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Fighting for hope

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nhsSITTING IN her conservatory on a muggy July day, Chris Evans- Thomas looks anything but the determined campaigner who has no confidence in the Health Board’s promises about cancer day care in Pembrokeshire. 

There is little sign of the inner steel that has motivated her to raise hundreds of thousands of pounds so that a cancer day unit could be built in Pembrokeshire. She is proud of all that Adam achieved in his short life and his legacy. A legacy felt nationally – by persuading the government to fund bone marrow match testing of blood donors – and locally by reaching out to Pembrokeshire people to help fund cancer care in Pembrokeshire. Recalling her son Adam, Chris becomes emotional as she recounts his struggle with leukaemia and his determination to help others survive the condition that claimed his life. “The important thing about the care Adam got was that – apart from acute care – it was all delivered locally. The staff at Withybush Hospital were excellent and provided the best that they could. It was important to Adam that he was amongst his family and friends when he received his treatment. “Adam would come in here and exercise and keep himself fit. I swear he ate his way through one lot of chemotherapy. He was a good-looking, fit lad. He crammed fifty years into the last few years of his life. He did so much. “Imagine having to travel in a hospital car to get chemotherapy treatment. You know it is likely to make you feel ill and there you are stuck with a four hour round trip to get it. That isn’t right. It is vital that those services are provided close to patients’ homes.” There it is, then. There is the determination and the motive that drives Chris Evans-Thomas on. “When I asked for the money back that was raised through the Bucketful of Hope appeal, I knew what I’d be up against. “When the Board told the media that the Bucketful of Hope fund was only £15,000 I was furious. That figure is clearly intended to trivialise the contributions made in good faith by people in Pembrokeshire towards the cost of providing decent cancer care services near their homes. “And what is more the Health Board knows – they must know – that the figure is not accurate. They must know that it isn’t the true position. And I will tell you how I know: Chris Martin [former Health Board Chair] told me – in front of others – a couple of years ago that if I wanted the money back – then a sum well in excess of a quarter of a million pounds – then he would arrange for it to be released to the charity. “He even handed me a piece of paper with the exact figure on it and asked me if I wanted the money back. “Then he went on to promise that the day unit would be built within twelve months. Fool that I was, I was taken in and told him that if the Unit was to be built so soon it would be better off used by the Board to fund that building. “Again and again, I have been in meetings with the members of the Board when this and that has been promised. I’ve sat in on any number of committee meetings. I’ve seen plans. I’ve heard all sorts of management-speak. I’ve been told all sorts of figures. Ten years on and not one brick has been laid, not one piece of carpet put down, not one patient has been treated in a new cancer day unit in Pembrokeshire. And now there has to be another consultation. “And in that time, in all those years since Adam started the ball rolling in Pembrokeshire, Carmarthen has not only had a new CDU, it has had improvements done to its new CDU. “When I saw that the Board had spent money on improving the then still new CDU in Carmarthen, I went ape! I banged the table and I demanded to know what the hell was going on. Did I get a proper answer? Did I hell as like! “I can still remember being told that no announcement could be made because there was an election coming up. That was 2010. Still no announcement. Only vague, airy-fairy promises that are always dependent on something or other. Look at the new Kidney Unit. Completed. Ready to go. Now I understand the Board is trying to get an external company to staff it. In the meantime, it’s a nice set of conference rooms. Or so I am told. I guess I will find out when I go to a meeting there at the end of the month.” She warms to her theme: “The Board shows no regard for Pembrokeshire or the work of all of the charities that aim to raise money. “Now people are directed not to give money to Ward Ten at Withybush, but to Pembrokeshire Cancer Services, the Board’s own fund. You see undertakers producing Orders of Service for funerals on which people are being directed to contribute to the Health Board’s own charity. “When the Board grabbed all the money raised in Pembrokeshire and changed it from being in a restricted fund to an unrestricted one, it gave itself carte blanche to do what it wanted with the cash. “The Board can say – and it has said – that it is acting within the rules set by the Charity Commission, but it is not acting within THE SPIRIT in which the donations were made by Pembrokeshire people for Pembrokeshire services. “I discovered that the Board had re-designated funds only when I asked to see the accounts. And those accounts don’t go back far enough to establish what the position was in 2004 and what Pembrokeshire’s share of the original charities pot was. There was £8.3m in that pot. How much of that was Pembrokeshire’s? I bet you it was a damn sight more than a third. “And what is worse, it is now using those charitable funds to provide core services instead of on extra services. Charity should not be about funding daily expenses for the Health Board. They get public money for that. Health charities are about providing the extras, the jam in the sandwich, if you like. Now the Board is using charity money to fund its own programmes, such as ‘Support for Life’. It has said in its own publications that its own charity needs to raise £2m a year. In can only do that by taking money away from other charities beyond its control. “If people want to make sure that their money is used as they or their loved ones intended, I would say give it to an external charity – and there are plenty of them – or give it to the League of Friends with instructions on what it is to be spent. At least then people will have some certainty that what they or their loved ones wanted with their money will be done.” Chris stops. We have been talking for a while, now. “The Board treats everyone in such a high-handed way. I went to a meeting recently and it seemed to me like the Board is using a language designed less to communicate than to confuse. Management-speak, jargon, call it what you want but it is all delivered in such a patronising tone. Prefacing comments with phrases like ‘I am a lawyer’ or ‘When I worked for the Welsh Assembly’ – implying that such is their status that you MUST accept what they say as gospel – is scarcely starting on the right foot. I took an accountant with me to the last meeting we had. That was an interesting experience. The Board didn’t like being challenged one bit. Chris flashes a quicksilver grin: “Now the Board is asking that I give them written notice of issues I want to raise with them at meetings.” She pauses again and smiles. “If they’re so smart, they can do their own homework. “After years of broken promises and everything always being pushed back, I feel like the Health Board has led me – and others like me – up the garden path. “There is so much that we can do – outside the Health Board – to target support and services in the place where people gave their money and intended it to be spent. All I want is the chance to deliver what it has not. “No ifs, no buts: they’ve had the money and all they’ve done is sit on it. It’s time to use it in Pembrokeshire.”

1 Comment

1 Comment

  1. Naomi Wade- Jones

    July 29, 2014 at 6:03 pm

    Appalling, beyond belief. Chris is obviously suffering so much as a result of the unbelievable way the stupid(and words much worse than that) health board has behaved. Their genuine lack of concern is evident. Where do they think they are coming from, shame on them, each and every one concerned.

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Charity

Tenby musical extravaganza raises over £1700 for Lifeboats

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TENBY was alive with the sound of music and community spirit this past weekend, as the Hay Shantymen delivered an unforgettable performance, raising approximately £1,700 for the Tenby lifeboat station.

Despite inclement weather, the event, held at the Tenby Brewing Co., saw a full house, with every ticket sold contributing directly to the lifeboat fund. The venue, known for its commitment to local causes and excellent beer, played host to an evening filled with lively shanties and heartfelt camaraderie.

John, a crew member from the Tenby Lifeboats RNLI, provided an “inspirational and mildly terrifying” tour of the lifeboat earlier in the day, further solidifying the community’s appreciation for the brave work of the RNLI volunteers. Mags, another lifeboat team member, was noted for her cheerful demeanour as she navigated the crowd with a donations card reader, ensuring everyone had a chance to contribute.

The Shantymen expressed profound gratitude to their audience and supporters on social media, stating, “Thanks so much to everybody who came to our gigs on Saturday. It was such a brilliant weekend, despite the weather’s best efforts.”

Unfortunately, the Shantymen had to cancel their planned busking in town on Sunday due to a combination of the bad weather and some very sore throats, much to the disappointment of both the band and their fans.

Feedback from the community was overwhelmingly positive, with many attendees sharing their joy on social media. Karen Gill, a local attendee, remarked, “Thought you were brilliant, really enjoyed listening to and watching you all, thank you!”

The event not only showcased the tight-knit community of Tenby but also highlighted the critical role that fundraising plays in supporting vital services like the RNLI. The Tenby Brewing Co. echoed this sentiment, expressing their delight at hosting the event and looking forward to more such gatherings in the future.

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Community

Community concerns grow after MOD’s ‘shambolic’ radar consultations

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PROTESTS erupted at the Ministry of Defence’s public engagement events in Solva and St Davids on September 13 and 14, with demonstrators criticising the proceedings as disorganised and insufficient.

The campaign group, PARC Against DARC, formed in May to oppose the installation of US military DARC radars at Brawdy, orchestrated significant turnout. Demonstrators maintained a consistent presence at the events, while PARC also hosted ‘The People’s Exhibition’ outside the venues, displaying objections to the proposed 27-dish radar array intended to enhance US military capabilities in space.

Attendees were equipped with ‘NO RADAR’ signs and many questioned the MOD representatives at the PR events. A PARC spokesperson reported widespread dissatisfaction among the public, describing the sessions as “utter shambles” where attendees received vague and conflicting responses from supposed experts. Concerns were amplified by an MOD official’s comment likening standing next to the radar to “putting my head in a microwave.”

Errors in local place names on invitation leaflets and non-committal responses regarding the construction’s impact, including potential increases in local traffic, further fuelled local unrest. Questions about the visual impact of the radars on the landscape were met with dismissive or uncertain answers.

The London PR firm Cascade, responsible for organising the events, was criticised for their handling of the consultations, with accusations of failing to adhere to the National Principles of Public Engagement in Wales. The firm was also unclear about their future public engagement strategy, asking for feedback on methods to employ, which raised questions about their preparedness and commitment to genuine engagement.

Amid the criticisms, the Ministry of Defence emphasised the strategic importance of the DARC project, known as the Deep Space Advanced Radar Capability. The initiative aims to secure long-term employment and enhance protection of essential satellite communication and navigation networks. According to the MOD, DARC will significantly benefit the AUKUS nations’ capacity to detect, track, and identify objects in deep space, thus bolstering safety and security in the Indo-Pacific region and globally.

Serious safety concerns were highlighted by unanswered questions regarding the radar’s radiation outputs and potential health implications, with nearly 4,000 studies cited by campaigners pointing to risks associated with high levels of radiofrequency radiation. Despite these concerns, the MOD withheld specific operational details, citing security reasons, with no assurance of public disclosure in future planning phases.

Further inquiries about necessary infrastructure upgrades, such as additional electricity pylons and the impact on local wildlife, were also left unanswered. The potential necessity for a new bypass road to support the project’s logistics was another point of contention, with community members doubting the feasibility of using current roads without significant disruption.

The MOD’s evasive responses have left many attendees dissatisfied, describing the consultation as rushed and confusing, with MOD representatives appearing defensive and at times dishonest. Critics argue that the MOD should replace Cascade with a Welsh organisation more in tune with local sentiment and capable of conducting thorough and transparent public engagement.

As the campaign against DARC intensifies, community members are encouraged to continue expressing their concerns and seeking accountability, with the aim of ensuring a more informed and considerate decision-making process by the MOD.

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Health

Ambulance error admitted in 999 call before Pembrokeshire mother’s death

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AN ERROR in handling a 999 emergency call made on Christmas Day has been admitted by the Welsh Ambulance Service Trust (WAST) at a recent inquest hearing, following the death of 40-year-old Pembrokeshire mother, Charlotte Burston.

At the pre-inquest hearing held on Friday (Sept 13), WAST acknowledged a critical mistake in responding to urgent calls for medical assistance. Representing WAST, Trish Gaskell stated, “An advanced paramedic practitioner would normally be allocated and should have been allocated to Ms Burston before she was conveyed to hospital. The trust has accepted that error.”

Deputy Coroner Mark Layton confirmed that all reports from WAST, including transcripts of the 999 calls, had been received. He announced plans to commission an independent expert to review the evidence and determine whether a different response from the ambulance service might have altered the outcome. “The expert will examine the evidence and ascertain whether a difference could have been achieved or not had the ambulance service’s response been different,” Mr Layton said.

Charlotte’s family has been left grieving after her death on New Year’s Eve, despite repeated attempts by her 15-year-old daughter, Ella, to call for medical assistance. On Christmas morning, Charlotte began experiencing severe tingling sensations in one of her arms—a potential warning sign of a cardiac event.

“I called 111 at 8:19 am; the call lasted 53 seconds, so I hung up because it was taking too long,” Ella recounted. “I then called 999 at 8:29 am, and the call lasted 41 minutes. The woman I spoke to refused to tell me how long an ambulance would take but just said that one would be arranged.”

Despite these urgent pleas, no ambulance arrived. As Charlotte’s condition worsened, Ella contacted her grandfather, Brian Laye, who lives in Clunderwen. He immediately drove to Llanteg, arriving to find his daughter drifting in and out of consciousness.

“Charlotte was lying on the sofa, struggling to breathe,” Mr Laye recalled. “We were told an ambulance wouldn’t be available for at least an hour and a half. With no time to lose, I decided to take her to Withybush Hospital myself.”

En route to the hospital, Charlotte suffered a major heart attack near Robeston Wathen. Upon arrival at Withybush General Hospital, she was placed on life support and later transferred to Morriston Hospital. Sadly, she never regained consciousness and was pronounced dead on New Year’s Eve.

A post-mortem examination concluded that the cause of death was hypoxic brain injury—a lack of oxygen to the brain resulting from the cardiac arrest.

“If an ambulance had got to Charlotte within 15 minutes of Ella’s first call, she’d still be with us today,” said Vincent Laye, the father of Charlotte’s daughters. “The pain and the grief that this has left us with is beyond explanation. Our girls have lost a mother who they relied on and who was their best friend.”

Mr Laye expressed deep frustration over what he perceives as systemic failures within the National Health Service (NHS) and WAST. “The bottom line is that the NHS has failed in providing the care that everyone pays for and that every one of us deserves,” he stated.

He added that while schools and local charities like the Sandy Bear Children’s Bereavement Charity are offering support, there has been “absolutely no support” from other authorities. “I truly believe that this awful death could have been prevented,” he said. “Somebody needs to be held accountable for what’s happened, to prevent this from happening to somebody else.”

The depth of the family’s loss was evident as over 150 people attended Charlotte’s funeral. “Our girls have lost a mother who was with them and who cared for them 24/7,” Mr Laye said. “The community around Llanteg has lost a woman who was greatly loved.”

This heartbreaking incident is not isolated. In a similar case, a man in Pembroke Dock died after reportedly waiting nine hours for an ambulance that failed to arrive in time. Despite multiple calls for help, medical assistance did not reach him promptly, leading to his untimely death.

Family members of the deceased have expressed profound grief and frustration, citing systemic issues within emergency services. “The pain we are experiencing is immeasurable,” a relative said. “No one should have to endure such a wait in an emergency.”

These successive tragedies have intensified public outcry over ambulance response times and resource allocation within WAST. Community leaders and residents are demanding urgent action to address these shortcomings to prevent further loss of life.

Liam Williams, Executive Director of Quality and Nursing at WAST, extended condolences to the Burston family. “We were deeply sorry to hear about Ms Burston’s passing and would like to extend our thoughts and condolences to her family on their sad loss,” he said. “A thorough investigation has begun, and we will be contacting Ms Burston’s family to invite them to participate in this process.”

Sonia Thompson, WAST’s Assistant Director of Operations, acknowledged the extreme pressures on the ambulance service due to wider NHS system issues. “Our ambulance service is under extreme and well-documented pressure as a result of wider system pressures across the NHS,” she noted. “We’re thinking very differently about the way we deliver services in future and are already testing some new ways of working across Wales to understand how we can relieve some of the pressure.”

The Welsh Government has stated that despite budget pressures, it is investing in same-day emergency care, extra community beds, and social care services to improve patient flow through hospitals. “We recognise the challenges faced by emergency services and are committed to supporting initiatives that enhance response times and patient care,” a spokesperson said.

Mr Laye emphasised that the issue extends beyond his family’s tragedy. “This is about every other person out there who deserves to be looked after when they are most in need,” he said. “The NHS and the local authority have failed us in a way that’s going to change our lives forever, and I’m refusing to allow this to be brushed aside.”

Local officials and healthcare advocates are calling for a thorough investigation into both cases, urging the Welsh Government to implement necessary reforms. The recurring nature of these tragedies underscores the urgent need for improved resource allocation, staffing, and operational protocols within WAST.

As the inquest proceeds, the Burston family and the wider community await answers. The repeated failures in emergency response have prompted calls for systemic reforms within WAST and the NHS in Wales. Without significant changes, the safety and well-being of the public remain at risk.

Ms Burston is survived by her two daughters, whose prompt actions highlight the critical importance of effective emergency services. The family’s plight serves as a stark reminder of the real-life consequences of systemic shortcomings in healthcare provision. Their hope is that by sharing their story, they can prevent similar tragedies from occurring in the future.

The next pre-inquest hearing is scheduled for January 17, where it is hoped that the details for the full inquest will be finalised.

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