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Pioneering eye surgery offers hope for Lloyd

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fundFUNDRAISING is underway for 22-year-old Saundersfoot local Lloyd Davies, who desperately needs pioneering eye surgery in the United States who lost his eyesight after being diagnosed as suffering from Lebers Hereditary Optical Neuritis (LHON).

Led by Professor John Guy, the gene therapy treatment is the first in the world that could potentially cure LHON and fundraising is now well underway to help Lloyd raise the £10,000 he needs in order to make the trip to the USA and stay out there for the duration of the treatment.

The former Greenhill School pupil had aspirations of joining the Royal Navy to become a Navy Diver, and whilst he was waiting to complete the final parts of the admissions process, he enrolled onto the Marine Biology course at Swansea University.

In November 2013 Lloyd’s world was turned upside down when he began to suffer from a slight blurring of vision in his left eye. After putting up with it for a short period, he decided to go for an appointment at his local ophthalmic optician, who immediately referred him to the Ophthalmic Department at his local hospital who began to run tests to discover the cause of his sight issues.

By Christmas 2013 Lloyd had lost all vision in his left eye within just a month of first noticing any problem at all. By January 2014 he was given the devastating news that the cause of his sudden blindness was that he was suffering from LHON, and that usually the other eye would be affected within a matter of months.

This proved to be correct, as shortly after diagnosis Lloyd started to lose the sight in his right eye. By August 2014, shortly after celebrating his 21st birthday he was declared as being legally blind.

The condition has robbed the fun loving, sports mad individual from doing all the things he enjoys and has prevented him from pursuing the career of his dreams. It is hoped that the treatment will restore Lloyd’s vision and help him to pursue his ambitions in life.

Lloyd told The Herald about how the condition has affected his life and how grateful he is to those who have started the fundraising account and also to his family and friends who have helped him through this difficult period in his life

“When I was 20 years old, I lost my sight to a genetic disease called LHON (Lebers Hereditary Optical Neuritis). It took less than 5 months from having 20/20 vision to being registered as blind. Up until then I had lived the life of any normal lad growing up my age, being able to drive, play rugby, scuba dive and travel like anyone else takes for granted.

“The Summer before I lost my sight it worked at a Summer Camp in New York as a wakeboard instructor – something I now can’t do as I don’t think a blind person would be too safe driving boats!

“After I got back from Summer Camp I was in the process of joining the Royal Navy, something I now can’t accomplish.

“Once I was registered blind, there were life choices taken away from me – one of the biggest ones being my ability to drive – something I took for granted until I had to rely on buses, taxis, trains and lifts from other people.

“Later in September 2014 I joined the RNC (Royal National College for the Blind) in Hereford where I studied as a personal trainer in year one and currently doing massage in my second year, where I am still learning how to live with such limited sight.

“Since this all happened, everyday tasks have become daunting and tricky. Something as simple as finding the coffee to make a drink or trying to find something that has been moved by someone else.

“As trivial as it sounds, little things like having to take a picture of what other people are looking at, just to be able to enlarge and zoom in, just to try to see for myself. One of the things I now hate doing is going out for a meal, because even having to have the menu read out and chasing food around the plate becomes embarrassing.“

Regular everyday activities that people do without a second thought have become a chore for Lloyd and he explains that the surgery in America is his only chance to restore normality in his life, and that it is potentially not only himself that will be affected as there is a 50/50 chance of his younger brother also having the condition:

“As a result of the changes and difficulties that I’ve encountered I have been lucky to have such amazingly supportive family and friends that have helped keep my hopes up for future treatment and this opportunity to go to America for the trial is not one that I can afford to miss.

“The gene therapy treatment that is being trialled in the States is the first in the world to potentially cure my condition. “

“It is not just me has been affected by this as my younger brother has the same gene mutation and has a 50/50 chance of going blind too. Other members of my family also have the chance of being affected.

“As a result of this opportunity coming along, I will have to travel to and stay in America with someone coming with me and live there for 3/4 months whilst the trial is being carried out.

“I need to raise funds as quickly as possible is the trial is expected to start in the next few months.”

You can help Lloyd to get to the States and undergo treatment by donating via the ‘Light for Lloyd’ fundraising GOFUND ME page online, by typing the following link into your browser: https://www.gofundme.com/e8pte9xm

Alternatively you can search online for ‘Light for Lloyd’ and follow the links to donate, or go to social media site Facebook and search ‘Light for Lloyd’.

 

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Community

Youth centre given colourful new look thanks to local firm

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YOUNG people at a Haverfordwest youth centre have helped transform one of its rooms into a bright and welcoming space.

The Edge Youth Centre, Haverfordwest, has thanked W.B Griffiths & Son Ltd for supporting the painting and decorating project, which saw young people work alongside Chris, a painter and decorator from the company.

The project has given the room a colourful refresh, creating a cheerful space for young people using the centre.

Rabart Decorators Merchants, Pembroke Dock, also supported the work by supplying the colourful paints.

A spokesperson for The Edge Youth Centre said: “We’d like to extend a huge thank you to W.B Griffiths & Son Ltd for supporting us with the painting and decorating of one of the rooms at our Youth Centre.

“The young people were fortunate enough to work alongside Chris, a painter and decorator from W.B Griffiths & Son Ltd, to transform the room.

“Thanks to Chris and the young people’s hard work and enthusiasm, the space is now looking bright, welcoming, and cheerful.

“We’d also like to thank Rabart Decorators Merchants, Pembroke Dock, for generously supplying the colourful paints. Your support has helped create a vibrant room that young people can enjoy for years to come.”

The centre added: “Thank you both for your generosity and for helping us create such a positive space for our young people.”

Photo caption: Bright new look: Young people worked alongside W.B Griffiths & Son Ltd to refresh a room at The Edge Youth Centre, Haverfordwest.

 

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Community

MP welcomes approval of Shire Hall theatre plan

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Local MP says scheme could breathe new life into historic Haverfordwest landmark

HAVERFORDWEST MP Henry Tufnell has welcomed the approval of plans to transform the town’s historic Shire Hall into a theatre, café and restaurant, describing the move as “fantastic news” for the county town.

The comments come after Pembrokeshire County Council’s planning committee voted by eleven votes to two to approve plans to turn part of the former courthouse on Haverfordwest High Street into a theatre.

As previously reported by The Pembrokeshire Herald, the Grade-II*-listed building – described by Cadw as one of the finest of its type in Wales – has stood largely unused for years despite previous attempts to bring parts of it back into use.

Built in 1835 to the design of local architect William Owen, the former courtroom has played a major role in Pembrokeshire’s legal history, including hosting trials linked to the Rebecca Riots in the nineteenth century.

Posting on social media following the decision, Mr Tufnell said: “Fantastic news for Haverfordwest.

“Built in 1835, Shire Hall is a brilliant piece of local history.

“Today, redevelopment has officially been approved for the courthouse and upper-floor restaurant after a long time out of use.

“The space is set to be transformed into a theatre, café, and restaurant.”

He added that the redevelopment would help secure the future of one of the town’s most recognisable buildings.

The post included a photograph of the MP inside the courthouse with Thomas Baden Tudor, one of those involved in efforts to bring the building back into use.

Supporters of the scheme say the development could become a major cultural attraction for the county town, boosting footfall and helping revitalise the High Street.

Speaking during the planning meeting, Drew Baker, the proposed end user of the theatre, described the project as an investment in the “cultural economy of Haverfordwest” that would create a “genuine cultural destination” in the heart of the town.

While the planning application for the change of use has now been approved, a separate listed building consent application covering internal alterations – including proposals for a theatre, pizza restaurant and bar – is still under consideration by county planners.

 

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Business

Pembrokeshire reaches 75% gigabit broadband coverage

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PEMBROKESHIRE has reached a major digital milestone, with 75% of the county now able to access gigabit-capable broadband.

The figure marks a dramatic rise from just over 5% coverage in 2019, with year-on-year growth driven by public and private investment, community engagement, and support from the Swansea Bay City Deal’s Digital Infrastructure Programme.

Early commercial interest in rural Pembrokeshire was limited, so a strong focus was placed on working with communities to demonstrate demand and remove barriers to deployment. That approach helped create the conditions for competitive investment and has since transformed the local market.

Today, 43.7% of gigabit coverage in Pembrokeshire is delivered by alternative network suppliers, including Ogi, Voneus and local provider Dragon WiFi. Openreach also remains a major network developer in the county and is expected to continue playing a key role.

Cllr Paul Miller, Deputy Leader and Cabinet Member for Place, the Region and Climate Change at Pembrokeshire County Council, who has had portfolio responsibility for digital infrastructure since 2017, said: “Reaching over 75% gigabit-capable coverage is a major milestone for Pembrokeshire and demonstrates what can be achieved through partnership working.

“In 2019, large parts of the county were being overlooked for investment and just 5% could get gigabit speeds. Since then, working with partners across the sector, approximately 50,000 homes and businesses in Pembrokeshire have been connected.

“While we recognise there is more to do before we reach 100%, the progress so far, particularly given the rural nature of our county, has been incredible.”

Delivery across the county has been supported by a combination of public and private investment, including the Local Full Fibre Networks programme, which connected around 70 public sector sites, the UK Government’s Gigabit Broadband Voucher Scheme, Openreach’s Fibre Community Partnerships, Welsh Government’s Access Broadband Cymru grants, planned commercial builds and the Digital Infrastructure Programme’s Better Broadband Infill Project.

Martin Williams, Partnership Director for Wales and the West of England at Openreach, said: “We’re proud to be supporting Pembrokeshire’s digital future, with our full fibre network now reaching 43,000 premises, backed by £12.9m of investment.

“This milestone means faster, more reliable connectivity for homes and businesses across the county, especially in rural areas. Working closely with Pembrokeshire County Council and the UK Government, we’re continuing to bring full fibre to even more communities.”

Pembrokeshire County Council said its Digital Champions have played a key role in increasing connectivity. Through a proactive “barrier-busting” approach, the team has helped streamline internal processes and provide coordination to support suppliers and speed up deployment.

Work will now continue to extend coverage further, particularly in harder-to-reach rural areas, as Pembrokeshire builds the digital foundations needed to support economic growth, public services and resilient local communities.

For more information about connectivity in your area, email [email protected]

 

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