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Calls for access to diabetes psychology across Wales to end ‘unfair postcode lottery’ 

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TO MARK Diabetes Week (June 13-19), Diabetes UK Cymru is launching a campaign to highlight the inequalities faced by many living with diabetes when accessing psychology services.

In some areas, people living with diabetes do not have access to psychological support and they either have to wait years or are referred to services that are not specialised in diabetes. 

The charity is proposing that a new model of support is to be made available to everyone living with diabetes in Wales. And so is endorsing “From Missing to Mainstream” – A Values-Based Action Plan for Diabetes Psychology in Wales” by Consultant Clinical Psychologist (Betsi Cadwaladr University Health Board) and Diabetes UK Clinical Champion, Dr Rose Stewart.

Diabetes UK Cymru is hosting a Senedd event to launch this report and campaign with the Deputy Minister for Mental Health and Wellbeing, Lynne Neagle MSsponsored by the Shadow Minister for Mental Health, Wellbeing and Mid Wales, James Evans MS at the Norwegian Church in Cardiff on June 15 at 8.30 am.

Dr Rose Stewart said: “Managing diabetes is relentless, demanding, and complex. People living with diabetes have higher levels of psychological issues such as anxiety and depression as well as diabetes-related disordered eating (diabulimia), diabetes distress, and burnout. We are proposing that diabetes psychology should become mainstream, embedded in routine care, accessible and flexible so that people living with diabetes feel supported in managing their condition wherever they live.”  

 Poet and rapper, Duke Al Durham, a supporter of the charity will talk about his experience of living with type 1 diabetes and mental health issues, including OCD, and read his poem “Burn Out” at the Senedd event.  

Young mum with type 1 diabetes resorts to paying for private psychotherapy  

Ebony Hussey, 30, from Caldicot lives with type 1 diabetes and has suffered loss of sight in one eye, as a complication of her condition. This and other struggles associated with diabetes, juggling two young children, and work affected her mental health. She has resorted to paying for private therapy since she’s unable to get access to a psychologist on the NHS.  

 “Diabetes is overwhelming and exhausting. I also suffered further complications due to my condition as some people do even when they are young. That’s why I decided to get CBT therapy privately. I was never offered any psychological help. It’s all focused on stats: if your blood sugar levels are good, then you are left to get on with it”, she explained.  

Diabetes UK Cymru’s National Director, Rachel Burr said: “Psychological support has been missing from diabetes services for too long to the detriment of those living with diabetes, their families, and the care teams who support them, and the COVID19 pandemic only made matters worse. Diabetes is serious, affecting 1 in 13 people in Wales and the demands of living with diabetes can be extremely tough. It impacts every aspect of a person’s life. Access to psychological support in Wales is either non-existent, patchy, disjointed, underfunded, understaffed, or a postcode lottery. That has to change.”  

From Missing to Mainstream: addressing the growing demand for diabetes psychology  

The need for psychological services was recognised in the Welsh Government’s most recent Diabetes Delivery Plan (2016 to 2021), which estimated that 41% of people living with diabetes in Wales are believed to have poor psychological wellbeing.  

The “From Missing to Mainstream” campaign builds on the “Too often missing. Making emotional and psychological routine in diabetes care” report published in 2019.  

 Of those surveyed then who had felt they needed specialist care from a mental health professional, 7 in 10 couldn’t access it.  

  Under the Diabetes Delivery Plan, Local Health Boards were required to ensure that sufficient psychological input into the management of all patients is. But at present NHS Wales sets itself no measurable targets on the delivery of psychological support to those with long-term conditions, with a huge variance in service delivery across the nation. Furthermore, many of the services that provide psychological support are already at breaking point and in desperate need of more resources. We are waiting on the publication of robust Quality Statements with accompanying action plans to set out the expectations for delivery of psychological support for diabetes. These cannot come soon enough. 

Diabetes UK Cymru aims to relaunch this campaign and gather further data on the impact of the lack of psychological support on people living with diabetes.  

Dr Rose Stewart’s report was commissioned by the All Wales Diabetes Implementation Group, which brings together diabetes specialist doctors and nurses, NHS managers, third sector, and other stakeholders in consultation with patients.

 To register and to find out more about the event go to: From Missing to Mainstream; Diabetes Psychology in Wales Tickets, Wed 15 Jun 2022 at 08:30 | Eventbrite  

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Health

Bathing water samplers set for a busy season of water quality checks

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WHILE families across Wales start making plans for the summer, samplers from Natural Resources Wales (NRW) are embarking on their annual programme of bathing water quality tests.

This year, there are 110 designated bathing waters which will be sampled multiple times between 15th May-30th September, in line with the UK Bathing Water Regulations. 109 of these are coastal waters, and one inland lake (Llyn Padarn).

Last month the Welsh Government announced that Nefyn Beach in Gwynedd had been added to the list of designations, following a successful application.

Bathing water samples are sent to NRW’s laboratory in Swansea, where they are tested for levels of Escherichia coli (E. coli) and intestinal enterococci (IE).

Results from a four-year rolling period then determine the classification for the next bathing water season; excellent, good, satisfactory or poor.

Last year, 98% of Wales’s designated bathing waters met stringent environmental standards, with 80 out of 109 meeting the ‘excellent’ criteria.

Clare Pillman, Chief Executive of NRW said:

“More and more people are enjoying the benefits of open water swimming, and where better to take a dip than at one of the many fantastic bathing waters Wales has to offer.

“Our blue waters offer a wealth of recreation opportunities, providing a vital boost to Wales’ tourism sector and the health and well-being of our communities.

“Our teams continue to work hard to tackle the many sources of pollution which threaten our water quality, including from agriculture and storm overflows. Much progress is being made, and we are pressing for record levels of water company investment for the environment in the coming years to safeguard the future health of our waters.”

Prior to the start of the traditional bathing water season, NRW officers undertake a number of pre-season checks and samples. This includes checking to ensure permit conditions for nearby discharges are being complied with.

Issues or deteriorations flagged in last year’s results are investigated by local teams to identify any sources of pollution which may be contributing to high bacteria levels found in samples.

Information about where to find designated bathing waters, and the standard of bathing water is available on NRW’s website.

Visit the Adventure Smart website for information about swimming safely in open waters.

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Community

Further pleas to save Anchorage Day Centre

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A PLEA by a concerned parent to keep Pembroke Dock’s Anchorage Day Centre open was heard at a full meeting of Pembrokeshire County Council.

The Anchorage Day Care Centre in Pembroke Dock has been a “safe and happy place” for adults with learning difficulties and additional needs for decades.

In more recent years it has expanded to support elderly dementia sufferers.

But now the centre is expected to close, with services instead being offered elsewhere in the county, including Haverfordwest and Milford Haven.

A series of engagement events have taken place at The Anchorage recently, outlining the reasons and the options in continued service.

One parent, who wished to remain anonymous, said: “One young woman who attends ran out of the first meeting sobbing when she was told it was going to close. Another, at the second meeting, tried to address the meeting but was so choked up at the thought of not seeing her friends anymore she could hardly speak.”

In a submitted question heard at the May 9 meeting of Pembrokeshire County Council, concerned parent Peter Welsh asked: “Is the council aware of the huge impact the impending closure of the Anchorage Adult Day-care Centre in Pembroke Dock is already having to the health and mental wellbeing of my daughter and 20 other vulnerable adults with special needs and learning difficulties, who are unable to cope with changes to routine, or to process and understand what is happening to them?

“And would the council, therefore, please review its closure decision and retain the centre and the vital and invaluable service it provides not only to the individuals concerned but also to the parents?

“If not, what specific measures does the cabinet member have in place to support my daughter and these other individuals who need extra assistance to enable them to maintain their independence, value and allow their carers to have valuable respite from their caring responsibilities and what are the estimated costs for these substitute measures?”

Responding, Cabinet Member for Social Care & Safeguarding Cllr Tessa Hodgson said an engagement with service users, carers and families was made immediately after staff were informed about the potential closure following the council’s March budget setting.

Members were told two sessions were held with all concerned, with a list of alternative day opportunities in the county outlined, with opportunities to attend short sessions at the other centres being available so they “can fully explore which opportunity is best suited to their needs and wants”.

“All service users of the Anchorage will be offered alternative day centre arrangements in order to preserve their independence and also to support the caring needs of their families, these assessments are still taking place and are likely to continue to do so at least until the end of May.”

Cllr Hodgson said she was unable to provide estimated costs of the new arrangements until all the assessments were in place, hoping to update members at a future date.

An online e-petition, on the council’s own website has been launched calling for the Anchorage to stay open.

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Health

Calls for Welsh Govt to improve both maternity and neonatal safety

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LEADING pregnancy charities have urged the Welsh Government to take stronger measures to enhance maternity and neonatal services, in order to realise the substantial changes necessary to reduce infant mortality. The Sands and Tommy’s Joint Policy Unit released a revealing report today, stating that initiatives in Wales are inadequate to instigate the vital transformation required to prevent baby deaths.

The report, titled “Saving Babies’ Lives 2024: Progress Report,” notes that strides toward diminishing stillbirths and neonatal deaths have halted in Wales, mirroring a stagnant situation across the UK. The findings suggest that with improved care, as many as 800 infant lives could have been saved throughout the UK last year. The document emphasises the urgent need for meaningful action to tackle the severe and enduring disparities in baby loss and pregnancy complications across different demographic groups.

Particularly alarming is the continuing disparity in outcomes for infants from varied ethnic backgrounds and socio-economic statuses. The report underscores that the stillbirth rate in Wales has exceeded that of any other UK nation since 2014, with minimal improvement in neonatal mortality rates over the past decade. Unlike England, which aims to halve the rates of stillbirth, neonatal death, preterm birth, maternal death, and brain injury by 2025 relative to 2010, Wales has set no similar goals.

Moreover, the report criticises the Welsh Government for the insufficient number of reviews conducted following infant deaths, which are crucial for understanding potential lessons and providing grieving parents with needed explanations.

Robert Wilson, head of the Sands and Tommy’s Joint Policy Unit, commented, “Our report unequivocally shows that the Welsh Government must establish clear targets for reducing pregnancy loss and baby deaths, and for eliminating inequalities. These targets should catalyse a thorough suite of policy measures, adequately supported by necessary funding and resources.”

The report provides specific recommendations to enhance maternity safety in Wales, including the consistent involvement of staff and patients, especially bereaved parents, in assessing the quality of maternity and neonatal services. It also calls for transparent and independently overseen reviews of individual services, and improvements in the completion rate of reviews following a baby’s death.

The Joint Policy Unit is advocating for a unified commitment across all four UK nations to eradicate inequalities in pregnancy and baby loss. Disturbingly, the 2021 data revealed that the rate of stillbirths and neonatal deaths among Black babies was almost double that of White babies, and significantly higher than the overall UK rate. This disparity was similarly stark between the most and least deprived areas in the UK.

The report also highlights that only about 2% of public and charity health research funding has been allocated to reproductive health and childbirth over the last two decades, signalling a need for increased investment in these crucial areas.

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