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Pioneering eye surgery offers hope for Lloyd

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fundFUNDRAISING is underway for 22-year-old Saundersfoot local Lloyd Davies, who desperately needs pioneering eye surgery in the United States who lost his eyesight after being diagnosed as suffering from Lebers Hereditary Optical Neuritis (LHON).

Led by Professor John Guy, the gene therapy treatment is the first in the world that could potentially cure LHON and fundraising is now well underway to help Lloyd raise the £10,000 he needs in order to make the trip to the USA and stay out there for the duration of the treatment.

The former Greenhill School pupil had aspirations of joining the Royal Navy to become a Navy Diver, and whilst he was waiting to complete the final parts of the admissions process, he enrolled onto the Marine Biology course at Swansea University.

In November 2013 Lloyd’s world was turned upside down when he began to suffer from a slight blurring of vision in his left eye. After putting up with it for a short period, he decided to go for an appointment at his local ophthalmic optician, who immediately referred him to the Ophthalmic Department at his local hospital who began to run tests to discover the cause of his sight issues.

By Christmas 2013 Lloyd had lost all vision in his left eye within just a month of first noticing any problem at all. By January 2014 he was given the devastating news that the cause of his sudden blindness was that he was suffering from LHON, and that usually the other eye would be affected within a matter of months.

This proved to be correct, as shortly after diagnosis Lloyd started to lose the sight in his right eye. By August 2014, shortly after celebrating his 21st birthday he was declared as being legally blind.

The condition has robbed the fun loving, sports mad individual from doing all the things he enjoys and has prevented him from pursuing the career of his dreams. It is hoped that the treatment will restore Lloyd’s vision and help him to pursue his ambitions in life.

Lloyd told The Herald about how the condition has affected his life and how grateful he is to those who have started the fundraising account and also to his family and friends who have helped him through this difficult period in his life

“When I was 20 years old, I lost my sight to a genetic disease called LHON (Lebers Hereditary Optical Neuritis). It took less than 5 months from having 20/20 vision to being registered as blind. Up until then I had lived the life of any normal lad growing up my age, being able to drive, play rugby, scuba dive and travel like anyone else takes for granted.

“The Summer before I lost my sight it worked at a Summer Camp in New York as a wakeboard instructor – something I now can’t do as I don’t think a blind person would be too safe driving boats!

“After I got back from Summer Camp I was in the process of joining the Royal Navy, something I now can’t accomplish.

“Once I was registered blind, there were life choices taken away from me – one of the biggest ones being my ability to drive – something I took for granted until I had to rely on buses, taxis, trains and lifts from other people.

“Later in September 2014 I joined the RNC (Royal National College for the Blind) in Hereford where I studied as a personal trainer in year one and currently doing massage in my second year, where I am still learning how to live with such limited sight.

“Since this all happened, everyday tasks have become daunting and tricky. Something as simple as finding the coffee to make a drink or trying to find something that has been moved by someone else.

“As trivial as it sounds, little things like having to take a picture of what other people are looking at, just to be able to enlarge and zoom in, just to try to see for myself. One of the things I now hate doing is going out for a meal, because even having to have the menu read out and chasing food around the plate becomes embarrassing.“

Regular everyday activities that people do without a second thought have become a chore for Lloyd and he explains that the surgery in America is his only chance to restore normality in his life, and that it is potentially not only himself that will be affected as there is a 50/50 chance of his younger brother also having the condition:

“As a result of the changes and difficulties that I’ve encountered I have been lucky to have such amazingly supportive family and friends that have helped keep my hopes up for future treatment and this opportunity to go to America for the trial is not one that I can afford to miss.

“The gene therapy treatment that is being trialled in the States is the first in the world to potentially cure my condition. “

“It is not just me has been affected by this as my younger brother has the same gene mutation and has a 50/50 chance of going blind too. Other members of my family also have the chance of being affected.

“As a result of this opportunity coming along, I will have to travel to and stay in America with someone coming with me and live there for 3/4 months whilst the trial is being carried out.

“I need to raise funds as quickly as possible is the trial is expected to start in the next few months.”

You can help Lloyd to get to the States and undergo treatment by donating via the ‘Light for Lloyd’ fundraising GOFUND ME page online, by typing the following link into your browser: https://www.gofundme.com/e8pte9xm

Alternatively you can search online for ‘Light for Lloyd’ and follow the links to donate, or go to social media site Facebook and search ‘Light for Lloyd’.

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Anzac Day commemoration service held in Milford Haven

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IN a service held on Sunday (Apr 28), the Milford Haven Branch of the Royal British Legion led a poignant commemoration service to mark Anzac Day, honouring the valor and sacrifices of the Australian and New Zealand Army Corps (ANZAC) during the Gallipoli campaign in World War I.

The service, which took place at 11:00am, on Hamilton Terrace, Milford Haven, witnessed a significant turnout.

Attendees included members of the Australian Signals and Signal Company as well as representatives of Milford Haven Town Council and the Milford Haven Sea Cadets.

The service commenced with a welcome and introduction by Lt Col Warren Coetzer, followed by a rendition of the National Anthems of Australia, New Zealand, and Wales, embodying a spirit of unity and remembrance. The anthems were a moving tribute to the camaraderie and international bonds formed in times of conflict.

ANZAC service: Remembering soldiers who fought bravely (Pic: MHTC)

During the service, the Ode of Remembrance was recited, a profound moment that prompted reflection on the courage and fellowship of the ANZAC forces.

The emblematic Rising Sun Cap Badge and the Union Flag were prominently displayed on the event programme, symbolising the service and sacrifice of those who served under them.

Local dignitaries laid wreaths, and a two-minute silence was observed, offering a chance for personal reflection on the cost of war and the price of peace.

Sea Cadets and member of the public at the service (Pic: MH Sea Cadets)

The commemoration concluded with a prayer for peace, leaving the attendees with a message of hope and a renewed commitment to the values for which the ANZAC soldiers bravely fought.

The service was not just a remembrance of past sacrifices but also a reminder of the enduring spirit of the ANZACs, which continues to inspire and guide future generations.

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Survey of Picton Castle reveals groundbreaking medieval architecture

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THE first ever detailed architectural survey of Picton Castle, Pembrokeshire, has revealed a medieval castle ahead of its time in terms of design and high status living. Much altered in the Georgian period, the castle was surveyed by the author, Neil Ludlow, with Phil Poucher of Heneb – Dyfed Archaeology (formerly Dyfed Archaeological Trust) and funded by the Castle Studies Trust: it reveals a sophisticated building fit for royalty.

However, the building was actually built between 1315-20 by a senior royal government official called Sir John Wogan, who held office in Pembrokeshire, Northern England and Ireland and possibly fought on a military campaign in Gascony.

While outwardly it retains much of its medieval flavour, the interiors were extensively made over during the eighteenth century so that it now presents itself first and foremost as a Georgian country seat. But beneath this veneer, much medieval work still survives – though a lot of it is tucked away behind stud-walls, in cupboards, or is otherwise obscured.

Picton’s unique layout makes it a castle of great importance and architecturally ground-breaking for when it was built in the early fourteenth century. Most castles have at least some close parallels, but Picton is effectively one of a kind. Close study shows that it resolves as a central first-floor hall, flanked by services and a chamber-block to form a very early example of the three-unit ‘H-plan’ house.

The gatehouse – unusual in buildings of this kind – led onto an equally unusual ‘grand stairway’ to the hall; a second ground-floor entry probably led to an external kitchen and bakehouse.

The castle’s spatial disposition, access and circulation are meticulously planned, while the domestic appointments show a remarkable level of sophistication for the period, including what appear to be vertical serving-hatches between the ground floor and the service rooms above. At second-floor level, the east towers and gatehouse form two integrated suites of residential apartments either side of a chapel, in a manner firmly rooted within royal planning. The opposite pair of towers, at the west end, seem to have been united internally to form a residential chamber-block, for Wogan’s officials and guests, possibly served by latrines in the former west tower; the present partition walls are later.

Neil Ludlow told The Pembrokeshire Herald: “The enigmatic castle at Picton in Pembrokeshire is best-known for its magnificent Georgian interiors. But beneath this veneer is a medieval castle, from around 1315-20, with a unique layout. A towered hall-block with a pioneering ‘H-plan’, it reveals elements derived from royal planning, and sophisticated domestic arrangements including serving hatches between the floor levels. These innovations show it to have been a castle that was ahead of its time.”

Castle Studies Trust Chair of Trustees Jeremy Cunnington added: “The Castle Studies Trust is delighted to have funded the first ever detailed survey of Picton Castle and to have learned so much more about the medieval form of this unique building.”

Dr Rhiannon Talbot-English, Director at Picton Castle Trust told this newspaper: “Picton Castle has always been something of an enigmatic mystery: hidden gothic alcoves and arches, secret spiral staircases and untouched medieval Undercroft. Picton Castle Charitable Trust is extremely grateful to the Castle Studies Trust for its generous financial support which has enabled this research to be undertaken and we look forward to sharing this new knowledge with the public in a new exhibition about the early castle.”

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Solemn tributes at Freshwater West for WWII maritime tragedy

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IN an emotional gathering at Freshwater West, Pembrokeshire, the public and veterans convened on April 29, to honour the memory of the 85 souls lost in the tragic sinking of Landing Craft, Gun (LCG) 15 and LCG 16 during a brutal storm in April 1943.

The memorial service took place near the scenic, surf-popular beach, where the community assembled to reflect on the calamity that struck during a perilous wartime operation.

The service highlighted the sacrifices made by those aboard the LCGs, as well as six valiant crew members from the HMS Rosemary, who perished while attempting a daring rescue amidst the tempest.

Originally designed as Landing Craft, Tanks (LCTs), LCG 15 and LCG 16 were converted at Belfast’s Harland & Wolff shipyard to support amphibious operations by equipping them with heavy artillery.

Their redesign included the installation of two 4.7 inch guns intended for use during D-Day, suggesting that, had they survived, these crafts and their crews could have played a pivotal role in the Normandy Landings.

The crafts were en route to Falmouth when they encountered severe weather off the coast of Freshwater West.

Compounded by their flat-bottomed design, which was ill-suited for rough seas, both vessels tragically succumbed to the stormy conditions.

Denied shelter at Fishguard, they were compelled to continue towards Milford Haven, a decision that ultimately led to their sinking.

Today, the wrecks of LCG 15 and LCG 16 lie as protected war graves, and a poignant memorial stands overlooking the beach, a testament to the bravery and enduring legacy of the men lost to the sea.

Visitors to the memorial site at Freshwater West, which also hosts another commemorative marker at Thornton Cemetery in Milford Haven, can reflect upon the harrowing experiences faced by wartime naval personnel and the profound impact of their service.

The event served not only as a remembrance but also as an educational experience, particularly for younger generations unaware of the perils faced by their forebears during such tumultuous times.

The memorial at Freshwater West remains open to the public, offering a place for contemplation and respect, against the backdrop of one of Wales’ most beloved surfing beaches, where the echoes of history resonate with the sounds of the waves.

Pictures by Martin Cavaney

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