Health

Calls for ‘Owain’s law’ to aid brain tumour treatment

Published

11 months ago

July 4, 2025

SENEDD Members called for Owain’s law, in memory of a young father, to ensure a gold-standard approach to preserving human tissue for other cancer patients in future.

Hefin David led a debate on a cross-party motion on July 2 calling for a law named after his Caerphilly constituent Owain James, who sadly died last year.

He said: “Owain was only 34 years old when he was diagnosed with a 14cm, malignant, grade-four brain tumour in his right frontal lobe. His neurosurgeon said it was one of the biggest tumours she’d ever come across in her professional career.

“It was an absolutely devastating blow to Owain, his wife Ellie, who is in the public gallery today, and his daughter Amelia, who at the time was only 18 months old. Until then, Owain had always been a fit and healthy young man.”

Dr David said the family turned to private treatment and found a personalised vaccine that used a patient’s tumour tissue to educate the immune system to recognise cancerous cells.

He told the Senedd: “The problem here, however, was that Owain needed fresh frozen tumour tissue to develop a sufficient dose of the vaccine. Owain had had 7cm of tissue surgically removed but, unfortunately, only 1cm of this was fresh frozen and could be used.”

The Caerphilly Senedd Member explained Owain only had three doses of vaccine when it should have been more like 30 doses, but he initially made a remarkable recovery.

“Unfortunately, metastasis caused his tumour to recur elsewhere,” he said. “This time, the tumour was too aggressive and Owain sadly passed away in June 2024.

Caerphilly's Labour MS Hefin David — Caerphilly’s Labour MS Hefin David

“Ellie, 35 years of age, now lives with the regret that they were only able to develop and obtain enough doses for those three vaccines.

“Had there been more, we feel that Owain would still be alive today.”

Dr David said fresh frozen tissue is regarded as the gold-standard approach and can be used for vaccines, therapies, research and genome sequencing.

He explained: “This kind of use, though, can only be done when the tumour is fresh frozen, which it wasn’t in Owain’s case. Owain’s law seeks to address this. It seeks to make this the default process for storing surgically removed tissue in Wales.”

South Wales East MS Peredur Owen Griffiths

Plaid Cymru’s Peredur Owen Griffiths, who represents South Wales East, said: “My mother also died from a brain tumour, so it’s an issue that is deeply personal for me.

“Brain tumours remain the biggest cancer killer of children and adults under 40, yet they receive just one per cent of national cancer research funding.

“Families like mine and Owain’s are let down not only by research but also by how precious tumour tissue is managed. Owain’s law will enshrine a vital principle that patients and families must be fully informed and able to consent.”

Owain James playing football for Church Village FC

Mr Owen Griffiths added: “This is more than a technical protocol. This is a matter of dignity, respect and hope for families facing devastating diagnoses.”

The Conservatives’ Altaf Hussain, a former surgeon, supported Owain’s law but emphasised the importance of accommodations for religious preferences.

Mabon ap Gwynfor, Plaid Cymru’s shadow health secretary, expressed concerns about long waits before receiving a diagnosis and a lack of diagnostic machines such as scanners.

Mr ap Gwynfor told the Senedd: “Even after receiving a diagnosis, we have a lack of specialist treatment centres – with far too many of our patients having to travel very long distances at times of weakness to receive their treatment.”

Backing Owain’s law, he said: “This proposal does reflect two core principles at the heart of our NHS. The first is that the NHS belongs to the public…. Second, it’s the voice of the patient, their concerns, their views, that should be at the heart of every decision made.”

Jeremy Miles, for the Welsh Government, stressed the need to proceed with care and warned a legal requirement to freeze all brain tumour tissue risks unintended consequences.

Wales’ health secretary said: “Clinical teams already use their expert judgment to balance diagnostic needs with the potential for research and novel therapies.

“Overriding that clinical discretion through legislation could compromise timely diagnosis or create conflict where tissue volume is limited, which is why the government does not believe that the case is made for legislation.”

While the non-binding motion was agreed unanimously, Owain’s law is unlikely to proceed without Welsh ministers’ full support. But Dr David argued the UK and other countries will eventually introduce such a law as the availability of tissue becomes key to treatment.

Closing the debate, he said: “Let’s remember Owain for everything he’s done today. Even in his passing, he’s contributed to the debate on keeping patients alive for longer.”

Health

Have your say on new West Wales learning disability strategy

Published

2 days ago

May 22, 2026

Tom Sinclair

RESIDENTS across Ceredigion, Pembrokeshire and Carmarthenshire are being invited to help shape a new regional Learning Disability Strategy.

Views sought on five-year plan

The strategy, covering 2026 to 2031, will set out the future direction of services and support for neurodivergent people and people with a learning disability across west Wales.

Over the past two years, Ceredigion County Council, Pembrokeshire County Council, Carmarthenshire County Council and Hywel Dda University Health Board have been working with people with lived experience to help shape the proposals.

At present, each county has its own Learning Disability Strategy. The new plan would bring these together into one regional approach, aimed at making services more consistent and joined-up across the three counties.

The draft recommendations have been developed and reviewed by the Regional Improving Lives Partnership, which includes the three county councils, Hywel Dda University Health Board, The Dream Team, Carmarthenshire People First, Pembrokeshire People First, the West Wales Regional Partnership, and projects funded through the Regional Integration Fund.

Cllr Alun Williams, Ceredigion County Council Cabinet Member for Through Age Wellbeing, said: “We’re committed to ensuring that people with a learning disability and neurodivergent people are at the heart of shaping services that affect them.

“We encourage everyone to take part and share their views to help us develop a strategy that truly meets the needs of communities across West Wales.”

The consultation is open until Sunday, July 5.

Residents can complete the West Wales Learning Disability Strategy Survey online, or request a paper copy from a Ceredigion library or leisure centre. Paper copies can also be requested by calling 01437 764551 or emailing [email protected].

Completed questionnaires should be returned to Norman Industries, Units 1-2, Snowdrop Lane, Haverfordwest, Pembrokeshire, SA61 1JB.

Health

Withybush Emergency Department wins national award for green improvements

Published

4 days ago

May 21, 2026

Tom Sinclair

WITHYBUSH HOSPITAL’S Emergency Department has won national recognition for work to cut waste, reduce emissions and save money.

The department, based at Hywel Dda University Health Board’s Withybush Hospital in Haverfordwest, has been awarded Bronze accreditation by the Royal College of Emergency Medicine as part of its Green ED programme.

The scheme recognises emergency departments which introduce practical changes to reduce their environmental impact while maintaining safe patient care.

At Withybush, the work was led by a small team made up of consultant Dr Vicki Hughes, resident doctor Dr Lizzie Caisley, ED secretary Janet Bird, and ED clinical fellow Dr Oyewale Osundeyi.

Their changes included replacing plastic medicine pots with paper alternatives, reducing unnecessary cannulas, improving waste segregation, and reviewing computer screen brightness and older equipment to identify where energy savings could be made.

Dr Osundeyi led a project to increase recycling and reduce waste sent for incineration.

He said: “Trying to reduce waste comes with a lot of challenges, because you are trying to change people’s habits and trying to make sure people understand the importance, but we were lucky to get a lot of people involved from the estates team to the nursing departments who helped us achieve this.”

The department also targeted unnecessary coagulation testing in admission bloods, a project led by Dr Caisley.

The change is expected to save around £30,000 a year, as well as cutting carbon emissions.

Dr Caisley said: “By reviewing our routine practices, I was able to identify simple changes that benefit both patients and the environment. It shows how quality improvement work can deliver meaningful financial and environmental savings.”

ED secretary Janet Bird supported the work by gathering information, co-ordinating meetings and helping to put sustainability plans into action.

She said she also created a Green ED information board and presented the programme at resident doctor induction sessions to raise awareness of the changes already introduced.

Dr Hughes said: “A group of individuals, cutting across resident doctors, nurses, administrative staff, and myself as a senior consultant, all got involved in this work.

“There were many different elements to achieving this bronze award. The next step is making sure the team is supported to build on it.”

Withybush was one of eleven emergency departments across England and Wales recognised through the programme.

Together, those departments are estimated to have achieved £216,000 in cost savings and 131,502kg of CO2e savings through more sustainable working practices.

Dr Ian Higginson, President of the Royal College of Emergency Medicine, said: “On behalf of the College – a massive congratulations to the team at Withybush General Hospital who have been awarded a Bronze accreditation through our GreenED programme.

“This accomplishment has been driven by a dedicated, innovative team, who have reduced emissions, as well as waste and saved costs – all to tackle the climate crisis.

“A healthier planet means healthier patients, and we have a duty to act to protect both.

“As a College, we are proud to support Emergency Departments across the UK, and beyond, in playing their part to become more environmentally friendly.”

Health

NHS waiting lists falling — but west Wales faces fresh healthcare uncertainty

Published

4 days ago

May 21, 2026

Tom Sinclair

Improving treatment figures welcomed, but local concerns grow over pharmacy changes, service reorganisation and access to care

WAITING times across NHS Wales are continuing to improve, according to the latest national figures — but patients in west Wales may question whether those improvements are being felt on the ground as concerns continue over changing local services, pharmacy provision and healthcare access.

New figures released by the Welsh Government show there were just under 666,700 referral-to-treatment patient pathways waiting to start treatment in March — down by around 21,300 compared with February and the lowest level recorded since August 2021.

It marks the tenth consecutive month that waiting lists have fallen, while the proportion of pathways waiting less than 26 weeks rose to 65.9 per cent — the highest figure since May 2020.

The average waiting time for treatment also dropped to 15.5 weeks, the lowest level since April 2020.

However, despite the improving national picture, NHS leaders have warned that Wales remains under significant pressure and that progress must not mask wider challenges facing the health service.

Responding to the figures, the Welsh NHS Confederation said scheduled care was “going in the right direction” but cautioned that emergency pressures, social care pressures and financial constraints remain major concerns.

The organisation’s director, Darren Hughes, said NHS leaders were ready to work with the new Welsh Government as part of its first 100 days in office, but stressed that reforms would require difficult decisions and honest conversations with the public.

He said: “While it’s not a perfect picture across the board, with high demand on urgent and emergency care, scheduled care waits continue to go in the right direction.

“Now is the time to build on this progress and make further inroads into the backlog of care that has built up in recent years.”

But for many people in Pembrokeshire, Carmarthenshire and Ceredigion, improving national statistics may feel at odds with the reality of healthcare closer to home.

Recent changes affecting community pharmacy provision, alongside continuing concerns over access to services, travel distances and healthcare reorganisation within the Hywel Dda University Health Board area, have left some residents questioning whether NHS recovery is being experienced equally across Wales.

Community pharmacy provision has become an increasing concern locally following recent changes affecting some chemist services, raising fears over access to medication and frontline healthcare support — particularly in rural areas where alternatives may involve lengthy travel.

At the same time, debates around the future location of services, staffing shortages and the long-term sustainability of care in west Wales continue to generate concern among patients and campaigners.

For many residents, the NHS debate is no longer only about waiting times — but whether services remain accessible in the first place.

The figures also require some caution. NHS waiting-list totals are measured in “patient pathways” rather than individual patients, meaning one person can appear on the list more than once if waiting for multiple treatments or appointments.

The Welsh NHS Confederation warned that any future improvements would need a “whole-system approach”, involving primary care, community healthcare and social care, alongside action to reduce demand before patients require hospital treatment.

Mr Hughes added that NHS organisations also face tightening budgets and renewed inflationary pressures linked to global events.

He warned: “NHS leaders will need clarity from political leaders on a focused set of priorities and the backing to make the difficult decisions required to reform services, being honest with the public around timelines and expectations.”

Professor Jon Barry, Director in Wales at the Royal College of Surgeons of England (RCS England), said: “The new Welsh Government inherits a significant challenge, and these figures reflect the reality across Wales – long waits, repeated delays, and too many people left in pain.

“There were commitments during the election campaign to develop a clear plan for expanding elective capacity, including early work to establish new surgical hubs across Wales. The priority now is to start delivering on those plans without delay.

“More surgical hubs will help bring down long waits and ensure fewer patients are left dealing with uncertainty and disruption to their daily lives while they wait for treatment.”

The Herald has approached Hywel Dda University Health Board for comment on how improving national waiting-time figures compare with the experience of patients in west Wales, including concerns around pharmacy provision, service changes and access to local care.

The Welsh Government has also been asked what the new administration’s healthcare priorities will mean for communities in rural Wales over the coming months.

Welsh Government response

The Welsh Government said it had pledged to “pick up the pace” to ensure people across Wales are seen faster for NHS treatment.

Health and Care Minister Mabon ap Gwynfor said: “Too many people are waiting too long for NHS treatment. That is the reality and it is an issue we are determined to fix.

“It is people’s lives we are talking about – and my job is to make sure the Welsh Government works closely with the NHS to ensure people who need treatment get it much quicker.”

The new minister said improvements were needed not only in waiting lists, but also in ambulance response times and emergency department access.

The Welsh Government said it would commission an independent review of NHS performance in Wales within its first 100 days, with a particular focus on the impact of waiting lists on population health.

It also plans to set up an expert task group to develop plans for up to ten new elective care hubs across Wales, with a delivery plan due by the end of 2026.

Mr ap Gwynfor added: “Today’s figures are a starting point. We will be honest with the people of Wales about the progress we make, and we will rightly be judged on results. We intend to meet the scale of the challenge ahead.”