.
Ms Buckingham warned of a lack of robust governance mechanisms to enforce, track and evaluate actions in the three-year NHS cancer improvement plan.
Simon Scheeres, a fellow vice-chair of the alliance representing Cancer Research UK, said the report underlined the need for a longer-term, more cohesive strategy, raising concerns about a confusing plethora of quality statements, improvement plans and other initiatives.
Mr Scheeres pointed to Denmark as an example of best practice, with evidence showing countries with long-term cancer plans have seen greater improvements in outcomes.
Warning deprivation has a profound impact in Wales, he told Senedd members that death rates are 50% higher in the most deprived groups compared with the least.
Mr Scheeres said lung cancer is by far the biggest cancer killer in Wales as he raised a life-saving pilot of targeted lung health checks in the Cwm Taf Morgannwg health board.
Ms Griffiths voiced concerns about the Welsh Government’s response to the Audit Wales recommendation of a national lung screening programme which took “an age”.
She said: “It talks about a decision to deliver – so [the] Welsh Government is not committing to deliver, it’s committed to making a decision to whether or not to deliver.”
Lauren Marks, of Young Lives vs Cancer, described the cancer improvement plan as lacking detail on the specific needs of children and young people.
“Systematically, children and young people are being overlooked in the detail,” she said.
Ms Marks warned the 62-day target, which measures the time between first being suspected of having cancer and starting treatment, does not capture young people’s experiences.
She said the delay that young people experience is between thinking something is wrong and getting their diagnosis, with most attending their GP more times than adults do.
Ms Marks added that children and young people get different types of cancer to adults that are not routinely addressed by screening programmes.
She highlighted travelling to treatment as a big issue for children and young people in Wales who travel longer distances than anywhere else in the UK to access care and support.
Ms Marks put the average cost of travel at £280 a month, with one in ten reporting missing or delaying treatment due to unaffordable transport.
Mr Isherwood, the committee chair who has long campaigned on disability rights, put on record his thanks for the work the charities do during the meeting on March 26.
“Two of my children when they were younger received diagnoses,” he said. “The first one, there wasn’t a referral to yourselves, now you’re in most hospitals…. with the second, it was Young Lives vs Cancer or CLIC Sargent that got my other daughter through, so thank you.”
Charity
Sandy Bear in 2025: The year Wales refused to let childhood grief win
CHARITY SPECIAL FEATURE OF THE MONTH
ON a grey morning in March 2025, Lee Barnett pressed send on the email no charity chief ever wants to write.
Sandy Bear Children’s Bereavement Charity – one of only two specialist services for grieving children in the whole of Wales – was just a few months from closing its doors for good.
“We were staring at the end,” Barnett says. “We knew families needed us more than ever. We also knew the money had simply run out.”
Across Britain, thousands of charities are limping through the same cost-of-living storm. For Sandy Bear the stakes were uniquely cruel: stop the service and hundreds of Welsh children bereaved by suicide, addiction or sudden death would be left with nothing.
This is the story of how Wales refused to let that happen.

Born from heartbreak
Sandy Bear began life inside the NHS. When health-board cuts killed the original service, a handful of staff and volunteers would not let it die. They rebuilt it, pound by pound, because they had seen what happens to children when no one catches them.
One parent later wrote: “Sandy Bear was the string that stitched our hearts back together and made it possible to smile again.”
For many families, that line is not poetry. It is survival.

A perfect storm
2025 hit the charity from every angle.
Referrals doubled post-pandemic to more than 100 a month. Over half the children had lost someone to suicide; another 20% to drugs or alcohol. The sharpest rise was among six- to fifteen-year-olds.
At the same time, grants dried up, inflation hammered running costs, and exhausted staff carried impossible caseloads. Waiting lists lengthened. The board took the agonising decision to lose a handful of posts.
“It felt like we were choosing which children we could help,” Barnett says.

Then Wales stepped up
What happened next stunned even the people inside the building.
Village halls filled with cake sales. Runners pounded pavements in Sandy Bear vests. Skydivers leapt for the cause. Town and community councils in Pembrokeshire, Ceredigion, Carmarthenshire and Swansea sent emergency cheques that – in the charity’s own words – “literally kept the lights on”.
Businesses followed: Valero, Ascona Group, Young Farmers Clubs, Haverfordwest County AFC. Footballer Joe Allen visited the centre and posed for photos with children who had lost parents.
Politicians of every stripe turned up too. Plaid Cymru’s Ben Lake, Labour’s Henry Tufnell and Eluned Morgan, Conservatives Sam Kurtz and Paul Davies – rivals who rarely agree – stood shoulder to shoulder in briefing rooms and on site visits, sounding the alarm in Westminster and the Senedd.
“It was the most united I’ve ever seen Welsh politics on anything,” says business development manager Martin Jones.

The hidden £20 million payback
Sandy Bear runs on roughly £500,000 a year – loose change in government terms.
Independent analysis values its work at more than £20 million annually in prevented costs: fewer family breakdowns, fewer addictions, fewer youth suicide attempts, fewer kids excluded from school, fewer A&E dashes and police call-outs.
Most of that saving never makes the headlines, because the crises never happen.

From red to resilient
By autumn the haemorrhage had stopped. New funding streams opened. Staff rewrote support models. Waiting lists began, slowly, to shrink.
“We survived,” Barnett says, “because our communities refused to let us fall.”

But the crisis is not over
Demand is still climbing. The charity must raise half a million pounds every single year just to stand still. More than 80p in every pound donated reaches the frontline.
And childhood bereavement is not going away. If anything, the causes – suicide, overdose, sudden death – are rising.
The team at Sandy Bear want Wales to face a hard truth: grief itself is not the enemy. Unsupported grief is.

A quiet ask for 2026
As Christmas approaches, the charity’s final message of 2025 is deliberately low-key.
They thank every runner, every donor, every councillor, every MP, every child who sold cakes outside the school gate.
And then they ask – without drama – for the help to continue.
A tenner a month. A share on social media. A volunteer afternoon. A conversation with your MS or MP.
Because, as they gently remind us:
“Liking, sharing and commenting costs nothing, but it genuinely helps save lives.”
This Christmas, hold your loved ones close.
Somewhere in Wales tonight, a child who cannot do that is still hoping someone will help them find their way back to the light.
And in 2025, Wales proved it could be that someone.

Charity
West Wales Freemasons witness life-saving work funded by donation
ST JOHN AMBULANCE CYMRU recently welcomed representatives from the West Wales Freemasons to learn more about the Community Support Unit their donation has helped purchase as part of a visit to the charity’s Divisional building in Carmarthen.
The West Wales Freemasons kindly donated £20,000 towards the purchase of the vehicle, which is being used to support the charity’s work to provide first aid support across Carmarthenshire, Ceredigion and Pembrokeshire, as well as further afield for events of national significance.

In addition to being equipped with a range of first aid equipment, as well as a gazebo, tables and chairs to support visibility at events, the specially adapted vehicle also has space for six St John People and is equipped with facilities to support volunteer welfare.
As well as being shown the various features of the Community Support Unit, the West Wales Masons were presented with a Certificate of Appreciation and were thanked by Trustee Prof. Jean White CBE as well as local St John Ambulance Cymru volunteers, staff and members of the St John Council for Dyfed.
The first aid charity for Wales has purchased over 15 of the vehicles to support its work to provide first aid cover at a range of events large and small across the country.
Head of Fundraising and Communications for St John Ambulance Cymru, Owen Thomas said: “This event was a valuable opportunity to show our generous donors from the West Wales Freemasons the real difference we are making in local communities thanks to their continued support.
“As well as providing our St John People with everything they need to provide first aid at an event, these vehicles also provide the facilities that enable them to have a hot drink and warm food, as well as shelter from the temperamental Welsh weather.”
The latest support from the West Wales Masons follows the donation made in 2024 to support the purchase of an ambulance vehicle.
James Ross, Head of West Wales Freemasons said: “We are delighted to have been able to see the tangible impact our support is having on the ground, supporting St John volunteers as they care for others.
“We are proud to support St John Ambulance Cymru’s work in West Wales to provide first aid for those in need and to help more people learn the skills that could save a life.”
To find our more about St John Ambulance Cymru’s work across Wales and how you can donate or get involved, visit www.sjacymru.org.uk.
Charity
South Hook donation helps Paul Sartori equip growing volunteer team
Community funds provide 40 fleeces and 30 polo shirts for charity’s events crew
PAUL SARTORI Hospice at Home has received a £1,000 donation from the South Hook LNG Community Fund, managed by PAVS, enabling the charity to purchase 40 branded fleeces for its expanding team of event volunteers. It follows a recent contribution from the Port of Milford Haven Community Fund, which funded 30 branded polo shirts.
Volunteers are at the heart of Paul Sartori’s work, supporting community fundraising events across Pembrokeshire throughout the year – including the New Year’s Day Dip, Kilgetty Bike It, the Pembrokeshire Car Runs, the Pembrokeshire County Show and the annual That’ll Be The Day concert at Folly Farm.

The new fleeces will ensure volunteers are easily identifiable, warm and professionally presented while representing the charity. The purchase also meets a clear operational need, with the charity previously unable to supply enough uniform for its growing team.
“We are delighted to equip our volunteers with additional uniform,” said Jo Lutwyche, Event and Fundraising Officer at Paul Sartori. “Many have expressed a willingness to purchase their own polo shirts and fleeces, which shows their enthusiasm and commitment – but Paul Sartori believes volunteers should be provided with a uniform as recognition of their vital contribution.”
Judith Williams, Grant Development Officer, added: “We are hugely grateful to the South Hook LNG Community Fund for their ongoing support. Our event volunteers are the heart of our fundraising efforts, and these fleeces will help keep them comfortable, safe and professional, whatever the weather. This is a wonderful way to recognise their dedication to Paul Sartori Hospice at Home.”
The project aligns closely with South Hook LNG’s core funding themes: improving safety by ensuring volunteers are clearly identifiable; supporting environmental responsibility with reusable, shareable uniforms; promoting education through a professional public-facing appearance; and enhancing wellbeing by boosting team spirit and volunteer confidence.
South Hook LNG has been a regular supporter of the charity, and this latest donation continues a valued partnership that helps Paul Sartori deliver essential end-of-life care services across Pembrokeshire.
The charity offers a wide range of volunteering opportunities, both within its events team and across its network of county-wide charity shops. Anyone interested in volunteering can contact Eleanor Evans, Volunteering Officer, via Paul Sartori’s head office.
Paul Sartori Hospice at Home provides nursing care, equipment loans, complementary therapies and bereavement support to people in the last stages of life, helping ensure they can remain at home with dignity and comfort. For more information, visit www.paulsartori.org or call 01437 763223.
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