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Politics

It shouldn’t happen to a Health Minister

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Angela Burns: Slated 'supercilious' and 'arrogant' First Minister

IT’S NOT easy being a Welsh Government Minister.

There are so many new words to learn when you get into office and so many old ones to forget.

For example, take the word ‘cut’. It’s a very simple three letter word. But once you become a Welsh Government Minister, you are not allowed to use it.

Instead, at least as far as Welsh Government policies go, the word ‘cut’ has to be replaced with the far more unwieldy ‘transformation’ or the two-word mouthful ‘transformational change’.

ANGRY ANGELA ATTACKS

As you will see elsewhere in this newspaper, Hywel Dda UHB – to nobody’s surprise – has been caught on the hop by people discovering that when it talks about ‘transforming clinical services’ it means ‘cuts and closures’. You could argue that cuts are in themselves transformational, at least in the same way that being guillotined was transformational for the French aristocracy.

On Wednesday​ (Jan 24)​, Vaughan Gething was faced with a barrage of topical questions, which he confronted with the enthusiasm and delight of Louis XVI on his final journey to Place de la Révolution.

You wouldn’t want to get on the wrong side of Angela Burns, the Carmarthen West and South Pembrokeshire AM who speaks for her party on Health in the Senedd.

Crikey Moses! After a brief initial question, she tore into the Health Board, the Welsh Government, the First Minister, Labour backbenchers, Mr Gething and almost managed to get to Uncle Tom Cobley and all in a positively breathless display of genuine outrage.

Picking up a copy of the Parliamentary Review of Welsh Health Services, unanimously backed by Senedd members the previous week, she handled it between two fingers as though it was a particularly badly soiled nappy.

It was quite bad enough, Mrs Burns said, for the First Minister and his backbenchers to behave in a supercilious and arrogant fashion towards members raising their constituents’ concerns, it was quite another to obtain cross party agreement on the strategic direction of Welsh health services and then ignore the very principles that underpin it.

Mr Gething got to his feet and momentarily looked shell-shocked. Unlike the First Minister, there were almost no Labour members present to prop him up, bray, and snipe at the opposition with sarcastic remarks. However, the Cabinet Secretary is nothing if not smooth and polished. More than capable of bandying around banal generalities, Mr Gething soon adjusted himself into his usual smooth delivery of assurances about ‘meaningful consultations’.

Demonstrating the same sort of faulty memory that could yet come to unglue his leader, Vaughan Gething continued by saying that his boss had not been in any way supercilious.

Mr Jones’ stock in trade is supercilious.

Perhaps Mr Gething had not been paying attention; because having watched the previous day’s First Minister’s Questions and the business statement which preceded Mrs Burns’ questions, you would have to say that Mrs Burns had it pretty much nailed on.

ASK ME NO QUESTIONS

It didn’t get much better for Mr Gething, despite his stream of soothing words and assurances of good intentions. There used to be a saying that you couldn’t knit fog. Well, you certainly couldn’t weave whole fabric out of Mr Gething’s non-answers.

Mr Gething was very clear that he couldn’t answer direct questions because of protocol and the risk that he might have to make final decisions on a consultation which had not yet started. Which was very odd, because the previous day Carwyn Jones had decided he wouldn’t comment because the consultation was ‘open’. Open or closed, Mr Gething was prepared to fall back on the ‘all changes are difficult’ line. As an alternative tack, he attempted a switch to ‘difficult choices have to be made’.

So often did he repeat these lines, or variations on them, that it appeared as though poor Mr Gething had got stuck in one of those time loops beloved of science fiction programmes that need to create a cheap episode to make up for blowing the make-up budget on Slurb the Invincible or some such in a preceding one.

WHERE’S HELP WHEN YOU NEED IT?

Paul Davies had a go after Mrs Burns. Mr Davies doesn’t really do splenetic outrage, but he was clearly peeved – testy even. In a calm and measured way, he berated the Health Board for even proposing, never mind contemplating the closure of Withybush Hospital.

In response, Mr Gething tried a different tactic. While he appreciated that local sentiment was strong, it would be the same across Wales as tough decisions – hard choices – had to be made everywhere across the nation. This was, Mr Gething suggested, a national issue.

Mr Gething’s words would have had more weight on that score had he been accompanied by members of the Welsh Assembly from his own party. Apart from Mark Drakeford seated to his right, Mr Gething appeared terribly alone. The rest of the chamber was devoid of a Labour presence, demonstrating just how seriously west Wales’ concerns were being taken by all those south Wales AMs upon which the party depends for its majority.

Simon Thomas, incongruously seated next to Neil Hamilton, was next to tackle Mr Gething’s dead bat defence.

Pointing out the way in which the First Minister had sought to use the Parliamentary Review in an effort to deflect either criticism or inquiry, Mr Thomas told the Cabinet Secretary that the review was published too late to influence any proposals advanced by Hywel Dda.

After ungallantly pointing out that Labour’s candidate in the 2015 General Election, Paul Miller, had stood on a platform of restoring the paediatric services to Withybush – which had been removed temporarily without consultation – and had still not returned, he suggested this was the opportunity to test the strength of the Parliamentary Review’s framework.

NO STOPPING A CONSULTATION

Mr Gething lost his way a little as he said it wouldn’t be right for him ‘to attempt to instruct’ the health board to stop its consultation now. That would be the consultation that has not started, as the Cabinet Secretary had previously made clear just minutes before.

Difficult conversations needed to be had, tough choices had to be made, and the public would be properly engaged in the process of helping to make those tough choices after taking part in those difficult conversations.

You could see the cogs clicking away as Mr Gething spun new golden platitudes out of old strawmen.

Joyce Watson, whose support for retaining services in the past was less than fulsome, said it was very important that the public was told Withybush was not closing immediately. As this had never been suggested anywhere, it was hard to see what point Joyce Watson was trying to make; but having been thrown a life preserver, Mr Gething clung to it. He agreed that there was no plan to close Withybush in the immediate future. A relief for those attending outpatients next week to have their bunions filed.

Mr Gething then proceeded to point out that other hospitals were also mentioned in the options that had been leaked and that there could be those hard conversations and tough choices to be made in respect of them. But never mind, there would be a genuine and meaningful consultation and, if not, there would be a meaningful and genuine one. That’s what he expected the Board to do. Although, of course, he couldn’t tell them that was what was needed, because he might end up having to make one of those difficult choices after hard and tough conversations.

HAMILTON’S FORK

Neil Hamilton was next. Reaching for his pantomime pitchfork, he rather nastily skewered the Cabinet Secretary on its tines.

Remarking on Mr Gething’s status as the government’s fire blanket for successive health board failings everywhere, he posed the rather more difficult question of whether the threat to Withybush could be boiled down to death by a thousand cuts?

Tellingly, he suggested: “It must be regarded as a ridiculous proposal to close Withybush—even in contemplation in the medium term, let alone the short term. The health board should, when it produces the list of options for people to discuss, avoid causing unnecessary alarm and consternation by producing extreme proposals that are not going to be followed through.”

He then rather neatly suggested the real problem was a complete lack of accountability in the health service. Community Health Councils, Health Boards, were not elected bodies and the truth was that everything ended up on the Health Secretary’s desk. ‘People on the ground feel they have no voice at all,” Mr Hamilton said.

Vaughan Gething could see the home stretch coming.

There would be a meaningful conversation about tough choices in a difficult consultation, in which the views of clinicians would be heard as well as those of the public. It would be rather mean to point out that there is a difference between hearing and listening.

Particularly as those conversations will be tough, difficult, hard, meaningful, and genuine.

Then Mr Gething concluded on a point that he must now be grateful he did not open with.

Concluding he volunteered​,​ he didn’t want to be in the position in the future where the Government will be asked​:​ ‘Why didn’t you do something about a part of the service that really has gone wrong?’

That remark rather fortunately leaves the question unasked as to what all the previous tough choices after hard conversations and meaningful consultations over the last twelve years were actually for.

That would be a difficult – if not unanswerable – question.

Farming

‘Poor decision’ New Creamston housing condition overturned

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A “POOR DECISION” agricultural worker-only imposed nearly 40 years ago has been removed from a Pembrokeshire property by county planners.

In an application recommended to be approved at the December meeting of Pembrokeshire County council’s planning committee, Tim and Cathy Arthur sought permission for the removal of an agricultural worker-only condition at New Creamson, Creamston Road, near Haverfordwest.

An officer report for members said the agricultural condition was imposed when the dwelling was built in 1988/89, with a later certificate of lawful development granted this year after it was proven the site had been occupied for more than 10 years on breach of that condition.

An application for a certificate of lawfulness allows an applicant to stay at a development if they can provide proof of occupancy over a prolonged period.

Speaking at the meeting, agent Andrew Vaughan-Harries of Hayston Developments & Planning Ltd told members the original agriculture-only condition was a poor decision by planners back nearly four decades ago.

“When this application was made in 1988-89 we go back to the Preseli District Council – I was still in school – it was only a 50-acre farm, it should never have been approved as it shouldn’t have been viable.

“The current applicants have owned it for the last 20 years; they’ve tried to grow apples but couldn’t make a go of it and then went in to holiday lets. We can’t enforce redundant conditions from bad decisions made years ago.”

Approval was moved by Cllr Brian Hall and unanimously supported by committee members.

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Health

‘We are on our own’: Unpaid carers forced to ‘beg’ for support

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UNPAID carers are being left to “pick up the pieces” of a broken system due to a lack of respite, unsafe hospital discharges and carer’s assessments that result in “nothing at all”.

The warning came as the Senedd’s health scrutiny committee began taking evidence for an inquiry on access to support for more than 310,000 unpaid carers across Wales.

Chris Kemp-Philp, from Newport, who has been a carer for 33 years, gave up her career to become a full-time carer after her husband medically retired from the civil service in 1990.

Ms Kemp-Philp, whose husband died in April, told today’s (December 4) meeting: “I thought he’d been really badly treated… The last four months of his life were dreadful for both of us.”

She was only offered an updated carer’s needs assessment – a right under the 2014 Social Services and Wellbeing (Wales) Act – the day after her husband died.

Ms Kemp-Philp did not realise she had become a carer at first. “But, of course, having lost two incomes and to survive on a half civil service pension wasn’t great,” she said.

She told the committee how the couple “shielded” during the pandemic, saying: “For the past five years, basically, apart from going to a hospital or… a medical facility – I didn’t leave the house because if I’d have gone out, I could have brought something home.

“So, we spent five years literally avoiding people. The experience was unpleasant, I had two great-grandchildren born in that time and I only saw them on video.”

Ms Kemp-Philp said her husband was “pingponged” back and forth after unsafe discharges from hospitals in Gwent. He was put in a car by two nurses then she had to get him out on her own at the other end, with clinicians effectively telling her: it’s your problem now.

“Every time he was sent home, nobody came to help at all,” she said, explaining how she struggled to cope and her husband’s death brought a tragic sense of relief.

Judith Russell, who moved back to Wales to care for her mother 23 years ago, told Senedd Members the responsibility grew greater over the years.

Carer Judith Russell
Carer Judith Russell

Ms Russell, whose mother died last Saturday on the eve of her 102nd birthday, told the committee: “It’s been my privilege to care for her but I wish other people—I wish there had been more actual care for her. That’s it.”

Ms Russell also cares for her husband who has Alzheimer’s disease, acts as guardian for her disabled sister and cooks every week for her sister-in-law.

“It’s quite a responsibility,” she said. “My life is taken up with caring. I didn’t actually know I was a carer, I cared for my mother because she was my mother – I looked after her, of course I did – and it wasn’t until about three years ago that I identified as a carer.”

Ms Russell warned: “All through this last 23 years, I’ve had to fight and struggle to find things out… there’s very, very little help out there.”

She said she was given a carer’s assessment earlier this year but “there was nothing they could offer me, quite frankly – nothing at all”.

Ms Russell told Senedd Members: “We had a diagnosis [but] there’s no offer of help, there are no directions to find help, somebody to point you – you should be doing this, this is available, that’s available – nothing, you’re on your own completely.”

She joined the Bridgend carers’ group which opened a door to other people grappling with the same weight of responsibility and helped navigate the system. Ms Kemp-Philp added that joining a similar peer support group saved her life.

Ann Soley, who is originally from France and has been living in Wales for eight years, described how life was turned upside down when her British husband had a stroke.

Ann Soley

She said: “We are stressed, we are lost. A lot of carers have lost their friends, that is just unbelievable for me because I realised society is not there – there is no compassion.”

Kaye Williams, who works at Bridgend carers’ centre and is herself a carer, warned the witnesses’ experiences are commonplace across the country.

Sue Rendell, from Caernarfon, has cared for her husband who has vascular parkinsonism for nearly 14 years and was waiting for a doctor to call as she gave evidence remotely.

She told the committee: “You go in in the morning to see if he’s still breathing to be honest. We’re at the later stages of his disease and it’s physically demanding, it’s mentally demanding and it’s administratively difficult as well… it’s just very wearing.”

Ms Rendell, who was shattered after a late night caring, said she has tried to get respite but has been told there’s nothing available in Gwynedd nor Anglesey for her loved one’s needs.

She told the committee unpaid carers in Wales are “expected to pick up the pieces” but “nothing much happens” after an assessment. “Fine words butter no parsnips,” she said.

Ms Russell added: “As carers, we save the government millions… and I asked for some help this week actually. I’m 258th on the list for a hip replacement… and I asked the doctor: as a carer, couldn’t I possibly go up the list a little bit? ‘No, we’re not allowed to do that.’

“It’s the only thing I’ve ever asked for.”

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Education

‘Sink or swim’: Young carer sat exam hours after 3am hospital ordeal

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A TEENAGE carer sat a GCSE exam only hours after getting home from a hospital at 3am following a family emergency, a Senedd committee has heard.

The warning came as witnesses highlighted a “sink-or-swim” reality where children as young as three are taking on caring roles while feeling invisible to schools and social services.

Elektra Thomas, 15, who cares for her autistic, non-verbal brother and her epileptic sister, was part of a remarkable and articulate trio of teenagers who gave evidence to a new health committee inquiry on access to support for unpaid carers today (December 4).

The teenager helps her brother Blake get ready for school in the morning and helps him communicate by acting as his voice, which she has done since about three years old.

Ms Thomas told Senedd Members her sister has two children, “so I’m either handling her having a seizure, running around with her medication… or I’m looking after her kids”.

She said: “I’ve been having school assessments at the same time she’s had a seizure. I’ve been in ambulances waiting for her to get into a hospital while also studying.”

Ms Thomas explained how she is unable to focus on her schoolwork if her brother has had an overwhelming day. “I can’t focus on myself and I don’t have time for myself,” she said.

The teenager, who is from Carmarthenshire, described how she was once in hospital until 3am then sat a test – which went towards her GCSE grades – that same day.

Ms Thomas warned young carers do not have time to manage their own mental health, saying: “I didn’t have time for myself, I had time for my brother and sister and that was it.”

She said: “As a young carer who wasn’t noticed for a decade, it was pure manic: I had no coping skills, I had no support – and this has been going on since I was about three or four.”

Ffiôn-Hâf Scott, 18, from Wrexham, who is working while studying in sixth form, has similarly been a carer since she was four years old.

“I used to care for my mum and my sister,” she told the committee. “My sister used to be in a psychiatric ward, she was there for seven years.

“And I care for my mum because she’s diabetic, classed as disabled, has a long list of mental health issues, she has in the past suffered a stroke and had cancer.

“I don’t know how she’s still standing.”

Young carer Ffiôn-Hâf Scott
Young carer Ffiôn-Hâf Scott

Ms Scott said: “The main challenge right now is looking after myself and learning that you actually have to keep yourself afloat… to keep looking after someone else.

“I think for a very long time I ran on nothing because of my caring role or I didn’t think about the things I needed to do for me, so respite and things like that.”

The Welsh Youth Parliament member warned a lack of support for young carers has been normalised, saying she has had to explain herself 70 different times while aged 12.

Ms Scott said: “I remember going to my teacher and saying – we had a piece of coursework – look I can’t do this right now… you’re going to have to fail me…

“Their response was just ‘well, you have too much on your plate and you need to take things off your plate’ and I was like: it’s very bold of you to stand where you’re stood and say that to me because it’s not a choice to take on the things that we do take on.”

She recalled receiving a phone call about her mum collapsing moments before a maths test and expressed concerns about the prospect of mobiles being banned in schools.

Albie Sutton, 16, a young carer from north Wales, looks after his disabled mother by doing things such as cleaning the house, budgeting and cooking for the family every day.

Albie Sutton
Albie Sutton

Mr Sutton said: “It’s a real struggle for her to move around the house, to even do stuff like getting dressed or moving to the toilet by herself… so I’ve got to help her.”

The teenager estimated his caring role takes up about 25 hours a week and makes it difficult for him to pursue some of his hobbies such as competing in powerlifting.

“My mind feels like a hive of bees,” he said. “There’s so many things going in and out… I get home at the end of the day and I’m like ‘oh my God, I’ve got to do this, I’ve got to do that’.”

Warning of the mental stress, he added: “It’s also really difficult for me to socialise… I feel very isolated in my caring role, especially at home. I’m always housebound, I never get the opportunity even just to go out in my local town.”

Mr Sutton told Senedd Members it plays on his mind that his younger brother may have to take on responsibility. “It’s got me debating whether I can go to university,” he said.

He called for a Wales-wide campaign to raise awareness among educators and employers of the issues young carers face and how to recognise the signs.

Ms Thomas agreed: “I’ve had multiple teachers look at me and go ‘what’s a young carer, sorry?’. I’ve had pharmacists go ‘are you sure you’re a young carer?’ and it baffles me.”

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