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Health

Diagnosis of dementia slow for people with learning disabilities in Wales

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GETTING a diagnosis of dementia can take longer for people with learning disabilities in Wales
People living with a learning disability are more likely to get dementia at a younger age, but getting a diagnosis of dementia can take longer, say Alzheimer’s Society Cymru.

Around one in five people with learning disabilities who are over the age of 65 will develop dementia. While those with Down’s syndrome have an even higher risk, with about two in three people over the age of 60 developing dementia, usually Alzheimer’s disease.

This World Down’s Syndrome Day (March 21) Alzheimer’s Society Cymru is sharing useful tips to help recognise signs and symptoms.

Angelo Makri, Senior Knowledge Officer for Wellbeing at Alzheimer’s Society said: “You are likely to know the person that you care for best, which makes you well-placed to recognise subtle changes. This could include acting out of character or taking more time to carry out certain tasks. Any changes that you, or the person’s other carers, family or friends notice, can play an important part in helping to spot the early signs of dementia.

“If you notice ongoing changes rather than a one-off, tell the GP or learning disability team as soon as possible. They can arrange for the person to have an assessment designed to identify dementia in people with learning disabilities.”

Alzheimer’s Society Cymru have produced a free symptoms checklist, endorsed by the Royal College of GPs, to help people talk to their health professional to get a vital diagnosis. Symptoms include:

  • Changes in behaviour and personality.
  • Confusion or memory problems, including changes in mood.
  • Memory loss, asking the same question over and over or repeating phrases.
  • Epilepsy or fits; if a person with Down’s syndrome in later life begins to have fits, or experiences them more than usual, this could be a sign of dementia.

Angelo Makri said: “A timely and accurate diagnosis is crucial to access treatment and support that can help people manage dementia symptoms and avoid ending up in crisis.

“If you or your loved one are worried about experiencing dementia symptoms, you should visit your GP. They will try to assess what’s likely to be causing the problem.”

Alzheimer’s Society Cymru is here for everyone affected by dementia. They provide accessible publications designed for people with learning disabilities which are available in Easy Read. Call their Dementia Support Line on 0333 150 3456, if you speak Welsh call the Welsh-speaking support line on 03300 947 400, or visit alzheimers.org.uk

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Health

Calls for Welsh Govt to improve both maternity and neonatal safety

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LEADING pregnancy charities have urged the Welsh Government to take stronger measures to enhance maternity and neonatal services, in order to realise the substantial changes necessary to reduce infant mortality. The Sands and Tommy’s Joint Policy Unit released a revealing report today, stating that initiatives in Wales are inadequate to instigate the vital transformation required to prevent baby deaths.

The report, titled “Saving Babies’ Lives 2024: Progress Report,” notes that strides toward diminishing stillbirths and neonatal deaths have halted in Wales, mirroring a stagnant situation across the UK. The findings suggest that with improved care, as many as 800 infant lives could have been saved throughout the UK last year. The document emphasises the urgent need for meaningful action to tackle the severe and enduring disparities in baby loss and pregnancy complications across different demographic groups.

Particularly alarming is the continuing disparity in outcomes for infants from varied ethnic backgrounds and socio-economic statuses. The report underscores that the stillbirth rate in Wales has exceeded that of any other UK nation since 2014, with minimal improvement in neonatal mortality rates over the past decade. Unlike England, which aims to halve the rates of stillbirth, neonatal death, preterm birth, maternal death, and brain injury by 2025 relative to 2010, Wales has set no similar goals.

Moreover, the report criticises the Welsh Government for the insufficient number of reviews conducted following infant deaths, which are crucial for understanding potential lessons and providing grieving parents with needed explanations.

Robert Wilson, head of the Sands and Tommy’s Joint Policy Unit, commented, “Our report unequivocally shows that the Welsh Government must establish clear targets for reducing pregnancy loss and baby deaths, and for eliminating inequalities. These targets should catalyse a thorough suite of policy measures, adequately supported by necessary funding and resources.”

The report provides specific recommendations to enhance maternity safety in Wales, including the consistent involvement of staff and patients, especially bereaved parents, in assessing the quality of maternity and neonatal services. It also calls for transparent and independently overseen reviews of individual services, and improvements in the completion rate of reviews following a baby’s death.

The Joint Policy Unit is advocating for a unified commitment across all four UK nations to eradicate inequalities in pregnancy and baby loss. Disturbingly, the 2021 data revealed that the rate of stillbirths and neonatal deaths among Black babies was almost double that of White babies, and significantly higher than the overall UK rate. This disparity was similarly stark between the most and least deprived areas in the UK.

The report also highlights that only about 2% of public and charity health research funding has been allocated to reproductive health and childbirth over the last two decades, signalling a need for increased investment in these crucial areas.

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Charity

Charitable donations fund ambulatory heart monitors for Withybush Hospital

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THANKS to generous donations, Hywel Dda Health Charities – the official charity of Hywel Dda Health Board – has funded 10 ambulatory heart monitors worth over £13,000 for Withybush Hospital’s Cardio-Respiratory Department.

The monitors are compact devices which are used to assess a patient’s heart rate and rhythm for a sustained amount of time.

The state-of-the-art monitors will help the Cardio-Respiratory Department provide the best possible service, with accurate, efficient and timely arrhythmia recognition provided on site or at home.

Rhys Bowen, Advanced Cardiac Physiologist, said: “We are so grateful that charitable donations from the local community have enabled us to buy the new monitors.

“The monitors are more adaptable to each patient’s presenting symptoms which will enhance the quality of the data gathered.

“They are more patient-friendly and easier to wear for the duration of the test, so there will be less need for repeat monitoring. They will also support quicker in-patient discharge due to an increase in the number of available monitors and the fact they can be worn by the patient at home and provide remote monitoring.”

Nicola Llewelyn, Head of Hywel Dda Health Charities, the official charity of Hywel Dda University Health Board, said: “The support of our local communities enables us to provide services over and above what the NHS can provide in the three counties of Hywel Dda and we are extremely grateful for every donation we receive.”

For more details about the charity and how you can help support local NHS patients and staff, visit here.

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Health

High pollen counts forecast for Wales this week

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CURRENT forecasts are for high pollen counts from today until Sunday across Wales, and airborne allergens expert has said. Max Wiseberg added: “This is not good news for hay fever sufferers across Wales. The main culprit is oak pollen which is now in peak season and there are some early grass pollens.”

Max continues, “However, better news is that, whilst there is no cure for hay fever, there are many measures and precautions you can take to help reduce the effects of the pollen. Although many hay fever sufferers find that nothing really works or that some remedies help, but nothing does the whole job, or what worked last year doesn’t work today, there is another way. A novel approach is to combine products for greater effect, and create your own ‘Hay Fever First Aid Kit’.”

“So if nothing works on its own, or your symptoms are particularly severe on a given day, create your own Hay Fever First Aid Kit, in other words use a combination of products, which can be complementary to one another. I suggest that your ideal Hay Fever First Aid Kit will consist of a prevention, such as HayMax organic drug-free allergen barrier balm, one (and only one) antihistamine, one (and only one) nasal spray, eye drops and one or more other natural products,”

Max goes on to explain how all the elements of a Hay Fever First Aid Kit work:

“The first thing is to avoid the pollen in the first place with an organic allergen barrier balm such as HayMax applied around the nostrils and bones of the eyes to help stop pollen getting in.”

“There are several forms of medication you can take that seek to reduce the effects of the pollen on the body.

  • Try an antihistamine, to counteract the effects of too many histamines, the body’s reaction to too much pollen; the most common are acrivastine, cetirizine, chlorphenamine, desloratadine, fexofenadine and loratadine.
  • Use a steroid nasal spray, which works by fighting inflammation and mucus production, helping clear nasal symptoms – itching, sneezing, watering and congestion.
  • Eye drops work in one of three ways; some stop the histamine release, some are anti-inflammatory and others block the inflammation caused by histamine.
  • There are several types of each, so if one doesn’t work particularly well or stops working, it’s worth trying another.”

“There are many other drug-free and natural products available for hay fever sufferers.

  • Quercetin is thought to limit the release of histamine; found naturally in many foods, it can also be taken in a capsule.
  • Butterbur is a herbal extract believed to have an antihistamine-like effect on hay fever symptoms and is available in capsules.
  • Immune boosting wellness formulae, such as Bee Prepared Daily Defence Immune Support which contains only all natural ingredients that help support the immune system, help the body fight the effects of the pollen.”
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