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Seizure death inspires awareness campaign

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Epilepsy Action UK receives £159,300 from the Big Lottery Fund: Llinos Williams raises awareness for the condition which killed her brother at the age of 18

Epilepsy Action UK receives £159,300 from the Big Lottery Fund: Llinos Williams raises awareness for the condition which killed her brother at the age of 18

THE TRAGIC death of a teenager from an epileptic seizure sparked his sister to support an awareness-raising campaign for his condition.

Llinos Williams spent years trying to come to terms with the tragedy of her brother’s untimely death before she too was diagnosed with the same condition as him.

She reports that her diagnosis made her even more determined to support Epilepsy Action Cymru, who recently welcomed the news that they were chosen to receive £159,300 from the Big Lottery Fund.

The grant money will be used to improve access to information about epilepsy at different stages of care.

30-year-old Llinos Williams from Pwllheli was diagnosed with epilepsy following her having a seizure in her workplace.

The realisation that she’d been diagnosed with such a dangerous condition, especially one which had devastated her family the way it had, shocked her due to the fact that she had absolutely no idea that she was suffering from it.

Llinos said: “One of my brothers, Dylan, passed away after having a seizure when he was just 18-yearsold in 2007. It was such a huge shock to the family as even though we knew he’d had epilepsy for about ten years, we didn’t know that people could die from it.

“I was diagnosed with epilepsy in 2012 after I’d had a seizure in my work place. After visiting my GP I later found out that it had been triggered by an infection.

“I was really scared because I was just thinking about what had happened to my brother, and to add to everything else as well I was scared for my other brother, Carwyn, who had been diagnosed in 2010 too.

“I had no idea that I had epilepsy for a long time, I had no problems at all when I was a teenager but that first seizure turned everything around.”

However, with the support of Epilepsy Action Cymru, Llinos and her family have managed to overcome many of the challenges that they face and are now championing awareness of the condition and helping others to learn more about it.

“Thankfully I’m really healthy now. I was lucky enough to find out about Epilepsy Action Cymru shortly after I was diagnosed and they have been so helpful with getting not just me, but my family to come to terms with my condition.

“Through them I’ve become a volunteer to raise awareness of the condition and give people advice on how to manage it, and have even spoken at conferences about my experience.

“It’s fantastic that the Big Lottery Fund has awarded this money to Epilepsy Action Cymru. The work that they do to help people like me is brilliant, and it’s important to be able to provide that support to as many people as possible.”

Ann Sivapathan, Wales Manager at Epilepsy Action Cymru, said: “We are delighted to receive this grant from the Big Lottery Fund.

“The money will allow us to provide a vital service to the 8,000 people living with epilepsy in Wales in the language they feel most comfortable with.

“We will be able to give accessible support and information, provide a voice for people with epilepsy on important healthcare issues and limit the social isolation felt by some people with epilepsy in this area.

“We believe this role will be a real lifeline for many people living with epilepsy in Wales.”

There are 13 other projects across Wales which have been granted a share of the £3,881,083 ‘People and Places’ funding from the Big Lottery Fund.

Leonard Charity Disability will be using £498,960 to expand their ‘Can Do’ programme from Cardiff, Newport, Swansea and Wrexham into more of Wales.

It is hoped that this expansion will offer 1,200 more young disabled people volunteering opportunities on community projects that will enhance their life skills and levels of independence, and ultimately break down social barriers that they face in day-to-day life.

Michelle Impanni, Senior Programme Coordinator for Can Do in Wales, said “We are delighted we can now develop the programme to reach even more young people across Wales to benefit from this volunteering programme.

“Can Do aims to support and equip our participants with the skills and confidence they need to live their lives fully and participate in society.”

Time to Change Wales, which is a partnership between Mind Cymru, Gofal and Hafal, have managed to secure funding from the Big Lottery Fund to deliver a brand new antistigma campaign for children and young people.

Antony Metcalfe, Programme Manager of Time to Change Wales, stated: “We are delighted to have secured funding from the Big Lottery Fund to deliver a brand new antistigma campaign for children and young people.

“We are really pleased to have the support of schools and teaching professionals across Wales and look forward to working with them to improve the lives of young people.

“It is crucial that action to improve mental health and reduce discrimination starts at a young age and we believe that this campaign will play an important part in this agenda.”

The People and Places programme seeks to award grants of between £5,001 and £1 million for a broad range of different community projects.

Highlighting the importance of this, Rona Aldrich, Wales Committee Member for the Big Lottery Fund, said: “Programmes like People and Places are making a difference to the lives of so many people in communities across Wales.

“It delivers on our promise to use National Lottery funding to regenerate and revitalise communities, tackle disadvantage head on and leave a lasting legacy.”

 

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Community

Murals legacy honoured at Town Hall

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Artist Jeanne Lewis recognised as Pembroke celebrates 20 years of historic artwork

MRS JEANNE LEWIS and her daughter were guests of honour at a special presentation at Pembroke Town Hall on Tuesday to mark the 20th anniversary of the historic murals installed inside the building.

Two handcrafted benches, gifted by Pembroke Town Council, were presented in appreciation of the artwork created by Jeanne and her late husband, George Lewis, whose striking panels have become a defining feature of the Hall over the past two decades.

The murals, which vividly depict scenes from Pembroke’s past, have long drawn praise from residents and visitors alike for their scale, colour and intricate storytelling.

The Mayor of Pembroke, Gareth Jones, joined councillors and volunteers from Pembroke Museum to present Mrs Lewis with a Certificate of Appreciation and a bouquet of flowers in recognition of the couple’s lasting artistic legacy.

Councillor Jones said the town was “extremely fortunate and deeply privileged” to house the collection.

He added: “People often walk into the Town Hall and simply stop to look. The detail and the history captured in these murals are remarkable. They give visitors a real sense of Pembroke’s story and reflect the dedication and talent Jeanne and George brought to the project.”

Twenty years on, the artwork continues to enrich the civic building, ensuring the Lewis family’s contribution remains at the heart of the town’s heritage.

Photo caption: Jeanne Lewis receives a certificate from Mayor Gareth Jones at Pembroke Town Hall, marking 20 years since the installation of the town’s historic murals (Pic: Martin Cavaney/Herald).

 

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Celebrating nature recovery through Cysylltu Natur 25×25

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A CELEBRATION event was held on Saturday, January 24 in Cwm Gwaun to mark the achievements of Pembrokeshire Coast National Park Authority’s Cysylltu Natur 25×25 project, bringing together volunteers, farmers and staff involved in delivering nature restoration across North Pembrokeshire.

The landscape-scale project was funded by the Welsh Government through the Nature Networks Programme, delivered by the Heritage Fund. The Programme aims to strengthen ecological connectivity and resilience by restoring habitats at scale.

Those attending the event heard about the wide range of conservation activity delivered through the project across the north of the National Park. This has included practical works to restore grazing to Rhos pasture to benefit marsh fritillary butterflies and southern damselflies, specialist work to conserve rare lichens, volunteer chough, dormouse and harvest mouse monitoring, safeguarding greater horseshoe bat hibernation sites, and targeted action to tackle invasive species threatening important sites.

Volunteers, farmers, land managers and contractors played a vital role in the success of the project, contributing local knowledge, practical skills and ongoing commitment to caring for Pembrokeshire’s unique landscapes and wildlife in the long term.

Mary Chadwick, Conservation Officer for Pembrokeshire Coast National Park Authority, said: “Cysylltu Natur 25×25 has shown what can be achieved when farmers, volunteers and conservation specialists work together with a shared aim.

“From monitoring some of our most elusive species to restoring and protecting habitats, the dedication of everyone involved has made a real difference for nature across the National Park.”

Although the Cysylltu Natur 25×25 project is now coming to an end, the important work it has supported will continue. Building on its successes, Pembrokeshire Coast National Park Authority will carry this momentum forward through the next phase of nature recovery work under NNF4 Cysylltiadau Naturiol / Naturally Connected, ensuring ongoing protection and enhancement of habitats for future generations.

 

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Princess of Wales praised for ‘skill’ during local wool mill and factory visit

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Royal tour shines spotlight on west Wales textile heritage and local jobs

CATHERINE, Princess of Wales was told “she’s got the skill” after trying her hand at traditional textile work during a visit to west Wales on Tuesday (Feb 3).

The royal spent the day meeting staff and apprentices at two well-known manufacturers – Melin Tregwynt in Pembrokeshire and Hiut Denim in Cardigan – highlighting the region’s long-standing reputation for craftsmanship and small-scale, high-quality production.

Stitching and mending at historic mill

At Melin Tregwynt, a family-run woollen mill that now operates as an employee-owned trust, the princess was guided through each stage of production, from weaving to finishing.

In the quality control room she was invited to mend a blanket using a needle and thread, carefully repairing the fabric under the watchful eye of experienced staff.

Paula Harding, who has worked at the mill for more than a decade, praised her technique, saying: “She did it right – and she didn’t go through the other side. That’s skill. She’s got the skill.”

Laughing, the princess told workers: “You make it look so easy,” adding that the craft was clearly “a labour of love”.

She asked questions about the history of the business, which has produced Welsh-designed blankets and throws for more than a century, and spoke with several generations of the same families who have worked at the mill.

‘Made in Wales’ denim

Later, the princess travelled to Hiut Denim, the Cardigan-based firm credited with bringing jeans manufacturing back to the town after large factories closed in the early 2000s.

The company now focuses on small-batch, premium denim and employs skilled cutters and machinists locally.

During a tour of the factory floor, the princess tried cutting out a pair of jeans and helped stitch a “Made in Wales” label onto a finished pair that staff said would be presented to the Prince of Wales.

“He will love those,” she replied.

She joked that there was “no pressure” when handed the cutting tools and said she enjoys making clothes herself, admitting the most adventurous project she had attempted was sewing a pair of pyjamas.

The royal also stopped to greet Barney, the factory’s English cocker spaniel, drawing smiles from staff.

Meeting well-wishers

Crowds gathered outside both sites to catch a glimpse of the visitor, with the princess spending time chatting with families and children before moving on.

The visit forms part of ongoing efforts by the royal household to showcase traditional industries and skilled manufacturing across the UK, with west Wales’ textile sector recognised as a key part of the region’s heritage and economy.

For workers at both businesses, the message was simple: the spotlight on locally made products and homegrown skills was just as important as the royal presence itself.

Local flavour: The Princess of Wales chats with staff and accepts a jar of Crwst’s Welsh honey butter before departing Cardigan following her visit to Hiut Denim (Pic: Crwst).

 

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