News
Fighting for hope
SITTING IN her conservatory on a muggy July day, Chris Evans- Thomas looks anything but the determined campaigner who has no confidence in the Health Board’s promises about cancer day care in Pembrokeshire.
There is little sign of the inner steel that has motivated her to raise hundreds of thousands of pounds so that a cancer day unit could be built in Pembrokeshire. She is proud of all that Adam achieved in his short life and his legacy. A legacy felt nationally – by persuading the government to fund bone marrow match testing of blood donors – and locally by reaching out to Pembrokeshire people to help fund cancer care in Pembrokeshire. Recalling her son Adam, Chris becomes emotional as she recounts his struggle with leukaemia and his determination to help others survive the condition that claimed his life. “The important thing about the care Adam got was that – apart from acute care – it was all delivered locally. The staff at Withybush Hospital were excellent and provided the best that they could. It was important to Adam that he was amongst his family and friends when he received his treatment. “Adam would come in here and exercise and keep himself fit. I swear he ate his way through one lot of chemotherapy. He was a good-looking, fit lad. He crammed fifty years into the last few years of his life. He did so much. “Imagine having to travel in a hospital car to get chemotherapy treatment. You know it is likely to make you feel ill and there you are stuck with a four hour round trip to get it. That isn’t right. It is vital that those services are provided close to patients’ homes.” There it is, then. There is the determination and the motive that drives Chris Evans-Thomas on. “When I asked for the money back that was raised through the Bucketful of Hope appeal, I knew what I’d be up against. “When the Board told the media that the Bucketful of Hope fund was only £15,000 I was furious. That figure is clearly intended to trivialise the contributions made in good faith by people in Pembrokeshire towards the cost of providing decent cancer care services near their homes. “And what is more the Health Board knows – they must know – that the figure is not accurate. They must know that it isn’t the true position. And I will tell you how I know: Chris Martin [former Health Board Chair] told me – in front of others – a couple of years ago that if I wanted the money back – then a sum well in excess of a quarter of a million pounds – then he would arrange for it to be released to the charity. “He even handed me a piece of paper with the exact figure on it and asked me if I wanted the money back. “Then he went on to promise that the day unit would be built within twelve months. Fool that I was, I was taken in and told him that if the Unit was to be built so soon it would be better off used by the Board to fund that building. “Again and again, I have been in meetings with the members of the Board when this and that has been promised. I’ve sat in on any number of committee meetings. I’ve seen plans. I’ve heard all sorts of management-speak. I’ve been told all sorts of figures. Ten years on and not one brick has been laid, not one piece of carpet put down, not one patient has been treated in a new cancer day unit in Pembrokeshire. And now there has to be another consultation. “And in that time, in all those years since Adam started the ball rolling in Pembrokeshire, Carmarthen has not only had a new CDU, it has had improvements done to its new CDU. “When I saw that the Board had spent money on improving the then still new CDU in Carmarthen, I went ape! I banged the table and I demanded to know what the hell was going on. Did I get a proper answer? Did I hell as like! “I can still remember being told that no announcement could be made because there was an election coming up. That was 2010. Still no announcement. Only vague, airy-fairy promises that are always dependent on something or other. Look at the new Kidney Unit. Completed. Ready to go. Now I understand the Board is trying to get an external company to staff it. In the meantime, it’s a nice set of conference rooms. Or so I am told. I guess I will find out when I go to a meeting there at the end of the month.” She warms to her theme: “The Board shows no regard for Pembrokeshire or the work of all of the charities that aim to raise money. “Now people are directed not to give money to Ward Ten at Withybush, but to Pembrokeshire Cancer Services, the Board’s own fund. You see undertakers producing Orders of Service for funerals on which people are being directed to contribute to the Health Board’s own charity. “When the Board grabbed all the money raised in Pembrokeshire and changed it from being in a restricted fund to an unrestricted one, it gave itself carte blanche to do what it wanted with the cash. “The Board can say – and it has said – that it is acting within the rules set by the Charity Commission, but it is not acting within THE SPIRIT in which the donations were made by Pembrokeshire people for Pembrokeshire services. “I discovered that the Board had re-designated funds only when I asked to see the accounts. And those accounts don’t go back far enough to establish what the position was in 2004 and what Pembrokeshire’s share of the original charities pot was. There was £8.3m in that pot. How much of that was Pembrokeshire’s? I bet you it was a damn sight more than a third. “And what is worse, it is now using those charitable funds to provide core services instead of on extra services. Charity should not be about funding daily expenses for the Health Board. They get public money for that. Health charities are about providing the extras, the jam in the sandwich, if you like. Now the Board is using charity money to fund its own programmes, such as ‘Support for Life’. It has said in its own publications that its own charity needs to raise £2m a year. In can only do that by taking money away from other charities beyond its control. “If people want to make sure that their money is used as they or their loved ones intended, I would say give it to an external charity – and there are plenty of them – or give it to the League of Friends with instructions on what it is to be spent. At least then people will have some certainty that what they or their loved ones wanted with their money will be done.” Chris stops. We have been talking for a while, now. “The Board treats everyone in such a high-handed way. I went to a meeting recently and it seemed to me like the Board is using a language designed less to communicate than to confuse. Management-speak, jargon, call it what you want but it is all delivered in such a patronising tone. Prefacing comments with phrases like ‘I am a lawyer’ or ‘When I worked for the Welsh Assembly’ – implying that such is their status that you MUST accept what they say as gospel – is scarcely starting on the right foot. I took an accountant with me to the last meeting we had. That was an interesting experience. The Board didn’t like being challenged one bit. Chris flashes a quicksilver grin: “Now the Board is asking that I give them written notice of issues I want to raise with them at meetings.” She pauses again and smiles. “If they’re so smart, they can do their own homework. “After years of broken promises and everything always being pushed back, I feel like the Health Board has led me – and others like me – up the garden path. “There is so much that we can do – outside the Health Board – to target support and services in the place where people gave their money and intended it to be spent. All I want is the chance to deliver what it has not. “No ifs, no buts: they’ve had the money and all they’ve done is sit on it. It’s time to use it in Pembrokeshire.”
News
New 45-metre wind turbine set to be built near Fishguard
A CALL to replace a Pembrokeshire community wind turbine which has raised more than £76,000 for local groups with a larger one has been backed despite a recommendation to refuse.
In an application before Pembrokeshire County Council’s planning committee meeting of January 14, Abergwaun Community Turbine Ltd, through agent Machynlleth-based Dulas Ltd sought permission for a larger turbine to replace the existing Abergwaun Community Turbine.
The proposed turbine, in a pasture field at Trebover Farm, to the south of Fishguard, would be 67m tall, the existing 2015 one being 45 metres.
In supporting statements, parent company Transition Bro Gwaun said: “The Community Climate Fund (CCF) is the mechanism by which Transition Bro Gwaun (TBG) is fulfilling our ambition of funding projects in Fishguard, Goodwick and across North Pembrokeshire, using income from the community wind turbine.
“The core themes for grants are climate change mitigation and adaptation, enhancement of biodiversity and improvements to community resilience through promotion of community engagement and resource sharing.”
Profit generated by sale of electricity from the turbine is split 50:50 between TBG and Parcy-Morfa Farms Ltd through the jointly-owned trading arm, Abergwaun Community Turbine, with community grants awarded through TBG’s Community Climate Fund, amounting to £76,036 to date.
2024 awards of £20,917 were made to six projects, including Theatr Gwaun, Parc Cerrig Growers, Caerhys Organic Community Agriculture, and Nevern Valley Veg.
The scheme was recommended for refusal on the grounds including “significant detrimental visual impact” on the area, “including areas of high sensitivity in the Pembrokeshire Coast National Park and in Fishguard,” on the Conservation Areas of Goodwick, Fishguard and Lower Town, Fishguard.
At the January meeting, local member Cllr Jordan Ryan made a call for the scheme to be approved against officer recommendations: “I think it’s a good application, I think it’s good for Pembrokeshire; a single wind turbine isn’t going to affect people in the area too greatly.”
He was backed by Cllr Alistair Cameron, who said he supported the scheme due to “the need to tackle climate change and the economic benefit to the area,” adding: “We have to accept some visual consequences from that, that’s the reality we are in.”
Another in support was Cllr John T Davies, himself the owner of a windfarm scheme, who pointed out the existing turbine was granted on appeal, with any refusal of the latest scheme potentially being overturned by a planning inspector.
The committee’s unanimous backing of the proposal takes the form of a ‘minded to’ support, meaning the proposal will return after a ‘cooling-off’ period to a future meeting as it is against an officer recommendation, and, if supported a second time, will ultimately have to be decided by full council at a later date.
News
Landslides close section of Pembrokeshire coastal path once again
A SECTION of a south Pembrokeshire beach-side coastal path has been closed once again after a number of landslips in the last week.
The fall happened towards the western end of the Wisemans Bridge to Coppet Hall cycleway, between the Coppet Hall and Wisemans Bridge tunnels, and affects access between Wisemans Bridge and Coppet Hall beach.
The top path remains open.
Pembrokeshire County Council’s geotechnical advisor has recommended that the path be closed until a remedial solution can be implemented.
A council spokesperson said: “Given that we are in the middle of winter, there are a number of triggers that could reactivate the partially failed sections of the rock mass, such as frost and heavy rain in the short term – and the likelihood of rock fall reaching the path is high.
“The Authority has engaged a specialist to assess the cliff face where a detailed survey of the slope will be undertaken to determine the nature and depth of the rock fall. This will allow the design of remedial works, which could include removal and regrade of the rock fall, plus the installation of a catch fence.
“A review into the rock fall and necessary remediation work, which is subject to affordability, will now be evaluated. This is likely to take a number of months.”
The coastal path, known as the Tramway, was previously closed after it experienced ‘substantial rock falls’ in late 2023 and early 2024
Last March Pembrokeshire County Council’s Cabinet backed works expected to cost some £600,000, with a hoped-for finish date of the start of the summer holidays.
Reopening was delayed until early August “as a consequence of additional works required, including the occurrence of another landslip along the path,” with additional remedial works needed.
During last year’s works, local councillor Chris Williams hit out at “selfish” path users putting others at risk by repeatedly cutting open safety barriers and fencing while the repair works were being undertaken.
Barriers and warning signs were put in place at the entrance to the ‘short tunnel’ – the first of the two which lead from Coppet Hall to Wisemans Bridge, along with fencing on the Wisemans side.
But because the signs have been ignored by some people, along with damage caused, a gate was put in place on the Coppet Hall side.
Fencing on the opposite side was also targeted, with a hole cut through.
Education
New resource to support Welsh medium pupils
EDUCATION researchers have published a special booklet to support pupils in Welsh medium schools from homes where the language is not spoken.
Entitled Partner, Promote and Provide, the booklet was co-created in workshops led by Aberystwyth University which brought together education partners from Ceredigion and Powys, with input from parents and pupils.
It builds on a series of research studies by the School of Education which began during the Covid-19 lockdowns in 2020 and which explored the impact of the pandemic on pupils along with the additional challenges facing Welsh-medium schools in extending support to children from non-Welsh-speaking homes.
Dr Siân Lloyd-Williams Director of Research at Aberystwyth University’s School of Education, said:
“Based on the studies we carried out between 2020 and 2024, it was clear we needed to continue the work so that we could evaluate, identify and measure the impact of our recommendations on supporting non-Welsh speaking families.
“We set out to organise a series of workshops, bringing together representatives from the local education authorities, teachers, parents and others to hear their experiences and gather evidence. As a result, we have co-created a special booklet that teachers can use to support pupils from non-Welsh-speaking homes who attend Welsh medium schools.”
Another member of the research team at Aberystwyth School of Education, Dr Rhodri Aled Evans, said:
“This is an example of effective and purposeful collaboration between academics and practitioners on the ground. We hope this booklet, together with the recommendations of our previous studies, will be a valuable resource for the education sector and beneficial for teachers, pupils and families alike.”
The Director of Education for Ceredigion County Council, Elen James, said:
“It has been extremely valuable to collaborate with the University’s researchers to create dedicated resources that offer practical help on how to further improve the experiences of Welsh-medium pupils from non-Welsh speaking homes. This work is important and an excellent starting point for further collaboration. We look forward to developing the project further in the future.”
The Partner, Promote and Provide booklet was launched at a training event for teachers held at the University on 16 January 2025 and can be downloaded from the University’s website as a PDF or hard copies can be sent on request.
Pictured: L to R: Susan Ferguson (Research Impact and Knowledge Officer, Aberystwyth University), Prysor Davies (Interim Head of the School of Education, Aberystwyth University), Dr Rhodri Evans (Lecturer in Education, Aberystwyth University), Rhiannon Salisbury (teacher), Alwyn Ward (Ceredigion County Council)
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Naomi Wade- Jones
July 29, 2014 at 6:03 pm
Appalling, beyond belief. Chris is obviously suffering so much as a result of the unbelievable way the stupid(and words much worse than that) health board has behaved. Their genuine lack of concern is evident. Where do they think they are coming from, shame on them, each and every one concerned.