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Health

Ombudsman finds Health Board failed vulnerable epilepsy patients

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The Public Services Ombudsman for Wales has ruled that Hywel Dda University Health Board failed to provide adequate care for epilepsy patients with learning disabilities.

The finding follows a complaint by seven families whose loved ones relied on a specialist epilepsy service that was abruptly discontinued in June 2021. The families said the Health Board failed to make proper alternative arrangements — and, four years on, still has no clear plan to meet the needs of these highly vulnerable patients.

In upholding the complaint, the Ombudsman expressed concern at the Health Board’s ongoing failings, which have affected “a very vulnerable group of patients.”

Marie James, one of the mothers involved in the complaint, said she felt “relieved” by the Ombudsman’s findings and recommendations. Marie cares for her adult son, Trystan, who has a genetic disorder causing daily seizures and weekly tonic-clonic episodes.

She said: “Since June 2021, the Health Board has failed to provide access to appropriate healthcare for our loved ones with epilepsy and learning disabilities. We were left without signposting or direction — a total failure of service. It made us feel that the responsibility was completely on our shoulders to ensure our children received the best epilepsy care we could provide.”

Marie said she and the other mothers tried to engage constructively with the Health Board but found the responses “disheartening.”
“The seven of us mums know that, to a degree, we can advocate for our children,” she added. “But any one of us could face new or emergency situations tomorrow, or see our sons or daughters move into supported living environments. That’s the real fear driving us — to ensure there’s a service that meets the needs of all vulnerable adults with epilepsy and a learning disability.”

The Ombudsman made several recommendations, all of which the Health Board has accepted. It must now:

  • Establish a clear Learning Disability Epilepsy Care Pathway accessible to all patients in its area.
  • Provide written apologies to each of the seven complainants within two months, acknowledging the lack of communication and care planning following the service’s closure.
  • Conduct a full review of its learning disability epilepsy patient lists within four months to ensure every individual has an up-to-date care plan, risk assessment, and emergency medication plan — including those who have been missed or are still awaiting neurology appointments.

Jane Hanna, Director of Policy and Influencing at SUDEP Action, said:
“Our role was to stand alongside the families in their fight. We’re pleased the Ombudsman issued such strong recommendations with clear timelines and that our request for an independent expert to review the Health Board’s future actions was included in the final report.”

Marie added: “We’re greatly indebted to SUDEP Action. Trystan’s life has been enhanced because of their support, and his risks have been reduced.”

The full Ombudsman’s report will be available from October 9 at www.ombudsman.wales

Health

NHS Trust CEO ‘forced out’ after raising concerns — Welsh Govt denies wrongdoing

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A CONSERVATIVE MS has pressed the Welsh Government for answers after the sudden departure of the Velindre University NHS Trust’s chief executive, amid media reports that he raised concerns about alleged governance failures within NHS Wales Shared Services.

During Health Questions in the Senedd today, James Evans MS asked Health Secretary Jeremy Miles to explain why former CEO David Donegan left his post after just a year. Reports circulating in recent weeks suggest Mr Donegan had raised issues relating to governance, and in some accounts, possible criminality. These claims have not been substantiated publicly.

Velindre’s own 2024/25 annual report notes that the Trust “escalated concerns to Audit Wales and Welsh Government about the current governance of Shared Services, which hadn’t been reviewed since 2012.” No details of the concerns have been published.

Welsh Government response

Jeremy Miles MS confirmed in the chamber that correspondence relating to the issues does exist, but said it would not be appropriate to release sensitive material while internal processes are ongoing. He did not comment on the circumstances of Mr Donegan’s departure, citing employment confidentiality rules which are standard across the NHS and public sector.

A Welsh Government spokesperson has previously said that they expect all NHS bodies to follow “proper governance and HR procedures,” and that they “do not comment on individual employment matters.”

Velindre NHS Trust position

Velindre has not publicly stated that Mr Donegan was removed because of whistleblowing activity. The Trust has described his departure simply as a “change in leadership” and says it continues to engage with Audit Wales and the Welsh Government on governance matters.

Opposition criticism

After the exchange, James Evans MS — the Welsh Conservative Shadow Cabinet Secretary for Health — criticised the Health Secretary’s “lack of transparency”.

He said:

“I am extremely disappointed with the Health Secretary’s refusal to provide clarity on the circumstances surrounding Mr Donegan’s departure, or to release the correspondence relating to governance concerns within Shared Services. The public must be able to trust that millions of pounds of NHS funds are being managed properly.”

Mr Evans said he will write to the First Minister and Cabinet Secretary formally requesting the publication of correspondence “in the interests of full accountability.”

Context: What is NHS Shared Services?

The NHS Wales Shared Services Partnership (NWSSP) manages national procurement, payroll, recruitment, estates services and other core functions for health boards and trusts. It sits within Velindre University NHS Trust but operates independently of its operational healthcare work. Governance arrangements for NWSSP were originally set a decade ago and are subject to periodic review by Audit Wales.

There is no evidence at present of wrongdoing by the Welsh Government or NWSSP, beyond the concerns referenced in Velindre’s annual report.

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Health

Wales’ biggest hospital overrun by pigeons – even in operating theatres

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Patients wheeled through tunnels “carpeted in bird faeces” as ministers accused of abandoning the NHS

CARDIFF’S University Hospital of Wales – the largest hospital serving South and West Wales – has been branded a national disgrace after whistle-blowers revealed a chronic pigeon infestation, including birds nesting inside areas used to prepare sterile operating theatres.

Tunnels ‘carpeted in droppings’

Patients, including those critically ill, are being pushed along underground corridors described as “ankle-deep in water and carpeted with bird faeces”, with buckets placed along walkways to catch rain leaking through failing roofs. Staff say the stench is overwhelming and that vulnerable patients are being traumatised by the conditions.

One frontline worker, speaking anonymously to The Pembrokeshire Herald, said the situation had become intolerable: “The place is full of pigeons. You see them flapping around in trauma theatres while surgeons are trying to save lives. The smell is vile.”

Photographs passed to this newspaper show floor surfaces coated in pigeon droppings and staff weaving around flocks of birds to reach wards.

Consultants warn hospital is now a risk

The revelations come just weeks after nearly three hundred senior consultants at the Heath signed an unprecedented letter warning morale was “at an all-time low” and stating the physical condition of the hospital now poses a serious infection risk. Pigeon droppings can carry cryptococcus, a fungus potentially fatal to those with weakened immune systems.

Despite this, ministers in Cardiff Bay have pressed ahead with hundreds of millions of pounds for expanding the Senedd by thirty-six new politicians and for major expenditure on the Welsh Government’s “Nation of Sanctuary” asylum policies.

Political row deepens

Welsh Conservative Senedd leader Andrew RT Davies said the state of the Heath symbolised years of neglect.

“Senedd ministers must take responsibility for the appalling condition of our hospitals. While Labour and Plaid spent money on vanity projects, they ignored the NHS. Patients in Pembrokeshire, Ceredigion and Swansea are paying the price.”

Built in the early 1970s, the Heath now requires more than £100 million in urgent repairs. Last winter entire wards were left freezing when heating systems failed, while engineers are said to be so overstretched that routine maintenance can take weeks.

In one instance, a seventy-seven-year-old emphysema patient from West Wales spent four days under blankets because radiators in his bay would not work. Another elderly man spent his final hours being wheeled through pigeon-infested tunnels because the lifts had broken again.

Health board ‘accepts’ poor conditions

Cardiff and Vale University Health Board acknowledged the conditions were “unacceptable” and said additional pest-control measures would be introduced, insisting patient safety had not been compromised. However, the hospital was placed at the highest level of Welsh Government intervention last month, and staff say the situation on the ground has barely changed.

A Welsh Government spokesperson said it was providing “targeted support” to address long-standing problems with the estate.

‘Ashamed to bring patients through’

For families in Pembrokeshire who rely on the Heath for major trauma, neurosurgery and cancer services, confidence in the system continues to erode.

A nurse from Tenby who trained at the hospital told The Herald: “We used to be proud to work there. Now we’re ashamed to bring patients through corridors that look like something from a horror film.”

The pigeons may be the most visible sign of decline – but staff say the deeper crisis begins in Cardiff Bay, where the decisions that shape Wales’s health service are made.

The people of Wales, they insist, deserve far better.

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Health

Wales on brink of wiping out new HIV cases as infections plunge 20 percent

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WALES is charging toward its ambitious 2030 target of zero new HIV transmissions after recording a dramatic 20 per cent drop in new cases during 2024, the Welsh Government revealed on World AIDS Day.

Cabinet Secretary for Health Jeremy Miles hailed the fall as proof that the HIV Action Plan for Wales 2023–26 is “delivering results at lightning speed”, with record numbers of tests, expanding PrEP access and every health board now signed up to the international Fast Track Cities initiative.

More than 33,000 free postal HIV test kits have been snapped up since the service launched, while a new long-acting injectable form of PrEP – given once every two months – is rolling out across every corner of the country for the first time.

Mr Miles said: “Thanks to highly-effective treatments, people with HIV in Wales are living long, healthy lives. Our focus now is stopping the virus in its tracks and stamping out the stigma that still lingers.”

The annual update, published this afternoon, shows testing and prevention efforts have never been higher, yet almost half of people newly diagnosed in 2024 were still identified at a late stage – prompting clinicians to scrutinise every case for missed opportunities.

A nationally funded peer-support programme, run by people living with HIV, is being commissioned to ensure no one faces the virus alone, while anti-stigma training reaches NHS staff, social care workers and secondary-school pupils.

Wales has also become one of the first nations in the world to have 100 per cent health-board commitment to the Fast Track Paris Declaration, with a new all-Wales coalition to be funded from January.

Work is also under way on a single sexual-health case-management IT system to give clinicians real-time data and allow ministers to track progress toward the 2030 goal.

Mr Miles warned, however, that global cuts in HIV funding could reverse hard-won gains in poorer countries.

“I will keep banging the drum internationally,” he pledged. “No one, anywhere, should be left behind.”

Campaigners welcomed the progress but urged the government to redouble efforts on late diagnosis and PrEP uptake among under-served groups.

Terrence Higgins Trust Cymru said: “These figures are genuinely exciting, but we can’t take our foot off the pedal. Zero transmissions by 2030 is within touching distance – let’s grab it.”

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