Community

Desperate shortage of support for people with a diagnosis of dementia

Published

10 years ago

July 17, 2014

The Alzheimer’s Society launches Right to Know campaign to ensure no one in Wales is denied access to information and support following a diagnosis of dementia.

ONE in five people affected by dementia (21 per cent) were given no information and support after a diagnosis of dementia, finds a poll carried out by Alzheimer’s Society. The poll of people with dementia, carers and people with a family member or friend with dementia, reveals a desperate shortage of post-diagnosis support provision, with 90 per cent of those surveyed dissatisfied with the amount of information and support provided. Alzheimer’s Society is today (2 July) launching a new campaign, Right to Know, to ensure people with dementia get a diagnosis and, following that, access to vital information, support and available treatments. The campaign is launched to voice concerns of people affected by dementia, with 97 per cent of respondents agreeing that the Government should do more to support people who have a dementia diagnosis. Sue Phelps, Director of Alzheimer’s Society in Wales, said: ‘Like entering a maze blindfolded, too many people with dementia are left without a guiding hand to help them come to terms with this debilitating, terminal condition. Welsh government has shown a commitment to improving the lives of people with dementia and to providing people with information packs at the point of diagnosis. However, we cannot escape the varied level of support received following a diagnosis which leaves many vulnerable people adrift. People living with dementia tell us that with the right support they can live well. Alzheimer’s Society is here to support them, but a further bold commitment from Welsh government would be welcomed to reach all those in need. ‘We are urging the Government to ensure that every person diagnosed with dementia has access to a named contact who can help them come to terms with the diagnosis and help them find the support they need to live their life.’ Wendy McCarthy Williams is from Ystradgynlais, her husband, Ivor Williams, was diagnosed with Alzheimer’s disease four years ago. Speaking about his diagnosis she said: ‘The GP’s initial response was that it was ‘just an old age thing’. It took about 18 months to get a diagnosis. There was nobody to talk to, nobody to discuss it with. We had next to no advice or support. It was frightening to feel so alone. I had to do most of my research online and then happened to pick up an Alzheimer’s Society leaflet at the hospital. I called them and since then everything has been so different. Having someone to guide and support us made it all a bit easier to understand and cope with.’ As well as improving postdiagnosis support provision, the charity is calling for: 66 per cent dementia diagnosis rate across all areas – with a commitment now to reach 75 per cent by 2017. No one to wait longer than 12 weeks from seeing their GP to diagnosis A guarantee that everyone has access to a Dementia Adviser or equivalent following a diagnosis Of the 45,500 people in Wales living with dementia, less than half (39 per cent) currently have a formal diagnosis meaning there could still be another 27,868 people in Wales who are living with the condition but who are not diagnosed. Furthermore, according to figures reported as part of the Quality and Outcomes Framework, Wales has the lowest national diagnosis rate in the UK. ‘Many people in Wales face daily challenges whilst living with dementia. It’s disgraceful to think nearly two thirds of them have an added fight, to get a diagnosis. Everyone with dementia has a right to know. To have access to the certainty of a diagnosis and the right support to comes to terms with and manage the condition should not depend on your postcode,’ added Sue Phelps.

Community

Pembs Agricultural Society’s Christmas Fair expands to an all-weekend event

Published

8 hours ago

November 15, 2024

Tom Sinclair

PEMBROKESHIRE AGRICULTURAL SOCIETY’S Christmas Fair will be an all-weekend event next month. The Christmas shopping extravaganza is all set to take place on Saturday, 14 December as well as Sunday, 15 December.

The Parkhouse building on the Haverfordwest Showground will be transformed into a Christmas paradise. There will be even more stalls this year with a wide variety of quality local businesses exhibiting as well as festive music, Santa in his Grotto and an outdoor food court.

Judith Roach and Emma Thomas, the event organisers, said, “We are excited to be able to announce that our Christmas Fair will be on for two days rather than just one this year. We continue to build on the success of last year’s event with twice the opportunities to attend and even more stallholders. It will be the perfect start to the festive season as the Parkhouse Building will be transformed into a one-stop-shop for those preparing for Christmas.”

The Fair will be open from 10am until 4pm and admission is free. Visitors will find unique gifts, handmade decorations, art and beautiful homeware. Some of the county’s very best food and drink producers will also have stalls to give visitors the opportunity to stock up on all their festive treats. From decadent chocolate brownies, fudge, festive spirits to Welsh cheeses, there’s something to tantalise everyone’s tastebuds. There will also be a range of outlets for ‘on the go’ eating and drinking.

One special guest at the event will be everyone’s favourite bearded gentleman in red – Santa will be taking time out from his busy schedule to attend the event. There will be a charge of £3 per child to visit Santa and all proceeds will go directly to Sandy Bear charity to support their work. Each child will receive a small gift from Santa as part of their visit. Parents can book in advance via the website: www.sandybear.co.uk/santa

Adam Thorne, Pembrokeshire Agricultural Society’s President is looking forward to the festive event. He said, “The Society would like to thank Judith and Emma for all the hours they have put in, voluntarily, to organise the two-day Christmas event. We’re delighted to be able to offer visitors the opportunity to do all their Christmas shopping whilst enjoying the festive atmosphere.”

Follow Pembrokeshire County Show’s Christmas Fair event page on Facebook for a full list of stallholders in the run up to the event.

Community

Officials announced for 2026 Eisteddfod in Pembrokeshire

Published

19 hours ago

November 14, 2024

Tom Sinclair

THE NATIONAL EISTEDDFOD returns to Pembrokeshire in 2026, and organisers have named the officials who will steer this major cultural event over the next year and a half.

With the artistic and local committees already established, meetings to finalise competitions and adjudicators are underway to ensure the List of Competitions is ready by spring. Committee members have also been voting over the past weeks to elect key officials for the Executive Committee.

John Davies, former leader of Pembrokeshire County Council, has been appointed Chair of the Executive Committee. Known for his deep connection to Pembrokeshire and extensive experience with national organisations, Davies aims to make the Eisteddfod a true community event, welcoming involvement from all corners of the region.

Tegryn Jones, Chief Executive of Pembrokeshire Coast National Park, takes on the role of Deputy Chair (Strategy). With a strong passion for Welsh culture and language, Jones brings a wealth of experience working with local communities, visitors, and volunteers across three counties.

Deputy Chair (Culture) is Carys Ifan, Director of Canolfan Egin and a seasoned cultural organiser. Based in Llangrannog and originally from Llandudoch, Ifan has led numerous artistic and community projects across the region.

Cris Tomos, a community development veteran with over 30 years of experience, will lead the 2026 Eisteddfod Local Fund. Working with PLANED, a community development charity, Tomos has supported countless community enterprises and co-operatives in Pembrokeshire, Ceredigion, and Carmarthenshire.

Non Davies, recently elected as Executive Committee Secretary, brings extensive cultural management expertise as Ceredigion County Council’s Corporate Manager for Culture. Having chaired the Cardigan Local Fund Committee for the 2022 Ceredigion Eisteddfod, Davies is well-versed in managing cultural projects.

National Eisteddfod Chief Executive, Betsan Moses, said: “We’re looking forward to working with John and the team over the next few months as we prepare for the 2026 Eisteddfod.

“There’s almost a quarter of a century since the Eisteddfod was last held in Pembrokeshire, and we’re very much looking forward to returning to the area. 2026 is an important year for us as we celebrate 850 years since the first Eisteddfod was held in Cardigan Castle in 1176.

“We’re looking forward to working in a new way within a catchment area which includes parts of another two counties, which is, of course, a chance to work with local people in Ceredigion and Carmarthenshire again.”

Further announcements are expected in the coming weeks, including the sale of competition prizes and opportunities to donate the Crown and the Chair.

The National Eisteddfod will be held in Llantood from August 1–8, 2026.

Charity

Kurtz goes Jurassic as Pantosaurus visits Senedd NSPCC Campaign

Published

1 day ago

November 14, 2024

Richard Lewis

THIS WEEK, the NSPCC’s annual campaign to safeguard children from sexual abuse reached the steps of the Senedd.

Pantosaurus, the friendly mascot of the NSPCC’s PANTS campaign, appeared to raise awareness among Members of the Senedd and the wider public about the vital importance of child safety. The campaign encourages parents and carers to talk openly with young children about risks and protective measures.

The PANTS campaign is built around five key child protection messages:

Privates are private.
Always remember your body belongs to you.
No means no.
Talk about secrets that upset you.
Speak up; someone can help.

After meeting Pantosaurus, Samuel Kurtz MS, Member of the Senedd for Carmarthen West and South Pembrokeshire, expressed his support for the campaign

He said: “I wholeheartedly support this important NSPCC initiative. Since its launch in 2013, it has empowered over six million families to discuss this sensitive subject.

“This issue affects communities across Wales, so promoting the five principles of PANTS is essential for everyone in Pembrokeshire and beyond.”