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Health

Decades of failure and denial over tainted blood scandal revealed

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ON MONDAY evening (May 20), Rishi Sunak apologised on behalf of the British government to the victims of the contaminated blood scandal.

After a five-year public inquiry, the Prime Minister offered an “unequivocal” apology for the findings published in Sir Brian Langstaff’s report earlier on May 20.

The findings were damning.

They included the revelation that ministers, doctors and civil servants knew the risks of the blood products given to haemophiliacs and people needing blood transfusions.

Victims were “gaslit” by claims that the mass infection of those patients with HIV and hepatitis C was inadvertent, that screening started as soon as it could, and that no one could have stopped it sooner.

None of those things were true.

Under successive Labour and Conservative Governments, the Department of Health and HM Treasury fought against a public inquiry and the idea of paying compensation to those affected by being given tainted blood products.

Officials fobbed off ministers who tried to look into what had happened, complaining that they had too much sympathy for the victims.

When briefing documents for ministers got close to revealing the truth, civil servants doctored their content to misrepresent their authors’ findings.

While Mr Sunak apologised for the failures of the British state and Sir Kier Starmer for a “failure of politics”, the blame doesn’t rest only at Westminster’s door.

Welsh Government ministers are specifically mentioned for refusing to hold a public inquiry and not seeking advice specific to Wales. Instead, despite having responsibility for the NHS in Wales, they slavishly followed Westminster’s line.

Welsh Government ministers failed to examine the strength of the evidence UK ministers and officials relied upon or assess the evidence available in Wales.

Had they done so, they would have found key claims – that all infections were inadvertent and patients received the best possible treatments – were untrue and unfounded.

Only in 2017 did the Welsh Government change tack, when then-Health Minister Vaughan Gething wrote to his UK counterpart, Jeremy Hunt, to request a UK-wide public inquiry.

Ironically, only Theresa May’s political weakness following the 2017 General Election led the Westminster Government to order a public inquiry. Mrs May feared losing a Commons vote on the demand for one.

The worst elements of the scandal are clinical and institutional.

Clinicians, Department of Health officials, and others concealed the truth to avoid blame and liability.
The inquiry pointed to medical advice on the dangers of blood and plasma dating back 40 years and court rulings that showed other countries had started screening sooner.

Doctors claimed they hadn’t seen evidence of infection through those products even while treating people who had contracted AIDS from their treatment with them.

Documents disappeared, were “lost”, and patient records were deleted.

Leading clinicians withheld critical information from patients and their families.
Children with haemophilia were treated as guinea pigs.

The list of severe historic and continuing failings is almost unending.

The government’s easiest task is paying compensation. Addressing the culture of secrecy and institutional arrogance will be much harder.

For more on this story, see this week’s edition of The Pembrokeshire Herald.

Health

10-mile trek raises £1,000 for stroke unit

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A TEAM of 18 from CARA Wales took on a 10-mile trek and raised £1,000 for the Stroke Ward at Withybush Hospital.

The team from CARA Wales, an agricultural and rural consultancy and advice organisation, walked across the Preseli Mountains from Foel Drygan to Foel Eryr on 17th June 2023.

Mererid Sandbrook, who works for CARA Wales, said: “The walk started in Crymych and continued along the Golden Road up to Foel Eryr, the highest point of Preseli Mountain. It was a really enjoyable day.

“We were all really pleased to have raised such a great amount of money. We would like to thank everyone who donated money towards our challenge.”

They also raised £1,000 for Stroke Association.

Nicola Llewelyn, Head of Hywel Dda Health Charities, the official charity of Hywel Dda University Health Board, said: “We’d like to say a big thank you to CARA Wales for taking on the 10-mile trek in aid of the Stroke Ward.

“The support of our local communities enables us to provide services over and above what the NHS can provide in the three counties of Hywel Dda and we are extremely grateful for every donation we receive.”

Your donations are making a positive difference to the health, wellbeing and experience of NHS patients, service users and staff. For more details about the charity and how you can help support local NHS patients and staff, go to www.hywelddahealthcharities.org.uk

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Health

Hywel Dda to engage on Tregaron Community Hospital beds

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HYWEL DDA University Health Board is inviting members of the public to share their views about the potential of decommissioning the nine beds currently at Tregaron Community Hospital.

The proposal for a new model of care, which is part of the broader Cylch Caron project, will see the move of care from the hospital to people’s own homes enabled through a different model of support. This can only be achieved by staff working in different ways, focused on keeping people well at home, and with more available to help people in the community.

Peter Skitt, County Director Ceredigion at Hywel Dda University Health Board explains: “Members of our local community will be familiar with our vision, which includes the development of the Cylch Caron model of care that includes an integrated resource centre.”

Dr Sion James, Deputy Medical Director Primary Care and local GP for Tregaron, adds: “Tregaron Hospital has been a part of our local community for a number of years, and we need to provide our community with a range of services that meets their current and future needs.

“The Centre is an exciting and unique project that aims to offer many opportunities and benefits for people in the area. This will bring together a range of services in a central hub for the Tregaron and surrounding rural areas. The project will create an innovative rural model of community-based care to meet care, health and housing need in the area, which is fit for today and sustainable for tomorrow.”

The Cylch Caron scheme is being developed in partnership between Ceredigion County Council, Hywel Dda University Health Board and the Welsh Government. It will consist of a GP surgery, community pharmacy, outpatient clinics and community nursing and social care facilities, as well as extra care flats and integrated health and social care units.

Ceredigion County Council recently announced that they are inviting companies to tender for the design and build of the new fully-integrated health, social care and housing centre.

Peter adds: “While we develop our Cylch Caron scheme, we also need to consider our current model of care for patients at Tregaron Hospital. Despite efforts to recruit to positions, our current level of staffing is insufficient, and our staffing rotas are fragile. Our staff have voiced how challenging it is to support our patients through our current model of care at Tregaron Hospital. Our proposal is to move our staff from being hospital based and looking after the nine beds, to being community based. This will enable us to support more patients in their homes.

The Cylch Caron model of care is focused on providing more community nursing and enhanced care in people’s own homes. This would be achieved through outreach nursing and increased provision of same day urgent care. Outpatient appointments will continue to be provided from Tregaron Hospital and the building will serve as a hub for our staff until the new Cylch Caron Integrated Resource Centre is built.

Peter continues: “We know that being close to home, or in their home, is important for our patients. We want to increase the opportunity for people in Ceredigion to be able to stay well for longer, with the support of enhanced staffing in their own homes.

“At the moment, the patients in our care at Tregaron hospital live more than ten miles away from the hospital, and most are medically fit. And this has been common for a long time. Our proposal to move our staff to focus on advanced care in people’s homes provides a different way of supporting our patients. It will enable us to deliver our community care model quicker and support more people in our communities.

“Patients have consistently shared that they would prefer to be at home, or closer to home, and this tends to enable their recovery. We will work with our patients and their families, and our broader community, to understand their views during the planned period of engagement.”

The proposal to decommission the nine beds and the engagement period will be discussed at the Board meeting held on 25 July. The four-week period of engagement will launch on 1 August and run until 29 August 2024. Individuals will be able to attend online and in-person events and be able to share their views through the Health Board’s Have Your Say portal. Feedback from the engagement will be presented to the September meeting of the Health Board.

Further information on the events and how individuals can share their views will be shared at the end of July.

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Health

Equipment and games for Glangwili children’s ward thanks to donations

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THANKS to donations, Hywel Dda Health Charities, the official charity of Hywel Dda University Health Board, has been able to provide equipment and games worth over £300 to Cilgerran Ward at Glangwili Hospital.

The NHS charity funded TV brackets, universal remotes, Nintendo Switch cases and Nintendo games including FIFA, Chocobo and Minecraft Dungeons.

Karen Thomas, Head of Therapeutic Play, said: “We are so grateful that charitable funds have allowed us to purchase more items for Cilgerran Ward.

“The new items will help the therapeutic play team work more effectively and focus their time on the children and young people in our care.

“Being able to play while in hospital means the children and young people can continue an aspect of their normal life. Arts and crafts help as they go through treatments and procedures in hospital, minimising the effects of isolation, stress and anxiety.

“The items will help make the ward and all the areas the children attend more friendly and promote wellbeing for all.”

Nicola Llewelyn, Head of Hywel Dda Health Charities, the official charity of Hywel Dda University Health Board, said: “The support of our local communities enables us to provide services over and above what the NHS can provide in the three counties of Hywel Dda and we are extremely grateful for every donation we receive.”

For more details about the charity and how you can help support local NHS patients and staff, go to www.hywelddahealthcharities.org.uk

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