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Education

Swansea Uni to deliver advanced therapies

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A significant opportunity: University a centre for cell and gene therapies

SWANSEA U​NIVERSITY’S​ Medical School, through its partnership with Abertawe Bro Morgannwg University Health Board, is to be one of the centres to deliver advanced medical therapies to Wales, which is part of a major investment announced by Welsh Blood Services.

A recently formed health consortium, jointly led by the Welsh Blood Service (on behalf of NHS Wales) and the National Institute for Health Research Birmingham Biomedical Research Centre, has been awarded £7.3M of UK Government funding to ensure more patients benefit from a new generation of breakthrough therapies.

£1.5M will come directly to NHS Wales and £550K to Trakcel, a Welsh software company developing scheduling/tracking software for advanced therapies which is based upon technology developed at Swansea University.

The funding will support the Welsh Government’s commitment to developing an Advanced Therapies Strategy which will enable these therapies to be brought to Welsh patients and Advanced Therapy Medicinal Product (ATMP) companies to reach the clinical market, whilst building expertise, capability and capacity across NHS Wales to benefit patient outcomes.

Speaking of the award, Frank Atherton, Chief Medical Officer for Wales, said: “We welcome the announcement of the successful partnership between Birmingham, Nottingham and Wales NHS centres in bidding for Innovate UK monies. The project is aligned with our ambition to support the development, availability and adoption of new innovative therapies for patients in Wales. Cell- and gene-based advanced therapies offer exciting opportunities, not only for the way we treat people with previously incurable conditions, but also how we work together with industry and NHS Wales in bringing these treatments from bench to bedside.”

The NHS Wales role in the MW-ATTC consortium was led by the Welsh Blood Service, with support from Abertawe Bro Morgannwg and Cardiff & Vale University Health Boards along with the Life Sciences Hub Wales Special Interest Group on Cell and Gene Therapy, which brings together expertise from the Welsh NHS, Universities and industry in the Life Science sector.

As part of the contract award, one of the first advanced therapy treatment sites in Wales will be established within Abertawe Bro Morgannwg at the Joint Clinical Research Facility (JCRF) at Swansea University’s Medical School. The focus of the centre will be to develop the infrastructure, processes and skilled workforce required to enable patients to be cared for, from diagnosis through to post-treatment follow up.

Cath O’Brien, Director of the Welsh Blood Service and MW-ATTC Co-Director, said: “A significant opportunity exists to position Wales as a leader in clinical trial and routine delivery of cell and gene therapies to maximise Welsh patient benefit and opportunities for the national economy. The Welsh Government is committed to exploring these revolutionary developments in healthcare and we are excited to have worked alongside our consortium partners to secure funding through what was a highly competitive tendering process.”

One of the first products that will pass through the Welsh centres is that being developed by one of the consortium partners, Rexgenero and is intended to prevent the need for diabetes-related lower limb amputations for some no option patients. The incidence of diabetes is continuing to increase in Wales and already accounts for ~10% of the NHS Wales budget (£500M) with 200, 000 sufferers today rising to an estimated 500,000 by 2025. Currently around 2000 patients in Wales have non-healing lower limb ulcers that result in approximately 330 amputations per year.

The Midlands & Wales Advanced Therapy Treatment Centre (MW-ATTC) will identify barriers, challenges and solutions to facilitate future deployment and adoption of these transformative therapies within the UK healthcare system.

Advanced treatments, such as cell and gene therapies, show great promise for patients with chronic and terminal conditions that currently cannot be cured. Unlike conventional medicines, these new approaches often aim to selectively remove, repair, replace, regenerate and re-engineer a patient’s own genes, cells and tissues to restore normal function. The project will include potential treatments for arthritis, liver disease, several types of cancer, and diabetic ulcers.

Education

Disabled children ‘denied rights to education’

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DISABLED children and young people in Wales are being fundamentally let down and denied their right to education, Senedd Members warned.

Buffy Williams, who chairs the children’s committee, led a debate after an inquiry found many disabled children do not have equal access to education and childcare.

The Labour politician raised concerns about the Welsh Government rejecting six of the 32 recommendations emerging from the committee’s 239-page report.

She welcomed recognition that more must be done to uphold children’s rights to education.

But, addressing Welsh ministers, Ms Williams warned: “We do not feel that your response commits to a step change in the pace and scale of the action required to do so.

“Our committee, like the online advisory group, worries that maybe you are not giving these issues the priority they deserve.”

She told the Senedd that families’ distressing experiences left an imprint, with the committee hearing some children are thinking about and attempting suicide due to a lack of support.

Ms Williams said parents, carers and young people on the advisory group believe ministers’ formal response to the report fails to recognise the seriousness of the issues families face.

She warned the Welsh Government appears to have “resigned” itself to a substantial shortfall in inclusive childcare for disabled and neurodivergent children.

Criticising ministers’ decision to rebuff calls for mandatory training on disability for all school staff, she stressed the importance of understanding and meeting children’s needs.

Ms Williams, who represents Rhondda, said the Welsh Government’s response appears to delegate responsibility for equity in childcare and education to councils.

She asked: “What more will it take for the Welsh Government to step in, to give local authorities the support they so clearly need?”

Gareth Davies said support for disabled children is patchy across Wales, with schools lacking funding, staff and expertise to deliver inclusive education.

Mr Davies, the Conservatives’ shadow mental health minister, warned that disabled children disproportionately experience bullying in school as he called for greater safeguards.

Plaid Cymru’s Heledd Fychan described the committee’s inquiry as heartbreaking, with failings having a devastating impact on families.

She told the debating chamber or Siambr that children as young as five or six have been traumatised and failed by the education system.

Carolyn Thomas, a Labour backbencher who chairs the petitions committee, stated the Senedd has received five petitions on Wales’ additional learning needs (ALN) reforms.

“The sheer number of petitions and signatures highlights the strength of feeling,” she said.

South Wales East Laura Anne Jones warned ALN support is one of the most pressing issues facing families, with lower-level needs “falling under the radar”.

She said it is disgraceful that so many teachers and assistants still lack basic neurodiversity training, which leads to disabled children’s behaviour being wrongly labelled disruptive.

Calling for urgent action, the Conservative criticised ministers for failing to accept “crucial” recommendations, saying: “Inclusive education is not a luxury, it is a right.”

Hefin David, whose daughter is autistic, sought to place the debate in historical context as he drew on his own family’s experiences.

He said: “In the 1970s and ’80s, my daughter would have been in an institution for most of her early life, she would have spent the whole time there.”

The Caerphilly Senedd Member recognised that progress is sometimes not fast enough but he emphasised that young people are being treated better today than ever before.

Dr David, who is stepping down from the children’s committee, said: “To take too much of a downbeat note on these things is to devalue the experience of those who suffered.”

The Labour politician described the 32 recommendations as “too many”, warning this is problematic in terms of setting people up to fail with resources spread so thin.

Responding to the debate on November 12, Lynne Neagle apologised to families for their experiences which she said made for distressing and sobering reading.

Wales’ education secretary said: “I am truly sorry … and I say on behalf of the [Welsh] Government that it is not good enough.”

Ms Neagle, whose first job after university was working with parents of disabled children, recognised that families too often feel the need to fight for support.

“It affected me deeply,” she told the Senedd. “And I want to acknowledge that not enough has changed for enough families – we can and we must do better.”

She said: “Rights on their own are not enough, they must be translated into action…. I know too many children and families have been waiting too long for their rights to become action.

“Like them, I am impatient for change. As a government, we will not stop until we get it right for all children and young people in Wales.”

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Business

Kurtz addresses Employment and Skills Convention

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SENEDD Member Samuel Kurtz kicked off an Employment and Skills Convention at the Cardiff City Stadium recently, organised by the Learning and Skills Institute. The event sought to unite organisations, businesses, and training providers to discuss critical issues surrounding employment and skills development across Wales.

The convention featured a panel of distinguished speakers, including local Samuel Kurtz MS, who is the Shadow Minister for the Economy and Energy; Rhys Morris, Managing Director of The Busy Group; and Megan Hooper, Director for Employment and Skills at Serco. Together, they explored strategies for increasing employment and the positive impacts this can have on individuals, young people, and the broader community.

Following the event, Samuel Kurtz said: “It was a privilege to speak at this convention and to underscore the vital role of collaboration between government and the private sector in aligning skills and training with the evolving needs of our economy.

“By enhancing skills and creating jobs, we can foster a resilient workforce that will not only meet today’s demands but also drive essential green infrastructure projects, ensuring a prosperous future for young people in Wales.

“Welsh Government Ministers must acknowledge their role in addressing high levels of economic inactivity. Introducing employment targets is essential to support people in re-entering the workforce and contributing to Wales’ economic growth.”

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Education

Concern over ‘highest-ever’ school bullying rates

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RATES of bullying in Welsh schools have reached record levels, with more than one in three children and young people reporting being bullied, the Senedd heard.

Gareth Davies raised concerns about a 6% increase in bullying between 2021 and 2023, according to a survey of more than 130,000 pupils in 200 secondary schools.

The Conservatives’ shadow mental health minister told the Senedd: “These results are higher than ever previously reported in the survey, which is deeply troubling.”

He said the latest survey showed regression on “just about every metric of pupil wellbeing”, including growing social isolation and a rise in behavioural issues.

Mr Davies, who worked in the NHS in north Wales for more than a decade, pointed to a 2021 legal duty to have regard to the mental health of children and young people.

He said: “The mental health of pupils has declined and reports of bullying in schools have only increased, so the Welsh Government have failed in that duty, unfortunately.”

Plaid Cymru’s Cefin Campbell called for an update to 2019 anti-bullying guidance for school governing bodies following a commitment from the Welsh Government eight months ago.

The shadow education secretary focused on the impact of poverty, warning the high cost of school uniforms can cause stress and lead to bullying.

Mr Campbell, a former lecturer, expressed concerns about penalties, such as detention, for pupils over non-compliance with uniform policies.

Raising a report on “horrific” experiences of racism in Welsh schools, he said one pupil was told a classmate did not want to sit next to them due to the colour of their skin.

“That’s entirely unacceptable in our schools,” said Mr Campbell.

Labour’s Carolyn Thomas warned children’s mental health is at an all-time low, pointing to smartphones and social media as major contributing factors.

She said: “They can be used to bully, manipulate and control, sending young people into an isolated world of despair, not thinking they can get out of it or go to somebody for help.”

The North Wales politician highlighted a petition calling for a ban on phones in schools.

Rhys ab Owen, an independent who represents South Wales Central, stressed that bullying can impact people for decades to come after school.

“But it’s an issue that doesn’t affect learners equally,” he said. “In Cardiff, around a third of learners come from ethnically diverse backgrounds.

“And I was staggered to read a survey from 2020, which said that 61.5% of learners had expressed stereotypes over skin colour, religion and nationality.”

In a statement on November 12 to mark anti-bullying week, Lynne Neagle accepted that bullying continues to be an issue in Welsh schools.

Pledging to prioritise the problem, Wales’ education secretary said new statutory anti-bullying guidance will be published for consultation after Christmas.

Ms Neagle pointed to concerning trends, including 42% of girls scoring high or very high in a questionnaire on psychological problems compared with 27% of boys.

She told the Senedd: “I wouldn’t want to be a teenager growing up today.”

Ms Neagle stated the Welsh Government provided more than £800,000 this year for one of the biggest surveys of children and young people in the UK.

She said: “The link between bullying and mental health is well known. At its most extreme, young people have taken their own lives as a result of being bullied. This is a tragedy for the young life lost, for their family and friends and for whole communities.”

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