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Health

Apologies to victims of ‘the greatest scandal in the history of the NHS’

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WALES’ health secretary apologised to victims of the contaminated blood scandal, describing it as the greatest treatment scandal in the history of the health service.

Leading a Senedd debate on the infected blood inquiry, Eluned Morgan said the Welsh Government has started work to consider Sir Brian Langstaff’s recommendations.

More than 30,000 people in the UK were infected with HIV or hepatitis C by contaminated blood between 1970 and 1991, with more than 3,000 people dying as a result.

She said: “We must do better than the denials, the false reassurances, the complacency, the cover-ups, the obfuscations and the repeated failures at an individual, institutional and government level that characterised and compounded this awful tragedy.”

Although the scandal predates devolution by decades, Baroness Morgan apologised to all those who were infected with tainted blood or have been affected by the disaster.

Mabon ap Gwynfor told the chamber Sir Brian’s report was an “utterly damning indictment of an entrenched culture of institutional abuse, governmental neglect and political obfuscation”.

Plaid Cymru’s shadow health secretary hoped the report would prove a watershed moment in addressing an imbalance of power at the heart of the criminal justice system.

He said: “From the Hillsborough disaster to the Post Office Horizon scandal, the wheels of justice can often turn far too slowly when it comes to the misdemeanours of the wealthy.”

Sam Rowlands, his Conservative counterpart, described the infected blood scandal as one of the most grotesque miscarriages of justice in British history.

He welcomed the Victims and Prisoners Bill, which will create an arm’s-length body to administer compensation to victims, passing through Parliament pre-general election.

Julie Morgan, who has campaigned on the issue for decades as an MS and an MP for Cardiff North, paid tribute to those who had their lives incomprehensibly turned upside down.

She said: “When haemophilia patients were told about their HIV diagnosis, it was a terrifying ordeal – a death sentence, with life-expectancy estimates of between two and five years.

“The stigma was horrendous and the majority of patients kept their status secret.”

Stressing the importance of implementing the recommendations, Ms Morgan warned many people are worried about false hope because it has taken 40 years to get to this point.

Plaid Cymru leader Rhun ap Iorwerth, who chairs the Senedd’s cross-party group on haemophilia and infected blood, agreed that the fight for justice must continue.

Mark Isherwood, the Conservative MS for North Wales, said the five-year inquiry found infected blood was not an accident and was avoidable.

He said: “Contaminated blood has had and continues to have a devastating impact on the lives of thousands of infected people and their families.”

John Griffiths, a Labour backbencher, who has represented Newport East since 1999, joined other members in paying tribute to campaigner Lynne Kelly, who chairs Haemophilia Wales.

Highlighting the stigma around HIV/AIDS at the time, he said the family home of Colin John Smith, who died aged seven weighing only 13lb, was daubed with abuse and graffiti.

Mr Griffiths told the chamber: “It was a terrible scandal and indictment of the systems at the time – and so many families suffered in the way that these families did.”

Plaid Cymru’s Sioned Williams raised the concerns of two sisters from the Swansea valley, whose father Arwyn Davies died in 1992 due to the “appalling, unforgivable” scandal.

She said: “To date, children who lost parents, like Rhian and Sharon, have never been provided with compensation or recognition of their father’s death. They haven’t even received a letter of apology from their local health board.”

Hefin David, who is vice-chair of the cross-party group, paid tribute to campaigners in his constituency, including Nicholas Moran, Susan Hughes, Janet Morgan, and Kirk Ellis.

Wearing a tie in the campaign’s colours, the Labour MS for Caerphilly raised Mr Ellis’ concerns about the UK Government’s proposed lump-sum compensation scheme.

Dr David said: “He points out that in Scotland the Scottish Government has guaranteed that ongoing current support payments are for life, as well as the lump-sum compensation payments proposed by the UK Government in response to Sir Brian’s report.”

Outside the Senedd, Dr David said: “It has taken us a long time to get to where we are today, and it is a tribute to the hard work of campaigners and all those who have been affected by this scandal, whether directly or indirectly. 

“The role of my constituents who have regularly contacted me about this issue over the years cannot be understated.

“I have done a lot of work with Kirk Ellis in particular, who is from Caerphilly. These residents wanted me to tell their story of how the infected blood scandal affected them and their loved ones, but they also want to raise concerns about how the UK Government could implement a proposed compensation scheme going forward”.

Dr David highlighted the need for the UK Government to work with the Welsh Government and implement the report’s recommendations “in full and without delay”.

Plaid Cymru’s Luke Fletcher said Debroah James, a constituent from Bridgend, has fought for 42 years to uncover the truth of the death of her brother, who was a police officer.

He said: “People in positions of authority vilified these families for raising concerns, accused them of lying, accused them of giving life to rumours. Corruption is the long and short of it, isn’t it – a bid to save money. What an indictment of our system.”

Labour backbencher Jenny Rathbone agreed that it is more than a treatment scandal, saying: “This is about a criminal cover-up.”

The Cardiff Central MS backed Sir Brian’s calls for a legal duty of candour for civil servants and ministers to ensure they are not “continuing to be less than candid with the truth”.

Acknowledging concerns about unrecognised cases, Baroness Morgan said part of the issue is problems with NHS records that are required to make compensation claims.

She said the Welsh Government has established a new infected blood inquiry group, chaired by Push Mangat, the new deputy chief medical officer, to consider the next steps.

She explained: “It will work with health boards, the Welsh Blood Service, Public Health Wales and policy officials to ensure we look at the wrongs of the past and work together to ensure this can never happen again.”

Closing the debate on June 4, Baroness Morgan said: “Tonight I think we unite as a chamber and as a parliament, and I’m sure you’ll join with me to pay tribute to those who have suffered as a result of this – the greatest scandal in the history of the NHS.”

MSs unanimously supported the Welsh Government motion and Plaid Cymru amendments.

Health

Better pregnancy or baby loss bereavement care for people in Wales

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SANDS the UK’s leading pregnancy and baby loss charity, is supporting the National Strategic Clinical Network for Maternity and Neonatal Services to create tailored bereavement care pathways for those who have experienced pregnancy or baby loss in Wales.  

The pathways aim to reduce inequalities and improve the quality of bereavement care provided to parents and families, and has been made possible by funding from the Welsh Government. The pathway materials will include guidance for healthcare professionals based on evidenced best-practice, and a set of standards relating to important aspects of bereavement care.

Good quality bereavement care is vital for parents who have experienced the loss of a pregnancy, or whose baby has died. It includes sensitive communication with parents, providing a bereavement room away from maternity or labour wards, and parents being given informed choices about decisions relating to their care and the care of their babies.
 Clea Harmer, Sands’ Chief Executive, said: “Everyone affected by pregnancy loss or the death of a baby deserves high quality bereavement care and support. 

“We know that no level of care can remove the grief that many parents will feel after pregnancy loss or the death of a baby, but good care can make this devastating experience feel more manageable. We also know that poor quality or insensitively delivered care can compound and exacerbate pain.

“This launch follows a huge amount of hard work and determination from our partner organisations, the generous support of many bereaved parents and families, and medical professionals who have shared their experiences.

“We hope that through supporting the National Strategic Clinical Network for Maternity and Neonatal Services, we can work together to make sure everyone affected by pregnancy or baby loss gets the care that they need.”

In developing the pathways for Wales, Sands carried out a series of listening events for parents and health professionals during 2024, to understand how bereavement care in Wales can be improved. 

These insights will be incorporated into work with the National Strategic Clinical Network for Maternity and Neonatal Services to introduce pathways to address specific needs after miscarriage, Termination of Pregnancy for Foetal Anomaly (TOPFA), stillbirth, neonatal death or Sudden Unexpected Death in Infancy (SUDI).

Chief Midwifery Officer for Wales, Karen Jewell said: “We are delighted that we have been able to support this important initiative to develop and implement a National Bereavement Care Pathway for Pregnancy and Baby Loss.

“Pregnancy loss or the death of a baby is devastating, and this initiative will help to ensure that every family who suffer from this are appropriately and compassionately supported.

“Our significant investment into bereavement services will improve care and ensure consistency across Wales, the Bereavement Support Grant will continue to support organisations like Sands to extend and deepen bereavement support and fill the gaps that currently exist.”

Healthcare professionals are an important part of the Sands community, and the charity wants to support them to deliver good bereavement care. The pathways will introduce dedicated support for medical staff who care for bereaved families in Wales.

Cara Moore, Lead Midwife from the National Strategic Clinical Network for Maternity and Neonatal Services said: “We are thrilled to be leading the development and implementation of the development and implementation of bereavement care pathways in Wales in collaboration with Sands. The development of pathways will ensure consistent high quality and sensitive bereavement care is offered to all bereaved parents in Wales. This will be supported through training, interdisciplinary collaboration and continuous monitoring and promises a sustained improvement in the experiences of bereaved parents.

“We are also pleased that the implementation of the pathways align with and supports long term plans for the delivery of high quality maternity and neonatal care in Wales.”

Marc Harder, Head of Bereavement Care & Hospital Liaison at Sands, said: “Earlier this year, bereaved parents and families in Wales generously shared their stories of pregnancy and baby loss with us during a series of listening events. Key themes that arose included gaps in compassionate care, inappropriate and insensitive medical terminology, care outside of the hospital and inconsistency in bereavement care provision.

“We are delighted to be working in partnership with the National Strategic Clinical Network for Maternity and Neonatal Services to develop bereavement care pathways that will begin to address these concerns and lead to higher quality care at such a difficult time for parents and families. We will continue to work with parents, professionals and other stakeholders to ensure an evidence-based and community-led approach to the development of Wales-specific pathways.”

More information about the bereavement care pathways in Wales
The project in Wales is led by Sands in collaboration with a number of other charities and professional organisations, and funded by the Welsh Government. The project provides dedicated, evidence-based care pathways designed for all healthcare professionals and staff involved in the care of women, birthing people, partners and families at all stages of pregnancy and baby loss.

Five experiences of pregnancy or baby loss are included in the pathway project including miscarriage, TOPFA, stillbirth, neonatal death and SUDI.

Sands is here to support all bereaved families in Wales and across the UK. The charity provides support through its Freephone helpline, online community and resources, and through a network of regional support groups run by trained befrienders, all offering in-person peer support. 
 Find out more about all the ways the charity offers bereavement support.  

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Health

‘Junior’ doctors change name to ‘resident’ doctors

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THIS WEEK (Sept 18) the doctors who formerly were known as “junior” doctors mark their official transition to the title “resident” doctors. The BMA, the representative body for doctors in the UK, from today will refer to this cohort of doctors as resident doctors and leave the former misleading title behind.

Resident doctors are fully qualified doctors who are either currently in postgraduate training or gaining experience as locally employed doctors, to become the consultants, GPs or specialists of tomorrow. They form the largest single group in the UK’s medical workforce, with many having more than a decade of experience as highly qualified professionals. After many years of calls for the term “junior” to be retired as both misleading and demeaning to the skills of doctors, the BMA voted in 2023 to move to a new term.

In February 2024 a BMA survey showed the change to “resident” was supported by 91% of junior/resident doctors. From Wednesday, the word “junior” will be replaced by “resident” in all BMA and Government communications, with the NHS, media and healthcare institutions all encouraged to follow suit. “Resident doctor” also brings the UK closer to international terminology, the title being used in the US, Canada, Spain, Australia and many others.

The Welsh Resident Doctors Committee (WRDC) co-chairs Dr Oba Babs-Osibodu and Dr Peter Fahey said: “This change is a positive step forward for both doctors in Wales, who will now feel acknowledged for their extensive skills and years of experience, and for patients, who can rest assured that there is nothing ‘junior’ about the doctor looking after them”

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Health

Paul Davies MS demands urgent action on ambulance services in Pembrokeshire

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CONCERNS over ambulance services in Pembrokeshire have escalated, with local politician Paul Davies MS raising critical questions in the Senedd today, demanding urgent reassurances from the Welsh Government. The issue comes in the wake of several distressing incidents, including the recent death of a man after a nine-hour wait for an ambulance in Pembroke Dock.

In a statement posted on his Facebook page, Mr Davies expressed his alarm following numerous complaints from local residents. He said: “I’ve called for a statement from the Welsh Government on the delivery of ambulance services, following local concerns that I’ve received. Reassurances must be given that beds will not be removed from Withybush Hospital, as the removal of beds will only add further strain to the system. Support is also needed as a matter of urgency, as staff feel that they’re facing more and more paperwork and targets.”

The Conservative Senedd Member also highlighted that ambulance staff are increasingly struggling under heavy pressure, with added paperwork and challenging targets contributing to low morale. He raised the matter in the Senedd chamber, calling on the new Cabinet Secretary for Health and Social Care to make an urgent statement.

Addressing the Trefnydd, Mr Davies said: “Ambulance staff have raised concerns with me about services in Pembrokeshire, and I was alarmed to hear that 30 beds are to be removed from Withybush Hospital and Glangwili Hospital in due course. I was also alarmed to hear that ambulances despatched to Pembrokeshire are no longer ring-fenced to return, and the priority is to clear the backlog at Glangwili Hospital before any backlogs at Withybush Hospital.”

He further noted that staff are now facing a target of 15 minutes to complete a patient handover at A&E and another 15 minutes to restock and clean the ambulance, which is putting significant strain on already overstretched emergency workers. According to Mr Davies, morale among ambulance staff is at an all-time low, with many refusing to work overtime, particularly at night, due to concerns over spending extended hours waiting to discharge patients at hospitals.

“These are serious issues affecting both patient care and staff wellbeing,” he said. “Staff are telling me they are under more pressure than ever, with unnecessary paperwork and a target-driven approach that’s draining morale. It’s clear that we need a statement from the new Cabinet Secretary for Health and Social Care to address these concerns urgently.”

David Bye, pictured here with his wife Pauline, died after a nine-hour wait for an ambulance in Pembroke Dock

The demand for action follows a number of recent tragedies in the area linked to delayed ambulance response times. The case of David Bye, who died after a nine-hour wait for an ambulance in Pembroke Dock, has shocked local residents, who are now vocal in their demands for improved healthcare services across Pembrokeshire. Mr Bye’s death, along with other similar incidents, has intensified the public outcry for improvements to the region’s emergency response system.

The Welsh Ambulance Service has cited broader system-wide pressures, including long delays in transferring patients into hospitals, as a key cause of slow ambulance response times. However, residents and staff alike have expressed fears that removing beds from hospitals like Withybush will only exacerbate the problem.

Mr Davies has warned that without immediate intervention, the already stretched healthcare system in Pembrokeshire could deteriorate further, with severe consequences for patients and medical staff alike.

In his closing remarks in the Senedd, Mr Davies reiterated the urgency of the situation: “In light of the seriousness of the concerns raised, I believe that we need a statement now from the new Cabinet Secretary for Health and Social Care to address some of these concerns as soon as possible.”

The Pembrokeshire community will be watching closely to see if the Welsh Government responds with decisive action to ensure that local ambulance services and hospitals are properly supported, and that no more lives are lost due to delays in care.

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