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Calls for access to diabetes psychology across Wales to end ‘unfair postcode lottery’ 

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TO MARK Diabetes Week (June 13-19), Diabetes UK Cymru is launching a campaign to highlight the inequalities faced by many living with diabetes when accessing psychology services.

In some areas, people living with diabetes do not have access to psychological support and they either have to wait years or are referred to services that are not specialised in diabetes. 

The charity is proposing that a new model of support is to be made available to everyone living with diabetes in Wales. And so is endorsing “From Missing to Mainstream” – A Values-Based Action Plan for Diabetes Psychology in Wales” by Consultant Clinical Psychologist (Betsi Cadwaladr University Health Board) and Diabetes UK Clinical Champion, Dr Rose Stewart.

Diabetes UK Cymru is hosting a Senedd event to launch this report and campaign with the Deputy Minister for Mental Health and Wellbeing, Lynne Neagle MSsponsored by the Shadow Minister for Mental Health, Wellbeing and Mid Wales, James Evans MS at the Norwegian Church in Cardiff on June 15 at 8.30 am.

Dr Rose Stewart said: “Managing diabetes is relentless, demanding, and complex. People living with diabetes have higher levels of psychological issues such as anxiety and depression as well as diabetes-related disordered eating (diabulimia), diabetes distress, and burnout. We are proposing that diabetes psychology should become mainstream, embedded in routine care, accessible and flexible so that people living with diabetes feel supported in managing their condition wherever they live.”  

 Poet and rapper, Duke Al Durham, a supporter of the charity will talk about his experience of living with type 1 diabetes and mental health issues, including OCD, and read his poem “Burn Out” at the Senedd event.  

Young mum with type 1 diabetes resorts to paying for private psychotherapy  

Ebony Hussey, 30, from Caldicot lives with type 1 diabetes and has suffered loss of sight in one eye, as a complication of her condition. This and other struggles associated with diabetes, juggling two young children, and work affected her mental health. She has resorted to paying for private therapy since she’s unable to get access to a psychologist on the NHS.  

 “Diabetes is overwhelming and exhausting. I also suffered further complications due to my condition as some people do even when they are young. That’s why I decided to get CBT therapy privately. I was never offered any psychological help. It’s all focused on stats: if your blood sugar levels are good, then you are left to get on with it”, she explained.  

Diabetes UK Cymru’s National Director, Rachel Burr said: “Psychological support has been missing from diabetes services for too long to the detriment of those living with diabetes, their families, and the care teams who support them, and the COVID19 pandemic only made matters worse. Diabetes is serious, affecting 1 in 13 people in Wales and the demands of living with diabetes can be extremely tough. It impacts every aspect of a person’s life. Access to psychological support in Wales is either non-existent, patchy, disjointed, underfunded, understaffed, or a postcode lottery. That has to change.”  

From Missing to Mainstream: addressing the growing demand for diabetes psychology  

The need for psychological services was recognised in the Welsh Government’s most recent Diabetes Delivery Plan (2016 to 2021), which estimated that 41% of people living with diabetes in Wales are believed to have poor psychological wellbeing.  

The “From Missing to Mainstream” campaign builds on the “Too often missing. Making emotional and psychological routine in diabetes care” report published in 2019.  

 Of those surveyed then who had felt they needed specialist care from a mental health professional, 7 in 10 couldn’t access it.  

  Under the Diabetes Delivery Plan, Local Health Boards were required to ensure that sufficient psychological input into the management of all patients is. But at present NHS Wales sets itself no measurable targets on the delivery of psychological support to those with long-term conditions, with a huge variance in service delivery across the nation. Furthermore, many of the services that provide psychological support are already at breaking point and in desperate need of more resources. We are waiting on the publication of robust Quality Statements with accompanying action plans to set out the expectations for delivery of psychological support for diabetes. These cannot come soon enough. 

Diabetes UK Cymru aims to relaunch this campaign and gather further data on the impact of the lack of psychological support on people living with diabetes.  

Dr Rose Stewart’s report was commissioned by the All Wales Diabetes Implementation Group, which brings together diabetes specialist doctors and nurses, NHS managers, third sector, and other stakeholders in consultation with patients.

 To register and to find out more about the event go to: From Missing to Mainstream; Diabetes Psychology in Wales Tickets, Wed 15 Jun 2022 at 08:30 | Eventbrite  

 

Health

Strengthening accountability and transparency in NHS Wales

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CABINET SECRETARY for Health and Social Care, Jeremy Miles MS, has outlined further steps to improve accountability, openness and transparency across NHS Wales.

In an update following his October statement, Mr Miles said new measures are already making health services more accountable to the public, while improving access to meaningful performance data.

For the first time, Welsh Government has held a full round of public accountability meetings with all NHS organisations. The sessions were live streamed, allowing the public to see health boards, trusts and special authorities being questioned on their plans, finances, performance, quality and safety. Recordings and follow-up correspondence have been published online, with supporting evidence packs set to follow.

Over the past year, more NHS performance data has been released than ever before. This includes the introduction of a new Emergency Ambulance Performance Framework, which moves beyond simple response times to provide a fuller picture of patient care — from the initial call through to clinical outcomes.

The broader dataset is designed to give both the public and clinicians clearer insight into how services are performing. For example, publishing survival rates following cardiac arrest is expected to help improve outcomes by turning previously hidden processes into measurable areas for improvement.

However, a review by the Ministerial Advisory Group on NHS Performance and Productivity found the current accountability system to be overly complex, data-heavy and lacking transparency, with limited impact on driving improvement.

In response, the Welsh Government will introduce a simplified operating and accountability framework from April. The new system will focus on outcomes rather than processes, with a stronger emphasis on clinical leadership, earlier intervention and clearer consequences where performance falls short.

The reforms will include a more streamlined, risk-based oversight model and a single, shared dataset for performance reporting. Contact with Welsh Government will vary depending on an organisation’s level of escalation, with greater autonomy for those performing well.

As part of the changes, escalation frameworks for all health boards have now been published online, setting out expectations for improvement and criteria for de-escalation. Cwm Taf Morgannwg and Hywel Dda university health boards were de-escalated in February after meeting cancer performance targets.

Mr Miles also highlighted ongoing work to improve NHS productivity, including plans to develop a more comprehensive measure of system-wide performance.

He said the Welsh Government remains committed to improving transparency and accountability, using better data and oversight to drive improvements in patient care.

 

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Health

Paper petition launched in Withybush hospital campaign

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RESIDENTS across Pembrokeshire can now back the campaign to protect services at Withybush Hospital by signing a paper petition available in council offices across the county.

The initiative has been introduced to ensure those who are digitally excluded – including older residents and people without reliable internet access – are still able to have their say.

The petition, originally launched online by local resident Ajay Owens, has already attracted more than 11,000 signatures. Campaigners say the introduction of paper copies will help ensure the final total reflects the views of the whole community.

Samuel Kurtz MS and Paul Davies MS

SUPPORT GATHERS PACE

Local Senedd Members Paul Davies and Samuel Kurtz, who are supporting the campaign, said it was vital that every voice is heard.

The Preseli Pembrokeshire MS, PAUL DAVIES said: “We have taken significant steps to highlight the importance of protecting services at Withybush Hospital, including gathering evidence from staff, patients and residents, and raising concerns with health leaders. It is vital that people continue to share their experiences of why local services matter.”

SAMUEL KURTZ MS added: “The community has come together before to oppose cuts to Withybush, and once again the community are showing they will not accept the closure of services at Withybush lying down. We will stand beside them every step of the way until this decision is overturned.”

Both Members have formally requested that the petition be debated in the Senedd before its dissolution, in a bid to ensure Pembrokeshire residents’ concerns are considered at the highest level.

RURAL CARE CONCERNS

Campaigners argue that maintaining services at Withybush Hospital is critical for patient safety, timely emergency care, and supporting rural communities, where travel times to alternative hospitals can be significantly longer.

Residents wishing to sign the petition can do so at their local town or community council office during normal opening hours.

Ajay Owens said: “I am incredibly heartened by the support from our local town halls and businesses. This petition is about giving every resident in Pembrokeshire a voice, and having these physical locations available ensures that everyone, regardless of their access to the internet, can stand up for what matters to our community and share their concerns.”

WHERE TO SIGN

Paper copies of the petition are currently available at locations including Fishguard and Goodwick Town Hall, Haverfordwest Town Council at the Old Wool Market, Milford Haven Cemetery Lodge, Narberth Community Library, Newport Town Council, Pembroke Town Hall, Pembroke Dock Town Council, and across Saundersfoot via local distribution.

Opening times vary depending on location.

 

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Health

New standards set to transform mental healthcare in Wales

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Clear framework aims to deliver faster access, better support, and improved outcomes

PEOPLE across Wales are set to benefit from clearer and more consistent mental health care, as new national standards outlining what good services should look like are introduced.

Two new quality statements, published this week (Mar 24) set out the outcomes and expectations for NHS and social care services. They aim to ensure patients can access timely, compassionate, and effective support — including same-day, open access care and improved services for those who have self-harmed.

The measures form part of the Welsh Government’s wider Mental Health and Wellbeing Strategy and Suicide Prevention and Self-Harm Strategy. Ministers say they are designed to move Wales towards becoming the first nation to offer same-day, open access mental health support nationwide.

Around 20 pilot schemes are already underway across Wales, offering support without the need for a GP referral. These “demonstrator sites” are intended to provide early help and reduce the number of people reaching crisis point.

One such scheme includes a university liaison service in Cardiff, supporting students across Cardiff University, Cardiff Metropolitan University, the University of South Wales, and the Royal Welsh College of Music and Drama.

Since its launch in 2022, more than 240,000 people have contacted the NHS 111 “press 2” service for urgent mental health support.

The Mental Health Quality Statement sets out nine key principles aimed at reshaping services. These include designing care with input from people with lived experience, embedding trauma-informed approaches, and ensuring services are flexible, collaborative, and centred around individual needs.

A separate Self-harm Quality Statement outlines six pillars of care: immediate treatment, trauma-informed support, continuity of care, safety planning, holistic signposting, and skilled responders. It stresses that anyone who self-harms must receive compassionate, person-centred care, regardless of intent.

The standards have been developed in partnership with NHS Wales, third sector organisations, and individuals with lived experience.

The Cabinet Secretary for Health and Social Care, Jeremy Miles said: “These standards will ensure people have access to consistent, compassionate and effective mental health support wherever they are in Wales.

“We are moving towards a future of open access services, so people can get help earlier and avoid reaching crisis point. These standards will play a key role in improving mental healthcare across Wales.”

 

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