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Seizure death inspires awareness campaign

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Epilepsy Action UK receives £159,300 from the Big Lottery Fund: Llinos Williams raises awareness for the condition which killed her brother at the age of 18

Epilepsy Action UK receives £159,300 from the Big Lottery Fund: Llinos Williams raises awareness for the condition which killed her brother at the age of 18

THE TRAGIC death of a teenager from an epileptic seizure sparked his sister to support an awareness-raising campaign for his condition.

Llinos Williams spent years trying to come to terms with the tragedy of her brother’s untimely death before she too was diagnosed with the same condition as him.

She reports that her diagnosis made her even more determined to support Epilepsy Action Cymru, who recently welcomed the news that they were chosen to receive £159,300 from the Big Lottery Fund.

The grant money will be used to improve access to information about epilepsy at different stages of care.

30-year-old Llinos Williams from Pwllheli was diagnosed with epilepsy following her having a seizure in her workplace.

The realisation that she’d been diagnosed with such a dangerous condition, especially one which had devastated her family the way it had, shocked her due to the fact that she had absolutely no idea that she was suffering from it.

Llinos said: “One of my brothers, Dylan, passed away after having a seizure when he was just 18-yearsold in 2007. It was such a huge shock to the family as even though we knew he’d had epilepsy for about ten years, we didn’t know that people could die from it.

“I was diagnosed with epilepsy in 2012 after I’d had a seizure in my work place. After visiting my GP I later found out that it had been triggered by an infection.

“I was really scared because I was just thinking about what had happened to my brother, and to add to everything else as well I was scared for my other brother, Carwyn, who had been diagnosed in 2010 too.

“I had no idea that I had epilepsy for a long time, I had no problems at all when I was a teenager but that first seizure turned everything around.”

However, with the support of Epilepsy Action Cymru, Llinos and her family have managed to overcome many of the challenges that they face and are now championing awareness of the condition and helping others to learn more about it.

“Thankfully I’m really healthy now. I was lucky enough to find out about Epilepsy Action Cymru shortly after I was diagnosed and they have been so helpful with getting not just me, but my family to come to terms with my condition.

“Through them I’ve become a volunteer to raise awareness of the condition and give people advice on how to manage it, and have even spoken at conferences about my experience.

“It’s fantastic that the Big Lottery Fund has awarded this money to Epilepsy Action Cymru. The work that they do to help people like me is brilliant, and it’s important to be able to provide that support to as many people as possible.”

Ann Sivapathan, Wales Manager at Epilepsy Action Cymru, said: “We are delighted to receive this grant from the Big Lottery Fund.

“The money will allow us to provide a vital service to the 8,000 people living with epilepsy in Wales in the language they feel most comfortable with.

“We will be able to give accessible support and information, provide a voice for people with epilepsy on important healthcare issues and limit the social isolation felt by some people with epilepsy in this area.

“We believe this role will be a real lifeline for many people living with epilepsy in Wales.”

There are 13 other projects across Wales which have been granted a share of the £3,881,083 ‘People and Places’ funding from the Big Lottery Fund.

Leonard Charity Disability will be using £498,960 to expand their ‘Can Do’ programme from Cardiff, Newport, Swansea and Wrexham into more of Wales.

It is hoped that this expansion will offer 1,200 more young disabled people volunteering opportunities on community projects that will enhance their life skills and levels of independence, and ultimately break down social barriers that they face in day-to-day life.

Michelle Impanni, Senior Programme Coordinator for Can Do in Wales, said “We are delighted we can now develop the programme to reach even more young people across Wales to benefit from this volunteering programme.

“Can Do aims to support and equip our participants with the skills and confidence they need to live their lives fully and participate in society.”

Time to Change Wales, which is a partnership between Mind Cymru, Gofal and Hafal, have managed to secure funding from the Big Lottery Fund to deliver a brand new antistigma campaign for children and young people.

Antony Metcalfe, Programme Manager of Time to Change Wales, stated: “We are delighted to have secured funding from the Big Lottery Fund to deliver a brand new antistigma campaign for children and young people.

“We are really pleased to have the support of schools and teaching professionals across Wales and look forward to working with them to improve the lives of young people.

“It is crucial that action to improve mental health and reduce discrimination starts at a young age and we believe that this campaign will play an important part in this agenda.”

The People and Places programme seeks to award grants of between £5,001 and £1 million for a broad range of different community projects.

Highlighting the importance of this, Rona Aldrich, Wales Committee Member for the Big Lottery Fund, said: “Programmes like People and Places are making a difference to the lives of so many people in communities across Wales.

“It delivers on our promise to use National Lottery funding to regenerate and revitalise communities, tackle disadvantage head on and leave a lasting legacy.”

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Community

Hooking customers with a healthy seafood message

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SEAFOOD restaurants and takeaways have an exciting opportunity to attract and engage customers by highlighting the numerous health benefits of their dishes.

That’s the message from three multi-award-winning businesses recognised for their innovative approaches to promoting the health aspects fish and shellfish.

As the New Year sparks a focus on healthier living, Towngate Fisheries in Yorkshire, Fish City in Belfast and Something Else Fishy in Dorset are leading the way in highlighting seafood as a nutritious choice. They hope to inspire others in hospitality to weave health-focused messaging into their customer engagement.

The businesses’ efforts are part of Seafish’s new Seafood for Life initiative, which champions the benefits of fish and shellfish while celebrating industry best practice. Profiles of the three businesses are featured in the health section of the Seafood for Life web hub, alongside a blog by registered dietician Juliet Kellow outlining 10 healthy reasons to eat more seafood in 2025. There is an accompanying downloadable factsheet.

Businesses are invited to use these resources to help inform their own approaches to promoting seafood’s health benefits.

Explaining his rationale for promoting the healthy eating aspects of fish in his fish and chip shop, Towngate Fisheries owner Mark Drummond said: “One out of 10 customers might be interested in health, but if you can get to that extra 10% of customers, that can mean the difference between a business breaking even or making a good profit.”

John Lavery, owner of Fish City restaurant in Belfast said: “Fish is a healthy, natural protein, often with little or no processing. Government guidelines recommend a minimum of two portions per week, so I believe, from a promotional point of view, this provides an opportunity we should focus on.”

Nicki Else runs Something Else Fishy in Dorset. She explained: “For us, it’s about showcasing the wide range of benefits of seafood and fitting a health message into that. I would encourage other businesses to do something like this because it builds loyalty from your customers – they trust you because you are knowledgeable.”

Seafish Chief Executive Marcus Coleman said: “The aim of Seafood for Life is to showcase the benefits of seafood and the good work of the UK industry that produces it. We want to help businesses have informed conversations with their customers that encourage them to eat more fish and shellfish.

“As we begin 2025, we know many people are thinking about ways to be a bit healthier, so we’ve kicked off the year with a focus on the nutritional benefits of seafood. We’re highlighting great examples of businesses which are already successfully promoting the health aspects of their dishes and offering resources for the industry which we hope will inspire and inform their own activities.”

Pictured above: John Davery from Fish City

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Community

The future of much-loved Memorial Pool in Cardigan remains uncertain

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THE FUTURE of Cardigan’s well-used and much-loved Memorial Pool remains uncertain, with Ceredigion County Council unable to guarantee its inclusion in the proposed new wellbeing centre earmarked for the same site.

The pool, which served the community for over four decades, closed in March last year despite widespread local fundraising efforts. Trustees cited soaring energy costs, falling income, and substantial maintenance and repair expenses as reasons for its closure.

Since then, children have been forced to travel to Newcastle Emlyn, Crymych, or Llandysul for swimming lessons, while adults who relied on the hydrotherapy pool to manage arthritis and other chronic conditions have seen their health deteriorate.

The closure has also dealt a blow to Cardigan Swimming Club, which previously had 50 junior members, and Poppit Sands Surf Lifesaving Club, whose winter training depended on the pool. Concerns are mounting that the lack of local swimming facilities will prevent children from reaching the standards needed for sea-based training, undermining water safety in a coastal town known for its busy beaches.

Residents have taken to social media to express their anger and disappointment at the council’s inaction. One resident wrote: “How can a coastal town like Cardigan not have a swimming pool? Teaching children to swim is not a luxury—it’s a necessity. The council needs to wake up and prioritise our safety.”

Another frustrated parent said: “My son used to swim at the Memorial Pool every week. Now we’re travelling an hour for lessons. It’s exhausting and expensive. Why are families being left to pick up the pieces?”

Local campaigner Bethan Jones added: “The council’s lack of clarity is deeply worrying. We’ve heard nothing but vague promises and silence. The wellbeing centre sounds great, but it’s meaningless if a pool isn’t included.”

The council recently announced plans to develop a new wellbeing centre on the pool site, chosen over three other potential locations. The facility is set to accommodate Hywel Dda University Health Board services and other community health provisions. However, it remains unclear whether a swimming pool will form part of the plans.

A council spokesperson said: “The business case for the wellbeing centre is currently being developed. This work will identify the services that could be delivered at the centre and the facility mix required to accommodate them. At present, no decision has been made on what will and won’t be included.”

Despite repeated calls from the community for clarity, the council added that it is “unable to comment further at this time.”

With so much at stake for the health, safety, and wellbeing of local residents, the future of Cardigan’s much-missed Memorial Pool hangs in the balance. For now, the voices of concerned residents continue to grow louder, demanding answers and action from those in charge.

Exactly two years ago, The Memorial Swimming Pool and Hall have received a Capital Grant to undertake much needed renovation work.

The Sport Wales Capital Grant of £207,000 from Welsh Government was secured by Ceredigion County Council to fund essential capital works at Cardigan Memorial Swimming Pool and Hall.

The grant enabled the Swimming Pool to upgrade its Pool Plant Equipment and Air Handling Unit, insulate the roof above the toddler pool and purchase new Pool covers.

Matt Newland, Chairman of Cardigan Memorial Swimming Pool and Hall Trustees, said at the time: “The swimming pool and hall trustees are delighted to announce that we have received a grant from Sports Wales to carry out much needed works to the pool to enable it to continue running. The trustees would like to thank Ceredigion County Council for their assistance and support. Cardigan Swimming pool and hall is run by the trustees committee for the benefit of the community. It is an essential resource and this grant will help secure our future.”

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Community

‘Collaborative effort’ to tackle fly-grazing but horses still on the loose

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TRAFFIC was disrupted yesterday (Jan 7) after multiple loose horses were spotted on Lower Lamphey Road, Pembroke. Motorists and pedestrians were urged to approach the area with caution as the horses roamed freely on the road and nearby residential areas, causing delays and raising safety concerns.

Pembrokeshire County Council recently announced that it has teamed up with Dyfed-Powys Police to tackle the growing problem of horses being left on public land and highways, known as fly-grazing.

The move comes after a significant rise in incidents across the county, causing safety concerns and public disruption.

Over the Christmas period, both agencies will work collaboratively in an operational effort to address the issue.

This joint approach responds to ongoing community concerns and forms part of a wider initiative to enable partner agencies to deal more effectively with fly-grazing.

The situation comes just days after authorities announced their initiative to tackle the issue through a coordinated approach, highlighting the urgency and importance of addressing fly-grazing concerns.

Members of the public are encouraged to report any concerns about fly-grazing by contacting [email protected] or calling 01437 764551.

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