Community

Desperate shortage of support for people with a diagnosis of dementia

Published

10 years ago

July 17, 2014

The Alzheimer’s Society launches Right to Know campaign to ensure no one in Wales is denied access to information and support following a diagnosis of dementia.

ONE in five people affected by dementia (21 per cent) were given no information and support after a diagnosis of dementia, finds a poll carried out by Alzheimer’s Society. The poll of people with dementia, carers and people with a family member or friend with dementia, reveals a desperate shortage of post-diagnosis support provision, with 90 per cent of those surveyed dissatisfied with the amount of information and support provided. Alzheimer’s Society is today (2 July) launching a new campaign, Right to Know, to ensure people with dementia get a diagnosis and, following that, access to vital information, support and available treatments. The campaign is launched to voice concerns of people affected by dementia, with 97 per cent of respondents agreeing that the Government should do more to support people who have a dementia diagnosis. Sue Phelps, Director of Alzheimer’s Society in Wales, said: ‘Like entering a maze blindfolded, too many people with dementia are left without a guiding hand to help them come to terms with this debilitating, terminal condition. Welsh government has shown a commitment to improving the lives of people with dementia and to providing people with information packs at the point of diagnosis. However, we cannot escape the varied level of support received following a diagnosis which leaves many vulnerable people adrift. People living with dementia tell us that with the right support they can live well. Alzheimer’s Society is here to support them, but a further bold commitment from Welsh government would be welcomed to reach all those in need. ‘We are urging the Government to ensure that every person diagnosed with dementia has access to a named contact who can help them come to terms with the diagnosis and help them find the support they need to live their life.’ Wendy McCarthy Williams is from Ystradgynlais, her husband, Ivor Williams, was diagnosed with Alzheimer’s disease four years ago. Speaking about his diagnosis she said: ‘The GP’s initial response was that it was ‘just an old age thing’. It took about 18 months to get a diagnosis. There was nobody to talk to, nobody to discuss it with. We had next to no advice or support. It was frightening to feel so alone. I had to do most of my research online and then happened to pick up an Alzheimer’s Society leaflet at the hospital. I called them and since then everything has been so different. Having someone to guide and support us made it all a bit easier to understand and cope with.’ As well as improving postdiagnosis support provision, the charity is calling for: 66 per cent dementia diagnosis rate across all areas – with a commitment now to reach 75 per cent by 2017. No one to wait longer than 12 weeks from seeing their GP to diagnosis A guarantee that everyone has access to a Dementia Adviser or equivalent following a diagnosis Of the 45,500 people in Wales living with dementia, less than half (39 per cent) currently have a formal diagnosis meaning there could still be another 27,868 people in Wales who are living with the condition but who are not diagnosed. Furthermore, according to figures reported as part of the Quality and Outcomes Framework, Wales has the lowest national diagnosis rate in the UK. ‘Many people in Wales face daily challenges whilst living with dementia. It’s disgraceful to think nearly two thirds of them have an added fight, to get a diagnosis. Everyone with dementia has a right to know. To have access to the certainty of a diagnosis and the right support to comes to terms with and manage the condition should not depend on your postcode,’ added Sue Phelps.

Community

Pembrokeshire firefighters help deliver fire engines to Ukraine

Published

8 hours ago

May 7, 2024

Tom Sinclair

FIRE services from across the United Kingdom have rallied together to donate vital firefighting equipment to Ukraine, amidst ongoing conflicts that have seen local fire stations and firefighters come under direct attack.

The Mid and West Wales Fire and Rescue Service (MAWWFRS) was at the forefront of this international goodwill effort, donating three fire appliances and dispatching nine of their personnel to ensure safe delivery.

The initiative, coordinated by Fire Aid UK, involved a total of 11 UK fire services. Over a grueling 5.5-day journey that spanned several countries—starting from Kent Fire and Rescue Service and moving through France, Belgium, the Netherlands, Germany, and into Poland—33 fire appliances were transported to a location just 20 miles from the Ukraine border. They left Kent on April 23.

This convoy, laden with not just fire engines but also 3000 items of critical firefighting gear including cutting equipment, fire hoses, first aid kits, and generators, was a sight of resilience and humanitarian commitment. Watch Manager Rob MakePeace, a Business Fire Safety Officer, and Watch Manager Keith Jenkins, who is retired but still oversees part-time personnel at Haverfordwest, played pivotal roles in the operation from Pembrokeshire.

Speaking on the experience, Keith Jenkins expressed the profound impact of the mission, “It was a fantastic experience to be involved in. The convoy itself was an amazing sight, but the people we met, places we stayed and the reason we were delivering the appliances was something we will remember for a long time.”

The donation comes at a critical time for Ukraine, where daily attacks have not only jeopardized the lives of local firefighters but have also devastated much of the essential infrastructure needed to fight fires effectively. The additional appliances and equipment from the UK are expected to significantly bolster the capabilities of the Ukrainian fire departments, providing them with the necessary tools to save lives and protect property under dire circumstances.

This act of generosity and the strenuous efforts by the UK firefighters underscore a deep commitment to aiding those in peril, transcending borders and showcasing the best of international cooperation and humanitarian assistance.

Community

Final ‘Stop the Stink’ protest planned for County Hall

Published

10 hours ago

May 7, 2024

Tom Sinclair

RESIDENTS of Haverfordwest are gearing up for a pivotal demonstration outside the Pembrokeshire County Council at County Hall, scheduled for Thursday, May 14th. The protest, named “Stop the Stink,” aims to press the council and Natural Resources Wales (NRW) into action against the ongoing environmental issues at the Withyhedge landfill site.

From 9:00 to 10:30 AM, community members, environmental activists, and concerned citizens plan to converge on the steps of the county building to make their voices heard before the NRW’s critical deadline. This date marks when the landfill operators are required to complete necessary remediation efforts to prevent toxins from leaking into the local environment.

Colin Barnett, the organiser of the demonstration, highlighted the importance of the protest. “This gathering is crucial. It’s our final chance to influence the council’s decisions and push for real change before the deadline. Our community deserves a safe and healthy environment, and we must hold those responsible accountable,” Barnett stated.

The Withyhedge landfill has been the subject of intense scrutiny following reports that harmful toxins could be escaping into the surrounding areas, posing significant health and environmental risks. Despite ongoing investigations and some interventions by NRW, public trust remains low regarding the effectiveness and transparency of the measures implemented so far.

Demonstrators are expected to display signs with messages such as “Protect Our Children” and “No More Toxins,” calling for immediate and effective action. The protest aims to ensure that the community’s concerns are not only heard but acted upon with urgency.

As the May 14th approaches, the stakes are high for the residents of Haverfordwest, who are calling for decisive and immediate action from their local leaders.

This final “Stop the Stink” protest represents a critical moment in their ongoing fight for a cleaner, safer environment.

Community

St. Katharine’s Stratford Players’ Easter pantomime raises £1,000

Published

10 hours ago

May 7, 2024

Tom Sinclair

THE St. Katharine’s Stratford Players’ Easter Pantomime, Aladdin, dedicated to the memory of lifetime member Viv Barrat, is a shining example of collectives power of collective action and the unwavering generosity of community spirit.

The resounding success of the pantomime, raising an impressive £1,000 including Gift Aid for the Paul Sartori Foundation, is not merely a financial achievement but a symbol of solidarity and compassion. This remarkable feat underscores the deep-rooted commitment of this community to support vital services such as Paul Sartori’s Hospice at Home service, which provides comfort and care to those facing challenging times at the end of life and their family and carers.

At the heart of this success lies the tireless dedication and boundless enthusiasm of the volunteers, organizers, and supporters of St. Katharine’s Stratford Players. Their selfless efforts have not only surpassed the expectations of the event but have also touched the lives of countless individuals in our area, offering support where it is needed most.

As we reflect on the impact of this initiative, it becomes evident that the true measure of success lies not only in the funds raised but in the sense of community, of which Viv Barrat played the biggest part.

“Viv was the heartbeat of the St Katharine’s Stratford Players, an inspiration, mentor, and friend to many. With over 40 years with the drama group, Viv lead the group from strength to strength. A dedicated and committed member of the group inspiring a generation of local talent, advocating for the youth and creating a safe and inclusive community for us all. As a drama group, we are truly heartbroken, Viv was our Matriarch, our friend, our Viv!”

The Paul Sartori Hospice at Home Service extends its heartfelt thanks to everyone who contributed to the success of the St. Katharine’s Stratford Players’ Easter Pantomime.

Your generosity, kindness, and dedication have made a difference in the lives of others, inspiring hope and resilience in our community. Together, we have shown that even in the face of adversity, the human spirit shines brightest when we stand together in support of one another.