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Health

Campaign launched to save stroke recovery services in Hywel Dda area

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THE STROKE ASSOCIATION is calling for support to sign petition as stroke recovery services are under threat in Carmarthenshire, Ceredigion and Pembrokeshire

People who have a stroke in the Hywel Dda health board area are at risk of being abandoned, according to the leading stroke charity.

The Stroke Association is deeply concerned that, as of 2023-24, the funding for the Life After Stroke service in Hywel Dda UHB is unlikely to provide a quality and equitable service for those most vulnerable stroke survivors in Carmarthenshire, Ceredigion and Pembrokeshire.

The Stroke Association’s Life After Stroke Service has been supporting stroke survivors in the Hywel Dda Health Board area for more than a decade. The service provides a life-line for people after they leave hospital; helping stroke survivors and their loved ones set their own goals for recovery, manage their condition and become more independent. 

In 2022 alone, the Stroke Association provided specialised person-centred support to more than 250 new stroke survivors and their carers in the Hywel Dda health board area; reducing hospital readmissions, supporting mental health needs and most importantly, supporting stroke survivor independence.

Katie Chappelle, Associate Director Wales, Stroke Association said “Hywel Dda University Health Board has been de-prioritising stroke services for years. There has been no inflation increase in our funding for over six years, resulting in a real-terms cut for stroke support services. Part of the service has historically been provided by Carmarthenshire Local Authority, but they have now withdrawn this money, due to changes in how they pay for community-based prevention services.

 With this support coming to an end, we want to work closely with Hywel Dda UHB to design an effective and quality service which continues to support stroke survivors and their loved ones to rebuild life after stroke.  We urge the Health Board to reconsider their upcoming tender, and include the additional adequate funding needed to deliver an equal stroke recovery service across all three areas for stroke survivors in the years ahead.

“Charities are integral to the healthy functioning of our society and should be accepted as a partner in the health and social care system, particularly at times of strain, rather than seen as a “nice to have”. This means supporting charities with long-term funding and integrating them into decision making. Charities are often best placed to engage with a wide range of people, particularly those who are seldom heard. At the Stroke Association we ensure that stroke survivors have a voice in the decisions that affect them. If there is a failure to recognise, respect and realise the true value of the work that charities do, there is a risk of losing essential provision and the person-centred approach that charities bring to our society.”

There are almost 10,000 stroke survivors living in the Hywel Dda Health Board area. Without this essential service, stroke survivors risk feeling abandoned after they leave hospital, placing further pressure on health and social services, at a time of great strain. 47% of stroke survivors within the health board are registered with GP surgeries that are in the Local Authority area of Carmarthenshire. The other 20% live in Ceredigion and 33% in Pembrokeshire highlighting a need for a service in all three areas.  (Data is from GP register 2019-2020)

Dave Jones, from Ammanford, Carmarthenshire had a stroke in 2017 at 36 years old. He was young, fit and healthy and he never expected it. “When I came out of hospital, I had double vision, my right arm and right leg didn’t work. I couldn’t speak properly. I got to the point of I didn’t want to be here. I actually got to the steps of ending it all. The support I have received from the Stroke Association has been invaluable.”  

The dad of two continued, “My co-ordinator has been a huge help to me. She is always there whenever I need her. I would never have got to where I have got without her.” 

Dave is part of a young men’s peer group based in Carmarthen “we help each other through it and meet up and talk about our experience, it is a massive help to me. Without the opportunity and help to set up this group by the Stroke Association who knows where we would all be. It has been a real saviour to many of us.”

As Dave continues to rebuild his life he has recently become a Stroke Association support co-ordinator, “It is a fantastic organisation that has helped me so much and I want to give back and help others as I know first-hand how important the Life After Stroke service is for stroke survivors.”

Adam Price MS for Carmarthen East & Dinefwr said that“having met with the Stroke Association recently, I am fully aware of the excellent service they provide to stroke survivors across my constituency. Despite a shrinking budget and significant pressures, the Life After Stroke service has continued to provide vital support to patients across the Hywel Dda area.

 It is vital that stroke recovery services do not get left behind, and we must do whatever we can to save our stroke recovery service. I would urge members of the public to sign this petition to demonstrate just how much support there is for the Life After Stroke service in Carmarthenshire.”

When stroke strikes, part of your brain shuts down. And so does a part of you. Recovery is tough, but with the right specialist support and a ton of courage and determination, the brain can adapt. The Stroke Association is here to support people to rebuild their lives after stroke.  

The Stroke Association has delivered a stroke recovery service across all three areas of Hywel Dda health board for more than a decade. We support stroke survivors, their families, and carers to rebuild their lives after stroke.

To help save our stroke recovery service in Hywel Dda please sign our petition to show your support here

Community

‘Harrowing’ distress now the norm for unpaid carers in Wales

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“HARROWING” levels of distress have become the norm for unpaid carers in Wales, a committee has heard, with charities warning of a support system “set up to fail”.

Kate Cubbage, director of Carers Trust Wales, told the Senedd’s health scrutiny committee: “There are too many carers who are reaching crisis point without any support.”

Ms Cubbage explained that most councils are supporting fewer than 500 carers, warning: “There are really, really high levels of unmet need within our communities.”

She told Senedd Members that staff are receiving trauma training to support their mental health due to the levels of distress they are seeing among carers.

Ms Cubbage pointed to a University of Birmingham study which found an increased suicide risk among unpaid carers akin to that of veterans who have seen active service.

“One in eight carers has made a plan to end their own life,” she said, calling for carers to be specifically considered in the Welsh Government’s suicide prevention strategy.

“One in ten has made an attempt… at a time when the average local authority has support plans for less than 0.5% of the caring population.”

Warning of deepening poverty in Wales, the witness expressed concerns about a 31% poverty rate among carers – “far higher” than the 22% in the wider population.

Ms Cubbage added that young carers miss more than six full school weeks each year, compared with pupils without caring responsibilities who miss nearer two weeks.

Kate Cubbage, director of Carers Trust Wales
Kate Cubbage, director of Carers Trust Wales

She told the health committee: “It’s no wonder young carers are achieving less at school. They are less likely to go on into further and higher education.

“And if they do make it to university, they’re less likely than their peers to actually graduate.”

Reflecting on a personal note, Ms Cubbage, a parent carer, said her autistic son has accessed services from ophthalmology to audiology over the past 16 years.

“I have never once been signposted to anything that would suggest that I am an unpaid carer or that I can access support… That kind of lived experience is really important.”

Rob Simkins, head of policy at Carers Wales, added: “Things are getting worse: anecdotally, we see that through our services but also that’s what the research tells us.”

Rob Simkins, head of policy at Carers Wales
Rob Simkins, head of policy at Carers Wales

He pointed to a Carers Wales survey which has shown a “shocking” 53% increase in the number of carers cutting back on food and heating.

Giving evidence on Wednesday December 17, Mr Simkins warned of a 39% increase in the number of carers reporting “bad” or “very bad” mental health since 2023.

“All the evidence that we’re collecting shows that this is going in one direction,” he told the committee, adding: “And that’s the wrong direction. It’s a bleak context.”

Mr Simkins said census data shows about 310,000 unpaid carers in Wales but research indicates the number could be nearer 500,000 – roughly 15% of the population.

He cautioned that charities across the country, including Carers Wales, are seeing real-terms cuts in funding from the Welsh Government every single year.

Mr Simkins warned of a “shocking” lack of data and a system “set up to fail” more than a decade on from the then-Assembly passing the Social Services and Wellbeing (Wales) Act.

Warning some councils cannot quantify how many carers’ assessments they could carry out over 12 months, he asked: “How on earth are you meant to collect data from unpaid carers and plan services if you can’t even figure out how many you can assess?”

Asked about carers’ assessments, he highlighted a lack of capacity within councils as he warned a “pitifully low number of carers go on to get any support at all”.

Greg Thomas, chief executive of Neath Port Talbot Carers Centre, told Senedd Members the voluntary sector is being increasingly asked to plug gaps without necessary funding.

He warned the jam is having to be spread “ever-more thinly”, creating a tension between reaching as many people as possible and not wanting to compromise quality of support.

“We’re not quite saying ‘no’ to people,” he said. “But we’re having to say a qualified ‘yes’ about what we’re able to offer… We’re massively overstretched, massively oversubscribed.”

Mr Thomas told the committee the carers’ centre has the required reach and expertise, concluding: “It’s almost give us the tools and we can do the job.”

If you have been affected by anything in this story, the Samaritans can be contacted for free, 24/7, on 116 123, or by email at [email protected].

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Health

Nearly 2,000 residents help shape future of health services across west Wales

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Public feedback to inform Hywel Dda’s long-term strategy for healthcare delivery

NEARLY 2,000 people across Carmarthenshire, Ceredigion and Pembrokeshire have shared their views on what matters most for living a healthy life, as part of a major public engagement exercise by Hywel Dda University Health Board.

Over a nine-week period, residents were invited to respond to eleven key questions exploring how people stay well, how they access healthcare, and what improvements they would like to see in services, buildings and digital provision. The questions were shaped around feedback gathered from community members earlier in the summer.

The engagement focused on four main themes: a social model for health and wellbeing, digital healthcare support, balancing hospital care with community-based services, and priorities for clinical services and hospital redevelopment.

The feedback will be shared in January and used to inform a refreshed long-term strategy for the Health Board, setting out how safe, sustainable and accessible services will be delivered over the next fifteen years. While the strategy will be updated to reflect changes in clinical practice, technology and how people use health services, the Health Board says its overall ambitions remain unchanged from those set out in the original Healthier Mid and West Wales strategy in 2018.

Lee Davies, Executive Director of Strategy and Planning at Hywel Dda, said the process was about refinement rather than a change in direction.

He said: “Thank you to everyone who has taken the time to share their views. The direction of travel remains as per our 2018 strategy, so we want to reassure people that this is not a radical change of direction but rather a refinement in how we deliver the strategy. Your feedback is helping us reshape our strategy so that it continues to reflect the priorities of the people we serve, and the changes in clinical practice.”

During the engagement, many respondents highlighted the importance of strong communities, with families, friends and local support networks seen as key to helping people stay well and connected. Timely access to GP services was also raised as a priority, alongside concerns about travel to appointments, particularly in rural areas where public transport options can be limited.

Digital healthcare was another recurring theme, with people calling for online services to be simple, inclusive and accessible, while recognising that not everyone has access to technology or the same digital skills.

At its public Board meeting in November, Hywel Dda University Health Board considered progress on refreshing the strategy and received updates on the development of a new Primary and Community Care Strategic Plan. That plan, which has been shaped through further public engagement including in-person and online events and an online questionnaire, is due to be presented to the Board in January 2026.

The Primary and Community Care plan will set the overall direction for services delivered outside hospital settings and support locally-led plans for how care is provided in individual communities.

The Board also discussed a request from the Welsh Government for an addendum to the Health Board’s 2022 Programme Business Case. This will explore additional options for improving healthcare estates, including whether new facilities could help address existing infrastructure problems. It will also consider how local plans align with the national strategy, A Healthier Wales, which aims to shift more care into community settings and closer to people’s homes.

A draft version of the refreshed strategy is expected to be presented to the Board in January 2026 for approval. Once agreed, it will be published in accessible formats, with the Health Board saying communities will continue to be involved as plans move forward.

Further information about the engagement process and updates on the strategy are available through the Health Board’s public consultation platform.

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Health

Resident doctors in Wales vote to accept new contract

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RESIDENT doctors across Wales have voted to accept a new contract, with 83% of those who took part in a referendum backing the agreement, according to BMA Cymru Wales.

The contract includes a four per cent additional investment in the resident doctor workforce and introduces a range of reforms aimed at improving training conditions, wellbeing and long-term workforce sustainability within NHS Wales. The BMA says the deal also supports progress towards pay restoration, which remains a central issue for doctors.

Key changes include new safeguards to limit the most fatiguing working patterns, measures intended to address medical unemployment and career progression concerns, and reforms to study budgets and study leave to improve access to training opportunities.

Negotiations between the BMA’s Welsh Resident Doctors Committee, NHS Wales Employers and the Welsh Government concluded earlier this year. Following a consultation period, a referendum of resident doctors and final-year medical students in Wales was held, resulting in a clear majority in favour of the proposals.

Welsh Resident Doctors Committee chair Dr Oba Babs Osibodu said the agreement marked a significant step forward for doctors working in Wales.

He said: “We’re proud to have negotiated this contract, which offers our colleagues and the future generation of doctors safer terms of service, fairer pay, and better prospects so that they can grow and develop their careers in Wales.

“This contract will help to retain the doctors already in training, and also attract more doctors to work in Wales, where they can offer their expertise and benefit patients.”

Dr Osibodu added that the BMA remains committed to achieving full pay restoration and acknowledged that challenges remain for some doctors.

“Whilst this contract sets the foundations for a brighter future for resident doctors in Wales, we recognise that there are still doctors who are struggling to develop their careers and secure permanent work,” he said. “We need to work with the Welsh Government and NHS employers to address training bottlenecks and underemployment.”

The Welsh Government has previously said it recognises the pressures facing resident doctors and the importance of improving recruitment and retention across NHS Wales, while also highlighting the need to balance pay agreements with wider NHS funding pressures and patient demand.

The new contract is expected to be phased in from August 2026. It will initially apply to doctors in foundation programmes, those in specialty training with unbanded rotas, and new starters, before being rolled out to all resident doctors across Wales.

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