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Seizure death inspires awareness campaign

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Epilepsy Action UK receives £159,300 from the Big Lottery Fund: Llinos Williams raises awareness for the condition which killed her brother at the age of 18

Epilepsy Action UK receives £159,300 from the Big Lottery Fund: Llinos Williams raises awareness for the condition which killed her brother at the age of 18

THE TRAGIC death of a teenager from an epileptic seizure sparked his sister to support an awareness-raising campaign for his condition.

Llinos Williams spent years trying to come to terms with the tragedy of her brother’s untimely death before she too was diagnosed with the same condition as him.

She reports that her diagnosis made her even more determined to support Epilepsy Action Cymru, who recently welcomed the news that they were chosen to receive £159,300 from the Big Lottery Fund.

The grant money will be used to improve access to information about epilepsy at different stages of care.

30-year-old Llinos Williams from Pwllheli was diagnosed with epilepsy following her having a seizure in her workplace.

The realisation that she’d been diagnosed with such a dangerous condition, especially one which had devastated her family the way it had, shocked her due to the fact that she had absolutely no idea that she was suffering from it.

Llinos said: “One of my brothers, Dylan, passed away after having a seizure when he was just 18-yearsold in 2007. It was such a huge shock to the family as even though we knew he’d had epilepsy for about ten years, we didn’t know that people could die from it.

“I was diagnosed with epilepsy in 2012 after I’d had a seizure in my work place. After visiting my GP I later found out that it had been triggered by an infection.

“I was really scared because I was just thinking about what had happened to my brother, and to add to everything else as well I was scared for my other brother, Carwyn, who had been diagnosed in 2010 too.

“I had no idea that I had epilepsy for a long time, I had no problems at all when I was a teenager but that first seizure turned everything around.”

However, with the support of Epilepsy Action Cymru, Llinos and her family have managed to overcome many of the challenges that they face and are now championing awareness of the condition and helping others to learn more about it.

“Thankfully I’m really healthy now. I was lucky enough to find out about Epilepsy Action Cymru shortly after I was diagnosed and they have been so helpful with getting not just me, but my family to come to terms with my condition.

“Through them I’ve become a volunteer to raise awareness of the condition and give people advice on how to manage it, and have even spoken at conferences about my experience.

“It’s fantastic that the Big Lottery Fund has awarded this money to Epilepsy Action Cymru. The work that they do to help people like me is brilliant, and it’s important to be able to provide that support to as many people as possible.”

Ann Sivapathan, Wales Manager at Epilepsy Action Cymru, said: “We are delighted to receive this grant from the Big Lottery Fund.

“The money will allow us to provide a vital service to the 8,000 people living with epilepsy in Wales in the language they feel most comfortable with.

“We will be able to give accessible support and information, provide a voice for people with epilepsy on important healthcare issues and limit the social isolation felt by some people with epilepsy in this area.

“We believe this role will be a real lifeline for many people living with epilepsy in Wales.”

There are 13 other projects across Wales which have been granted a share of the £3,881,083 ‘People and Places’ funding from the Big Lottery Fund.

Leonard Charity Disability will be using £498,960 to expand their ‘Can Do’ programme from Cardiff, Newport, Swansea and Wrexham into more of Wales.

It is hoped that this expansion will offer 1,200 more young disabled people volunteering opportunities on community projects that will enhance their life skills and levels of independence, and ultimately break down social barriers that they face in day-to-day life.

Michelle Impanni, Senior Programme Coordinator for Can Do in Wales, said “We are delighted we can now develop the programme to reach even more young people across Wales to benefit from this volunteering programme.

“Can Do aims to support and equip our participants with the skills and confidence they need to live their lives fully and participate in society.”

Time to Change Wales, which is a partnership between Mind Cymru, Gofal and Hafal, have managed to secure funding from the Big Lottery Fund to deliver a brand new antistigma campaign for children and young people.

Antony Metcalfe, Programme Manager of Time to Change Wales, stated: “We are delighted to have secured funding from the Big Lottery Fund to deliver a brand new antistigma campaign for children and young people.

“We are really pleased to have the support of schools and teaching professionals across Wales and look forward to working with them to improve the lives of young people.

“It is crucial that action to improve mental health and reduce discrimination starts at a young age and we believe that this campaign will play an important part in this agenda.”

The People and Places programme seeks to award grants of between £5,001 and £1 million for a broad range of different community projects.

Highlighting the importance of this, Rona Aldrich, Wales Committee Member for the Big Lottery Fund, said: “Programmes like People and Places are making a difference to the lives of so many people in communities across Wales.

“It delivers on our promise to use National Lottery funding to regenerate and revitalise communities, tackle disadvantage head on and leave a lasting legacy.”

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Pembrokeshire Lottery makes Superdraw winner’s Christmas extra special

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ONE lucky Pembrokeshire Lottery player has scooped a festive windfall after winning the £10,000 Christmas Superdraw held on Wednesday 3 December.

The winner, Mr Damon McGarvie, formerly of Milford Haven and now living in Llangwm, was selected with lucky number 41475. He plays through a salary-deduction scheme run by his employer, Pembrokeshire County Council.

Mr McGarvie’s name was announced live on Radio Pembrokeshire, after which the Pembrokeshire Lottery team made contact and presented him with his cheque later that day.

Speaking after the win, Mr McGarvie said he and his wife will be jetting off on a once-in-a-lifetime holiday over the festive period, thanks to the surprise Christmas windfall.

Pembrokeshire Lottery Manager Abigail Owens said:
“I am so pleased for Mr McGarvie. He has contributed to the Pembrokeshire Lottery for many years, and it is only by the continued support of our players that we are able to assist so many local businesses with interest-free funding from the loan fund.”

The regular weekly £2,000 draws continue in the run-up to the January Superdraw, which will offer a £4,000 prize.

To sign up or order Pembrokeshire Lottery gift subscriptions for Christmas, call 01646 690800.

Photo caption: Damon McGarvie with his winner’s cheque.

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Care home fees in Wales remain among the lowest – but families still face crippling bills

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WALES continues to offer some of the most affordable care home places in the UK, with residents paying hundreds of pounds less each week than in London or Scotland, new figures reveal.

The average weekly cost of a residential care home place in Wales stands at £1,156 – £392 cheaper than in London (£1,548) and £142 below the UK average of £1,298, according to data published by the country’s largest care home reviews website, carehome.co.uk.

Even when nursing care or specialist dementia support is required, Wales remains significantly cheaper than most of the UK. A week in a Welsh nursing home with dementia care costs £1,440 on average – £327 less than in London and £124 below the national figure.

The figures, based on self-funder fees collected on 9 September 2025, underline a stark north-south divide that has persisted for years.

London is by far the most expensive region, with basic residential care now averaging £1,548 a week. Scotland, where care workers benefit from a higher minimum wage settlement, comes a close second at £1,539. In contrast, the North East of England remains the cheapest area at just £1,112 a week for residential care – almost £200 below the UK average.

Sue Learner, editor of carehome.co.uk, said the regional variations were only part of the story.

“Wales is the third most affordable region for most types of care, which will come as a relief to many families here,” she said. “But even at £1,156 a week, the bills add up to almost £60,000 a year. For the 49 per cent of residents who pay for their own care, these costs are devastating.”

The financial pressure is compounded by differing rules on state help across the UK. In Wales, anyone with assets below £50,000 qualifies for local authority support – more than double England’s £23,250 threshold and well above Scotland’s £35,000 limit.

Ms Learner warned that rising staff wages and looming increases in employer National Insurance contributions would push fees higher everywhere.

“Local councils are already stretched to breaking point,” she said. “Without genuine reform of the social care system – something governments have been promising for decades – more and more families will have no choice but to sell the family home to fund care.”

The website, which carries 390,000 independently verified reviews, is urging people to plan early and seek expert advice. Its free Care Helpline (01488 501 499) is available to anyone looking for a home that offers both quality and value for money.

As the population ages and demand grows, campaigners say the latest figures are another reminder that the postcode lottery in care costs shows no sign of disappearing.

UK care home fees at a glance (average weekly self-funder rates)

  • London: £1,548
  • Scotland: £1,539
  • South East England: £1,446
  • Wales: £1,156
  • North East England: £1,112 (cheapest)
  • UK average: £1,298

Source: carehome.co.uk, 9 September 2025

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Folly Farm marks second birth of critically endangered rhino

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FOLLY FARM is celebrating the birth of another critically endangered eastern black rhino calf – and it’s a boy!

This is the second rhino calf to be born at the family-run zoo, and the second in Wales as part of a managed breeding programme through its membership with EAZA (the European Association of Zoos and Aquaria).

After a 15-month long pregnancy, mum Dakima gave birth to a healthy male calf on Thursday 27 November. With only an estimated 39 eastern black rhinos born in the UK in the past 25 years, it’s a significant achievement for the captive European Endangered Breeding Programme (EEP) for black rhinos.

Eastern black rhinos are classed as critically endangered due to poaching and loss of habitat. There is thought to be an estimated 1471 Eastern black rhino left in the wild and around 109 in zoos across Europe, including Folly Farm’s newest addition.

The calf made its appearance at 6.34am and within a couple of hours was standing up, following mum around the enclosure and had started suckling.

12-year-old eastern black rhino Dakima arrived at Folly Farm in May 2017 as part of a European breeding programme and met her mate, 14 year-old male Nkosi.

Mating rhinos can be unpredictable, but their relationship blossomed and Dakima gave birth to her first calf at the start of 2020. Male calf Glyndŵr was Dakima’s first born and the first rhino calf to have been born in Wales. Glyndŵr was named after Folly Farm’s Founding Director, the late Glyndŵr Williams, and has since moved onto another animal collection to continue the breeding programme for the species.

Eastern black rhinos are solitary animals and therefore usually reside in their own paddocks. But when the time was right, Dakima and Nkosi were reintroduced again for some carefully planned ‘date nights’ – and keepers predicted she fell pregnant sometime in August 2024. After having Dakima’s stool sample analysed at a specialist lab in Chester Zoo, who run the breeding programme for Eastern black rhino, it was confirmed that baby number two was on the way, with a due date of mid-November 2025.

Conservation Officer, Jack Gradidge, said: “It’s always heart-warming to welcome new arrivals as part of the European Breeding Programme through our membership with EAZA (The European Association of Zoos and Aquaria) – but it’s even more special when it’s such a significant animal and one who’s wild cousins are under threat.

“Dakima was a great mum with Glyn so it’s wonderful to see these instincts are still just as strong the second time around. She’s being very protective of her new baby, showing they have a strong bond already.

“This is such a monumental event for all the staff here and the zoo team have worked incredibly hard to create an environment where the rhinos felt comfortable enough to mate.

“Not only is this calf helping to increase numbers of a critically endangered species, he’s also the second rhino ever to be born in Wales – with his brother being the first!”

Along with other zoos across Europe, Folly Farm is part of a breeding programme to help increase the numbers of Eastern black rhino in captivity and, ultimately, the wild. They support a number of conservation projects alongside various animal charities – including their new partnership with ‘Helping Rhinos’, a UK based organisation who, amongst various other conservation initiatives, support a rhino orphanage in South Africa, caring for young calves who have become victims of the poaching crisis.

Simon Jones, the CEO of Helping Rhinos was delighted with the zoo’s happy news; “We are absolutely delighted to welcome news of this beautiful eastern black rhino calf at Folly Farm.

We are grateful for their support of Helping Rhinos’ efforts including the care of young calves orphaned by poaching.”

Most animals give birth at night under the cover of darkness – and Dakima gave birth early in the morning, just before the keepers arrived to start their day.

Jack explains: “Our rhino keeper opened up the rhino house and the first thing he saw was the security camera footage where a tiny newborn rhino was seen happily padding about the enclosure. After quietly taking a sneaky peak at the beautiful new calf to confirm what he had seen – he let the team know the happy news that baby had arrived!

“We then left Dakima alone with her new bundle of joy, giving them both some space to bond – but continued to monitor them on the cameras and did regular spot checks to ensure baby was starting to feed.

“For us, the next steps are just to keep an eye on Dakima and make sure the calf stays healthy and gets everything he needs from mum. Our goal is always to let nature take its course and interfere as little as possible.

“Nkosi will be a bit of an absent father, but that’s perfectly normal as male rhinos don’t have anything to do with their offspring in the wild. It’s unlikely we’ll introduce him to the calf for some time.

“In the wild, rhino calves can stay with their mums for up to four years, after that there’s a possibility this new addition could one day be released into the wild to help boost population numbers – or move to another zoo to continue the breeding programme in Europe just like his brother.

“It’s exciting to be playing our part in helping to safeguard these amazing animals for future generations.”

Folly Farm’s rhino keepers will monitor mum and baby closely over the coming weeks and they will be back out in the enclosure in due course.

Visitors shouldn’t expect to see the calf for a while but Folly Farm will be posting updates on their social media channels.

Folly Farm’s Kifaru Reserve welcomed rhinos to the park ten years ago almost to the day! It is a £500,000 purpose-built exhibit which tells the story of the role of modern zoos in conservation and highlights Folly Farm’s hands-on commitment to conservation through the projects it supports in the wild and closer to home.

For further information please visit https://www.folly-farm.co.uk/.

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