Charity
Gelliswick choir releases charity song in memory of local man
Community recording aims to raise funds for MND Association
GELLISWICK COMMUNITY CHOIR has released a special charity recording in memory of Geoff Hicks, a much-loved local man who died after being diagnosed with motor neurone disease. The project, centred on an original song titled Christmas Spirit, has already begun raising money for the Motor Neurone Disease Association.
The lyrics were written by Geoff’s wife, Sally Hicks, during what she describes as one of the most difficult periods of her life.
“My husband Geoff had been diagnosed with motor neurone disease and was given only months to live,” she said. “He was fast-tracked into a nursing home 20 miles from home, and I watched him deteriorate very rapidly. I tried to keep a brave face for him… but at home I was breaking up.
“I wrote the lyrics at 3am when the emotions were washing over me. But I was also thinking of our two beautiful, very young grandchildren — that’s why the chorus is upbeat. They brought light into a very dark time.”
The choir’s Musical Director, Angharad, worked closely with Sally to bring the song to life.
“When Sally asked me to compose the music, I was deeply honoured,” she said. “I wanted to stay true to her ideas and her emotions. We have kept the project on the smallest budget possible so that the maximum amount can go to charity. It has been a wonderful experience to bring the choir together and to share this story with the wider community.”
The choir has now recorded a full version of Christmas Spirit, with all proceeds going to the Motor Neurone Disease Association. The charity campaigns for improved access to care and supports research for those living with MND across England, Wales and Northern Ireland.
Gelliswick Community Choir said it is “immensely proud” to support Sally and her family.
A spokesperson added: “We would love to see this song shared far and wide, in memory of Geoff and in support of vital MND research. Anyone wishing to purchase the sheet music or backing track can contact the choir directly.”
There are 30 CDs for sale with the song on it as well, and they are just £2.
There will be a concert on November 28t at 7pm, at The Church of The Holy Spirit in Hakin, and CDs will be available there.
Donations can be made via the choir’s JustGiving page, where supporters have already contributed towards a £1,000 fundraising goal.
The choir hopes that the song, written in grief but shaped with love, will continue to bring comfort and raise awareness of a disease that affects thousands of families every year.
What is Motor Neurone Disease?
Motor neurone disease (MND) is a rare, progressive and ultimately fatal condition that affects the nerves (motor neurones) in the brain and spinal cord. These nerves control essential muscle activity, including walking, speaking, swallowing and breathing.
As the disease progresses, the signals from the brain stop reaching the muscles, leading to weakness, muscle wasting and loss of mobility. MND does not usually affect the senses or the intellect, meaning people often remain mentally aware while their physical abilities deteriorate.
There is currently no cure. However, research funded by organisations such as the MND Association is helping develop new treatments, improve care, and support families coping with this devastating disease.
Charity
Golfers take on 17-hour charity marathon in Pembrokeshire
TWELVE golfers are preparing to test their endurance in an extraordinary charity challenge at Rosemarket Golf Club on June 19.
The group will attempt to complete the club’s 18-hole course not once, but four times in a single day – a feat expected to take more than 17 hours. Play is set to begin at 4am, with participants walking the entire distance, as buggies are not permitted.
Organisers describe the challenge as both “brave” and “foolhardy,” with three teams of four competing throughout the day.
Teams taking part include:
Red Team: Patrick “Captain” Bellerby, Jeremy Evans, Luke Young, Alex Young
Blue Team: Damian Haworth, Paul Hayler, John Rees, Alex James
Green Team: Neil Hainsworth, Marc Edwards, Andrew “Garbo” Ramage, Chris Bourne
Alongside the physical challenge, the event will feature friendly competition between the teams, with support from club members helping to keep players fed and hydrated during the marathon effort.
The fundraiser aims to support the Paul Sartori Foundation, a charity dedicated to providing end-of-life care services across Pembrokeshire.
Founded in May 1981, the organisation was established by parishioners of Father Paul Sartori, a widely respected local priest who died of cancer at the age of 38. Inspired by his vision for hospice care in the region, the foundation continues to deliver services to the community regardless of religious affiliation, with a mission to provide sustainable and compassionate end-of-life care.
Participants are encouraging donations from the public to support the cause, with all contributions going towards maintaining and expanding vital hospice services in the county.
As the golfers prepare for what promises to be a gruelling day on the fairways, organisers hope the challenge will not only raise funds but also awareness of the essential work carried out by the foundation.
Charity
Local nurse plans 26-mile charity walk across Preseli Hills
A MENTAL health nurse from Pembrokeshire has opened up about two life-changing calls to Samaritans, as she prepares to take on a 26-mile challenge across the Preseli Hills to raise funds for the charity.
Her first encounter with the Samaritans came in 2013, when she was struggling with postnatal depression. At the time, she said she desperately needed someone to talk to.
“I just needed someone to listen while I cried about how hard everything felt,” she recalled. “The response was lovely – non-judgemental, warm and caring.”
Though it was a one-off phone call, the experience stayed with her, made all the more memorable by the unexpected discovery that the volunteer she spoke to was based in her own local town.
Years passed before she reached out again. But in October 2025, during what she describes as one of the most overwhelming periods of her life, she found herself turning back to the charity.
“My whole world felt like it was crashing down,” she said. “I was exhausted, and my thoughts didn’t feel like my own anymore. I knew what I was going through was temporary, but my mind was offering permanent solutions.”
At a breaking point, she made the call.
Her plea for help was answered by a volunteer named Tony, whose calm presence proved pivotal. “He could hear the panic and fear in my voice and stayed with me while I got myself to a safe place,” she said.
The call was unexpectedly cut short when the signal dropped out as she made her way back to her car—but the impact lingered.
“That moment changed everything,” she said. “It was a turning point. It gave me the courage to open up to my friends and my employer about what I was going through.”
As a mental health professional, she admits that asking for help did not come easily.
“I’m a very private person, and working as a mental health nurse can sometimes make it harder to reach out through traditional avenues,” she explained. “But even for those of us in the profession, there are times when we need somewhere to turn.”
Now, with time and distance from that difficult period, she feels ready to share her story publicly in the hope of helping others.
To give back, she is planning a 26-mile sponsored walk across the Preseli Hills, retracing a deeply personal route. The walk will take in Carningli – a place where she once felt “on top of the world”—and Rosebush, where the pivotal phone call took place.
“Walking has become incredibly cathartic for me,” she said. “Spending time in the Preselis has helped me process so many thoughts and feelings. It’s brought a real sense of peace.”
While she acknowledges the emotional challenge of revisiting those locations, she feels stronger now.
“I have a support network and a life I’ve been able to rebuild – thanks, in part, to that one phone call.”
The Samaritans, which operates a 24-hour helpline, responds to a call for help every 10 seconds. The service is free and available year-round, offering confidential, non-judgemental support to anyone in need.
Through her fundraising effort, she hopes to raise awareness as well as vital funds – while reminding others that help is always within reach.
Charity
Charity campaign showcases powerful bereavement support for local families
HYWEL DDA Health Charities, the official charity of Hywel Dda University Health Board, is calling on local communities to help them provide comfort and support to families who have lost a child.
The charity is running a campaign this spring to highlight its Wish Fund which provides support to families during times of bereavement.
The Wish Fund supports Hywel Dda’s Paediatric Palliative Care team to provide personalised support to families of children and young people receiving palliative care, and helps them create treasured memories when their child sadly passes away. From hand moulds and fingerprint jewellery to memory boxes and specialist sibling support, the fund ensures bereaved families are not alone during the most devastating moments of their lives.
Frankie’s parents Phil and Veronica shared how the Wish Fund helped them during their darkest days:
“We had the absolute pleasure of looking after the most beautiful, awesome, wonderful, loving and brave little lad who was very poorly in the last years of his life.

“We met his Paediatric Palliative Care team two years before his passing and boy what an awesome team they are.
“We will never be able to thank the Wish Fund enough. Thanks to the Wish Fund, we had the most amazing mementos, a Christmas bauble, a necklace with Frankie’s fingerprint on it and a mould of his hand. Those simple objects are our most treasured possessions along with a lock of his beautiful hair.”
The Wish Fund relies on charitable donations, and every contribution can have a lasting impact:
- £15 provides a teddy for a bereaved sibling
- £30 funds a sibling support session
- £50 creates a hand mould keepsake
- £70 provides a Memory Box
- £85 funds bespoke hand‑printed jewellery
These meaningful items offer comfort to parents, carers and siblings who are navigating unimaginable loss.
Rebecca McDonald, Clinical Nurse Specialist – Paediatric Palliative Care, said: “I want to extend my heartfelt thanks to everyone who has donated and continues to donate to the Wish Fund.
“Thanks to your kindness and generosity, we have been able to provide meaningful memory-making items and bereavement materials. These resources make an immeasurable difference in helping us support our families through the most difficult time.
“Your compassion and support truly help us bring comfort, dignity, and lasting memories to the families we care for. Thank you for your support in helping us make a big difference to families we support across our health board.”
To find out more or to donate to the Wish Fund, please visit: https://hywelddahealthcharities.nhs.wales/campaigns/the-wish-fund/
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