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Seizure death inspires awareness campaign

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Epilepsy Action UK receives £159,300 from the Big Lottery Fund: Llinos Williams raises awareness for the condition which killed her brother at the age of 18

Epilepsy Action UK receives £159,300 from the Big Lottery Fund: Llinos Williams raises awareness for the condition which killed her brother at the age of 18

THE TRAGIC death of a teenager from an epileptic seizure sparked his sister to support an awareness-raising campaign for his condition.

Llinos Williams spent years trying to come to terms with the tragedy of her brother’s untimely death before she too was diagnosed with the same condition as him.

She reports that her diagnosis made her even more determined to support Epilepsy Action Cymru, who recently welcomed the news that they were chosen to receive £159,300 from the Big Lottery Fund.

The grant money will be used to improve access to information about epilepsy at different stages of care.

30-year-old Llinos Williams from Pwllheli was diagnosed with epilepsy following her having a seizure in her workplace.

The realisation that she’d been diagnosed with such a dangerous condition, especially one which had devastated her family the way it had, shocked her due to the fact that she had absolutely no idea that she was suffering from it.

Llinos said: “One of my brothers, Dylan, passed away after having a seizure when he was just 18-yearsold in 2007. It was such a huge shock to the family as even though we knew he’d had epilepsy for about ten years, we didn’t know that people could die from it.

“I was diagnosed with epilepsy in 2012 after I’d had a seizure in my work place. After visiting my GP I later found out that it had been triggered by an infection.

“I was really scared because I was just thinking about what had happened to my brother, and to add to everything else as well I was scared for my other brother, Carwyn, who had been diagnosed in 2010 too.

“I had no idea that I had epilepsy for a long time, I had no problems at all when I was a teenager but that first seizure turned everything around.”

However, with the support of Epilepsy Action Cymru, Llinos and her family have managed to overcome many of the challenges that they face and are now championing awareness of the condition and helping others to learn more about it.

“Thankfully I’m really healthy now. I was lucky enough to find out about Epilepsy Action Cymru shortly after I was diagnosed and they have been so helpful with getting not just me, but my family to come to terms with my condition.

“Through them I’ve become a volunteer to raise awareness of the condition and give people advice on how to manage it, and have even spoken at conferences about my experience.

“It’s fantastic that the Big Lottery Fund has awarded this money to Epilepsy Action Cymru. The work that they do to help people like me is brilliant, and it’s important to be able to provide that support to as many people as possible.”

Ann Sivapathan, Wales Manager at Epilepsy Action Cymru, said: “We are delighted to receive this grant from the Big Lottery Fund.

“The money will allow us to provide a vital service to the 8,000 people living with epilepsy in Wales in the language they feel most comfortable with.

“We will be able to give accessible support and information, provide a voice for people with epilepsy on important healthcare issues and limit the social isolation felt by some people with epilepsy in this area.

“We believe this role will be a real lifeline for many people living with epilepsy in Wales.”

There are 13 other projects across Wales which have been granted a share of the £3,881,083 ‘People and Places’ funding from the Big Lottery Fund.

Leonard Charity Disability will be using £498,960 to expand their ‘Can Do’ programme from Cardiff, Newport, Swansea and Wrexham into more of Wales.

It is hoped that this expansion will offer 1,200 more young disabled people volunteering opportunities on community projects that will enhance their life skills and levels of independence, and ultimately break down social barriers that they face in day-to-day life.

Michelle Impanni, Senior Programme Coordinator for Can Do in Wales, said “We are delighted we can now develop the programme to reach even more young people across Wales to benefit from this volunteering programme.

“Can Do aims to support and equip our participants with the skills and confidence they need to live their lives fully and participate in society.”

Time to Change Wales, which is a partnership between Mind Cymru, Gofal and Hafal, have managed to secure funding from the Big Lottery Fund to deliver a brand new antistigma campaign for children and young people.

Antony Metcalfe, Programme Manager of Time to Change Wales, stated: “We are delighted to have secured funding from the Big Lottery Fund to deliver a brand new antistigma campaign for children and young people.

“We are really pleased to have the support of schools and teaching professionals across Wales and look forward to working with them to improve the lives of young people.

“It is crucial that action to improve mental health and reduce discrimination starts at a young age and we believe that this campaign will play an important part in this agenda.”

The People and Places programme seeks to award grants of between £5,001 and £1 million for a broad range of different community projects.

Highlighting the importance of this, Rona Aldrich, Wales Committee Member for the Big Lottery Fund, said: “Programmes like People and Places are making a difference to the lives of so many people in communities across Wales.

“It delivers on our promise to use National Lottery funding to regenerate and revitalise communities, tackle disadvantage head on and leave a lasting legacy.”

 

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Community

Johnston FC pays tribute after sudden death of Rhyan Nolan, 27

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Community rallies around grieving family as club honours much-loved player at weekend fixture

JOHNSTON FC paid an emotional tribute at the weekend to Rhyan Nolan after his sudden death at the age of 27.

The club marked the occasion with a flawlessly observed minute’s silence before kick-off, as both teams, officials and supporters came together in his memory.

A signed match ball and Rhyan’s much-worn number ten shirt, covered in messages from team-mates and friends, were also prepared to be handed to his family, who were present for the tribute.

The death of Rhyan has sent shockwaves through the local community, with many gathering around his loved ones in the days since the devastating news emerged.

A fundraiser set up on GoFundMe says his family received the heartbreaking news on Monday that they had lost their “precious, loving son and brother” suddenly at such a young age.

The appeal names his close family as Nichola, Shamus, Brandon, Callum and Lilly, and says relatives are hoping to ease the financial burden while giving Rhyan the send-off he deserves.

It states: “Rhyan deserves a celebration of his short life.”

Johnston FC said it had been a difficult week for all those who knew and loved him, but said it had also been heartwarming to see such an outpouring of love at the match.

The club thanked everyone who helped make the tribute possible, along with those who had sent messages of support and donated towards helping the family.

Photographs shared after the game showed the scale of the moment, with both sides lined up in silence and the orange number ten shirt left covered in handwritten tributes.

For many in attendance, it was a powerful and deeply personal farewell to a young man clearly held in enormous affection.

A GoFundMe appeal has now been launched to support the Nolan family.

 

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Community

Flood Alert issued for Pembrokeshire coast as weather conditions worsen

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Natural Resources Wales (NRW) has issued a Flood Alert for the Pembrokeshire coastfollowing rising water levels. The alert, which affects areas between St Dogmaels, Cardigan and Amroth, warns that flooding is possible in the region due to adverse weather conditions and high tides.

The alert was issued at 12:53 PM today (Apr 4), urging local residents to be prepared for potential flooding in the coming hours.

Key Advice for Residents

As the flood risk increases, NRW has shared crucial advice to help people stay safe:

  • Prepare a flood plan: If you have one, now is the time to follow it.
  • Protect valuables: Residents should move important items, such as documents and sentimental belongings, to higher ground or safer locations.
  • Stay alert and pack an emergency kit: Ensure your phone is charged, and pack essential items like medications, chargers, insurance documents, and warm clothing in case you need to evacuate quickly.
  • Check on vulnerable individuals: Ensure that children, elderly relatives, and pets are safe, with a plan for their evacuation if necessary.

Avoid Floodwater at All Costs

NRW is also stressing the importance of avoiding floodwater, as even shallow levels of water can be extremely dangerous. As little as 30 cm (1 foot) of floodwater can sweep away a car, and 15 cm (6 inches) can knock you off your feet.

Authorities are urging everyone to never walk or drive through flooded areas.

How to Stay Updated

Residents are advised to stay informed through NRW’s website, where they can track water levels and access real-time updates. The agency also recommends checking its social media accounts for the latest information.

For more detailed information or if you need assistance, call Floodline at 0345 988 1188 (quick dial number: 503013).

For More Information:

Follow NRW on Twitter: @NatResWales

Image: Herald file photo

 

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Business

Harbwr Brewery plans for Saundersfoot Old Chemist pub

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A FORMER Pembrokeshire county councillor who owns many hostelries in the county has submitted plans to the national park to rejuvenate a “tired” seaside pub.

In an application to Pembrokeshire Coast National Park, Mike Evans of Harbwr Brewery, a former county councillor and national park authority member, seeks a partly retrospective permission for works at the Old Chemist Inn, The Strand, Saundersfoot.

The works include proposed internal alterations to the basement and ground floor, a new rear balcony area to replace the existing one, improvements to front façade, a change of use of shop space to food/drink, and installation of seating booths in the rear garden.

It says the changes proposed will increase the number of staff employed to 15 full time and 10 part-time.

No objections to the proposal were raised by local community council Saundersfoot.

A supporting statement through agent David J P Morgan RIBA Architect, says the 19th Century pub “has endured many alterations during its lifetime and at present it needs improvements to echo the recent upgrading of the village, both in the general tourism support facilities, as well as the new innovative harbour development,” with the  appearance and interior facilities “tired” and needing “works both inside and outside to enable the inn to achieve and provide the high levels of cuisine and facilities now expected”.

It says: “The Inn has been purchased by a local company who have a number of establishments within Saundersfoot and Tenby. The company is owned by local people, they use local produce, they employ local labour and work actively with local communities to achieve the high standards expected.

“The proposals include internal alterations to the internal layout of basement and ground floor which will improve bar, kitchen and food facilities and allow a much more varied menu including lots of local produce and locally caught seafood dishes. New toilet facilities will be provided on both levels to cater for the increase in visitors to the Inn.”

It adds: “The applicant has recently purchased the small retail unit on the ground floor. This was a single room, situated in between the two entrances into the Inn and with its own entrance door from the street.

“The current proposals include integrating this unit into the public house bar area and consequently the application includes a change of use from retail to the serving of food and drink.”

It goes on to say: “The rear ‘beer garden’ will be improved to allow more space and comfortable seating areas.

“The applicant is well known for the extensive use of external plotted plants in open areas at their establishments and the garden area will give the opportunity of using such to soften the garden area whilst giving greater habitat opportunities for birds and insects.”

There were initial objections from the Park’s buildings conservation officer to some of the parts of the design, a 2025 application being withdrawn early that year; amended plans being later submitted.

The application will be considered by park planners at a later date.

 

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