Community
Seizure death inspires awareness campaign

Epilepsy Action UK receives £159,300 from the Big Lottery Fund: Llinos Williams raises awareness for the condition which killed her brother at the age of 18
THE TRAGIC death of a teenager from an epileptic seizure sparked his sister to support an awareness-raising campaign for his condition.
Llinos Williams spent years trying to come to terms with the tragedy of her brother’s untimely death before she too was diagnosed with the same condition as him.
She reports that her diagnosis made her even more determined to support Epilepsy Action Cymru, who recently welcomed the news that they were chosen to receive £159,300 from the Big Lottery Fund.
The grant money will be used to improve access to information about epilepsy at different stages of care.
30-year-old Llinos Williams from Pwllheli was diagnosed with epilepsy following her having a seizure in her workplace.
The realisation that she’d been diagnosed with such a dangerous condition, especially one which had devastated her family the way it had, shocked her due to the fact that she had absolutely no idea that she was suffering from it.
Llinos said: “One of my brothers, Dylan, passed away after having a seizure when he was just 18-yearsold in 2007. It was such a huge shock to the family as even though we knew he’d had epilepsy for about ten years, we didn’t know that people could die from it.
“I was diagnosed with epilepsy in 2012 after I’d had a seizure in my work place. After visiting my GP I later found out that it had been triggered by an infection.
“I was really scared because I was just thinking about what had happened to my brother, and to add to everything else as well I was scared for my other brother, Carwyn, who had been diagnosed in 2010 too.
“I had no idea that I had epilepsy for a long time, I had no problems at all when I was a teenager but that first seizure turned everything around.”
However, with the support of Epilepsy Action Cymru, Llinos and her family have managed to overcome many of the challenges that they face and are now championing awareness of the condition and helping others to learn more about it.
“Thankfully I’m really healthy now. I was lucky enough to find out about Epilepsy Action Cymru shortly after I was diagnosed and they have been so helpful with getting not just me, but my family to come to terms with my condition.
“Through them I’ve become a volunteer to raise awareness of the condition and give people advice on how to manage it, and have even spoken at conferences about my experience.
“It’s fantastic that the Big Lottery Fund has awarded this money to Epilepsy Action Cymru. The work that they do to help people like me is brilliant, and it’s important to be able to provide that support to as many people as possible.”
Ann Sivapathan, Wales Manager at Epilepsy Action Cymru, said: “We are delighted to receive this grant from the Big Lottery Fund.
“The money will allow us to provide a vital service to the 8,000 people living with epilepsy in Wales in the language they feel most comfortable with.
“We will be able to give accessible support and information, provide a voice for people with epilepsy on important healthcare issues and limit the social isolation felt by some people with epilepsy in this area.
“We believe this role will be a real lifeline for many people living with epilepsy in Wales.”
There are 13 other projects across Wales which have been granted a share of the £3,881,083 ‘People and Places’ funding from the Big Lottery Fund.
Leonard Charity Disability will be using £498,960 to expand their ‘Can Do’ programme from Cardiff, Newport, Swansea and Wrexham into more of Wales.
It is hoped that this expansion will offer 1,200 more young disabled people volunteering opportunities on community projects that will enhance their life skills and levels of independence, and ultimately break down social barriers that they face in day-to-day life.
Michelle Impanni, Senior Programme Coordinator for Can Do in Wales, said “We are delighted we can now develop the programme to reach even more young people across Wales to benefit from this volunteering programme.
“Can Do aims to support and equip our participants with the skills and confidence they need to live their lives fully and participate in society.”
Time to Change Wales, which is a partnership between Mind Cymru, Gofal and Hafal, have managed to secure funding from the Big Lottery Fund to deliver a brand new antistigma campaign for children and young people.
Antony Metcalfe, Programme Manager of Time to Change Wales, stated: “We are delighted to have secured funding from the Big Lottery Fund to deliver a brand new antistigma campaign for children and young people.
“We are really pleased to have the support of schools and teaching professionals across Wales and look forward to working with them to improve the lives of young people.
“It is crucial that action to improve mental health and reduce discrimination starts at a young age and we believe that this campaign will play an important part in this agenda.”
The People and Places programme seeks to award grants of between £5,001 and £1 million for a broad range of different community projects.
Highlighting the importance of this, Rona Aldrich, Wales Committee Member for the Big Lottery Fund, said: “Programmes like People and Places are making a difference to the lives of so many people in communities across Wales.
“It delivers on our promise to use National Lottery funding to regenerate and revitalise communities, tackle disadvantage head on and leave a lasting legacy.”
Community
Princess of Wales praised for ‘skill’ during local wool mill and factory visit
Royal tour shines spotlight on west Wales textile heritage and local jobs
CATHERINE, Princess of Wales was told “she’s got the skill” after trying her hand at traditional textile work during a visit to west Wales on Tuesday (Feb 3).
The royal spent the day meeting staff and apprentices at two well-known manufacturers – Melin Tregwynt in Pembrokeshire and Hiut Denim in Cardigan – highlighting the region’s long-standing reputation for craftsmanship and small-scale, high-quality production.
Stitching and mending at historic mill

At Melin Tregwynt, a family-run woollen mill that now operates as an employee-owned trust, the princess was guided through each stage of production, from weaving to finishing.
In the quality control room she was invited to mend a blanket using a needle and thread, carefully repairing the fabric under the watchful eye of experienced staff.
Paula Harding, who has worked at the mill for more than a decade, praised her technique, saying: “She did it right – and she didn’t go through the other side. That’s skill. She’s got the skill.”
Laughing, the princess told workers: “You make it look so easy,” adding that the craft was clearly “a labour of love”.
She asked questions about the history of the business, which has produced Welsh-designed blankets and throws for more than a century, and spoke with several generations of the same families who have worked at the mill.
‘Made in Wales’ denim

Later, the princess travelled to Hiut Denim, the Cardigan-based firm credited with bringing jeans manufacturing back to the town after large factories closed in the early 2000s.
The company now focuses on small-batch, premium denim and employs skilled cutters and machinists locally.
During a tour of the factory floor, the princess tried cutting out a pair of jeans and helped stitch a “Made in Wales” label onto a finished pair that staff said would be presented to the Prince of Wales.
“He will love those,” she replied.
She joked that there was “no pressure” when handed the cutting tools and said she enjoys making clothes herself, admitting the most adventurous project she had attempted was sewing a pair of pyjamas.
The royal also stopped to greet Barney, the factory’s English cocker spaniel, drawing smiles from staff.
Meeting well-wishers
Crowds gathered outside both sites to catch a glimpse of the visitor, with the princess spending time chatting with families and children before moving on.
The visit forms part of ongoing efforts by the royal household to showcase traditional industries and skilled manufacturing across the UK, with west Wales’ textile sector recognised as a key part of the region’s heritage and economy.
For workers at both businesses, the message was simple: the spotlight on locally made products and homegrown skills was just as important as the royal presence itself.

Community
Cleddau at heart of major water reforms as ministers promise ‘fundamental reset’
New regulation plan aims to tackle pollution, sewage spills and ageing infrastructure
COMMUNITIES along the River Cleddau could see tighter controls on pollution and stronger oversight of water companies after ministers unveiled what they describe as a once-in-a-generation shake-up of how Wales’ water system is run.
The Welsh Government this week published a Green Paper promising cleaner rivers, tougher enforcement and a new Welsh economic regulator dedicated solely to the water sector.
Deputy First Minister Huw Irranca-Davies said it was time for a “fundamental reset” to rebuild public trust, warning that ageing infrastructure, climate pressures and growing concern about water quality meant the current system was no longer fit for purpose.
For Pembrokeshire residents, those words land close to home.

Local frustration growing
From Haverfordwest down to Milford Haven, the Cleddau is both a working waterway and a natural asset, supporting wildlife, leisure users, anglers and tourism businesses.
But in recent years there have been repeated complaints about sewage overflows, murky water after heavy rain and nutrient pollution washing in from across the catchment.
Storm discharges and wastewater treatment are the responsibility of Dŵr Cymru Welsh Water, while environmental enforcement sits with national regulators. Many locals say neither has acted quickly enough when problems arise.

Residents and river users have told The Herald they feel the estuary is “worse than it used to be”, particularly after periods of wet weather when combined sewer overflows can activate.
Concerns range from the impact on fish stocks and birds to whether the water is safe for paddleboarding, sailing and wild swimming.
What ministers are proposing
The consultation sets out plans to:
- create a new Welsh regulator focused on water
- strengthen monitoring and enforcement
- drive investment in ageing pipes and treatment works
- improve transparency and accountability
- support long-term environmental protection
Since 2022, the government says it has invested more than £56 million tackling water quality through enforcement, monitoring and nature-based solutions. A further £5 million has been earmarked next year specifically for river and coastal improvements.
Ministers say the changes should make it easier to fine or sanction poor performance and force faster upgrades where infrastructure is failing.

Why the Cleddau matters
The Cleddau catchment is one of west Wales’ most important waterways.
It feeds into the Milford Haven Waterway, a key centre for industry, energy, fishing and recreation, while also providing habitat for protected wildlife and drawing thousands of visitors each year.
Any decline in water quality has knock-on effects not just for nature but for jobs and the local economy.
Campaigners argue that without tougher oversight and sustained investment, the river risks long-term damage.
Consultation open
The Green Paper is now out for public consultation, with ministers inviting views from residents, businesses and community groups.
For many in Pembrokeshire, this may be a rare chance to push for specific improvements on their doorstep — from fewer sewage discharges to better monitoring of agricultural runoff and clearer reporting when incidents occur.
If the promised “reset” is to mean anything locally, it will be judged on one thing: whether the Cleddau actually gets cleaner.
The consultation is open on the Welsh Government website, and submissions can be made by individuals as well as organisations.
Community
Cilgerran Church in Wales school petition to be heard
A PETITION opposing proposed changes for a north Pembrokeshire school is to be heard by councillors later this week.
At last May’s meeting, Pembrokeshire County Council considered a report of the School Modernisation Working Group which outlined the findings of a review of education provision in the Preseli area.
A later July meeting backed a general consultation to discontinue Cilgerran Church in Wales Voluntary Controlled School, and to establish it as a 3-11 community school.
“In particular, the review considered the extent of surplus school places in the area, set against a significant decline in the pupil population,” the council in its consultation has said.
The consultation closed on January 30.
Hundreds have opposed the proposed changes, with a petition, on the council’s own website opposing the changes recently closing after gaining 391 signatures.
Any petition of more than 100 signatures triggers a debate at one of the council’s scrutiny committees, in the case of Cilgerran that debate taking place at Pembrokeshire County Council’s February 5 schools and learning overview and scrutiny committee.
The Cilgerran e-petition, created by Louise Williams, raised concerns including the school could become part of a federation, a loss of permanent head teacher on site, a shared head teacher would have to oversee several schools, loss of funding control and the ability to maintain the school’s current healthy and stable funding, and a loss of commitment to the church, in turn could impact on the school’s and pupils values, beliefs and cultural beliefs.
It said: “Ysgol Cilgerran VC school has strong links with the Church community in Cilgerran and we believe this will have a negative impact on the children who attend the school, the community of Cilgerran and the links between the two.
“We are proud of our school ethos and values which are strengthened by our links with the church. The school has close and strong relationships with our Church in Wales federation governors one of which is also our safeguarding governor.
“Our Church Federation governors work closely with the school and are regular visitors to the school and the children. They provide vital support and guidance to the school and have a positive impact on the Children’s education. We believe these links will be weakened by this proposal to remove our VC status and we believe this is an un-necessary action.”
The proposals for Cilgerran are part of a wide range of potential education changes in the county.
Two petitions, opposing the potential closures of Manorbier and Ysgol Clydau schools, were recently heard at full council and a further petition opposing the potential closure of Stepaside School has recently been launched, which has generated enough support to be heard at a future council meeting.
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