Community

Video spreads hope

Published

9 years ago

July 12, 2016

Tom Sinclair

Hope for people with MS: Belynda and James raise awareness for the condition

HUNDLETON student Belynda Galliard and Chester-based James Martin are on a mission. They are determined to show people that MS (Multiple Sclerosis) need not prove the end of the world. Life, they argue, can be full of potential for those given the chance.

And so , to further their cause Belynda , who will soon commence an MA in Film and Drama, and family friend James, a musician and a recent graduate in Media Studies, are currently producing a video to help everyone adopt a more positive approach to life with MS.

MS is the most common condition of the central nervous system affecting young adults. Over 100,000 people in the UK have MS which is about one in every 600. It is nearly three times more common in women than in men. Most people are diagnosed in their 20s and 30s, but it can be diagnosed in younger and older people.

But Belynda and James are not motivated by bald statistics .

“I have just started my own media company called Blue Dynasty Media , ” James explained . “I knew that I would have to begin by doing projects for free to show people what I can do . I initially thought I would do something like a music video. But then I thought, if I am going to be doing it for free , I might as well try and do something that makes a difference instead of simply helping a corporate client who really should be paying for what I do .

“And then I spoke to Liz, a family friend who suffers from MS. I didn’t realise she had MS at first because it was not very noticeable. I didn’t appreciate at the time that this disease affects people differently. This led to do some research which in turn prompted me to produce this film for the MS Society . ”

Belynda’s contact is much closer to home. She has a mother who suffers from MS. She explained: “The MS society recently did an employment survey and I found it interesting because I discovered that lots of people have had good careers. Liz’s husband was a journalist for example, and it made me think that with a little bit more understanding and support from his employer , he would have been able to continue working much longer than he did.

“When my mum discovered she had MS her employer basically said ‘Well that’s that. I’m giving your job to someone else’. He was convinced that she would soon be in a wheelchair but she simply needed some help with her fatigue levels. We want to educate and inspire people like that .”

Belynda and James have received no funding to date and are meeting all the expenses incurred from their own resources, which is why they are very keen to meet and interview anyone who willing to talk about their experiences and offer hope to those who are scared as to what a diagnosis might mean.

As Belynda explained: “We need people with inspirational stories to get involved as soon as possible and once the video is complete , we want to share it as widely as possibly. It won’t matter how good it is if no one sees it.”

James added: “We have discovered that MS society, like other organisations ,

needs to look at the way it shares its information. We have discovered ,

for example, that the society has hubs all around the country but they are often not aware of what other groups are doing. We are keen to create an environment in which they communicate with each other.

“There is a Facebook page , for example, but we need to encourage the different hubs to use it more . The content can be improved too. We are hoping this initiative will inspire them to use their resources in a more effective way .”

As for success, Belynda believes 100,000 views o n line is not an impossible target and she says they would be thrilled if it were shared further afield, such as in the US , for example.

“Given the way we can share information today, the sky’s the limit , ” she added. “And the tone is the key to our approach. Lots of campaign videos and appeals follow the same format. They are a little dated. We are determined to highlight the positives. It’s not a case of feel sorry for me but give me a chance!”

For more information contact Belynda: [email protected] or James : [email protected].

Community

Haverfordwest’s first memory tree brings community together this Christmas

Published

1 hour ago

December 5, 2025

Tom Sinclair

Spud Box is delighted to launch a brand-new festive initiative for the people of Pembrokeshire – Haverfordwest’s first Memory Tree, now open to the public at our premises.

The idea, inspired by Drew from The Big Pembs Panto, invites members of the community to write and hang personal messages on the tree. These can be tributes to loved ones, cherished memories, or simple Christmas wishes.

The project has been created to give people a meaningful way to connect during the festive season. All materials – including paper, plastic pockets and ribbon – are provided free of charge. Visitors are also welcome to enjoy complimentary hot drinks, kindly supplied by Connect: Pembrokeshire, along with mince pies donated by Brakes.

Anyone who prefers to create their message at home can bring it in, and the team will be happy to help attach it to the tree.

Donations are being encouraged in support of Sandy Bear Children’s Bereavement Charity, making the Memory Tree both a reflective and charitable community event.

The tree itself looks spectacular thanks to Sion from DSR Batteries, who supplied the lighting. The project has also received generous support from Marty at Sandy Bear Children’s Bereavement Charity and Pure West Radio. Spud Box welcomes other community groups or organisations who wish to get involved.

Community

Pembrokeshire Lottery makes Superdraw winner’s Christmas extra special

Published

2 days ago

December 3, 2025

Tom Sinclair

ONE lucky Pembrokeshire Lottery player has scooped a festive windfall after winning the £10,000 Christmas Superdraw held on Wednesday 3 December.

The winner, Mr Damon McGarvie, formerly of Milford Haven and now living in Llangwm, was selected with lucky number 41475. He plays through a salary-deduction scheme run by his employer, Pembrokeshire County Council.

Mr McGarvie’s name was announced live on Radio Pembrokeshire, after which the Pembrokeshire Lottery team made contact and presented him with his cheque later that day.

Speaking after the win, Mr McGarvie said he and his wife will be jetting off on a once-in-a-lifetime holiday over the festive period, thanks to the surprise Christmas windfall.

Pembrokeshire Lottery Manager Abigail Owens said:
“I am so pleased for Mr McGarvie. He has contributed to the Pembrokeshire Lottery for many years, and it is only by the continued support of our players that we are able to assist so many local businesses with interest-free funding from the loan fund.”

The regular weekly £2,000 draws continue in the run-up to the January Superdraw, which will offer a £4,000 prize.

To sign up or order Pembrokeshire Lottery gift subscriptions for Christmas, call 01646 690800.

Photo caption: Damon McGarvie with his winner’s cheque.

Community

Care home fees in Wales remain among the lowest – but families still face crippling bills

Published

2 days ago

December 3, 2025

Tom Sinclair

WALES continues to offer some of the most affordable care home places in the UK, with residents paying hundreds of pounds less each week than in London or Scotland, new figures reveal.

The average weekly cost of a residential care home place in Wales stands at £1,156 – £392 cheaper than in London (£1,548) and £142 below the UK average of £1,298, according to data published by the country’s largest care home reviews website, carehome.co.uk.

Even when nursing care or specialist dementia support is required, Wales remains significantly cheaper than most of the UK. A week in a Welsh nursing home with dementia care costs £1,440 on average – £327 less than in London and £124 below the national figure.

The figures, based on self-funder fees collected on 9 September 2025, underline a stark north-south divide that has persisted for years.

London is by far the most expensive region, with basic residential care now averaging £1,548 a week. Scotland, where care workers benefit from a higher minimum wage settlement, comes a close second at £1,539. In contrast, the North East of England remains the cheapest area at just £1,112 a week for residential care – almost £200 below the UK average.

Sue Learner, editor of carehome.co.uk, said the regional variations were only part of the story.

“Wales is the third most affordable region for most types of care, which will come as a relief to many families here,” she said. “But even at £1,156 a week, the bills add up to almost £60,000 a year. For the 49 per cent of residents who pay for their own care, these costs are devastating.”

The financial pressure is compounded by differing rules on state help across the UK. In Wales, anyone with assets below £50,000 qualifies for local authority support – more than double England’s £23,250 threshold and well above Scotland’s £35,000 limit.

Ms Learner warned that rising staff wages and looming increases in employer National Insurance contributions would push fees higher everywhere.

“Local councils are already stretched to breaking point,” she said. “Without genuine reform of the social care system – something governments have been promising for decades – more and more families will have no choice but to sell the family home to fund care.”

The website, which carries 390,000 independently verified reviews, is urging people to plan early and seek expert advice. Its free Care Helpline (01488 501 499) is available to anyone looking for a home that offers both quality and value for money.

As the population ages and demand grows, campaigners say the latest figures are another reminder that the postcode lottery in care costs shows no sign of disappearing.